A systematic review and integrative sequential explanatory narrative synthesis: The psychosocial impact of parenting a child with a lysosomal storage disorder.

Hassall, Sadie; Smith, Debbie Michelle; Rust, Stewart; Wittkowski, Anja

Hassall, Sadie; Smith, Debbie Michelle; Rust, Stewart; Wittkowski, Anja.

Afiliación

Hassall S; Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.
Smith DM; Greater Manchester Mental Health NHS Foundation Trust, Manchester, UK.
Rust S; Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.
Wittkowski A; Manchester Academic Health Science Centre, Manchester, UK.

J Inherit Metab Dis ; 45(3): 406-416, 2022 05.

Article en En | MEDLINE | ID: mdl-35124835

Asunto(s)

Responsabilidad Parental; Padres; Niño; Humanos; Lisosomas; Responsabilidad Parental/psicología; Padres/psicología; Investigación Cualitativa

Palabras clave

inherited metabolic disease; orphan disease; paediatric; physical health; rare disorder

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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Padres / Responsabilidad Parental Tipo de estudio: Prognostic_studies / Qualitative_research / Systematic_reviews Límite: Child / Humans Idioma: En Revista: J Inherit Metab Dis Año: 2022 Tipo del documento: Article País de afiliación: Reino Unido

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