Recruiting diversity where it exists: The Alabama Genomic Health Initiative.
J Genet Couns
; 29(3): 471-478, 2020 06.
Article
en En
| MEDLINE
| ID: mdl-32220047
ABSTRACT
Lack of diversity among genomic research participants results in disparities in benefits from genetic testing. To address this, the Alabama Genomic Health Initiative employed community engagement strategies to recruit diverse populations where they lived. In this paper, we describe our engagement techniques and recruitment strategies, which resulted in significant improvement in representation of African American participants. While African American participation has not reached the representation of this community as a percentage of Alabama's overall population (26%-27%), we have achieved an overall representation exceeding 20% for African Americans. We believe this demonstrates the value of engagement and recruitment where diverse populations reside.
Palabras clave
Texto completo:
1
Banco de datos:
MEDLINE
Asunto principal:
Negro o Afroamericano
/
Genoma Humano
/
Diversidad Cultural
Límite:
Humans
País/Región como asunto:
America do norte
Idioma:
En
Revista:
J Genet Couns
Asunto de la revista:
GENETICA MEDICA
Año:
2020
Tipo del documento:
Article
País de afiliación:
Estados Unidos