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Association of Afamelanotide With Improved Outcomes in Patients With Erythropoietic Protoporphyria in Clinical Practice.
Wensink, Debby; Wagenmakers, Margreet A E M; Barman-Aksözen, Jasmin; Friesema, Edith C H; Wilson, J H Paul; van Rosmalen, Joost; Langendonk, Janneke G.
Afiliación
  • Wensink D; Porphyria Center Rotterdam, Center for Lysosomal and Metabolic Disease, Department of Internal Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
  • Wagenmakers MAEM; Porphyria Center Rotterdam, Center for Lysosomal and Metabolic Disease, Department of Internal Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
  • Barman-Aksözen J; Institute of Laboratory Medicine, Municipal Hospital Triemli, Zürich, Switzerland.
  • Friesema ECH; Porphyria Center Rotterdam, Center for Lysosomal and Metabolic Disease, Department of Internal Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
  • Wilson JHP; Porphyria Center Rotterdam, Center for Lysosomal and Metabolic Disease, Department of Internal Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
  • van Rosmalen J; Department of Biostatistics, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
  • Langendonk JG; Porphyria Center Rotterdam, Center for Lysosomal and Metabolic Disease, Department of Internal Medicine, Erasmus MC, University Medical Center, Rotterdam, the Netherlands.
JAMA Dermatol ; 156(5): 570-575, 2020 05 01.
Article en En | MEDLINE | ID: mdl-32186677

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Alfa-MSH / Protoporfiria Eritropoyética / Fármacos Dermatológicos Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: JAMA Dermatol Año: 2020 Tipo del documento: Article País de afiliación: Países Bajos

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Calidad de Vida / Alfa-MSH / Protoporfiria Eritropoyética / Fármacos Dermatológicos Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Risk_factors_studies Límite: Adolescent / Adult / Aged / Female / Humans / Male / Middle aged Idioma: En Revista: JAMA Dermatol Año: 2020 Tipo del documento: Article País de afiliación: Países Bajos