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Recruiting diversity where it exists: The Alabama Genomic Health Initiative.
May, Thomas; Cannon, Ashley; Moss, Irene P; Nakano-Okuno, Mariko; Hardy, Sharonda; Miskell, Edrika L; Kelley, Whitley V; Curry, William; East, Kelly M; Acemgil, Aras; Schach, Julie; Sodeke, Stephen O; Fouad, Mona N; Johnson, Robert D; Cimino, James; Richards, Jaimie L; Knight, Sara J; Korf, Bruce.
Afiliación
  • May T; Elson S. Floyd College of Medicine, Washington State University, Vancouver, WA, USA.
  • Cannon A; HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
  • Moss IP; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Nakano-Okuno M; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Hardy S; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Miskell EL; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Kelley WV; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Curry W; HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
  • East KM; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Acemgil A; HudsonAlpha Institute for Biotechnology, Huntsville, AL, USA.
  • Schach J; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Sodeke SO; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Fouad MN; National Center for Bioethics, Tuskegee University, Tuskegee, AL, USA.
  • Johnson RD; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Cimino J; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Richards JL; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Knight SJ; University of Alabama at Birmingham, Birmingham, AL, USA.
  • Korf B; Division of Epidemiology, Department of Internal Medicine, University of Utah School of Medicine, Salt Lake City, UT, USA.
J Genet Couns ; 29(3): 471-478, 2020 06.
Article en En | MEDLINE | ID: mdl-32220047
ABSTRACT
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%-27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Negro o Afroamericano / Genoma Humano / Diversidad Cultural Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Genet Couns Asunto de la revista: GENETICA MEDICA Año: 2020 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Negro o Afroamericano / Genoma Humano / Diversidad Cultural Límite: Humans País/Región como asunto: America do norte Idioma: En Revista: J Genet Couns Asunto de la revista: GENETICA MEDICA Año: 2020 Tipo del documento: Article País de afiliación: Estados Unidos