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Survival of children with rare structural congenital anomalies: a multi-registry cohort study.
Coi, Alessio; Santoro, Michele; Pierini, Anna; Rankin, Judith; Glinianaia, Svetlana V; Tan, Joachim; Reid, Abigail-Kate; Garne, Ester; Loane, Maria; Given, Joanne; Ballardini, Elisa; Cavero-Carbonell, Clara; de Walle, Hermien E K; Gatt, Miriam; García-Villodre, Laura; Gissler, Mika; Jordan, Sue; Kiuru-Kuhlefelt, Sonja; Kjaer Urhoj, Stine; Klungsøyr, Kari; Lelong, Nathalie; Lutke, L Renée; Neville, Amanda J; Rahshenas, Makan; Scanlon, Ieuan; Wellesley, Diana; Morris, Joan K.
Afiliación
  • Coi A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy. alessio.coi@ifc.cnr.it.
  • Santoro M; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy.
  • Pierini A; Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Via Moruzzi 1, 56124, Pisa, Italy.
  • Rankin J; Fondazione Toscana Gabriele Monasterio, Pisa, Italy.
  • Glinianaia SV; Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK.
  • Tan J; Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, UK.
  • Reid AK; Population Health Research Institute, St George's University of London, London, UK.
  • Garne E; Population Health Research Institute, St George's University of London, London, UK.
  • Loane M; Paediatric Department, Hospital Lillebaelt, Kolding, Denmark.
  • Given J; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, UK.
  • Ballardini E; Faculty of Life and Health Sciences, Ulster University, Belfast, Northern Ireland, UK.
  • Cavero-Carbonell C; Neonatal Intensive Care Unit, Paediatric Section, IMER Registry (Emilia Romagna Registry of Birth Defects), Department of Medical Sciences, University of Ferrara, Ferrara, Italy.
  • de Walle HEK; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Gatt M; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • García-Villodre L; Malta Congenital Anomalies Register, Directorate of Health Information and Research, Pieta, Malta.
  • Gissler M; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain.
  • Jordan S; Information Services Department, THL Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Kiuru-Kuhlefelt S; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, Wales, UK.
  • Kjaer Urhoj S; Information Services Department, THL Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Klungsøyr K; Paediatric Department, Hospital Lillebaelt, Kolding, Denmark.
  • Lelong N; Section of Epidemiology, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
  • Lutke LR; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.
  • Neville AJ; Division for Mental and Physical Health, Norwegian Institute of Public Health, Bergen, Norway.
  • Rahshenas M; Center of Research in Epidemiology and StatisticS/CRESS/Obstetrical Perinatal and Pediatric Epidemiology Research Team (EPOPé), INSERM, INRA, Université de Paris, Paris, France.
  • Scanlon I; Department of Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Wellesley D; IMER Registry (Emila Romagna Registry of Birth Defects), Center for Clinical and Epidemiological Research, University of Ferrara Azienda Ospedaliero- Universitaria di Ferrara, Ferrara, Italy.
  • Morris JK; Center of Research in Epidemiology and StatisticS/CRESS/Obstetrical Perinatal and Pediatric Epidemiology Research Team (EPOPé), INSERM, INRA, Université de Paris, Paris, France.
Orphanet J Rare Dis ; 17(1): 142, 2022 03 29.
Article en En | MEDLINE | ID: mdl-35351164
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Estudios de Cohortes Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Prognostic_studies / Risk_factors_studies / Systematic_reviews Límite: Child / Female / Humans / Infant / Newborn / Pregnancy País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article País de afiliación: Italia
Texto completo
Imprimir
XML
PubMed Links
Buscar en Google

Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Estudios de Cohortes Tipo de estudio: Etiology_studies / Incidence_studies / Observational_studies / Prognostic_studies / Risk_factors_studies / Systematic_reviews Límite: Child / Female / Humans / Infant / Newborn / Pregnancy País/Región como asunto: Europa Idioma: En Revista: Orphanet J Rare Dis Asunto de la revista: MEDICINA Año: 2022 Tipo del documento: Article País de afiliación: Italia