RESUMO
While Web-based interventions have proliferated recently, information in the literature is often lacking about how the intervention was developed. In response to that gap, this is a report of the development of a Web-based self-management intervention for intermittent urinary catheter users and pretesting with four adults with spinal cord injury living in the community. Two Web sites were created, one for recruitment and the other for the intervention itself. The intervention involved developing new Web-based technology, including an interactive urinary diary (with fluid intake/urine output and a journal), extensive catheter products information, three intervention nurse phone call consultations, and user-community discussion forums. Study participants completed an online survey and were interviewed twice about the enrollment process and their perceptions of their involvement in the intervention. Suggestions from the pretesting participants were used to revise the Web site applications prior to the next stage of research (a feasibility study). Numerous recommendations and comments were received related to content, interactivity of components, and usability. This article provides a description of how the Web sites were developed (including the technology and software programs used), issues encountered and what was done to address them, and how the Web-based intervention was modified for improvements.
Assuntos
Cateterismo Uretral Intermitente/métodos , Internet , Educação de Pacientes como Assunto/métodos , Autocuidado , Traumatismos da Medula Espinal/complicações , Interface Usuário-Computador , Adulto , Feminino , Humanos , Entrevistas como Assunto , Masculino , Informática em Enfermagem , Inquéritos e QuestionáriosRESUMO
Eating disorders are life-threatening conditions that are challenging to address; however, the primary care setting provides an important opportunity for critical medical and psychosocial intervention. The recently published Diagnostic and Statistical Manual of Mental Disorders, 5th ed., includes updated diagnostic criteria for anorexia nervosa (e.g., elimination of amenorrhea as a diagnostic criterion) and for bulimia nervosa (e.g., criterion for frequency of binge episodes decreased to an average of once per week). In addition to the role of environmental triggers and societal expectations of body size and shape, research has suggested that genes and discrete biochemical signals contribute to the development of eating disorders. Anorexia nervosa and bulimia nervosa occur most often in adolescent females and are often accompanied by depression and other comorbid psychiatric disorders. For low-weight patients with anorexia nervosa, virtually all physiologic systems are affected, ranging from hypotension and osteopenia to life-threatening arrhythmias, often requiring emergent assessment and hospitalization for metabolic stabilization. In patients with frequent purging or laxative abuse, the presence of electrolyte abnormalities requires prompt intervention. Family-based treatment is helpful for adolescents with anorexia nervosa, whereas short-term psychotherapy, such as cognitive behavior therapy, is effective for most patients with bulimia nervosa. The use of psychotropic medications is limited for anorexia nervosa, whereas treatment studies have shown a benefit of antidepressant medications for patients with bulimia nervosa. Treatment is most effective when it includes a multidisciplinary, teambased approach.
Assuntos
Anorexia Nervosa , Bulimia Nervosa , Depressão , Gerenciamento Clínico , Medicina de Família e Comunidade , Psicoterapia/métodos , Adolescente , Adulto , Anorexia Nervosa/diagnóstico , Anorexia Nervosa/etiologia , Anorexia Nervosa/fisiopatologia , Anorexia Nervosa/psicologia , Anorexia Nervosa/terapia , Índice de Massa Corporal , Bulimia Nervosa/diagnóstico , Bulimia Nervosa/etiologia , Bulimia Nervosa/fisiopatologia , Bulimia Nervosa/psicologia , Bulimia Nervosa/terapia , Depressão/diagnóstico , Depressão/terapia , Manual Diagnóstico e Estatístico de Transtornos Mentais , Medicina de Família e Comunidade/métodos , Medicina de Família e Comunidade/normas , Feminino , Hospitalização , Humanos , Masculino , Programas de Rastreamento/métodos , Guias de Prática Clínica como Assunto/normas , Meio Social , Apoio Social , Avaliação de Sintomas/métodosRESUMO
The hair collar sign has been described as a marker of cranial dysraphism, including encephaloceles, meningoceles, and heterotropic brain tissue. This report describes a male born with a hair collar sign who subsequently was found to have a Klippel-Feil anomaly, diastematomyelia, multiple segmental spine and rib anomalies, and a translocation between chromosomes 1 and 4; t(1;4) (q44;q10). While not previously documented, spine abnormalities may be an associated abnormality with the hair collar sign. Physicians should consider radiographic evaluation of the spine in all newborns with a hair collar sign, as well as genetic screening.