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1.
Arch Phys Med Rehabil ; 105(1): 49-58, 2024 01.
Artículo en Inglés | MEDLINE | ID: mdl-37385365

RESUMEN

OBJECTIVE: To develop and psychometrically test the Self-Efficacy and Performance in Self-Management Support instrument for physiotherapists (SEPSS-PT), based on the SEPSS-36, the corresponding instrument for nurses. DESIGN: Instrument development including content validation and psychometric evaluation (construct validity, factor structure, and reliability). SETTING: Data were collected from literature, expertmeetings, and online questionnaire PARTICIPANTS: Next to a comprehensive literature study, experts (self-management experts (n=2); physiotherapists (n=10); patients (n=6)) and physiotherapists and physiotherapy students (n=334), participated in different stages of the study. INTERVENTIONS: Not applicable. MAIN OUTCOME MEASURES: Not applicable. A literature study (n=42 reviews) and consultations with physiotherapists and patients identified the specific content for physiotherapy. The Five-A's model and overarching competencies of "supportive partnership attitude", were used to structure the items. Psychometric evaluation of the draft questionnaire (40 items) was tested in a sample of 334 physiotherapists and physiotherapy students from the Netherlands, of whom 33 filled out the questionnaire twice to establish the test-retest reliability. RESULTS: Confirmatory factor analyses revealed satisfactory fit indices for both the 6-factor model and hierarchical model, with best fit for the 6-factor model. The questionnaire discriminated between physiotherapists and physiotherapy students, and between physiotherapists who did or did not consider self-management support important. The overall internal consistency (Cronbach's alpha) was high, both for the self-efficacy and the performance items. In most of the subscales, test-retest intra-class correlation coefficients for both overall self-efficacy and performance were good, but in 3 subscales insufficient for performance. CONCLUSION: The SEPSS-PT questionnaire is a 40-item, Likert-scaled instrument with good content and construct validity, good internal consistency and reliability, and sufficient test-retest reliability. Future research in a larger and more diverse sample could confirm stability and discriminating power.


Asunto(s)
Fisioterapeutas , Automanejo , Humanos , Psicometría , Autoeficacia , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
2.
Cochrane Database Syst Rev ; (10): CD010925, 2015 Oct 08.
Artículo en Inglés | MEDLINE | ID: mdl-26447539

RESUMEN

BACKGROUND: Factors contributing to subjective fatigue in people with idiopathic Parkinson's disease (PD) are not well known. This makes it difficult to manage fatigue effectively in PD. OBJECTIVES: To evaluate the effects of pharmacological and non-pharmacological interventions, compared to an inactive control intervention, on subjective fatigue in people with PD. SEARCH METHODS: We searched the Cochrane Central Register of Controlled Trials (CENTRAL) (The Cochrane Library); MEDLINE (via PubMed); Ovid EMBASE; EBSCO CINAHL; Ovid PsycINFO; PEDro; and the WHO International Clinical Trials Registry Platform Search Portal up to April 2015. References of included studies and identified review articles were screened for additional studies. There were no restrictions based on language, date of publication or study setting. SELECTION CRITERIA: Randomised controlled trials (RCTs) that report on subjective fatigue in people with PD. DATA COLLECTION AND ANALYSIS: Two review authors independently performed study selection, data collection and risk of bias assessments. MAIN RESULTS: Eleven studies were eligible for this systematic review, with a total of 1817 people. Three studies included only people who experienced clinically relevant fatigue (Fatigue Severity Scale score ≥ 4 out of 7 or Multidimensional Fatigue Inventory total score > 48 out of 100), whereas all other studies did not select participants on the basis of experienced fatigue. Nine studies investigated the effects of medication (i.e. levodopa-carbidopa, memantine, rasagiline, caffeine, methylphenidate, modafinil or doxepin) on subjective fatigue. All studies were placebo controlled. There was insufficient evidence to determine the effect of doxepin on the impact of fatigue on activities in daily life (ADL) or fatigue severity (one study, N = 12, standardised mean difference (SMD) = -1.50, 95% confidence interval (CI) -2.84 to -0.15; low quality evidence). We found high quality evidence that rasagiline reduced or slowed down the progression of physical aspects of fatigue (one study, N = 1176, SMD = -0.27, 95% CI -0.39 to -0.16, I(2) = 0%). None of the other pharmacological interventions affected subjective fatigue in PD. With regard to adverse effects, only levodopa-carbidopa showed an increase for the risk of nausea (one study, N = 361, risk ratio (RR) = 1.85, 95% CI 1.05 to 3.27; high quality evidence). Two studies investigated the effect of exercise on fatigue compared with usual care. We found low quality evidence for the effect of exercise on reducing the impact of fatigue on ADL or fatigue severity (two studies, N = 57, SMD = -0.45, 95% CI -1.21 to 0.32, I(2) = 44%). AUTHORS' CONCLUSIONS: Based on the current evidence, no clear recommendations for the treatment of subjective fatigue in PD can be provided. Doxepin may reduce the impact of fatigue on ADL and fatigue severity; however, this finding has to be confirmed in high quality studies. Rasagiline may be effective in reducing levels of physical fatigue in PD. No evidence was found for the effectiveness of levodopa-carbidopa, memantine, caffeine, methylphenidate, modafinil or exercise. Studies are needed to investigate the effect of exercise intensity on exercise capacity and subjective fatigue. Future studies should focus on interventions that address the maladaptive behavioural or cognitive aspects of fatigue in people with PD. Characteristics, such as severity and nature of perceived fatigue and underlying mood disorders should be considered to identify responders and non-responders when studying interventions for fatigue. The development of a core-set of self-report fatigue questionnaires with established responsiveness and known minimal important difference values will facilitate the interpretation of change in fatigue scores.


Asunto(s)
Estimulantes del Sistema Nervioso Central/uso terapéutico , Dopaminérgicos/uso terapéutico , Ejercicio Físico , Fatiga/terapia , Enfermedad de Parkinson/complicaciones , Fatiga/etiología , Humanos , Ensayos Clínicos Controlados Aleatorios como Asunto
3.
Clin Rehabil ; 28(3): 300-11, 2014 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-24113725

RESUMEN

OBJECTIVE: To investigate the longitudinal association between the impact of fatigue and health-related quality of life and to determine if potential confounders distorted this association. DESIGN: Baseline, 3-, 6- and 12-week assessments of a randomized clinical trial were used. SETTING: Outpatient rehabilitation centre. SUBJECTS: Patients with idiopathic Parkinson's disease. METHODS: Quality of life was assessed with the Parkinson's Disease Questionnaire-39 and the Multidimensional Fatigue Inventory was used to assess fatigue. Time-independent and time-dependent factors were investigated for their bivariate association with quality of life by applying random coefficient analysis. Candidate confounders were successively added to the longitudinal association model to determine if the relationship between quality of life and fatigue was distorted. A change beyond 15% of found regression coefficient of the Multidimensional Fatigue Inventory was considered significant. RESULTS: One hundred and fifty-three patients were included. Impact of fatigue was significantly associated with poorer quality of life (ß = 0.24, 95% confidence interval = 0.18 to 0.30). This association was significantly distorted by depression (30.0%) and anxiety (24.1%). No distortion was found for other factors. After controlling for confounders, fatigue remained significantly associated with quality of life (ß = 0.12, 95% confidence interval = 0.06 to 0.18, r (2) = 2.3%). CONCLUSIONS: Our results suggest that patients who experience fatigue tend to report lower levels of quality of life. However, this longitudinal relationship is confounded by depression and anxiety and suggests that the unique contribution of fatigue to overall quality of life is rather small.


Asunto(s)
Ansiedad/etiología , Depresión/etiología , Fatiga/psicología , Enfermedad de Parkinson/psicología , Calidad de Vida/psicología , Anciano , Fatiga/etiología , Femenino , Humanos , Masculino , Pacientes Ambulatorios , Enfermedad de Parkinson/complicaciones , Enfermedad de Parkinson/rehabilitación , Estudios Prospectivos , Ensayos Clínicos Controlados Aleatorios como Asunto , Análisis de Regresión , Centros de Rehabilitación , Perfil de Impacto de Enfermedad
4.
Rheumatology (Oxford) ; 52(10): 1879-83, 2013 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-23861533

RESUMEN

OBJECTIVE: Advances in pharmacological care for RA have in general reduced functional disability. However, subgroups of patients may need treatment by a multidisciplinary team. This study aimed to describe the levels of functional ability and outcomes of patients with RA admitted for multidisciplinary rehabilitation in the past 20 years. METHODS: Data from three observational studies including four cohorts (1, 1992; 2a, 2001; 2b, 2003 and 3, 2008) on outcomes of multidisciplinary rehabilitation for RA patients conducted in one Dutch rheumatology clinic were used. Baseline and change scores of the HAQ were compared using a one-way analysis of variance with post hoc multiple comparisons (Bonferroni correction). RESULTS: The mean HAQ scores were 1.94 (s.d. 0.74) for cohort 1, 1.40 (0.74) and 1.39 (0.66) for cohorts 2a and 2b, respectively, and 1.49 (0.59) for cohort 3, with the difference between cohort 1 on the one side and cohorts 2a/2b and 3 on the other side being statistically significant (P < 0.01). The mean changes in HAQ score between admission and discharge were 0.24 (s.d. 0.50) for cohort 1, 0.17 (0.49) for cohort 2a, 0.15 (0.37) for cohort 2b and 0.25 (0.46) for cohort 3. CONCLUSION: The level of functional disability of RA patients admitted for multidisciplinary rehabilitation decreased between 1992 and 2001. The magnitude of improvement in functional ability during admission was in the same range in all three periods. These results suggest that in the era of MTX and biologics there are patients with RA who have considerable disability and benefit from multidisciplinary rehabilitation.


Asunto(s)
Artritis Reumatoide/rehabilitación , Grupo de Atención al Paciente/organización & administración , Centros de Rehabilitación/organización & administración , Adulto , Anciano , Artritis Reumatoide/fisiopatología , Evaluación de la Discapacidad , Femenino , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Admisión del Paciente , Alta del Paciente , Índice de Severidad de la Enfermedad , Resultado del Tratamiento
5.
Rheumatology (Oxford) ; 52(2): 368-75, 2013 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-23065316

RESUMEN

OBJECTIVE: To compare the effectiveness of two educational courses aiming to improve adherence to recommendations in a Dutch physiotherapy practice guideline for hip and knee OA. METHODS: Physiotherapists (PTs) from three regions in The Netherlands were invited to participate in a study comparing an interactive workshop (IW) with conventional education (CE). Participants were randomly assigned to one of the two courses. Satisfaction with the course (scale 0-10), knowledge (score range 0-76) and guideline adherence (score range 0-72) were measured at baseline, immediately after the educational course and 3 months after that. Data were analysed using a linear mixed model. RESULTS: In total, 203 (10%) PTs participated in the IW (n = 108) and the CE (n = 95). There were no differences between groups at baseline. Satisfaction was significantly higher in the IW than in the CE group [mean scores (S.D.) 7.5 (1.1) and 6.7 (1.6), respectively (P < 0.001)]. A significantly greater improvement in adherence was seen over time in the IW group compared with the CE group (F = 3.763, P = 0.024), whereas the difference in improvement of knowledge was not significant (F = 1.283, P = 0.278). CONCLUSION: An IW led to greater satisfaction and was more effective in improving adherence to recommendations in a PT guideline on hip and knee OA than CE, whereas the increase in knowledge did not differ significantly.


Asunto(s)
Educación de Postgrado/normas , Adhesión a Directriz/normas , Osteoartritis de la Cadera/terapia , Osteoartritis de la Rodilla/terapia , Especialidad de Fisioterapia/educación , Guías de Práctica Clínica como Asunto , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Satisfacción Personal , Encuestas y Cuestionarios
6.
Health Informatics J ; 29(2): 14604582231169299, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37083311

RESUMEN

Primary healthcare professionals face an increasing number of geriatrics patients, and patient care often involves different disciplines. eHealth offers opportunities to support interprofessional collaboration (IPC). This exploratory study aimed to gain insight in 1) IPC in community-based rehabilitation, 2) facilitators and barriers for technology-based IPC and 3) technological IPC solutions envisioned by the primary healthcare professionals An focus group with six primary healthcare professionals and a design thinking session with four participants were conducted. Data analysis was based upon an IPC model. Results indicate that facilitators and barriers for IPC can be clustered in three categories: human, organization and technology, and provide some requirements to develop suitable IPC technological solutions Primary healthcare professionals recognise the urgency of working collaboratively. Current barriers are understanding each other's professional vocabulary, engaging the older adults, and using technology within the patient's environment. Further research is needed to integrate IPC components in a technological solution.


Asunto(s)
Personal de Salud , Relaciones Interprofesionales , Humanos , Anciano , Grupos Focales , Atención Primaria de Salud , Conducta Cooperativa
7.
Qual Life Res ; 21(6): 925-44, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22012025

RESUMEN

PURPOSE: To critically appraise, compare and summarize the measurement properties of self-report fatigue questionnaires validated in patients with multiple sclerosis (MS), Parkinson's disease (PD) or stroke. METHODS: MEDLINE, EMBASE, PsycINFO, CINAHL and SPORTdiscus were searched. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist was used to assess the methodological quality of studies. A qualitative data synthesis was performed to rate the measurement properties for each questionnaire. RESULTS: Thirty-eight studies out of 5,336 records met the inclusion criteria, evaluating 31 questionnaires. Moderate evidence was found for adequate internal consistency and structural validity of the Fatigue Scale for Motor and Cognitive functions (FSMC) and for adequate reliability and structural validity of the Unidimensional Fatigue Impact Scale (U-FIS) in MS. CONCLUSIONS: We recommend the FSMC and U-FIS in MS. The Functional Assessment of Chronic Illness Therapy Fatigue subscale (FACIT-F) and Fatigue Severity Scale (FSS) show promise in PD, and the Profile of Mood States Fatigue subscale (POMS-F) for stroke. Future studies should focus on measurement error, responsiveness and interpretability. Studies should also put emphasis on providing input for the theoretical construct of fatigue, allowing the development of questionnaires that reflect generic and disease-specific symptoms of fatigue.


Asunto(s)
Fatiga/diagnóstico , Esclerosis Múltiple/complicaciones , Enfermedad de Parkinson/complicaciones , Psicometría/instrumentación , Accidente Cerebrovascular/complicaciones , Encuestas y Cuestionarios , Fatiga/etiología , Humanos , Reproducibilidad de los Resultados , Autoinforme , Índice de Severidad de la Enfermedad , Estudios de Validación como Asunto
8.
BMJ Open ; 12(3): e057236, 2022 03 28.
Artículo en Inglés | MEDLINE | ID: mdl-35351725

RESUMEN

OBJECTIVES: To identify implicit and more profound barriers and facilitators and involving context elements to accomplish sustained physical activity (PA) in patients with a chronic disease. Understanding these barriers and facilitators may help develop future strategies to be used by healthcare professionals in primary care to support patients with a chronic disease to reach sustained PA. DESIGN AND METHODS: The qualitative, narrative research method storytelling was applied. Perspectives of both patients with a chronic disease (n=12) and involved healthcare professionals (n=11) were collected. Stories were audiotaped and retrieved from the transcriptions. Analysis involved a cyclic process of constant comparison. Main themes were arranged in the theoretical framework of the Capability, Opportunity, Motivation and Behaviour (COM-B) model. PARTICIPANTS: Patients were adults with a chronic disease or at high risk of developing a chronic disease who participated in a PA promoting programme. Eligible healthcare professionals were those involved in these PA promoting programmes in primary care, such as physiotherapists, nurse practitioners or sports consultants. RESULTS: From 176 stories, 62 relevant and unique stories were selected for further analysis. Eleven main themes were identified and afterwards linked to the COM-B model. Trust in one's own capabilities and in the healthcare professional were relevant themes. Also, health literacy and coping with temporary interruption were important capabilities. Important motivators were customised PA, increasing awareness, meaningful activities, exercising in a group and success experiences. Aversion to sports was seen as a barrier. Interprofessional collaboration and prerequisites can be a facilitator or a barrier. CONCLUSIONS: This study provides insight into deeper motivations, barriers and facilitators of sustained PA from both the patients' and healthcare professionals' perspective. Comparing these perspectives revealed different views and beliefs on some themes. Attention for temporary interruptions, aversion to sports and health literacy were identified to be important for sustained PA.


Asunto(s)
Ejercicio Físico , Motivación , Adulto , Enfermedad Crónica , Personal de Salud , Humanos , Investigación Cualitativa
9.
Rheumatology (Oxford) ; 49(2): 326-33, 2010 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-19952091

RESUMEN

OBJECTIVE: To investigate the validity and responsiveness of the World Health Organization Disability Schedule II (WHODAS II) in patients with established RA. METHODS: In 85 RA patients admitted for rehabilitation, the WHODAS II (0-100) was applied at admission and 6 weeks after discharge. Additional assessments included measures of physical and psychological functioning, disease activity and quality of life. The internal consistency of the WHODAS II was determined with Cronbach's-alpha. Associations between the WHODAS II and other outcome measures were determined by Pearson's rank correlation coefficients. Responsiveness measures included the standardized response mean (SRM), effect size (ES) and responsiveness ratio (RR). RESULTS: Cronbach's-alpha of the WHODAS II total score was 0.91. The baseline WHODAS II total score correlated significantly with all other outcome measures, except for the 50-feet walk test, the timed-stands test and the Escola Paulista de Medicina Range of Motion scale. The mean WHODAS II total score improved from 40.5 (s.d. 14.9) at baseline to 4.6 at 6 weeks after discharge (95% CI -8.1, -1.2). The WHODAS II responsiveness scores were -0.35 (SRM), -0.34 (ES) and -0.58 (RR) at 6 weeks after discharge. CONCLUSION; The WHODAS II appeared to be internally consistent, valid and responsive to assess disability in patients with established RA admitted for multidisciplinary team care in terms of International Classification of Functioning, Disability and Health. The WHODAS II showed significant floor effects regarding the subscales--'understanding communicating' and 'getting along with people'. In a multidisciplinary setting, the additional use of measures to evaluate personal and environmental factors seems warranted.


Asunto(s)
Artritis Reumatoide/rehabilitación , Evaluación de la Discapacidad , Adulto , Anciano , Anciano de 80 o más Años , Antiinflamatorios no Esteroideos/uso terapéutico , Antirreumáticos/uso terapéutico , Artritis Reumatoide/fisiopatología , Artritis Reumatoide/psicología , Femenino , Glucocorticoides/uso terapéutico , Humanos , Masculino , Persona de Mediana Edad , Grupo de Atención al Paciente , Psicometría , Calidad de Vida , Rango del Movimiento Articular , Reproducibilidad de los Resultados , Factores Socioeconómicos , Adulto Joven
10.
Physiother Theory Pract ; 35(4): 318-326, 2019 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-29474105

RESUMEN

Self-management support programs are reported to have positive effects on the health and care of people with physical disabilities. It is unclear how physiotherapists (PTs) view self-management support. A cross-sectional study with mixed-methods design using Q-methodology was conducted to determine the perspectives of Dutch PTs on self-management support. PTs (n = 39) rank-ordered 37 validated statements about self-management support from "most disagree (-3)" to "most agree (+3)." Differences in perspectives on self-management support were explored in a by-person centroid factor analysis on the basis of the explained variance (R2). After having sorted the statements, PTs explained their ranking of -3 and +3 statements in semi-structured interviews. All PTs recognized self-management support as intrinsic part of physiotherapy practice. Nevertheless, four particular perspectives could be identified: (1) the "externally driven educator" (R2 = 14%), (2) "internally driven educator" (R2 = 9%), (3) "client-centered coach" (R2 = 13%), and (4) "client-initiated coach" perspective (R2 = 15%). Each perspective reflects particular goals and perceptions of self-management support. Differences were identified with respect to the PTs' role perception (educating or coaching), drive (external or internal), and collaboration with the patient (as partner or not). The identified perspectives can be used in the physiotherapy education curriculum to create awareness about the various ways of practicing self-management support and the skills needed to be able to tailor support to patient needs and to switch between perspectives.


Asunto(s)
Actitud del Personal de Salud , Conocimientos, Actitudes y Práctica en Salud , Fisioterapeutas/psicología , Autocuidado/métodos , Automanejo/métodos , Adulto , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Educación del Paciente como Asunto , Participación del Paciente , Rol Profesional , Relaciones Profesional-Paciente , Adulto Joven
11.
Clin Rheumatol ; 27(7): 899-908, 2008 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-18214572

RESUMEN

To evaluate the role of purpose in life among people with rheumatoid arthritis (RA), a questionnaire comprising the Purpose in Life test (PIL) and the purpose in life dimension of the Psychological Well-Being test (PWB-pil) was sent to a random sample of 300 patients with RA. Additional questions comprised sociodemographic and disease characteristics, physical, mental and social functioning, coping (Coping with rheumatic stressors questionnaire), and quality of life (RAND-36). Associations between sociodemographic and disease characteristics, physical, mental and social functioning, and coping on the one side and the two measures of purpose in life on the other side and associations between the two purpose of life measures and physical and mental dimensions of quality of life were assessed by means of univariate and multivariate regression analyses. The response rate was 156 of 300 (52%). The median PIL and PWB-pil scores were 103 (range 63-131) and 82 (41-110), respectively. A lower age, a better mental health status, and an optimistic coping style were significantly associated with both higher PIL and PWB-pil scores, whereas more participation in leisure and/or social activities was associated with a higher PIL score. It was found that the PIL and PWB-pil contributed independently and significantly to the mental component summary scale of the RAND-36. In RA patients, lower age, a better mental health status, an optimistic coping style, and participation in leisure and/or social activities were significantly associated with more sense of purpose in life. Purpose in life pays a significant and independent contribution to the mental component of quality of life. These findings highlight the significance of the concept of purpose in life in patients with RA.


Asunto(s)
Adaptación Psicológica , Artritis Reumatoide/psicología , Intención , Satisfacción Personal , Adulto , Anciano , Anciano de 80 o más Años , Escalas de Valoración Psiquiátrica Breve , Estudios Transversales , Femenino , Indicadores de Salud , Humanos , Masculino , Persona de Mediana Edad , Calidad de Vida , Ajuste Social
12.
Complement Med Res ; 24(4): 225-231, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28803238

RESUMEN

BACKGROUND: In Western healthcare policies, promotion of self-management of patients is an important topic. Currently, there is also a worldwide interest in the integration of complementary and alternative medicine (CAM) and conventional medicine into integrative medicine. This article explores the contribution of anthroposophic medicine (AM) to the promotion of self-management of patients. MATERIAL AND METHODS: The scientific literature on concepts of, evidence on and experiences of patients with AM was explored. RESULTS: The AM approach contributes to: (1) a patient-centered, collaborative promotion of patient self-management by means of application of basic values (equivalence, servitude, and presence of mind) and specific methods; (2) a better coping with health-related issues by providing a spiritual worldview that serves as a coping strategy; by treating patients in such a way that they (further) develop self-regulating functioning, both on the physiological and the psychosocial level, thus enabling the self-management of disease-related symptoms; and by treating with (non-verbal) therapies that improve emotion-focused coping skills; and (3) a better self-monitoring of: one's own activity during treatment and in dealing with treatment- and health-related issues, and the physiological and/or psychological responses to these (self-reflection) activities. CONCLUSION: AM provides specific contributions to promoting self-management of patients.


Asunto(s)
Medicina Antroposófica/psicología , Relaciones Médico-Paciente , Automanejo/psicología , Adaptación Psicológica , Adulto , Terapias Complementarias , Europa (Continente) , Humanos , Medicina Integrativa , Investigación Cualitativa , Espiritualidad , Encuestas y Cuestionarios
13.
Stud Health Technol Inform ; 124: 913-9, 2006.
Artículo en Inglés | MEDLINE | ID: mdl-17108628

RESUMEN

The Internet is nowadays a powerful medium and can help patients to become better-informed citizens. Increasingly, citizens are searching for health information on the Internet. The Internet-based resource often acts as a virtual healthcare professional. The effectiveness of the communication between the patient and the virtual healthcare professional depends partly upon the presence of contextual information. The issue here is to what extent the contextualization of information is needed for effective information seeking and for the person's understanding of the retrieved/received information. The impact of contextualization on information search also closely relates to the person's cognitive resources. Using a theoretical communication framework (Te'eni 2001), we explore contextualization in a health website, and discuss the above issues and the possible relevance of contextualized information on the informed patient.


Asunto(s)
Internet , Informática Médica , Educación del Paciente como Asunto , Acceso a la Información , Humanos , Países Bajos , Participación del Paciente
14.
Disabil Rehabil ; 37(3): 274-82, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-24773119

RESUMEN

PURPOSE: To determine the effectiveness of an interactive educational intervention on a physiotherapy guideline for hip and knee osteoarthritis. METHOD: Physiotherapists were randomly allocated to a 3-h interactive educational course with the collaboration of three patient partners or no intervention. Assessments comprised questionnaires on adherence (score range 0-24), knowledge (score range 0-76), and barriers to use the guideline (score range 0-80). Assessments were conducted 1 week before the interactive course (T0) immediately after (T1), and 3 months thereafter (T2). Change scores were compared between the groups by means of Mann-Whitney U tests and linear mixed models. RESULTS: 284 of 4328 eligible PTs (7%) were included. The intervention (n = 133) was significantly more effective than no intervention (n = 151) concerning self-reported adherence and knowledge with mean differences in change scores (95% CI) at T1 and T2 being 1.4 (0.7-2.0) and 0.9 (0.2-1.7) for adherence and 6.8 (4.5-9.1) and 3.9 (1.7-6.2) for knowledge, (all p values < 0.005). In both groups the barrier score increased at T1 and decreased at T2, with a significantly larger increase at T1 and decrease at T2 in the intervention group (mean differences 3.1 (1.8-4.4) and 3.3 (0.5-6.1), respectively. CONCLUSIONS: A short interactive educational course with patient participation on a PT guideline on hip and knee osteoarthritis showed a small to moderate positive effect on self-reported guideline adherence and knowledge, whereas for perceived barriers an advantage was only seen on the longer term.


Asunto(s)
Osteoartritis de la Cadera/rehabilitación , Osteoartritis de la Rodilla/rehabilitación , Participación del Paciente , Fisioterapeutas/educación , Modalidades de Fisioterapia , Adulto , Educación a Distancia , Educación Médica Continua , Femenino , Adhesión a Directriz , Humanos , Conocimiento , Masculino , Persona de Mediana Edad , Países Bajos , Evaluación de Resultado en la Atención de Salud , Guías de Práctica Clínica como Asunto , Calidad de Vida , Proyectos de Investigación , Autoinforme , Encuestas y Cuestionarios
15.
J Rehabil Med ; 45(4): 370-5, 2013 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-23450464

RESUMEN

OBJECTIVE: To investigate the predictive value of gait speed for community walking in Parkinson's disease and to develop a multivariate prediction model for community walking. DESIGN: Data from baseline assessments in a randomized clinical trial were used. SUBJECTS: A total of 153 patients with Parkinson's disease were included. METHODS: Community walking was evaluated using the mobility domain of the Nottingham extended activities of daily living index (NEAI). Patients who scored 3 points on item 1 ("Did you walk around outside?") and item 5 ("Did you cross roads?") were considered community walkers. Gait speed was measured with the 6-m or 10-m timed walking test. Age, gender, marital status, disease duration, disease severity, motor impairment, balance, freezing of gait, fear of falling, previous falls, cognitive function, executive function, fatigue, anxiety and depression were investigated for their contribution to the multivariate model. RESULTS: Seventy patients (46%) were classified as community walkers. A gait speed of 0.88 m/s correctly predicted 70% of patients as community walkers. The multivariate model, including gait speed and fear of falling, correctly predicted 78% of patients as community walkers. CONCLUSION: Timed walking tests are valid measurements to predict community walking in Parkinson's disease. However, evaluation of community walking should include an assessment of fear of falling.


Asunto(s)
Marcha , Enfermedad de Parkinson/rehabilitación , Caminata , Anciano , Prueba de Esfuerzo , Femenino , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Enfermedad de Parkinson/fisiopatología , Valor Predictivo de las Pruebas , Características de la Residencia
16.
Parkinsonism Relat Disord ; 18(5): 532-6, 2012 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-22361576

RESUMEN

INTRODUCTION: The Multidimensional Fatigue Inventory (MFI) is commonly used in patients with Parkinson's disease (PD). However, most measurement properties have not been investigated in this population. The aim of this study was to investigate internal consistency, test-retest reliability, measurement error, structural validity, and floor and ceiling effects of the MFI in PD. METHODS: Patients with PD (N = 153) completed the MFI at baseline and week 3 in a randomized clinical trial. Cronbach's α, intraclass correlation coefficient (ICC), and the smallest detectable change (SDC) were calculated. Bland and Altman analysis was performed. Principal Component Analysis (PCA) was used to explore structural validity. Floor and ceiling effects were investigated. RESULTS: Cronbach's α for the MFI-total and subscales ranged from 0.74 (reduced motivation (RM)) to 0.92 (MFI-total). ICC's ranged from 0.65 (mental fatigue (MF) to 0.81 (physical fatigue (PF)), SDC ranged from 4 points (PF and RM) to 15 points (MFI-total). Bland and Altman analysis showed no systematic differences between assessments. A floor effect was found for MF and ceiling effects for PF and reduced activity (RA). A four-factor model was extracted, combining general fatigue (GF) and PF as one factor. CONCLUSIONS: The MFI is reliable and valid to assess fatigue in patients with PD. Clinicians and researchers interested in assessing specific aspects of fatigue should consider interpreting GF and PF as one subscale measuring physical aspects of fatigue. To establish whether the MFI can detect meaningful changes, studies on anchor-based responsiveness and the minimal important change are needed in PD.


Asunto(s)
Fatiga/diagnóstico , Fatiga/etiología , Enfermedad de Parkinson/complicaciones , Índice de Severidad de la Enfermedad , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Fatiga/terapia , Femenino , Humanos , Masculino , Persona de Mediana Edad , Enfermedad de Parkinson/terapia , Análisis de Componente Principal , Desempeño Psicomotor/fisiología , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Adulto Joven
17.
Phys Ther ; 92(10): 1292-305, 2012 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-22723432

RESUMEN

BACKGROUND: Although the increasing complexity and expansion of the body of knowledge in physical therapy have led to specialized practice areas to provide better patient care, the impact of specialization on guideline implementation has been scarcely studied. Objectives The objective of this study was to identify the similarities and differences in barriers to the implementation of a Dutch rheumatoid arthritis (RA) guideline by generalist and specialist physical therapists. Design This observational study consisted of 4 focus group interviews in which 24 physical therapists (13 generalist and 11 specialist physical therapists) participated. METHODS: Physical therapists were asked to discuss barriers to the implementation of the RA guideline. Data were analyzed qualitatively using a directed approach to content analysis. Both the interviews and the interview analysis were informed by a previously developed conceptual framework. RESULTS: Besides a number of similarities (eg, lack of time), the present study showed important, although subtle, differences in barriers to the implementation of the RA guideline between generalist physical therapists and specialist physical therapists. Generalist physical therapists more frequently reported difficulties in interpreting the guideline (cognitive barriers) and had less favorable opinions about the guideline (affective barriers) than specialist physical therapists. Specialist physical therapists were hampered by external barriers that are outside the scope of generalist physical therapists, such as a lack of agreement about the roles and responsibilities of medical professionals involved in the care of the same patient. CONCLUSIONS: The identified differences in barriers to the implementation of the RA guideline indicated that the effectiveness of implementation strategies could be improved by tailoring them to the level of specialization of physical therapists. However, it is expected that tailoring implementation strategies to barriers that hamper both generalist and specialist physical therapists will have a larger effect on the implementation of the RA guideline.


Asunto(s)
Artritis Reumatoide/rehabilitación , Adhesión a Directriz , Fisioterapeutas , Modalidades de Fisioterapia , Adulto , Femenino , Grupos Focales , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Guías de Práctica Clínica como Asunto , Investigación Cualitativa , Especialización
18.
Biomed Inform Insights ; 2(1): 1-10, 2009 Jan 01.
Artículo en Inglés | MEDLINE | ID: mdl-20419038

RESUMEN

The number of health-related websites has proliferated over the past few years. Health information consumers confront a myriad of health related resources on the internet that have varying levels of quality and are not always easy to comprehend. There is thus a need to help health information consumers to bridge the gap between access to information and information understanding-i.e. to help consumers understand health related web-based resources so that they can act upon it. At the same time health information consumers are becoming not only more involved in their own health care but also more information technology minded. One way to address this issue is to provide consumers with tailored information that is contextualized and personalized e.g. directly relevant and easily comprehensible to the person's own health situation. This paper presents a current trend in Consumer Health Informatics which focuses on theory-based design and development of contextualized and personalized tools to allow the evolving consumer with varying backgrounds and interests to use online health information efficiently. The proposed approach uses a theoretical framework of communication in order to support the consumer's capacity to understand health-related web-based resources.

19.
Arthritis Rheum ; 57(2): 240-8, 2007 Mar 15.
Artículo en Inglés | MEDLINE | ID: mdl-17330301

RESUMEN

OBJECTIVE: To investigate whether the use of an International Classification of Functioning, Disability and Health (ICF)-based instrument to structure multidisciplinary care improves clinical effectiveness and satisfaction in patients with rheumatoid arthritis (RA) admitted for multidisciplinary team care. METHODS: Consecutive patients with RA admitted to an inpatient or day patient multidisciplinary team care ward were included during a 12-month period before (period I) and after (period II) the introduction of an ICF-based rehabilitation tool (Rehabilitation Activities Profile [RAP]). Patients were assessed at admission, discharge, and 6 weeks thereafter. The primary outcome measure was a patient-oriented measure of functional ability (McMaster Toronto Arthritis Patient Preference Disability Questionnaire [MACTAR]), whereas secondary outcome measures included measures of physical and mental functioning, quality of life, disease activity, and patient satisfaction. Change scores between periods were compared using analysis of covariance. RESULTS: A total of 80 and 85 patients were included in periods I and II, respectively. Concerning the improvement of the MACTAR score and all other secondary clinical outcome measures, there was no significant difference between the 2 periods. Patient satisfaction with care was slightly higher in period II than in period I, with the differences regarding the total score of a multidimensional satisfaction questionnaire and the domains focusing on individual problems and empathy reaching statistical significance. CONCLUSION: The introduction of the RAP did not change clinical effectiveness but had a modest beneficial impact on patient satisfaction with care in patients with RA admitted for multidisciplinary team care.


Asunto(s)
Actividades Cotidianas/clasificación , Artritis Reumatoide/rehabilitación , Evaluación de la Discapacidad , Grupo de Atención al Paciente , Encuestas y Cuestionarios/normas , Adulto , Anciano , Anciano de 80 o más Años , Artritis Reumatoide/psicología , Estudios de Cohortes , Femenino , Estado de Salud , Indicadores de Salud , Humanos , Masculino , Persona de Mediana Edad , Satisfacción del Paciente , Estudios Prospectivos
20.
Acta Obstet Gynecol Scand ; 85(7): 850-5, 2006.
Artículo en Inglés | MEDLINE | ID: mdl-16817085

RESUMEN

BACKGROUND: We examined the positioning of five commonly used probes in electrostimulation and biofeedback training. MATERIALS AND METHODS: Ultrasound and MRI were used to evaluate the position of these probes in two multiparous women, in reference to pelvic floor anatomy. RESULTS: From caudal to cranial we identified the anal external sphincter, puborectal muscle, and levator group. Positioning of probes varied considerably: the recording plates are situated from 1 cm caudal to 6 cm cranial of the puborectal muscle. Most probes stretched, due to a relatively large diameter, the vagina wall, anal external sphincter, or puborectal muscle beyond physiological proportions. On straining, all probes were pushed upwards into the rectum. CONCLUSION: The positioning of all examined probes varied considerably. Hence it is not likely that these probes give a reliable and uniform registration of muscular activity of the pelvic floor function or are all optimal for electrostimulation.


Asunto(s)
Electromiografía/instrumentación , Diafragma Pélvico/fisiología , Incontinencia Urinaria de Esfuerzo/fisiopatología , Prolapso Uterino/fisiopatología , Canal Anal/fisiopatología , Biorretroalimentación Psicológica , Diseño de Equipo , Femenino , Humanos , Vagina/fisiopatología
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