Perspectives of adult patients with lysosomal storage diseases on the transition from pediatric to adult healthcare in Turkey.

Bulut, Fatma Derya; Seydaoglu, Gülsah; Kor, Deniz; Kilavuz, Sebile; Boz, Asli; Önenli Mungan, Neslihan

Bulut, Fatma Derya; Seydaoglu, Gülsah; Kor, Deniz; Kilavuz, Sebile; Boz, Asli; Önenli Mungan, Neslihan.

Afiliación

Bulut FD; Çukurova University, Pediatric Metabolism and Nutrition Department, Adana, Turkey. Electronic address: deryaozduran@yahoo.com.
Seydaoglu G; Çukurova University, Biostatistics Department, Adana, Turkey.
Kor D; Çukurova University, Pediatric Metabolism and Nutrition Department, Adana, Turkey.
Kilavuz S; Basaksehir Çam ve Sakura City Research and Education Hospital, Pediatric Metabolism Department, Istanbul, Turkey.
Boz A; Çukurova University, Biostatistics Department, Adana, Turkey.
Önenli Mungan N; Çukurova University, Pediatric Metabolism and Nutrition Department, Adana, Turkey.

Arch Pediatr ; 30(7): 450-454, 2023 Oct.

Article en En | MEDLINE | ID: mdl-37331832

Asunto(s)

Enfermedades por Almacenamiento Lisosomal; Humanos; Niño; Adulto; Adolescente; Turquía; Enfermedades por Almacenamiento Lisosomal/diagnóstico; Enfermedades por Almacenamiento Lisosomal/terapia; Atención a la Salud; Padres; Pediatras

Palabras clave

Focus group; Lysosomal storage diseases; Patient opinion; Pediatric care; Transition from childhood to adulthood

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Texto completo: 1 Banco de datos: MEDLINE Asunto principal: Enfermedades por Almacenamiento Lisosomal Tipo de estudio: Diagnostic_studies / Prognostic_studies / Qualitative_research Límite: Adolescent / Adult / Child / Humans País/Región como asunto: Asia Idioma: En Revista: Arch Pediatr Año: 2023 Tipo del documento: Article

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