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1.
Ethn Health ; 28(8): 1103-1114, 2023 11.
Artigo em Inglês | MEDLINE | ID: mdl-37165613

RESUMO

BACKGROUND AND OBJECTIVES: Compared with White patients, Black and American Indian/Alaskan Native (AI/AN) patients experience higher rates of kidney cancer incidence, and Black, AI/AN, and Hispanic patients face later stages of disease at diagnosis, poorer survival rates, and greater risk of mortality. Despite the importance that appropriate treatment has in ensuring positive outcomes, little is known about the association between race and ethnicity and receipt of treatment for kidney cancer. Accordingly, the aim of this study was to explore differences in receipt of treatment and patterns of refusal of recommended treatment by race and ethnicity. DESIGN: 96,745 patients ages 45-84 with kidney cancer were identified in the Surveillance, Epidemiology, and End Results (SEER) program between 2007 and 2014. Logistic regression models were used to examine the association of race and ethnicity with treatment and with patient refusal of recommended treatment. Outcomes of interest were (1) receiving any surgical procedure, and (2) refusing recommended surgery. RESULTS: Relative to White patients, Black and AI/AN patients had lower odds of undergoing any surgical procedure (OR = 0.76; 95% CI: 0.72-0.81; p < 0.001, and OR = 0.92; 95% CI: 0.76-1.10; p = 0.36, respectively) after adjusting for gender, age, insurance status, stage at diagnosis, unemployment status, education status, and income as additive effects. Black and AI/AN patients also had higher odds of refusing recommended surgery (OR = 1.93; 95% CI: 1.56-2.39; p < 0.001, and OR = 1.99; 95% CI: 1.05-3.76; p = 0.035, respectively). Hispanic patients had slightly higher odds of undergoing any surgical procedure (OR = 1.10; 95% CI: 1.04-1.17; p = 0.001) and lower odds of refusal (OR = 0.67; 95% CI: 0.50-0.90; p = 0.007, respectively). CONCLUSIONS: Compared with White patients, Black patients were less likely to receive potentially life-saving surgery, and both Black and AI/AN patients were more likely to refuse recommended surgery.


Assuntos
Etnicidade , Disparidades em Assistência à Saúde , Neoplasias Renais , Fatores Raciais , Humanos , Povo Asiático/estatística & dados numéricos , Negro ou Afro-Americano , Etnicidade/estatística & dados numéricos , Disparidades em Assistência à Saúde/etnologia , Disparidades em Assistência à Saúde/estatística & dados numéricos , Hispânico ou Latino/estatística & dados numéricos , Neoplasias Renais/epidemiologia , Neoplasias Renais/etnologia , Neoplasias Renais/cirurgia , Estados Unidos/epidemiologia , Grupos Raciais/etnologia , Grupos Raciais/estatística & dados numéricos , Fatores Raciais/estatística & dados numéricos , Programa de SEER/estatística & dados numéricos , Brancos , Indígena Americano ou Nativo do Alasca , Pessoa de Meia-Idade , Idoso , Idoso de 80 Anos ou mais
2.
Transl Behav Med ; 9(4): 638-645, 2019 07 16.
Artigo em Inglês | MEDLINE | ID: mdl-29986120

RESUMO

Hispanic breast cancer survivors (BCS) are at high risk for experiencing poor health-related quality of life (HRQoL) after completion of active breast cancer treatment. Therefore, there is a need to develop culturally tailored interventions for Hispanic BCS. To date, there have been limited interventions that have demonstrated that increasing cancer-related knowledge, self-efficacy in communication, and self-management skills can improve HRQoL among Hispanic BCS. These interventions have been delivered in person or by phone, which may be burdensome for Hispanic BCS. To facilitate intervention delivery, we developed My Guide, a Smartphone application aimed at improving HRQoL among Hispanic BCS. The purpose of the current study is to describe the feasibility results of a 4-week pilot trial testing My Guide among Hispanic BCS. Twenty-five women enrolled in the study (75% recruitment rate) and 22 women were retained (91.6% retention rate). Mean time spent using My Guide across the 4 weeks was 9.25 hr, and mean score on the satisfaction survey was 65.91 (range 42-70), in which higher scores reflect greater satisfaction. Participants' scores on the Breast Cancer Knowledge Questionnaire significantly improved from study baseline (M = 9.50, SD = 2.92) to the postintervention assessment (M = 11.14, SD = 2.66), d = 0.59. Participants' HRQoL scores improved over the course of 4 weeks, but these improvements were not statistically significant. Overall, My Guide was feasible and acceptable. Future studies will assess the preliminary efficacy of My Guide in improving HRQoL in a larger, randomized trial of Hispanic BCS.


Assuntos
Neoplasias da Mama/etnologia , Neoplasias da Mama/terapia , Sobreviventes de Câncer/psicologia , Hispânico ou Latino/psicologia , Smartphone/instrumentação , Neoplasias da Mama/mortalidade , Estudos de Viabilidade , Feminino , Humanos , Pessoa de Meia-Idade , Aplicativos Móveis/provisão & distribuição , Projetos Piloto , Qualidade de Vida , Autoeficácia , Autogestão/educação , Autogestão/psicologia , Inquéritos e Questionários , Telefone/instrumentação , Telefone/estatística & dados numéricos
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