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Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives.
Stubbs, Leigh A; Ferry, Andrew M; Guffey, Danielle; Loccke, Christina; Wade, Erin Moriarty; Pour, Pamela; Ardalan, Kaveh; Chira, Peter; Ganske, Ingrid M; Glaser, Daniel; Higgins, Gloria; Luca, Nadia; Moore, Katharine F; Sivaraman, Vidya; Stewart, Katie; Vasquez-Canizares, Natalia; Hunt, Raegan D; Maricevich, Renata S; Torok, Kathryn S; Li, Suzanne C.
Afiliación
  • Stubbs LA; Department of Pediatrics, Division of Rheumatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.
  • Ferry AM; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.
  • Guffey D; Institute for Clinical and Translational Research, Baylor College of Medicine, Houston, TX, USA.
  • Loccke C; Board of Directors, National Scleroderma Foundation, Danvers, MA, USA.
  • Wade EM; , Boca Raton, FL, USA.
  • Pour P; Advisory Board Member, Scleroderma Foundation Michigan Chapter, Southfield, MI, USA.
  • Ardalan K; Department of Pediatrics, Division of Rheumatology, Duke University School of Medicine, Durham, NC, USA.
  • Chira P; Department of Pediatrics, Division of Rheumatology, University of California San Diego, San Diego, CA, USA.
  • Ganske IM; Department of Plastic and Oral Surgery, Boston Children's Hospital and Harvard Medical School, Boston, MA, USA.
  • Glaser D; Department of Pediatrics, Section of General Pediatrics, Yale University, New Haven, CT, USA.
  • Higgins G; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA.
  • Luca N; Department of Pediatrics, Division of Pediatric Rheumatology, University of Calgary and Alberta Children's Hospital Research Institute, Calgary, AB, Canada.
  • Moore KF; Department of Pediatrics, Division of Pediatric Rheumatology, University of Colorado School of Medicine, Aurora, CO, USA.
  • Sivaraman V; Department of Pediatrics, Division of Rheumatology, Ohio State University College of Medicine and Nationwide Children's Hospital, Columbus, OH, USA.
  • Stewart K; Department of Pediatrics, Division of Pediatric Rheumatology, University of Texas Southwestern, Dallas, TX, USA.
  • Vasquez-Canizares N; Department of Pediatrics, Division of Pediatric Rheumatology, Albert Einstein College of Medicine and Children's Hospital at Montefiore, Bronx, NY, USA.
  • Hunt RD; Department of Dermatology, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.
  • Maricevich RS; Department of Plastic Surgery, Division of Pediatric Plastic Surgery, Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.
  • Torok KS; Department of Pediatrics, Division of Pediatric Rheumatology, University of Pittsburgh and Children's Hospital of Pittsburgh, Pittsburgh, PA, USA.
  • Li SC; Department of Pediatrics, Division of Pediatric Rheumatology, Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, 30 Prospect Avenue, Hackensack, NJ, 07601, USA. suzanne.li@hmhn.org.
Pediatr Rheumatol Online J ; 21(1): 39, 2023 Apr 25.
Article en En | MEDLINE | ID: mdl-37098622
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Cuidadores Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Límite: Child / Female / Humans / Male Idioma: En Revista: Pediatr Rheumatol Online J Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Esclerodermia Sistémica / Cuidadores Tipo de estudio: Diagnostic_studies / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Límite: Child / Female / Humans / Male Idioma: En Revista: Pediatr Rheumatol Online J Año: 2023 Tipo del documento: Article País de afiliación: Estados Unidos