Detalhe da pesquisa
1.
An Assessment of Perspectives and Concerns Among Research Participants of Childbearing Age Regarding the Health-Relatedness of Data, Online Data Privacy, and Donating Data to Researchers: Survey Study.
J Med Internet Res
; 25: e41937, 2023 03 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-36897637
2.
Practical Considerations and Recommendations for "a Revised Hippocratic Oath for the Era of Digital Health".
J Med Internet Res
; 24(10): e43383, 2022 10 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-36287597
3.
Report From the Field: Public Health Equity Through Innovative Multisector Data Sharing.
J Public Health Manag Pract
; 28(4 Suppl 4): S171-S178, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35616563
4.
Addressing Climate Change-Induced Tick-borne Lyme Disease Patterns Through Data-Driven 'One Health' Policy.
J Public Health Manag Pract
; 30(4): E157-E160, 2024.
Artigo
em Inglês
| MEDLINE | ID: mdl-38870383
5.
When should genomic and exome sequencing be implemented in newborns? A call for an update to newborn screening guidelines.
Genet Med
; 22(4): 809-810, 2020 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-31767983
6.
The case for implementing sustainable routine, population-level genomic reanalysis.
Genet Med
; 22(4): 815-816, 2020 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-31831882
7.
Direct-to-Consumer Genetic Testing and Potential Loopholes in Protecting Consumer Privacy and Nondiscrimination.
JAMA
; 321(19): 1869-1870, 2019 May 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-30998825
8.
Social determinants of health Z-code documentation practices in mental health settings: a scoping review.
Health Aff Sch
; 2(4): qxae046, 2024 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-38756172
9.
A survey of United States adult privacy perspectives and willingness to share real-world data.
J Clin Transl Sci
; 7(1): e64, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37008612
10.
Returning personalized, genetic health test results to individuals of African descent or ancestry in precision medicine research.
Health Aff Sch
; 1(6): qxad066, 2023 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-38143510
11.
Developing Ethics and Equity Principles, Terms, and Engagement Tools to Advance Health Equity and Researcher Diversity in AI and Machine Learning: Modified Delphi Approach.
JMIR AI
; 2: e52888, 2023 Dec 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-38875540
12.
The Aetion Coalition to Advance Real-World Evidence through Randomized Controlled Trial Emulation Initiative: Oncology.
Clin Pharmacol Ther
; 113(6): 1217-1222, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36408668
13.
Equity, diversity, and inclusion at the Global Alliance for Genomics and Health.
Cell Genom
; 3(10): 100386, 2023 Oct 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-37868041
14.
Pulse Oximeter App Privacy Policies During COVID-19: Scoping Assessment.
JMIR Mhealth Uhealth
; 10(1): e30361, 2022 01 27.
Artigo
em Inglês
| MEDLINE | ID: mdl-35084348
15.
Selecting Privacy-Enhancing Technologies for Managing Health Data Use.
Front Public Health
; 10: 814163, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35372185
16.
A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers.
J Pers Med
; 12(11)2022 Nov 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-36422098
17.
Patient-Reported Outcomes following Genetic Testing for Familial Hypercholesterolemia, Breast and Ovarian Cancer Syndrome, and Lynch Syndrome: A Systematic Review.
J Pers Med
; 11(9)2021 Aug 27.
Artigo
em Inglês
| MEDLINE | ID: mdl-34575627
18.
Integrating Patient-Reported Outcomes Into Clinical Genetic Testing for Familial Hypercholesterolemia.
J Patient Cent Res Rev
; 8(4): 336-339, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34722802
19.
African American Nurses' Perspectives on Genomic Medicine Research.
AMA J Ethics
; 23(3): E240-251, 2021 03 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33818376
20.
Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.
Wellcome Open Res
; 6: 311, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-35592835