Pessoas com queimaduras: Concepções sobre o trabalho de Enfermagem na perspectiva de pacientes e profissionais / People with burns: Conceptions about nursing work from the perspective of patients and professionals

OBJETIVO: Compreender o cuidado de enfermagem na reabilitação de pacientes queimados a partir da percepção dos enfermeiros e pacientes atendidos em dois centros especializados em queimaduras. MÉTODO: Trata-se de uma pesquisa do tipo descritiva desenvolvida a partir de abordagem qualitativa, conduzida de acordo com a guideline internacional para pesquisas qualitativas COREQ (Consolidated Criteria for Reporting Qualitative Research - Critérios Consolidados para Relato de Pesquisa Qualitativa, em português), obedecendo aos 32 itens estabelecidos pelo checklist. Foram entrevistados 18 indivíduos, sendo dez profissionais enfermeiros e oito pacientes usuários do centro de tratamento de queimados. A organização de dados se deu a partir da técnica de análise de conteúdo segundo Bardin. RESULTADOS: Foi evidenciado que a atuação do enfermeiro frente a vítimas de queimaduras compartilha discursos muito semelhantes no que tange à preocupação da prática da assistência de qualidade. Assim, tanto na perspectiva do usuário quanto na perspectiva do enfermeiro, as estratégias do serviço ocorrem de forma satisfatória, como por exemplo a prática do olhar amplo, a responsabilidade para com o paciente e o empenho na assistência técnica de forma correta. CONCLUSÕES: A assistência de enfermagem frente a vítimas de queimaduras apresenta percepções de relevância positivas tanto pelos profissionais quanto para os pacientes. Em contrapartida, evidenciou-se que as necessidades dos pacientes não são atendidas em sua totalidade.

OBJECTIVE: To understand nursing care in the rehabilitation of burn patients from the perception of nurses and patients treated at two centers specialized in burns. METHODS: This is a descriptive research developed from a qualitative approach, conducted in accordance with the international guideline for qualitative research COREQ (Consolidated Criteria for Reporting Qualitative Research), following the 32 items established by the checklist. Eighteen individuals were interviewed, ten of whom were nurses and eight patients who used the burn treatment center. The data organization was based on the content analysis technique according to Bardin. RESULTS: It was evidenced that the nurses role in dealing with burn victims shares very similar discourses regarding the concern with the practice of quality care. Thus, both from the users perspective and from the nurses perspective, the service strategies occur in a satisfactory way, such as the practice of the broad look, responsibility towards the patient and the commitment to technical assistance correctly. CONCLUSIONS: Nursing care for burn victims has positive perceptions of relevance both by professionals and patients. On the other hand, it was evidenced that the patients' needs are not fully met.

Nearly one-half of Brazilian patients with multiple sclerosis using natalizumab are DNA-JC virus positive.

OBJECTIVE: Natalizumab is a new and efficient treatment for multiple sclerosis (MS). The risk of developing progressive multifocal leukoencephalopathy (PML) during the use of this drug has created the need for better comprehension of JC virus (JCV) infection. The objective of the present study was to assess the prevalence of JCV-DNA in Brazilian patients using natalizumab. METHOD: Qualitative detection of the JCV in the serum was performed with real-time polymerase chain reaction (PCR). RESULTS: In a group of 168 patients with MS who were undergoing treatment with natalizumab, JCV-DNA was detectable in 86 (51.2%) patients. DISCUSSION: Data on JCV-DNA in Brazil add to the worldwide assessment of the prevalence of the JCV in MS patients requiring treatment with natalizumab.

Multiple sclerosis starting before the age of 18 years: the Brazilian experience.

Multiple sclerosis (MS) starting in childhood and adolescence poses a challenge for diagnosis and management of the disease. The aim of the present study was to assess the characteristics of early onset MS in Brazilian patients. Methods Retrospective data collection from specialized MS units. Results From 20 MS units in 11 Brazilian states, 117 cases of MS starting before the age of 18 years were collected. These patients had an average of 10 years of disease duration, still typically with low disability and one relapse every 2.5 years. The mean age for disease onset was 13.7 years. Conclusion The present study introduces a large series of Brazilian cases of pediatric MS. Although some patients presented a very severe form of MS, on the whole the group of patients with MS starting in childhood or adolescence presented a relatively mild form of this disease in Brazil.

Nearly one-half of Brazilian patients with multiple sclerosis using natalizumab are DNA-JC virus positive / Cerca de metade dos pacientes brasileiros recebendo natalizumabe para tratamento de esclerose multipla tem DNA-JC virus positivo

Objective Natalizumab is a new and efficient treatment for multiple sclerosis (MS). The risk of developing progressive multifocal leukoencephalopathy (PML) during the use of this drug has created the need for better comprehension of JC virus (JCV) infection. The objective of the present study was to assess the prevalence of JCV-DNA in Brazilian patients using natalizumab. Method Qualitative detection of the JCV in the serum was performed with real-time polymerase chain reaction (PCR). Results In a group of 168 patients with MS who were undergoing treatment with natalizumab, JCV-DNA was detectable in 86 (51.2%) patients. Discussion Data on JCV-DNA in Brazil add to the worldwide assessment of the prevalence of the JCV in MS patients requiring treatment with natalizumab. .

Objetivo Natalizumabe é um tratamento novo e eficaz para esclerose múltipla (EM). O risco constatado de desenvolver leucoencefalopatia multifocal progressiva (LEMP) durante o uso desta droga criou a necessidade de melhor estudar a infecção pelo vírus JC (JCV). O objetivo do presente estudo foi avaliar a prevalência de DNA-JCV em paciente brasileiros usando natalizumabe. Método Detecção qualitativa de JCV no soro foi realizada através de reação em cadeia por polimerase (PCR) em tempo real. Resultados DNA-JCV foi detectado em 86 pacientes (51,2%) de um grupo de 168 pessoas com EM recebendo tratamento com natalizumabe,). Discussão Dados do DNA-JCV no Brasil complementam as avaliações mundiais sobre a prevalência de JCV em pacientes com EM que necessitam tratamento natalizumabe. .

Multiple sclerosis starting before the age of 18 years: the Brazilian experience / Esclerose multipla com inicio antes dos 18 anos de idade: a experiencia brasileira

Multiple sclerosis (MS) starting in childhood and adolescence poses a challenge for diagnosis and management of the disease. The aim of the present study was to assess the characteristics of early onset MS in Brazilian patients. Methods Retrospective data collection from specialized MS units. Results From 20 MS units in 11 Brazilian states, 117 cases of MS starting before the age of 18 years were collected. These patients had an average of 10 years of disease duration, still typically with low disability and one relapse every 2.5 years. The mean age for disease onset was 13.7 years. Conclusion The present study introduces a large series of Brazilian cases of pediatric MS. Although some patients presented a very severe form of MS, on the whole the group of patients with MS starting in childhood or adolescence presented a relatively mild form of this disease in Brazil. .

Esclerose múltipla (EM) com início na infância e adolescência constitui um desafio para o diagnóstico e manejo da doença. A proposta do presente estudo foi avaliar as características da EM de início precoce em pacientes brasileiros. Métodos Coleta de dados retrospectiva de arquivos de unidades especializadas em atendimento da EM. Resultados A partir de 20 unidades de EM de nove estados brasileiros, foram coletados 117 casos de EM com início antes dos 18 anos de idade. Estes pacientes tinham uma média de 10 anos de duração da doença, de maneira geral apresentavam pouca incapacidade , com um surto a cada dois anos e meio. A média de idade no início da doença era 13,7 anos. Conclusão O presente estudo apresenta uma grande série de casos brasileiros de EM pediátrica. Embora alguns pacientes tenham apresentado forma grave de EM, de maneira geral o grupo de pacientes cuja EM iniciou-se na infância ou adolescência apresentou uma forma relativamente leve da doença no Brasil. .