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1.
Psychooncology ; 28(9): 1854-1861, 2019 09.
Artigo em Inglês | MEDLINE | ID: mdl-31260139

RESUMO

OBJECTIVE: With a steadily increasing number of Latino/a cancer survivors, there is a need for supportive care programs for this underserved survivor subgroup. METHODS: In this study, the authors culturally adapted an evidence-based survivorship program, Cancer Transitions: Moving Beyond Treatment (CT) for this population. Guided by Barrera and Castro's heuristic model for cultural adaptation of interventions, we conducted five focus groups (FG) among Latino/a cancer survivors (n = 54) in several US sites to inform the preliminary adaptation of program materials. We conducted four additional FGs (n = 38) to obtain feedback on adapted materials. RESULTS: Common themes from initial FGs were related to program delivery and logistics, and general recommendations for CT modification. Program adaptations addressed information needs, including health care system navigation, employment concerns, and sexuality. Other adaptations included an emphasis on family, spirituality, culturally appropriate translation and features, and role plays. Participants in the second round of FGs confirmed adaptations incorporated earlier findings and suggested additional refinements. CONCLUSION: This project helps guide the cultural adaptation of survivorship programs for Latino/a cancer survivors.


Assuntos
Sobreviventes de Câncer/psicologia , Assistência à Saúde Culturalmente Competente/organização & administração , Hispânico ou Latino/psicologia , Desenvolvimento de Programas , Sobreviventes de Câncer/estatística & dados numéricos , Feminino , Grupos Focais , Hispânico ou Latino/estatística & dados numéricos , Humanos , Masculino
2.
J Cancer Educ ; 34(3): 623, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-30465325

RESUMO

The original version of this article contained an error. Citation 17 in the original publication referenced the wrong article.

3.
J Cancer Educ ; 34(3): 614-622, 2019 06.
Artigo em Inglês | MEDLINE | ID: mdl-29948925

RESUMO

Survivorship care plans (SCPs)-documents intended to improve care for cancer survivors who have completed active treatment-are required, yet implementation is poor. We sought to understand SCP implementation in cancer programs in the USA with the objective of identifying opportunities for improvement. We recruited cancer care providers in the USA via several cancer care networks to participate in a survey regarding SCP implementation. We used descriptive statistics to analyze the data. Three hundred ninety-five providers from diverse cancer programs in 47 states and Washington, DC responded to the survey. The timing of SCP implementation varied across and within cancer programs, with approximately 40% of respondents reporting developing SCPs more than 3 months after primary treatment or adjuvant therapy completion. Nurse navigators were responsible for 48-58% of each stage of SCP implementation. Processes that could have been automated often occurred in-person or via phone and vice versa. Respondents reported spending more than 2 h per SCP to complete all stages of implementation, of which less than a third was reimbursed by third-party payers. We identified several opportunities for improving SCP implementation, including broadening the base of responsibility, optimizing modes of communication, decreasing the time required and increasing the funding available, and limiting variation in SCP implementation across and within cancer programs. Future work should assess the influence of approaches to SCP implementation on desired outcomes.


Assuntos
Sobreviventes de Câncer , Continuidade da Assistência ao Paciente , Planejamento de Assistência ao Paciente , Padrões de Prática em Enfermagem , Necessidades e Demandas de Serviços de Saúde , Humanos , Inquéritos e Questionários , Estados Unidos
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