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1.
Qual Health Res ; 30(6): 825-835, 2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-31814509

RESUMO

The threat of cancer and the effects of risk-reducing surgery can have a significant impact on family planning and family life. In this qualitative study, we examine intersecting experiences of BRCA carrier status, subsequent risk-reducing surgery, and motherhood by analyzing in-depth interviews with 16 Jewish, Israeli mothers (ages 36-57) who underwent risk-reducing mastectomies and/or oophorectomies. Time emerged as a prism through which the BRCA motherhood experience could be viewed. In the "Findings" section, we present concepts of BRCA time and maternal time through three subthemes: (a) objective and subjective fertility clocks and BRCA: the child who won't be born; (b) synchronizing the clocks: the "correct" tempo and chronology; and (c) back to the future: intergenerational coalescence of time. We discuss the notions of time and existential health threats and subjective time in the primary mother-infant relational system within the context of the cultural ideal of the "motherhood myth."


Assuntos
Relações Mãe-Filho , Mães , Adulto , Criança , Relações Familiares , Feminino , Humanos , Lactente , Pessoa de Meia-Idade , Parto , Gravidez , Pesquisa Qualitativa
2.
Health Care Women Int ; 38(4): 344-360, 2017 04.
Artigo em Inglês | MEDLINE | ID: mdl-27926354

RESUMO

In this qualitative study, we examine the experience of 13 Jewish Israeli women carriers of BRCA mutations following risk-reducing surgery. Thematic analysis of in-depth, semi-structured interview texts yielded three themes: (a) dialectic of vulnerability and control, (b) presentation of self as a "normal" woman, and (c) genetic chain of negative life events and guilt. Aspects of Israeli culture impacting participants' experiences are: personal and collective responsibility, the shift toward consumerism, and pro-natal ideology. The findings may be useful for health practitioners working with other nationalities with similar cultural characteristics and to prompt practitioners to explore their own and their patients' perceptions regarding women's risk-reducing surgery and genetic illnesses.


Assuntos
Sobreviventes de Câncer/psicologia , Características Culturais , Síndrome Hereditária de Câncer de Mama e Ovário/psicologia , Judaísmo , Adulto , Imagem Corporal , Neoplasias da Mama/prevenção & controle , Tomada de Decisões , Feminino , Genes BRCA1 , Genes BRCA2 , Culpa , Síndrome Hereditária de Câncer de Mama e Ovário/cirurgia , Heterozigoto , Humanos , Israel , Mastectomia/psicologia , Pessoa de Meia-Idade , Mutação , Neoplasias Ovarianas/prevenção & controle , Ovariectomia/psicologia , Pesquisa Qualitativa
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