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1.
JMIR Public Health Surveill ; 9: e45664, 2023 09 06.
Artigo em Inglês | MEDLINE | ID: mdl-37672320

RESUMO

BACKGROUND: The COVID-19 pandemic severely affected everyday life and working conditions for most Europeans, particularly health care professionals (HCPs). Over the past 3 years, various policies have been implemented in various European countries. Studies have reported on the worsening of mental health, work-related stress, and helpful coping strategies. However, having a closer look is still necessary to gain more information on the psychosocial stressors and unmet needs of HCPs as well as nonmedical staff. OBJECTIVE: This study aimed to obtain quantitative information on job-related stressors of physicians and nurses and the coping strategies of HCPs and nonmedical staff at 2 periods of the COVID-19 pandemic. By further analyzing qualitative comments, we wanted to gain more information on the psychosocial stressors and unmet needs of HCPs as well as nonmedical staff on different levels of experience. METHODS: A cross-sectional survey was conducted at 2 time points during the COVID-19 pandemic in several European countries. The first study period (T1) lasted between April 1 and June 20, 2020, and the second study period (T2) lasted between November 25, 2021, and February 28, 2022. On a quantitative level, we used a questionnaire on stressors for physicians and nurses and a questionnaire on coping strategies for HCPs and nonmedical staff. Quantitative data were descriptively analyzed for mean values and differences in stressors and coping strategies. Qualitative data of free-text boxes of HCPs and nonmedical staff were analyzed via thematic analysis to explore the experiences of the individuals. RESULTS: T1 comprised 609 participants, and T2 comprised 1398 participants. Overall, 296 participants made 438 qualitative comments. The uncertainty about when the pandemic would be controlled (T1: mean 2.28, SD 0.85; T2: mean 2.08, SD 0.90) and the fear of infecting the family (T1: mean 2.26, SD 0.98; T2: mean 2.02, SD 1.02) were the most severe stressors identified by physicians and nurses in both periods. Overall, the use of protective measures (T1: mean 2.66, SD 0.60; T2: mean 2.66, SD 0.60) and acquiring information about COVID-19 (T1: mean 2.29, SD 0.82; T2: mean 1.99, SD 0.89) were identified as the most common coping strategies for the entire study population. Using thematic analysis, we identified 8 themes of personal experiences on the micro, meso, and macro levels. Measures, working conditions, feelings and emotions, and social climate were frequently mentioned topics of the participants. In T1, feelings of isolation and uncertainty were prominent. In T2, feelings of exhaustion were expressed and vaccination was frequently discussed. Moreover, unmet psychosocial needs were identified. CONCLUSIONS: There is a need for improvement in pandemic preparedness. Targeted vocational education measures and setting up of web-based mental health support could be useful to bridge gaps in psychosocial support needs in future crises.


Assuntos
COVID-19 , Pandemias , Humanos , Estudos Transversais , Pessoal de Saúde , Europa (Continente)
2.
Palliat Support Care ; 16(3): 335-346, 2018 06.
Artigo em Inglês | MEDLINE | ID: mdl-28560941

RESUMO

ABSTRACTObjective:This cross-sectional survey examined changes in perceived relationships and sexual activity in a sample of thyroid cancer patients and their partners, taking into account sociodemographic and disease-related variables, as well as such outcome measures as anxiety, depression, fatigue, and quality of life (QoL). METHOD: A total of 38 patients with thyroid cancer who were being treated at the department of nuclear medicine in Zürich or Lucerne over the preceding seven years, as well as their partners, completed questionnaires about the quality of their relationships (RQ), about perceptions of changes in their relationships, and about their frequency of sexual activity. They also filled out prevalidated questionnaires related to anxiety, depression, fatigue, and QoL. RESULTS: Some 17 patients (44.7%) and 16 partners (42.1 %) reported that the cancer diagnosis had changed their relationships. Of these, 10 (26.3%) patients and 9 (23.7%) partners reported positive changes only, while 7 patients (18.4%) and 7 partners (18.4%) reported mixed or negative changes. A perceived mixed/negative relationship change was associated with increased depression and lower RQ in patients and partners, as well as with increased anxiety in patients. While the frequency of sexual activity only changed in roughly half of patients and partners (16 patients [42.1%] and 20 partners [52.6%]), increased sexual activity was associated with lower physical QoL scores and a higher depression score than in counterparts who reported no change. SIGNIFICANCE OF RESULTS: Compared to other cancer sites, in our sample thyroid cancer had a relatively small impact on patient-partner relationships and levels of intimacy. We found that screening patients and their partners with a simple question-"Did the diagnosis of cancer change your relationship?"-can lead to early detection of couples who are potentially at risk for perceived negative relationship changes and can facilitate timely psychosocial referral for couple's therapy.


Assuntos
Percepção , Comportamento Sexual/psicologia , Parceiros Sexuais/psicologia , Neoplasias da Glândula Tireoide/complicações , Adaptação Psicológica , Adulto , Idoso , Estudos Transversais , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Psicometria/instrumentação , Psicometria/métodos , Qualidade de Vida/psicologia , Inquéritos e Questionários , Suíça , Neoplasias da Glândula Tireoide/psicologia
4.
Palliat Support Care ; 14(6): 652-663, 2016 12.
Artigo em Inglês | MEDLINE | ID: mdl-26975832

RESUMO

OBJECTIVE: The aim of this qualitative study was to gain a deeper understanding about couples' relationship changes over time (the first six months) after one partner is diagnosed with an incurable advanced melanoma (stage III or IV). METHOD: In semistructured interviews, eight patients and their partners were asked separately about potential changes in their relationship since diagnosis. The same questions were asked again six months later, but focusing on relationship changes over the preceding six months. Some 32 audiotaped interviews were analyzed applying qualitative content analysis. RESULTS: At baseline (t1), relationship changes were mostly reported in terms of caring, closeness/distance regulation, and communication patterns. While changes in caregiving and distance/closeness regulation remained main issues at six months follow-up (t2), greater appreciation of the relationship and limitations in terms of planning spare time also emerged as major issues. Unexpectedly, 50% of patients and partners reported actively hiding their negative emotions and sorrows from their counterparts to spare them worry. Furthermore, qualitative content analysis revealed relationship changes even in those patients and partners who primarily reported no changes over the course of the disease. SIGNIFICANCE OF RESULTS: Our findings revealed a differentiated and complex picture about relationship changes over time, which also might aid in the development of support programs for couples dealing with advanced cancer, focusing on the aspects of caring, closeness/distance regulation, and communication patterns.


Assuntos
Adaptação Psicológica , Características da Família , Relações Interpessoais , Melanoma/psicologia , Cônjuges/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Melanoma/complicações , Pessoa de Meia-Idade , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Pesquisa Qualitativa , Estresse Psicológico/complicações , Estresse Psicológico/etiologia , Inquéritos e Questionários , Suíça
5.
Psychooncology ; 25(2): 203-9, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-26179844

RESUMO

OBJECTIVES: The aim of this study was to examine diagnosis and treatment burden as well as psychological distress (anxiety and depression) and fatigue in thyroid cancer patients and their partners, focusing on the effects of gender, role, and time since diagnosis. METHODS: Seventy-one patients diagnosed and treated for differentiated thyroid cancer within the past 7 years, participated in this online study, as well as 40 partners. Standardized questionnaires were used rating anxiety, depression, fatigue, and quality of life. Suffering in the context of diagnosis and treatment was evaluated using numeric analog scales. Patients' most recent hormone status was integrated into analysis. RESULTS: Male and female patients but not their partners had significantly higher mean anxiety scores (p < 0.001) than the norm. Severe fatigue that warrants observation and treatment was reported by two of 21 male patients (9.5%), 12 of 50 female patients (24%), two of 28 male partners (7.1%), and no female partners. With respect to diagnosis and treatment burden, female partners expressed the highest burden, while male patients expressed the lowest. This burden was associated with current fatigue levels in male patients and with current anxiety, depression, and fatigue levels in female patients. CONCLUSIONS: Although both patients and partners suffer from the diagnosis and treatment of differentiated thyroid cancer, only patients are at risk of developing anxiety symptoms or fatigue. A simple question like 'How did being told you have thyroid cancer affect you?' might successfully screen for patients who are at risk.


Assuntos
Efeitos Psicossociais da Doença , Fadiga/psicologia , Parceiros Sexuais/psicologia , Estresse Psicológico/psicologia , Neoplasias da Glândula Tireoide/psicologia , Adulto , Idoso , Ansiedade/psicologia , Depressão/psicologia , Fadiga/etiologia , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Qualidade de Vida , Fatores Sexuais , Estresse Psicológico/etiologia , Inquéritos e Questionários , Neoplasias da Glândula Tireoide/terapia
6.
Psychooncology ; 24(4): 442-50, 2015 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-25187233

RESUMO

PURPOSE: The aim of this article is to examine the mutual associations between patients' and partners' depression and quality of life (QOL) in couples facing cancer with respect to potential resources (sense of coherence and relationship quality (RQ)) and stressors (physical complaints). PATIENTS AND METHODS: Questionnaires rating depression, QOL, sense of coherence, RQ, and physical complaints were completed by 207 couples facing different cancer types and stages. Multiple regression models were used to assess the mutual associations between patient and partner variables. RESULTS: In female patients, 40.7% of the variance in depression score was explained by male partners' stressors and resources, whereas only 3.5% of the variance in male patients' depression was explained by female partners' stressors and resources. In male and female partners, respectively, the patients' stressors and resources explained 34.9% versus just 15.8% of the variance in depression. Regarding QOL in female patients, 30.1% of the variance was explained by the partners' stressors and resources, versus only 3.7% in male patients. Meanwhile, in male and female partners, respectively, the patients' stressors and resources explained 25.6% and 12.9% of the variance in QOL. CONCLUSIONS: These findings support a couples-centered approach to psycho-oncological counseling and treatment. Particularly in depressed couples with low RQ, couples therapy or counseling should be considered because of the mutual adverse association between depression and QOL in these couples.


Assuntos
Depressão/psicologia , Casamento/psicologia , Neoplasias/psicologia , Qualidade de Vida/psicologia , Senso de Coerência , Cônjuges/psicologia , Adaptação Psicológica , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Neoplasias/fisiopatologia , Fatores Sexuais , Adulto Jovem
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