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1.
Perceptions of patient disease burden and management approaches in systemic mastocytosis: Results of the TouchStone Healthcare Provider Survey.
Cancer
; 128(20): 3700-3708, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-35996871
2.
Patient-reported outcomes among patients with systemic mastocytosis in routine clinical practice: Results of the TouchStone SM Patient Survey.
Cancer
; 128(20): 3691-3699, 2022 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-35996873
3.
Long-term real-world experience with ipilimumab and non-ipilimumab therapies in advanced melanoma: the IMAGE study.
BMC Cancer
; 21(1): 642, 2021 May 29.
Artículo
en Inglés
| MEDLINE | ID: mdl-34051732
4.
Relationship between sleep efficacy endpoints and measures of functional status and health-related quality of life in participants with narcolepsy or obstructive sleep apnea treated for excessive daytime sleepiness.
J Sleep Res
; 30(3): e13210, 2021 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-33051943
5.
Determination of thresholds for minimally important difference and clinically important response on the functional outcomes of sleep questionnaire short version in adults with narcolepsy or obstructive sleep apnea.
Sleep Breath
; 25(3): 1707-1715, 2021 Sep.
Artículo
en Inglés
| MEDLINE | ID: mdl-33394323
6.
Patient reported outcome data from acromegaly patients treated with injectable somatostatin receptor ligands (SRLs) in routine clinical practice.
BMC Endocr Disord
; 20(1): 117, 2020 Jul 31.
Artículo
en Inglés
| MEDLINE | ID: mdl-32736547
7.
An evaluation of the Acromegaly Treatment Satisfaction Questionnaire (Acro-TSQ) in adult patients with acromegaly, including correlations with other patient-reported outcome measures: data from two large multicenter international studies.
Pituitary
; 23(4): 347-358, 2020 Aug.
Artículo
en Inglés
| MEDLINE | ID: mdl-32221764
8.
Observed discordance between outcomes reported by acromegaly patients and their treating endocrinology medical provider.
Pituitary
; 23(2): 140-148, 2020 Apr.
Artículo
en Inglés
| MEDLINE | ID: mdl-31808101
9.
Development of a novel patient-reported measure for acromegaly: the Acro-TSQ.
Pituitary
; 22(6): 581-593, 2019 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-31522359
10.
Validity and responsiveness of the Urticaria Activity and Impact Measure: A new patient-reported tool.
Ann Allergy Asthma Immunol
; 120(6): 641-647, 2018 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-29567359
11.
Development of a patient-reported outcome questionnaire to assess signs and symptoms of hidradenitis suppurativa: The Hidradenitis Suppurativa Symptom Diary.
J Am Acad Dermatol
; 88(5): 1123-1125, 2023 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-34808326
12.
Development of Focal Segmental Glomerulosclerosis Patient-Reported Outcome Measures: Symptom Diary and Symptom Impact Questionnaire.
Am J Kidney Dis
; 70(4): 532-540, 2017 Oct.
Artículo
en Inglés
| MEDLINE | ID: mdl-28663063
13.
Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment.
Health Qual Life Outcomes
; 15(1): 43, 2017 Feb 28.
Artículo
en Inglés
| MEDLINE | ID: mdl-28245854
14.
Treatment Satisfaction in Systemic Lupus Erythematosus: Development of a Patient-Reported Outcome Measure.
J Clin Rheumatol
; 23(2): 94-101, 2017 Mar.
Artículo
en Inglés
| MEDLINE | ID: mdl-28225511
15.
I-WISh: A wish list for immune thrombocytopenia quality of life indicators becomes reality.
Am J Hematol
; 96(2): 172-173, 2021 02 01.
Artículo
en Inglés
| MEDLINE | ID: mdl-33219702
16.
A Phase 3, Randomized, Double-Blind, Placebo-Controlled Study to Determine the Effect of Romiplostim on Health-Related Quality of Life in Children with Primary Immune Thrombocytopenia and Associated Burden in Their Parents.
Pediatr Blood Cancer
; 63(7): 1232-7, 2016 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-27037553
17.
The minimal important difference for measures of urticaria disease activity: Updated findings.
Allergy Asthma Proc
; 36(5): 394-8, 2015.
Artículo
en Inglés
| MEDLINE | ID: mdl-26314821
18.
Validation of the Patient Perception of Intensity of Urgency Scale in patients with lower urinary tract symptoms associated with benign prostatic hyperplasia.
Value Health
; 17(8): 823-9, 2014 Dec.
Artículo
en Inglés
| MEDLINE | ID: mdl-25498777
19.
Development and Content Validation of Novel Patient-Reported Outcome Measures to Assess Disease Severity and Change in Patients with Erythropoietic Protoporphyria: The EPP Impact Questionnaire (EPIQ).
Patient Relat Outcome Meas
; 15: 17-30, 2024.
Artículo
en Inglés
| MEDLINE | ID: mdl-38375415
20.
Pain outcomes in patients with advanced breast cancer and bone metastases: results from a randomized, double-blind study of denosumab and zoledronic acid.
Cancer
; 119(4): 832-8, 2013 Feb 15.
Artículo
en Inglés
| MEDLINE | ID: mdl-22951813