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1.
J Perinat Neonatal Nurs ; 37(2): 138-147, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36719649

RESUMO

OBJECTIVE: Under-5 mortality has declined globally; however, proportion of under-5 deaths occurring within the first 28 days after birth has increased significantly. This study aims to determine the impact of an educational intervention on neonatal care and survival rates in Nigeria. METHODS: This was a sequential exploratory mixed-methods design involving 21 health workers in the preintervention phase, while 15 health workers and 30 mother-baby dyads participated in the postintervention phase. Data were collected using semistructured interviews and nonparticipatory observation. Qualitative data were analyzed using thematic analysis, while quantitative data were analyzed using descriptive and inferential statistics. RESULTS: Healthy newborns were routinely separated from their mothers in the preintervention period. During this time, non-evidence-based practices, such as routine nasal and oral suctioning, were performed. Skin-to-skin contact and early initiation of breastfeeding were frequently interrupted. After the intervention, 80.6% were placed in skin-to-skin contact with their mothers, and 20 of these babies maintained contact with the mother until breastfeeding was established. There was decline in neonatal deaths post-intervention. Independent t -test analysis of the day of neonatal death demonstrates a significant difference in mean ( P = .00, 95% confidence interval -5.629; -7.447 to -4.779). CONCLUSION: Newborn survival can be improved through regular training of maternity health workers in evidence-based newborn care.


Assuntos
Aleitamento Materno , Mães , Lactente , Recém-Nascido , Feminino , Gravidez , Humanos , Parto
2.
Pediatr Ann ; 51(1): e40-e46, 2022 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-35020515

RESUMO

Palliative care should be integrated along the continuum for all children living with life-limiting illness. Many misconceptions about palliative care exist, including the misunderstanding that palliative and curative care are mutually exclusive. Many associate palliative care with hospice and do not recognize that palliative care is available and beneficial before end of life. Palliative care should be initiated at the time a family receives a life-limiting diagnosis and should continue throughout the child's life. Children may have a better quality of life and even longer life span when palliative care has an earlier initiation. In this article, we discuss these common misconceptions and describe how children and families benefit from palliative care when it is integrated along the illness continuum. In addition, we discuss how pediatricians can incorporate these principles into their practice to support their families. [Pediatr Ann. 2022;51(1):e40-e46.].


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Cuidados Paliativos , Criança , Humanos , Qualidade de Vida
3.
Adv Neonatal Care ; 20(3): 187-195, 2020 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-32384328

RESUMO

BACKGROUND: First defined in 2002 by Catlin and Carter, neonatal palliative care (NPC) is a relatively new model of care in neonatal pediatrics, first appearing in the medical literature in the early 1980s. PURPOSE: The purpose of this article is to suggest a conceptual definition of NPC that encompasses all the essential concepts as a way of moving NPC forward by having a consistent approach. METHODS: Following a review of the NPC literature, a thematic analysis as a method for identifying, analyzing, and interpreting patterns of meaning in the definitions ("themes") within the literature was undertaken. FINDINGS: The major themes identified included philosophies of care, support, culture and spirituality, the team, and clinical management. IMPLICATIONS FOR RESEARCH: At the heart of NPC is the primacy of maintaining quality of life, while providing ethical and humane care that supports a "good death." The extensive elements presented in this article are considered essential to a comprehensive and conceptual definition of NPC proposed here.


Assuntos
Cuidado do Lactente/métodos , Cuidados Paliativos , Conforto do Paciente/métodos , Qualidade de Vida , Atitude Frente a Morte , Humanos , Recém-Nascido , Futilidade Médica/ética , Futilidade Médica/psicologia , Neonatologia/ética , Neonatologia/métodos , Neonatologia/tendências , Cuidados Paliativos/ética , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Equipe de Assistência ao Paciente
4.
Acta Paediatr ; 107(2): 276-282, 2018 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-28695618

RESUMO

AIM: This study examines parental satisfaction with care received in the context of a life-limiting foetal diagnosis and subsequent birth. METHODS: Survey methods were utilised to embed the Quality Indicators (QI) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: 'The Voice of Parents'. RESULTS: The web-based survey had a final sample of N = 405 parent responders. Overall, parents reported satisfaction with care (80.2%; n = 393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41-item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported. CONCLUSION: This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life-limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider-patient communication and bereavement interventions.


Assuntos
Cuidados Paliativos , Pais , Assistência Perinatal , Satisfação Pessoal , Relações Profissional-Família , Indicadores de Qualidade em Assistência à Saúde , Humanos , Recém-Nascido , Equipe de Assistência ao Paciente , Inquéritos e Questionários
5.
Neonatal Netw ; 25(6): 387-92, 2006.
Artigo em Inglês | MEDLINE | ID: mdl-17162999

RESUMO

Despite the existence of a universal protocol in palliative care for dying babies and their families, provision of this type of care remains ad hoc in contemporary neonatal settings. Influential bodies such as the American Academy of Pediatrics and the World Health Organization support palliative care to this patient population, so why are such measures not universally adopted? Are there barriers that prevent neonatal nurses from delivering this type of care? A search of the literature reveals that such barriers may be significant and that they have the potential to prevent dying babies from receiving the care they deserve. The goal of this literature review is to identify these barriers to providing palliative care in neonatal nursing. Results of the research have been used to determine item content for a survey to conceptualize and address these barriers.


Assuntos
Acessibilidade aos Serviços de Saúde/organização & administração , Terapia Intensiva Neonatal/organização & administração , Enfermagem Neonatal/organização & administração , Cuidados Paliativos/organização & administração , Adaptação Psicológica , Atitude do Pessoal de Saúde , Atitude Frente a Morte , Esgotamento Profissional/prevenção & controle , Esgotamento Profissional/psicologia , Competência Clínica/normas , Protocolos Clínicos , Atenção à Saúde/ética , Atenção à Saúde/organização & administração , Ambiente de Instituições de Saúde/organização & administração , Acessibilidade aos Serviços de Saúde/ética , Necessidades e Demandas de Serviços de Saúde , Humanos , Recém-Nascido , Unidades de Terapia Intensiva Neonatal/ética , Unidades de Terapia Intensiva Neonatal/organização & administração , Terapia Intensiva Neonatal/ética , Terapia Intensiva Neonatal/psicologia , Princípios Morais , Enfermagem Neonatal/educação , Enfermagem Neonatal/ética , Papel do Profissional de Enfermagem/psicologia , Recursos Humanos de Enfermagem Hospitalar/educação , Recursos Humanos de Enfermagem Hospitalar/ética , Recursos Humanos de Enfermagem Hospitalar/organização & administração , Recursos Humanos de Enfermagem Hospitalar/psicologia , Cuidados Paliativos/ética , Cuidados Paliativos/psicologia , Guias de Prática Clínica como Assunto , Ética Baseada em Princípios , Inquéritos e Questionários
6.
Int J Palliat Nurs ; 12(2): 60-9, 2006 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-16603994

RESUMO

The aim of this project was to develop clinical practice guidelines for the use and administration of pharmacological agents for symptom control via syringe drivers within Australia. By developing evidence-based clinical practice guidelines for the use of this common device, this project aimed to improve patient outcomes, reduce practice variation, minimize errors and encourage more efficient use of resources. A literature review identified current literature regarding syringe driver management and an expert panel was assembled to assist in the development of the guidelines. The development of these practice guidelines provides an example of how palliative care practitioners can use a framework of contemporary evidence to enhance clinical practice.


Assuntos
Tratamento Farmacológico/normas , Bombas de Infusão/normas , Infusões Intravenosas/normas , Guias de Prática Clínica como Assunto/normas , Pesquisa em Enfermagem Clínica , Monitoramento de Medicamentos/enfermagem , Monitoramento de Medicamentos/normas , Tratamento Farmacológico/instrumentação , Tratamento Farmacológico/enfermagem , Efeitos Colaterais e Reações Adversas Relacionados a Medicamentos , Eficiência Organizacional , Falha de Equipamento , Segurança de Equipamentos , Medicina Baseada em Evidências , Humanos , Infusões Intravenosas/efeitos adversos , Infusões Intravenosas/instrumentação , Infusões Intravenosas/enfermagem , Erros de Medicação/prevenção & controle , Avaliação em Enfermagem/normas , Cuidados Paliativos , Educação de Pacientes como Assunto/normas , Gestão da Qualidade Total/organização & administração
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