Detalles de la búsqueda
1.
Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.
Clin Genet
; 103(6): 672-680, 2023 06.
Artículo
en Inglés
| MEDLINE | ID: mdl-36960544
2.
Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"
J Genet Couns
; 2023 May 26.
Artículo
en Inglés
| MEDLINE | ID: mdl-37232511
3.
Oncology patients' communication experiences during COVID-19: comparing telehealth consultations to in-person visits.
Support Care Cancer
; 30(6): 4769-4780, 2022 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-35141772
4.
Preferences for Accessing Electronic Health Records for Research Purposes: Views of Parents Who Have a Child With a Known or Suspected Genetic Condition.
Value Health
; 23(12): 1639-1652, 2020 12.
Artículo
en Inglés
| MEDLINE | ID: mdl-33248520
5.
Parental Views on Newborn Next Generation Sequencing: Implications for Decision Support.
Matern Child Health J
; 24(7): 856-864, 2020 Jul.
Artículo
en Inglés
| MEDLINE | ID: mdl-32424581
6.
Ethical, Legal, and Social Issues Related to the Inclusion of Individuals With Intellectual Disabilities in Electronic Health Record Research: Scoping Review.
J Med Internet Res
; 22(5): e16734, 2020 05 21.
Artículo
en Inglés
| MEDLINE | ID: mdl-32436848
7.
Early Check: translational science at the intersection of public health and newborn screening.
BMC Pediatr
; 19(1): 238, 2019 07 17.
Artículo
en Inglés
| MEDLINE | ID: mdl-31315600
8.
An Evidence-Based, Community-Engaged Approach to Develop an Interactive Deliberation Tool for Pediatric Neuromuscular Trials.
J Genet Couns
; 27(2): 416-425, 2018 04.
Artículo
en Inglés
| MEDLINE | ID: mdl-29260486
9.
Virtual Versus In-Person Focus Groups: Comparison of Costs, Recruitment, and Participant Logistics.
J Med Internet Res
; 19(3): e80, 2017 03 22.
Artículo
en Inglés
| MEDLINE | ID: mdl-28330832
10.
Program Implementation Approaches to Build and Sustain Health Care Coordination for Type 2 Diabetes.
Health Promot Pract
; 18(2): 306-313, 2017 03.
Artículo
en Inglés
| MEDLINE | ID: mdl-27178837
11.
A Review on Spinal Muscular Atrophy: Awareness, Knowledge, and Attitudes.
J Genet Couns
; 25(5): 892-900, 2016 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-27084745
12.
Peer-Generated Health Information: The Role of Online Communities in Patient and Caregiver Health Decisions.
J Health Commun
; 21(11): 1187-1197, 2016 11.
Artículo
en Inglés
| MEDLINE | ID: mdl-27805496
13.
Improving the implementation of diabetes self-management: findings from the Alliance to Reduce Disparities in Diabetes.
Health Promot Pract
; 15(2 Suppl): 83S-91S, 2014 Nov.
Artículo
en Inglés
| MEDLINE | ID: mdl-25359254
14.
Women's knowledge, attitudes, and beliefs about Down syndrome: a qualitative research study.
Am J Med Genet A
; 158A(6): 1355-62, 2012 Jun.
Artículo
en Inglés
| MEDLINE | ID: mdl-22544646
15.
Managing uncertainty and responding to difficult emotions: Cancer patients' perspectives on clinician response during the COVID-19 pandemic.
Patient Educ Couns
; 105(7): 2137-2144, 2022 07.
Artículo
en Inglés
| MEDLINE | ID: mdl-35393231
16.
Patients' Experiences with Cancer Care: Impact of the COVID-19 Pandemic.
J Patient Exp
; 9: 23743735221092567, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-35480966
17.
Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.
Front Genet
; 13: 891592, 2022.
Artículo
en Inglés
| MEDLINE | ID: mdl-35646095
18.
Barriers and Facilitators to Genetic Service Delivery Models: Scoping Review.
Interact J Med Res
; 10(1): e23523, 2021 Feb 25.
Artículo
en Inglés
| MEDLINE | ID: mdl-33629958
19.
Outreach to new mothers through direct mail and email: recruitment in the Early Check research study.
Clin Transl Sci
; 14(3): 880-889, 2021 05.
Artículo
en Inglés
| MEDLINE | ID: mdl-33382929
20.
Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder.
Disabil Health J
; 13(4): 100927, 2020 10.
Artículo
en Inglés
| MEDLINE | ID: mdl-32360031