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1.
Brain Inj ; 35(11): 1371-1381, 2021 09 19.
Artículo en Inglés | MEDLINE | ID: mdl-34529550

RESUMEN

OBJECTIVE: While prior studies have found parental socioeconomic status (SES) affects the outcomes of pediatric traumatic brain injury (TBI), the longitudinal trajectory of this effect is not well understood. METHODS: This prospective cohort study included children 8-18 years of age admitted to six sites with a complicated mild (n = 123) or moderate-severe TBI (n = 47). We used caregiver education and household poverty level as predictors, and multiple quality of life and health behavior domains as outcomes. Differences at 6, 12, and 24 months from baseline ratings of pre-injury functioning were compared by SES. We examined the association between measures of SES and domains of functioning over the 24 months post-injury in children with a complicated mild or moderate- severe TBI, and determined how this association varied over time. RESULTS: Parental education was associated with recovery among children with complicated mild TBI; outcomes at 6, 12, and 24 months were substantially poorer than at baseline for children with the least educated parents. After moderate-severe TBI, children in households with lower incomes had poorer outcomes compared to baseline across time. IMPLICATIONS: Parental education and household income were associated with recovery trajectories for children with TBI of varying severity.


Asunto(s)
Lesiones Traumáticas del Encéfalo , Calidad de Vida , Lesiones Traumáticas del Encéfalo/epidemiología , Niño , Humanos , Estudios Longitudinales , Padres , Pobreza , Estudios Prospectivos , Instituciones Académicas
2.
Ann Surg ; 266(2): 287-296, 2017 08.
Artículo en Inglés | MEDLINE | ID: mdl-27611609

RESUMEN

OBJECTIVE: The aim of this study was to develop and evaluate the content validity of quality criteria for providing patient- and family-centered injury care. BACKGROUND: Quality criteria have been developed for clinical injury care, but not patient- and family-centered injury care. METHODS: Using a modified Research AND Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Methodology, a panel of 16 patients, family members, injury and quality of care experts serially rated and revised criteria for patient- and family-centered injury care identified from patient and family focus groups. The criteria were then sent to 384 verified trauma centers in the United States, Canada, Australia, and New Zealand for evaluation. RESULTS: A total of 46 criteria were rated and revised by the panel over 4 rounds of review producing 14 criteria related to clinical care (n = 4; transitions of care, pain management, patient safety, provider competence), communication (n = 3; information for patients/families; communication of discharge plans to patients/families, communication between hospital and community providers), holistic care (n = 4; patient hygiene, kindness and respect, family access to patient, social and spiritual support) and end-of-life care (n = 3; decision making, end-of-life care, family follow-up). Medical directors, managers, or coordinators representing 254 trauma centers (66% response rate) rated 12 criteria to be important (95% of responses) for patient- and family-centered injury care. Fewer centers rated family access to the patient (80%) and family follow-up after patient death (65%) to be important criteria. CONCLUSIONS: Fourteen-candidate quality criteria for patient- and family-centered injury care were developed and shown to have content validity. These may be used to guide quality improvement practices.


Asunto(s)
Familia , Atención Dirigida al Paciente/normas , Indicadores de Calidad de la Atención de Salud , Centros Traumatológicos/normas , Heridas y Lesiones/terapia , Australia , Canadá , Competencia Clínica , Comunicación , Humanos , Nueva Zelanda , Manejo del Dolor , Educación del Paciente como Asunto , Seguridad del Paciente , Relaciones Profesional-Familia , Cuidado Terminal , Cuidado de Transición , Estados Unidos
3.
J Head Trauma Rehabil ; 29(3): 208-16, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-23835875

RESUMEN

OBJECTIVE: To examine variations in processes of pediatric inpatient rehabilitation care related to family-centered care, management of neurobehavioral and psychosocial needs, and community reintegration after traumatic brain injury. SETTING: Nine acute rehabilitation facilities from geographically diverse areas of the United States. PARTICIPANTS: A total of 174 children with traumatic brain injury. DESIGN: Retrospective chart review. MAIN MEASURES: Adherence to care indicators (the number of times recommended care was delivered or attempted divided by the number of times care was indicated). RESULTS: Across facilities, adherence rates (adjusted for difficulty of delivery) ranged from 33.6% to 73.1% (95% confidence interval, 13.4-53.9, 58.7-87.4) for family-centered processes, 21.3% to 82.5% (95% confidence interval, 6.6-36.1, 67.6-97.4) for neurobehavioral and psychosocial processes, and 22.7% to 80.3% (95% confidence interval, 5.3-40.1, 68.1-92.5) for community integration processes. Within facilities, standard deviations for adherence rates were large (24.3-34.9, family-centered domain; 22.6-34.2, neurobehavioral and psychosocial domain; and 21.6-40.5, community reintegration domain). CONCLUSION: The current state of acute rehabilitation care for children with traumatic brain injury is variable across different quality-of-care indicators addressing neurobehavioral and psychosocial needs and facilitating community reintegration of the patient and the family. Individual rehabilitation facilities demonstrate inconsistent adherence to different indicators and inconsistent performance across different care domains.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Adhesión a Directriz/estadística & datos numéricos , Guías de Práctica Clínica como Asunto , Indicadores de Calidad de la Atención de Salud/estadística & datos numéricos , Centros de Rehabilitación/normas , Adolescente , Niño , Preescolar , Integración a la Comunidad , Consejo , Familia , Femenino , Educación en Salud , Humanos , Lactante , Recién Nacido , Masculino , Indicadores de Calidad de la Atención de Salud/normas , Estudios Retrospectivos , Apoyo Social , Estados Unidos
4.
Brain Inj ; 27(2): 179-88, 2013.
Artículo en Inglés | MEDLINE | ID: mdl-23384215

RESUMEN

OBJECTIVE: To examine variations in processes of paediatric inpatient rehabilitation care related to school re-entry and management of cognitive and communication impairments after traumatic brain injury. DESIGN: Retrospective cohort study. METHODS: Adherence to care processes recommended for children (aged 0-17) with moderate-to-severe traumatic brain injury and admitted for inpatient rehabilitation was assessed. Quality-of-care indicators for processes supporting school re-entry and cognitive and communication rehabilitation were applied to measure variations in care delivered to 174 children across nine facilities using medical record review. MAIN OUTCOMES AND RESULTS: Adherence rates (the number of times recommended care was delivered or attempted divided by the number of times care was indicated) were calculated, revealing substantial variations in care within and between facilities. Overall, children received 51.3% (95% CI = 31.9-70.7) and 72.3% (95% CI = 61.1-83.5), of the care recommended for school re-entry and cognitive and communication rehabilitation, respectively. CONCLUSION: Substantial variations exist in the delivery of paediatric inpatient rehabilitation care processes for managing school re-entry and cognitive and communication impairments after traumatic brain injury. Measures of association of these care processes with patient outcomes are necessary. Reduction in this variation is essential to improving quality of care.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Pacientes Internos/estadística & datos numéricos , Planificación de Atención al Paciente/organización & administración , Pediatría/organización & administración , Instituciones Académicas , Estudiantes/psicología , Absentismo , Adaptación Psicológica , Adolescente , Análisis de Varianza , Actitud del Personal de Salud , Lesiones Encefálicas/epidemiología , Lesiones Encefálicas/psicología , Canadá/epidemiología , Niño , Preescolar , Estudios de Cohortes , Comunicación , Femenino , Humanos , Lactante , Recién Nacido , Pacientes Internos/psicología , Acontecimientos que Cambian la Vida , Masculino , Padres , Indicadores de Calidad de la Atención de Salud , Centros de Rehabilitación , Estudios Retrospectivos , Estados Unidos/epidemiología
5.
Am J Public Health ; 102(11): 2074-9, 2012 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-22994196

RESUMEN

OBJECTIVES: We examined the burden of disability resulting from traumatic brain injuries (TBIs) among children younger than 18 years. METHODS: We derived our data from a cohort study of children residing in King County, Washington, who were treated in an emergency department for a TBI or for an arm injury during 2007-2008. Disabilities 12 months after injury were assessed according to need for specialized educational and community-based services and scores on standardized measures of adaptive functioning and social-community participation. RESULTS: The incidence of children receiving new services at 12 months was about 10-fold higher among those with a mild TBI than among those with a moderate or severe TBI. The population incidence of disability (defined according to scores below the norm means on the outcome measures included) was also consistently much larger (2.8-fold to 28-fold) for mild TBIs than for severe TBIs. CONCLUSIONS: The burden of disability caused by TBIs among children is primarily accounted for by mild injuries. Efforts to prevent these injuries as well as to decrease levels of disability following TBIs are warranted.


Asunto(s)
Lesiones Encefálicas/complicaciones , Personas con Discapacidad/estadística & datos numéricos , Adolescente , Traumatismos del Brazo/epidemiología , Lesiones Encefálicas/epidemiología , Niño , Preescolar , Evaluación de la Discapacidad , Femenino , Escala de Coma de Glasgow/estadística & datos numéricos , Humanos , Incidencia , Lactante , Masculino , Servicio Social/estadística & datos numéricos , Factores de Tiempo , Washingtón/epidemiología
6.
Arch Phys Med Rehabil ; 93(8): 1371-6, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22446294

RESUMEN

OBJECTIVE: To determine variations in care provided by 9 inpatient rehabilitation units for children with traumatic brain injury (TBI) using newly developed quality indicators. DESIGN: Retrospective cohort study. SETTING: Nine inpatient rehabilitation units. PARTICIPANTS: Children (N=174; age range, 0-17y) admitted for the inpatient rehabilitation of moderate to severe TBI. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Adherence to 119 newly developed quality-of-care indicators in 7 different domains: general care, family-centered care, cognitive-communication, motor, neuropsychological, school, and community integration. RESULTS: There was substantial variation both within and between institutions in the percentage of patients receiving recommended care in the 7 domains. The lowest scores were found for the school domain. Only 5 institutions scored above 50% for all quality indicators, and only 1 institution scored above 70% overall. Greater adherence to quality indicators was found for facilities with a higher proportion of therapists with pediatric training and for facilities that only admitted children. Patient volume was not associated with adherence to quality indicators. CONCLUSIONS: The results indicate a tremendous variability and opportunity for improvement in the care of children with TBI.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Adhesión a Directriz/estadística & datos numéricos , Guías de Práctica Clínica como Asunto , Indicadores de Calidad de la Atención de Salud/estadística & datos numéricos , Centros de Rehabilitación/estadística & datos numéricos , Adolescente , Niño , Preescolar , Femenino , Humanos , Lactante , Masculino , Indicadores de Calidad de la Atención de Salud/normas , Centros de Rehabilitación/normas , Estudios Retrospectivos
7.
Arch Phys Med Rehabil ; 93(3): 381-5.e9, 2012 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-22280892

RESUMEN

OBJECTIVE: To develop measurement tools for assessing compliance with identifiable processes of inpatient care for children with traumatic brain injury (TBI) that are reliable, valid, and amenable to implementation. DESIGN: Literature review and expert panel using the RAND/UCLA Appropriateness Method and a Delphi technique. SETTING: Not applicable. PARTICIPANTS: Children with TBI. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURE: Quality of care indicators. RESULTS: A total of 119 indicators were developed across the domains of general management; family-centered care; cognitive-communication, speech, language, and swallowing impairments; gross and fine motor skill impairments; neuropsychologic, social, and behavioral impairments; school reentry; and community integration. There was a high degree of agreement on these indicators as valid and feasible quality measures for children with TBI. CONCLUSIONS: These indicators are an important step toward building a better base of evidence about the effectiveness and efficiency of the components of acute inpatient rehabilitation for pediatric patients with TBI.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Pediatría/organización & administración , Indicadores de Calidad de la Atención de Salud , Conducta , Lesiones Encefálicas/psicología , Niño , Comunicación , Técnica Delphi , Familia , Humanos , Limitación de la Movilidad , Evaluación de Procesos y Resultados en Atención de Salud/organización & administración , Atención Dirigida al Paciente/organización & administración
8.
Arch Phys Med Rehabil ; 93(3): 386-93.e1, 2012 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-22280893

RESUMEN

OBJECTIVES: To develop evidence-based and expert-driven quality indicators for measuring variations in the structure and organization of acute inpatient rehabilitation for children after traumatic brain injury (TBI) and to survey centers across the United States to determine the degree of variation in care. DESIGN: Quality indicators were developed using the RAND/UCLA modified Delphi method. Adherence to these indicators was determined from a survey of rehabilitation facilities. SETTING: Inpatient rehabilitation units in the United States. PARTICIPANTS: A sample of rehabilitation programs identified using data from the National Association of Children's Hospitals and Related Institutions, Uniform Data System for Medical Rehabilitation, and the Commission on Accreditation of Rehabilitation Facilities yielded 74 inpatient units treating children with TBI. Survey respondents comprised 31 pediatric and 28 all age units. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Variations in structure and organization of care among institutions providing acute inpatient rehabilitation for children with TBI. RESULTS: Twelve indicators were developed. Pediatric inpatient rehabilitation units and units with higher volumes of children with TBI were more likely to have: a census of at least 1 child admitted with a TBI for at least 90% of the time; adequate specialized equipment; a classroom; a pediatric subspecialty trained medical director; and more than 75% of therapists with pediatric training. CONCLUSIONS: There were clinically and statistically significant variations in the structure and organization of acute pediatric rehabilitation based on the pediatric focus of the unit and volume of children with TBI.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Pacientes Internos , Pediatría/organización & administración , Indicadores de Calidad de la Atención de Salud , Centros de Rehabilitación/organización & administración , Lesiones Encefálicas/psicología , Niño , Comunicación , Familia , Personal de Salud , Humanos , Evaluación de Procesos y Resultados en Atención de Salud/organización & administración , Evaluación de Procesos y Resultados en Atención de Salud/normas , Pediatría/normas , Centros de Rehabilitación/normas , Estados Unidos
9.
J Trauma Stress ; 25(3): 264-71, 2012 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-22729979

RESUMEN

The degree to which postinjury posttraumatic stress disorder (PTSD) and/or depressive symptoms in adolescents are associated with cognitive and functional impairments at 12 and 24 months after traumatic brain injury (TBI) is not yet known. The current study used a prospective cohort design, with baseline assessment and 3-, 12-, and 24-month followup, and recruited a cohort of 228 adolescents ages 14-17 years who sustained either a TBI (n = 189) or an isolated arm injury (n = 39). Linear mixed-effects regression was used to assess differences in depressive and PTSD symptoms between TBI and arm-injured patients and to assess the association between 3-month PTSD and depressive symptoms and cognitive and functional outcomes. Results indicated that patients who sustained a mild TBI without intracranial hemorrhage reported significantly worse PTSD (Hedges g = 0.49, p = .01; Model R(2) = .38) symptoms across time as compared to the arm injured control group. Greater levels of PTSD symptoms were associated with poorer school (η(2) = .07, p = .03; Model R(2) = .36) and physical (η(2) = .11, p = .01; Model R(2) = .23) functioning, whereas greater depressive symptoms were associated with poorer school (η(2) = .06, p = .05; Model R(2) = .39) functioning.


Asunto(s)
Lesiones Encefálicas/psicología , Trastornos del Conocimiento/psicología , Depresión/etiología , Trastornos por Estrés Postraumático/etiología , Adolescente , Traumatismos del Brazo/psicología , Estudios de Cohortes , Depresión/epidemiología , Femenino , Humanos , Modelos Lineales , Masculino , Estudios Prospectivos , Calidad de Vida , Trastornos por Estrés Postraumático/epidemiología , Estados Unidos/epidemiología
10.
Pediatr Radiol ; 42(8): 974-81, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22434553

RESUMEN

BACKGROUND: Traumatic brain injury (TBI) is a leading cause of acquired disability in children and adolescents. OBJECTIVE: To demonstrate the association between specific findings on initial noncontrast head CT and long-term outcomes in children who have suffered TBI. MATERIALS AND METHODS: This was an IRB-approved prospective study of children ages 2-17 years treated in emergency departments for TBI and who underwent a head CT as part of the initial work-up (n = 347). The change in quality of life at 12 months after injury was measured by the PedsQL scale. RESULTS: Children with TBI who had intracranial injuries identified on the initial head CT had a significantly lower quality-of-life scores compared to children with TBI whose initial head CTs were normal. In multivariate analysis, children whose initial head CT scans demonstrated intraventricular hemorrhage, parenchymal injury, midline shift ≥ 5 mm, hemorrhagic shear injury, abnormal cisterns or subdural hematomas ≥ 3 mm had lower quality of life scores 1 year after injury than children whose initial CTs did not have these same injuries. CONCLUSION: Associations exist between findings from the initial noncontrast head CT and quality of life score 12 months after injury in children with TBI.


Asunto(s)
Lesiones Encefálicas/diagnóstico por imagen , Lesiones Encefálicas/fisiopatología , Calidad de Vida , Tomografía Computarizada por Rayos X/métodos , Adolescente , Niño , Preescolar , Servicio de Urgencia en Hospital , Femenino , Escala de Coma de Glasgow , Humanos , Lactante , Puntaje de Gravedad del Traumatismo , Modelos Lineales , Masculino
11.
J Neurotrauma ; 38(4): 513-518, 2021 02 15.
Artículo en Inglés | MEDLINE | ID: mdl-33040670

RESUMEN

This study created a framework incorporating provider perspectives of best practices for early psychosocial intervention to improve caregiver experiences and outcomes after severe pediatric traumatic brain injury (TBI). A purposive sample of 23 healthcare providers from the emergency, intensive care, and acute care departments, was selected based on known clinical care of children with severe TBI at a level 1 trauma center and affiliated children's hospital. Semistructured interviews and directed content analysis were used to assess team and caregiver communication processes and topics, prognostication, and recommended interventions. Providers recommended a dual approach of institutional and individual factors contributing to an effective framework for addressing psychosocial needs. Healthcare providers recommended interventions in three domains: (1) presenting coordinated, clear messages to caregivers, (2) reducing logistical and emotional burden of care transitions, and (3) assessing and addressing caregiver needs and concerns. Specific family-centered and trauma-informed interventions included: (1) creating and sharing interdisciplinary plans with caregivers, (2) coordinating prognostication meetings and communications, (3) tracking family education, (4) improving institutional coordination and workflow, (5) training caregivers to support family involvement, (6) performing biopsychosocial assessment, and (7) using systematic prompts for difficult conversations and to address family needs at regular intervals. Healthcare workers from a variety of disciplines want to incorporate certain trauma-informed and family-centered practices at each stage of treatment to improve experiences for caregivers and outcomes for pediatric patients with severe TBI. Future research should test the feasibility and effectiveness of incorporating routine psychosocial interventions for these patients.


Asunto(s)
Lesiones Traumáticas del Encéfalo/rehabilitación , Cuidadores/psicología , Intervención Psicosocial , Lesiones Traumáticas del Encéfalo/psicología , Niño , Familia/psicología , Conocimientos, Actitudes y Práctica en Salud , Personal de Salud , Necesidades y Demandas de Servicios de Salud , Humanos , Modelos Teóricos
13.
J Pediatr Orthop ; 29(2): 214-7, 2009 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-19352250

RESUMEN

BACKGROUND: Arthrogryposis is characterized by multiple congenital joint contractures that affect ambulation. This study compared ambulatory activity of subjects with the 2 most common forms of arthrogryposis and a control group of typically developing youth. METHODS: This is a cross-sectional, cohort study. Thirteen ambulatory subjects with amyoplasia or distal arthrogryposis and 13 age- and sex-matched controls wore the StepWatch3 Activity Monitor on their ankles for 7 days. The daily frequency, duration, and intensity of ambulatory activity were measured. The parents of the subjects also completed Activities Scale for Kids, Performance-38 questionnaires to compare parent-reported activity levels with StepWatch3 Activity Monitor measurements. RESULTS: The mean ages of the subject and control groups were 10.83 and 10.95 years, respectively, with 8 males and 5 females in each group. Subjects as compared with controls took significantly fewer steps, 5668+/-1134 versus 7685+/-1164, respectively (P=0.02) and spent significantly less of their active time at high step rates, 8% versus 13% (P=0.05). The average Activities Scale for Kids, Performance summary scores for subjects (76.8+/-18.9) were significantly lower than controls (90.6+/-7.2) (P=0.003). CONCLUSIONS: We have been able to quantify the activity levels of children with amyoplasia and distal arthrogryposis relative to that of age- and sex-matched typically developing youth. Youth with arthrogryposis took significantly fewer steps, spent less time at high activity levels, and had significantly lower parental report of ambulatory and physical activity than controls. LEVEL OF EVIDENCE: Cross-sectional comparison study, level II.


Asunto(s)
Actividades Cotidianas , Artrogriposis/fisiopatología , Actividad Motora , Adolescente , Artrogriposis/cirugía , Artrogriposis/terapia , Niño , Estudios de Cohortes , Estudios Transversales , Femenino , Marcha , Humanos , Masculino
14.
J Speech Lang Hear Res ; 62(1): 84-92, 2019 01 30.
Artículo en Inglés | MEDLINE | ID: mdl-30950756

RESUMEN

Purpose The purpose of this study was to evaluate the internal consistency and construct validity of the Traumatic Brain Injury Quality of Life Communication Item Bank (TBI-QOL COM) short form as a parent-proxy report measure. The TBI-QOL COM is a patient-reported outcome measure of functional communication originally developed as a self-report measure for adults with traumatic brain injury (TBI), but it may also be valid as a parent-proxy report measure for children who have sustained TBI. Method One hundred twenty-nine parent-proxy raters completed the TBI-QOL COM short form 6 months postinjury as a secondary aim of a multisite study of pediatric TBI outcomes. The respondents' children with TBI were between 8 and 18 years old ( M age = 13.2 years old) at the time of injury, and the proportion of TBI severity mirrored national trends (73% complicated-mild; 27% moderate or severe). Results The parent-proxy report version of the TBI-QOL COM displayed strong internal consistency (ordinal α = .93). It also displayed evidence of known-groups validity by virtue of more severe injuries associated with more abnormal scores. The instrument also showed evidence of convergent and discriminant validity by displaying a pattern of correlations with other constructs according to their conceptual relatedness to functional communication. Conclusions This preliminary psychometric investigation of the TBI-QOL COM supports the further development of a parent report version of the instrument. Future development of the TBI-QOL COM with this population may include expanding the content of the item bank and developing calibrations specifically for parent-proxy raters. Supplemental Material https://doi.org/10.23641/asha.7616534.


Asunto(s)
Lesiones Traumáticas del Encéfalo/complicaciones , Trastornos de la Comunicación/diagnóstico , Padres , Apoderado , Encuestas y Cuestionarios , Niño , Trastornos de la Comunicación/etiología , Humanos , Pruebas del Lenguaje , Psicometría , Calidad de Vida , Reproducibilidad de los Resultados
15.
Lancet Child Adolesc Health ; 3(1): 23-34, 2019 01.
Artículo en Inglés | MEDLINE | ID: mdl-30473440

RESUMEN

BACKGROUND: As far as we know, there are no tested in-hospital care programmes for paediatric traumatic brain injury. We aimed to assess implementation and effectiveness of the Pediatric Guideline Adherence and Outcomes (PEGASUS) programme in children with severe traumatic brain injury. METHODS: We did a prospective hybrid implementation and effectiveness study at the Harborview Medical Center (Seattle, WA, USA). We included children (aged <18 years) with traumatic brain injury (trauma mechanism and image findings). We assessed service provision, adherence to three key performance indicators, and discharge outcomes associated with the PEGASUS programme. The three key performance indicators were early initiation of enteral (oral or tube feeds) or parenteral nutrition; avoidance of any unwanted hypocarbia (PaCO2 <30 mm Hg) without brain herniation; and maintenance of cerebral perfusion pressure (>40 mm Hg) for 72 h after the diagnosis of severe traumatic brain injury. Poisson regression with robust standard errors was used to estimate the association between adhering to key performance indicators and discharge outcomes. FINDINGS: Between May 1, 2011, and July 1, 2017, 199 children (median age 11·9 years [IQR 3·4-16·1]) participated in the PEGASUS programme, of whom 193 (97%) had severe traumatic brain injury and six (3%) had moderate traumatic brain injury. 105 patients contributed data for all three key performance indicators. Adherence to at least one key performance indicator was achieved by 101 (96%) of 105 participants, and 44 (42%) achieved adherence to all three key performance indicators. Programme participants achieved adherence to the key performance indicators of hypocarbia (76 of 105 [72%]), nutrition (162 of 199 [81%]), and cerebral perfusion pressure (128 of 199 [64%]). Adherence to the nutrition key performance indicator was associated with higher discharge survival (relative risk [RR] 2·70, 95% CI 1·54-4·73) and a more favourable discharge disposition (3·05, 1·52-6·11). Adherence to the cerebral perfusion pressure key performance indicator was also associated with higher discharge survival (RR 1·33, 95% CI 1·12-1·59) and favourable disposition (1·53, 1·19-1·96). Adherence to each additional key performance indicator was associated with higher survival (RR 1·27, 1·12-1·44) and a more favourable discharge disposition (1·46, 1·23-1·72), in a dose-response manner. INTERPRETATION: The multilevel, hospital-wide, high-fidelity PEGASUS programme might benefit children and adolescents admitted to the emergency department with severe traumatic brain injury. Cerebral perfusion pressure, nutrition, and hypocarbia targets are essential components of the PEGASUS programme and are associated with favourable discharge outcomes. FUNDING: National Institutes of Health.


Asunto(s)
Lesiones Traumáticas del Encéfalo/terapia , Adhesión a Directriz , Adolescente , Lesiones Traumáticas del Encéfalo/complicaciones , Lesiones Traumáticas del Encéfalo/mortalidad , Niño , Preescolar , Humanos , Guías de Práctica Clínica como Asunto , Evaluación de Programas y Proyectos de Salud , Estudios Retrospectivos , Tasa de Supervivencia , Resultado del Tratamiento
16.
J Trauma ; 64(3): 819-23, 2008 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-18332830

RESUMEN

This article reviews the literature on the effectiveness of rehabilitation after pediatric trauma. The characteristics of comprehensive pediatric trauma rehabilitation services during the initial acute care hospitalization, as well as subsequent inpatient and outpatient care during the first 12 months after injury are discussed. Important research questions and the challenges associated with conducting such research are identified. For many children, rehabilitation is the final common pathway that may define the success or failure of their treatment-their ultimate outcome. Large, prospective, multicenter studies will be needed so that seriously injured children can receive standardized and effective rehabilitative care.


Asunto(s)
Pediatría/métodos , Traumatología/métodos , Heridas y Lesiones/rehabilitación , Humanos , Centros Traumatológicos
17.
Pediatrics ; 141(5)2018 05.
Artículo en Inglés | MEDLINE | ID: mdl-29674358

RESUMEN

OBJECTIVES: In this study, we describe unmet service needs of children hospitalized for traumatic brain injury (TBI) during the first 2 years after injury and examine associations between child, family, and injury-related characteristics and unmet needs in 6 domains (physical therapy, occupational therapy, speech therapy, mental health services, educational services, and physiatry). METHODS: Prospective cohort study of children age 8 to 18 years old admitted to 6 hospitals with complicated mild or moderate to severe TBI. Service need was based on dysfunction identified via parent-report compared with retrospective baseline at 6, 12, and 24 months. Needs were considered unmet if the child had no therapy services in the previous 4 weeks, no physiatry services since the previous assessment, or no educational services since injury. Analyses were used to compare met and unmet needs for each domain and time point. Generalized multinomial logit models with robust SEs were used to assess factors associated with change in need from pre-injury baseline to each study time point. RESULTS: Unmet need varied by injury severity, time since injury, and service domain. Unmet need was highest for physiatry, educational services, and speech therapy. Among children with service needs, increased time after TBI and complicated mild TBI were associated with a higher likelihood of unmet rather than met service needs. CONCLUSIONS: Children hospitalized for TBI have persistent dysfunction with unmet needs across multiple domains. After initial hospitalization, children with TBI should be monitored for functional impairments to improve identification and fulfillment of service needs.


Asunto(s)
Lesiones Traumáticas del Encéfalo/rehabilitación , Necesidades y Demandas de Servicios de Salud , Hospitalización , Adolescente , Niño , Educación Especial , Femenino , Humanos , Estudios Longitudinales , Masculino , Servicios de Salud Mental , Terapia Ocupacional , Modalidades de Fisioterapia , Estudios Retrospectivos , Logopedia , Índices de Gravedad del Trauma
18.
Pediatrics ; 139(3)2017 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-28159872

RESUMEN

BACKGROUND: Mild traumatic brain injury injuries (mTBIs), including concussions, represent >2 million US pediatric emergency department visits annually. Post-mTBI mental health symptoms are prominent and often attributed to the mTBI. This study examined whether individuals seeking post-mTBI mental health care had previous mental health diagnoses or a new onset of such disorders, and determined if mental health care utilization differed by race/ethnicity. METHODS: Retrospective cohort study, using the Medicaid Marketscan claims national dataset (2007-2012). Utilization of mental health services 1 year before and 1 year after mTBI was compared between children with and without mental health diagnoses before injury. Primary outcome was receipt of post-mTBI outpatient mental health care. RESULTS: A total of 31 272 children 20 years or younger were included, 8577 (27%) with mental health diagnoses before their mTBI and 22 695 without one. After injury, children without previous mental health disorders increased mental health services utilization; however, most (86%) postinjury mental health care was received by children with previous mental health disorders. Having a mental health diagnosis pre-mTBI was the most important risk factor for receiving post-mTBI mental health care (odds ratio 7.93, 95% confidence interval 7.40-8.50). Hispanic children were less likely to receive post-mTBI mental health care. CONCLUSIONS: mTBI was associated with increased utilization of mental health services but most of these services were received by children with previous mental health disorders. Our documentation of racial/ethnic disparities in mental health care utilization reemphasize the importance of providing individualized, culturally, and linguistically competent care to improve outcomes after mTBI for all children.


Asunto(s)
Conmoción Encefálica/epidemiología , Servicios de Salud Mental/estadística & datos numéricos , Adolescente , Niño , Preescolar , Estudios de Cohortes , Femenino , Humanos , Lactante , Recién Nacido , Masculino , Medicaid , Trastornos Mentales/epidemiología , Grupos Raciales/estadística & datos numéricos , Estudios Retrospectivos , Factores de Riesgo , Estados Unidos/epidemiología , Adulto Joven
19.
Arch Pediatr Adolesc Med ; 160(3): 252-60, 2006 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-16520444

RESUMEN

OBJECTIVES: To document health-related quality of life (HRQOL) of children with traumatic brain injury (TBI) and to examine the relationship between TBI severity and HRQOL during the first year after injury. DESIGN: Prospective cohort study. SETTING: Four pediatric level I trauma centers. PATIENTS: Children with TBI (n = 330). MAIN EXPOSURE: Traumatic brain injury. MAIN OUTCOME MEASURES: A primary caregiver completed telephone interviews at baseline, 3 months, and 12 months to measure the child's HRQOL using the Pediatric Quality of Life Inventory. The HRQOL outcomes were modeled as a function of injury, patient characteristics, and family characteristics using longitudinal, multivariable regression. RESULTS: A considerable proportion of children had impaired HRQOL at 3 months (42% of children) and 12 months (40% of children) after injury. Multiple dimensions of HRQOL were negatively affected among children with moderate or severe TBI (decrease of 3.7 to 17.6) (P<.05) and did not improve significantly over time. Concomitant lower extremity fractures and spinal injuries resulted in large declines in overall HRQOL, particularly at 3 months after injury (decrease of 12.9 and 8.1, respectively) (P<.05). The HRQOL scores were also reduced by preexisting psychosocial conditions (decrease of 2.9 to 12.3), impaired family functioning (decrease of 5.1 to 6.8), having Medicaid coverage or being uninsured (decrease of 3.1 to 5.5), and single-parent households (decrease of 3.2 to 3.4) (P<.05). CONCLUSIONS: Moderate or severe TBI resulted in measurable declines in children's HRQOL after injury. Injury-related factors impacted HRQOL more compared with patient and family characteristics during the first year after injury.


Asunto(s)
Lesiones Encefálicas/psicología , Estado de Salud , Calidad de Vida/psicología , Adolescente , Lesiones Encefálicas/epidemiología , Niño , Preescolar , Trastornos del Conocimiento/epidemiología , Estudios de Cohortes , Femenino , Humanos , Puntaje de Gravedad del Traumatismo , Masculino , Variaciones Dependientes del Observador , Padres , Estudios Prospectivos , Encuestas y Cuestionarios
20.
Pediatrics ; 137(6)2016 06.
Artículo en Inglés | MEDLINE | ID: mdl-27244850

RESUMEN

OBJECTIVES: To describe the prevalence of postdischarge outpatient rehabilitation among Medicaid-insured children hospitalized with a traumatic brain injury (TBI) and to identify factors associated with receipt of services. METHODS: Retrospective cohort of children <21 years, hospitalized for a TBI between 2007 and 2012, from a national Medicaid claims database. Outcome measures were receipt of outpatient rehabilitation (physical, occupational, or speech therapies or physician visits to a rehabilitation provider) 1 and 3 years after discharge. Multivariable regression analyses determined the association of demographic variables, injury severity, and receipt of inpatient services with receipt of outpatient rehabilitation at 1 and 3 years. The mean number of services was compared between racial/ethnic groups. RESULTS: Among 9361 children, only 29% received any type of outpatient rehabilitation therapy during the first year after injury, although 62% sustained a moderate to severe TBI. The proportion of children receiving outpatient therapies declined to 12% in the second and third years. The most important predictor of receipt of outpatient rehabilitation was receipt of inpatient therapies or consultation with a rehabilitation physician during acute care. Compared with children of other racial/ethnic groups, Hispanic children had lower rates of receipt of outpatient speech therapy. CONCLUSIONS: Hospitalized children who received inpatient assessment of rehabilitation needs were more likely to continue outpatient rehabilitation care. Hispanic children with TBI were less likely than non-Hispanics to receive speech therapy. Interventions to increase inpatient rehabilitation during acute care might increase outpatient rehabilitation and improve outcomes for all children.


Asunto(s)
Atención Ambulatoria/estadística & datos numéricos , Lesiones Traumáticas del Encéfalo/rehabilitación , Disparidades en Atención de Salud/etnología , Adolescente , Lesiones Traumáticas del Encéfalo/etnología , Niño , Preescolar , Femenino , Hispánicos o Latinos , Hospitalización , Humanos , Lactante , Masculino , Medicaid , Análisis de Regresión , Estudios Retrospectivos , Estados Unidos , Adulto Joven
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