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1.
JMIR Cancer ; 10: e51072, 2024 Jun 27.
Artigo em Inglês | MEDLINE | ID: mdl-38935942

RESUMO

BACKGROUND: Many supportive cancer care (SCC) services were teledelivered during COVID-19, but what facilitates patients' intentions to use teledelivered SCC is unknown. OBJECTIVE: The study aimed to use the unified theory of acceptance and use of technology to investigate the factors associated with the intentions of breast cancer survivors (BCS) in Hong Kong to use various types of teledelivered SCC (including psychosocial care, medical consultation, complementary care, peer support groups). Favorable telehealth-related perceptions (higher performance expectancy, lower effort expectancy, more facilitating conditions, positive social influences), less technological anxiety, and greater fear of COVID-19 were hypothesized to be associated with higher intentions to use teledelivered SCC. Moreover, the associations between telehealth-related perceptions and intentions to use teledelivered SCC were hypothesized to be moderated by education level, such that associations between telehealth-related perceptions and intentions to use teledelivered SCC would be stronger among those with a higher education level. METHODS: A sample of 209 (209/287, 72.8% completion rate) women diagnosed with breast cancer since the start of the COVID-19 outbreak in Hong Kong (ie, January 2020) were recruited from the Hong Kong Breast Cancer Registry to complete a cross-sectional survey between June 2022 and December 2022. Participants' intentions to use various types of teledelivered SCC (dependent variables), telehealth-related perceptions (independent variables), and sociodemographic variables (eg, education, as a moderator variable) were measured using self-reported, validated measures. RESULTS: Hierarchical regression analysis results showed that greater confidence using telehealth, performance expectancy (believing telehealth helps with daily tasks), social influence (important others encouraging telehealth use), and facilitating conditions (having resources for telehealth use) were associated with higher intentions to use teledelivered SCC (range: ß=0.16, P=.03 to ß=0.34, P<.001). Moreover, 2-way interactions emerged between education level and 2 of the telehealth perception variables. Education level moderated the associations between (1) performance expectancy and intention to use teledelivered complementary care (ß=0.34, P=.04) and (2) facilitating conditions and intention to use teledelivered peer support groups (ß=0.36, P=.03). The positive associations between those telehealth perceptions and intentions were only significant among those with a higher education level. CONCLUSIONS: The findings of this study implied that enhancing BCS' skills at using telehealth, BCS' and their important others' perceived benefits of telehealth, and providing assistance for telehealth use could increase BCS' intentions to use teledelivered SCC. For intentions to use specific types of SCC, addressing relevant factors (performance expectancy, facilitating conditions) might be particularly beneficial for those with a higher education level.

2.
Behav Res Ther ; 161: 104244, 2023 02.
Artigo em Inglês | MEDLINE | ID: mdl-36592575

RESUMO

BACKGROUND: Expressive writing interventions confer mental health benefits for non-Hispanic Whites. However, research is lacking in adapting this paradigm for minoritized groups. This study evaluated the impacts of two culturally adapted expressive writing interventions on depressive and anxiety symptoms and potential mediators (perceived stress and intrusive thoughts) among Chinese American breast cancer survivors (CABCS). METHODS AND RESULTS: CABCS (N = 136) were randomly assigned to one of three conditions to write three weekly essays: enhanced self-regulation condition (ESR) to write about stress and coping (Week 1), deepest feelings (Week 2), and finding benefits (Week 3); self-regulation condition (SR) to write about deepest feelings (Week 1), stress and coping (Week 2), and finding benefits (Week 3); and control condition to write about facts relevant to their cancer experience (Weeks 1-3). Compared with the control condition, the ESR but not SR, reduced depressive and anxiety symptoms at all follow-up time points (1, 3, and 6-months) through reductions in perceived stress. CONCLUSION: A cultural adaptation altering the order of expressive writing prompts resulted in the greatest benefit for CABCS' depressive and anxiety symptoms. Research testing both the content and ordering of components may be vital to advance cultural adaptation science and optimize intervention efficacy. CLINICAL TRIAL REGISTRATION NUMBER: NCT02946619.


Assuntos
Neoplasias da Mama , Sobreviventes de Câncer , Humanos , Feminino , Sobreviventes de Câncer/psicologia , Neoplasias da Mama/complicações , Neoplasias da Mama/psicologia , População do Leste Asiático , Ansiedade/terapia , Adaptação Psicológica , Redação
3.
Psychooncology ; 31(1): 98-106, 2022 01.
Artigo em Inglês | MEDLINE | ID: mdl-34374165

RESUMO

OBJECTIVE: Fear of cancer recurrence (FCR) is commonly experienced among Caucasian and Chinese American breast cancer survivors (BCS). Emerging studies have suggested that Caucasian BCS' communication with family members contributes to their FCR. However, whether such findings apply to Chinese American BCS has yet to be explored. This study examined the association between social constraints (i.e., perceived barriers from significant others inhibiting cancer-related disclosure) and FCR among 136 Chinese American BCS, plus proposed that self-stigma (i.e., internalized feelings of shame about having cancer), bodily pain, and ambivalence over emotional expression (AEE; conflict between the desire to express emotions and the fear of its consequences) would mediate the association. METHODS: Participants recruited through cancer associations in the USA were invited to complete a cross-sectional survey measuring their socio-demographic/cancer-related variables and the above-mentioned psychological variables. RESULTS: Higher levels of social constraints, AEE, self-stigma, and bodily pain were associated with higher FCR (rs ranged from 0.27 to 0.40, ps < 0.01). After controlling for covariates, path analysis results supported the proposed mediation model with satisfactory fit indices (χ2 (7) = 2.08, Comparative Fit index = 1.00, Tucker Lewis Index = 1.08, Root Mean Square Error of Approximation = 0.00). Specifically, social constraints were associated with higher FCR through increased self-stigma (ß = 0.10, 95% confidence interval [CI] = 0.02, 0.17), AEE (ß = 0.14, 95% CI = 0.01, 0.27), and bodily pain (ß = 0.09, 95% CI = 0.02, 0.17), indicating significant mediation effects. After considering the mediators, the direct effect from social constraints to FCR was no longer significant. CONCLUSIONS: The association between social constraints and higher FCR could be mediated by increased self-stigma, AEE, and bodily pain among Chinese American BCS. Interventions targeting to address those variables may reduce FCR among those BCS.


Assuntos
Neoplasias da Mama , Sobreviventes de Câncer , Asiático/psicologia , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Estudos Transversais , Medo/psicologia , Feminino , Humanos , Inquéritos e Questionários
4.
Eur J Oncol Nurs ; 47: 101760, 2020 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-32645622

RESUMO

PURPOSE: Functional well-being (i.e., individuals' functioning in daily living activities and social roles; FWB) is often an understudied aspect of quality of life among breast cancer patients (BCP). Previous research has suggested that patients' emotional experience is associated with their FWB. However, little is known about how intrapersonal and interpersonal barriers of emotional processing and expression (i.e., social constraints, difficulties in identifying and expressing emotions) associated with FWB among Chinese BCP, plus how positive/negative affect might explain such associations. METHOD: Chinese BCP (N = 327) in Weifang, Shandong province, China completed a cross-sectional survey. The Functional Well-Being subscale from the Chinese version of the Functional Assessment of Cancer Therapy-Breast (FACT-B), the Social Constraints Scale, the Difficulty in Identifying Feelings (DIF; 7 items) and the Difficulty in Describing Feelings (DDF; 5 items) subscales from the Toronto Alexithymia Scale and the Positive Affect and Negative Affect Schedule were used as assessment scales. RESULTS: Path analyses results supported the proposed mediation model with satisfactory fit indices (χ2(5) = 5.12, p = .40, CFI = 1.00; IFI = 1.00; RMSEA = 0.01). Specifically, difficulty in describing emotions was associated with poorer functional well-being through increased negative affect (ß = -0.06, 95%CI = -0.10, -0.03); difficulty in identifying emotions was associated with poorer functional well-being through reduced positive affect (ß = -0.04, 95%CI = -0.09, -0.003). Social constraints were associated with poorer functional well-being through both increased negative affect and decreased positive affect (ß = -0.16, 95%CI = -0.22, -0.10). After considering the mediators, difficulties in describing emotions still contributed significantly to functional well-being (ß = -0.20, 95%CI = -0.31, -0.08). Our results indicated that positive/negative affect could mediate between barriers of emotional processing/expression and FWB. CONCLUSIONS: This study was unique in revealing how intrapersonal and interpersonal barriers of emotional processing and expression could be associated with Chinese BCPs' FWB through varied mechanisms. Practitioners should consider strategies to reduce those barriers through interventions.


Assuntos
Afeto , Neoplasias da Mama/psicologia , Emoções , Estado Funcional , Interação Social , Adulto , Neoplasias da Mama/terapia , China , Estudos Transversais , Feminino , Humanos , Pessoa de Meia-Idade , Modelos Psicológicos
5.
Psychooncology ; 29(10): 1646-1654, 2020 10.
Artigo em Inglês | MEDLINE | ID: mdl-33463847

RESUMO

OBJECTIVES: Caregiving does not have to be a totally negative experience for the husband caregivers of breast cancer survivors (BCS). There are growing interests in exploring the positive psychological changes (aka posttraumatic growth; PTG) among husbands of BCS. Western studies have shown that coping resources, cognitive appraisal, and coping strategies are associated with PTG among caregivers of BCS. Studies in the Chinese context are limited. This study examined the psychosocial correlates of PTG among husbands of Chinese BCS. METHODS: Husbands of Chinese BCS (N = 176) were recruited from two hospitals in Weifang, China to complete a cross-sectional survey. Their levels of caregiving burden, marital satisfaction, cognitive appraisals, coping strategies, and PTG were measured. RESULTS: After controlling for covariates, hierarchical regression results indicated that higher caregiving burden (ß = .29), marital satisfaction (ß = .27), challenge appraisal (ß = 016), and social support seeking (ß = .23) were associated with higher PTG (Ps < .05). Additionally, a significant interaction between caregiving burden and positive reframing emerged in explaining PTG (ß = .17, P < .05). Positive reframing was only associated with higher PTG among those with higher caregiving burden (ß = .25, P = .03), but not those with lower caregiving burden (ß = -.09, P > .05). CONCLUSIONS: Stress and coping variables significantly contributed to PTG among husbands of Chinese BCS. Our findings implied that addressing those husband caregivers' marital satisfaction, challenge appraisal toward the impact of breast cancer, and social support seeking could be intervention strategies to facilitate their PTG. Among husbands having higher caregiving burden, positive reframing may also facilitate their PTG.


Assuntos
Adaptação Psicológica , Sobreviventes de Câncer/psicologia , Cuidadores/psicologia , Casamento/psicologia , Crescimento Psicológico Pós-Traumático , Cônjuges/psicologia , Transtornos de Estresse Pós-Traumáticos/etiologia , Adulto , Povo Asiático , Neoplasias da Mama/etnologia , Neoplasias da Mama/psicologia , China , Estudos Transversais , Feminino , Humanos , Relações Interpessoais , Acontecimentos que Mudam a Vida , Masculino , Casamento/etnologia , Pessoa de Meia-Idade , Apoio Social , Transtornos de Estresse Pós-Traumáticos/diagnóstico , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Inquéritos e Questionários
6.
Support Care Cancer ; 28(7): 3125-3133, 2020 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-31701268

RESUMO

PURPOSE: Perceptions of caregiving burden and self-efficacy are found to be associated with well-being among husbands of breast cancer patients (BCP). However, little is known about how individual characteristics associate with such caregiving-related perceptions and cancer caregivers' well-being. This study examined the associations between two individual characteristics (male gender role norms and ambivalence over emotional expression (AEE)) and depressive symptoms among husbands of Chinese BCP, and the potential mediating roles of caregiving burden and self-efficacy in such associations. METHODS: Participants (n = 176) were recruited in two hospitals in Weifang, China. Their endorsement of male gender role norms (e.g., "men should not ask for help"), AEE, caregiving burden, and depressive symptoms were measured in a cross-sectional survey. RESULTS: Path analysis results supported the proposed mediation model with satisfactory fit indices (χ2(2) = 2.73, p = .26, CFI = 1.00; IFI = 1.00; RMSEA = 0.05). Specifically, male gender role norms and AEE were associated with higher caregiving burden and lower caregiving self-efficacy, which in turn were associated with more depressive symptoms. Bootstrapping results supported that both male gender role norms (ß = 0.16; 95%CI = 0.09, 0.25) and AEE had significant indirect effects on depressive symptoms (ß = 0.11; 95%CI = 0.04, 0.18) via caregiving burden and self-efficacy, indicating that caregiving-related perceptions could mediate between individual characteristics and depressive symptoms. CONCLUSIONS: Male gender role norms and AEE might affect depressive symptoms among husbands of Chinese BCP through caregiving-related perceptions. Future interventions that reduce those husbands' barriers to express emotions, appreciate their commitment to take good care of their spouses, enhance caregiving skills, and reduce caregiving burden may decrease their depressive symptoms.


Assuntos
Neoplasias da Mama/psicologia , Cuidadores/psicologia , Depressão/psicologia , Autoeficácia , Cônjuges/psicologia , Afeto , Neoplasias da Mama/patologia , China , Efeitos Psicossociais da Doença , Estudos Transversais , Emoções , Feminino , Identidade de Gênero , Humanos , Masculino , Pessoa de Meia-Idade , Estadiamento de Neoplasias
7.
Behav Med ; 46(1): 34-42, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-30657442

RESUMO

Breast cancer survivors report persistent psychological and physical symptoms, which affect their quality of life and may challenge the recovery process. Due to social, cultural, and linguistic barriers, culturally sensitive care is largely unavailable for Chinese Americans, and their psychological needs are not often addressed. We aimed to investigate whether the Joy Luck Academy (JLA), a psychosocial intervention providing both information and peer support, was associated with positive adjustment among Chinese American breast cancer survivors. Thirty-nine Chinese American breast cancer survivors participated in a pilot psychosocial intervention. The educational materials and lectures were delivered in the participants' native language of Chinese. All of the educators and mentors shared the same linguistic and cultural background with the participants. The program utilized a community-based participatory research (CBPR) approach to further enhance the cultural sensitivity of the intervention. Participants' post-traumatic growth and positive affect were assessed before and after the intervention. The JLA showed an improvement in positive affect, and they had a greater appreciation for life. The intervention was found to be feasible, well-accepted, and beneficial for this population. Chinese American breast cancer survivors reported improved psychological health after attending the intervention. These findings encourage the development and implementation of psychosocial interventions for Chinese breast cancer survivors. Similar programs could be integrated into other ethnic or cultural communities.


Assuntos
Sobreviventes de Câncer/psicologia , Pesquisa Participativa Baseada na Comunidade/métodos , Psicologia/métodos , Adulto , Afeto , Asiático/psicologia , Neoplasias da Mama/psicologia , Feminino , Humanos , Pessoa de Meia-Idade , Projetos Piloto , Crescimento Psicológico Pós-Traumático/ética , Sistemas de Apoio Psicossocial , Qualidade de Vida/psicologia
8.
Eur J Oncol Nurs ; 40: 63-70, 2019 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-31229208

RESUMO

PURPOSE: Western studies found that sexual quality of life (QoL) among husbands of breast cancer survivors was associated with their stress and coping processes. However, little is known about how breast cancer caregiving might be associated with those husbands' sexual QoL in the Chinese cultural context. Guided by the Stress and Coping model, we examined the psychosocial correlates of sexual QoL among husbands of Chinese breast cancer survivors. METHOD: Husbands of Chinese breast cancer survivors (N = 176) recruited from two hospitals in Weifang, China completed a cross-sectional survey. Their individual characteristics, caregiving-related stressors, cognitive appraisals, coping resources and strategies, and sexual QoL were measured. RESULTS: After controlling for covariates, hierarchical regression results showed that lower caregiving burden (ß = -0.34, p < .001), higher marital satisfaction (ß = 0.20, p < .001), and lower harm/threat appraisals (ß from -0.22 to -0.20, p < .001) were associated with better sexual QoL. Moreover, ambivalence over emotional expression (AEE; inner conflict concerning the desire to express emotions yet failing to do so) was found to moderate between protective buffering and sexual QoL (ß = 0.20, p < .01), such that the negative association between protective buffering and sexual QoL was only significant among those with higher AEE (ß = -0.38, p < .003). CONCLUSIONS: Both the stress and coping variables and their interactions with individual characteristics could be important determinants of those husbands' sexual QoL. Our findings implied that reducing husbands' caregiving burden, increasing their marital satisfaction, helping them reevaluate the negative impact of breast cancer, and reducing barriers for expressing emotions and concerns may increase their sexual well-being.


Assuntos
Neoplasias da Mama/terapia , Sobreviventes de Câncer/psicologia , Qualidade de Vida , Comportamento Sexual , Cônjuges/psicologia , Adaptação Psicológica , Adulto , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/estatística & dados numéricos , Cuidadores/psicologia , Cuidadores/estatística & dados numéricos , China , Estudos Transversais , Feminino , Humanos , Masculino , Casamento/psicologia , Pessoa de Meia-Idade , Cônjuges/estatística & dados numéricos , Estresse Psicológico/psicologia , Inquéritos e Questionários
9.
Qual Life Res ; 28(10): 2753-2760, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31123880

RESUMO

BACKGROUND: It is common for Chinese American breast cancer survivors to believe that having cancer is a stigmatizing condition. Little research exists on how this might affect their quality of life (QoL) and through which psychological processes. OBJECTIVE: In the present study, we examined the association between self-stigma and QoL in a sample of Chinese American breast cancer survivors and tested the potential mediating roles of intrusive thoughts and posttraumatic growth in this relationship. METHODS: One hundred and thirty-six Chinese American breast cancer survivors completed a questionnaire packet assessing their levels of self-stigma, intrusive thoughts, posttraumatic growth, and QoL. RESULTS: As hypothesized, findings indicated a significant negative correlation between self-stigma and QoL. Findings from a path analysis indicated significant indirect effects of self-stigma on QoL through intrusive thoughts and posttraumatic growth-the negative correlation between self-stigma and QoL was completely mediated by more intrusive thoughts and less posttraumatic growth. CONCLUSIONS: Our findings suggest that self-stigma may harm QoL among Chinese American breast cancer survivors by leading to more intrusive thoughts and not focusing on posttraumatic growth. To attenuate the negative impact of self-stigma on QoL among Chinese American breast cancer survivors, cognition-focused interventions should be utilized to reduce intrusive thoughts and foster posttraumatic growth.


Assuntos
Asiático/psicologia , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Crescimento Psicológico Pós-Traumático , Qualidade de Vida/psicologia , Estigma Social , Neoplasias da Mama/mortalidade , Feminino , Humanos , Transtornos Mentais , Pessoa de Meia-Idade , Inquéritos e Questionários
10.
Support Care Cancer ; 27(9): 3337-3345, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-30617433

RESUMO

PURPOSE: Cancer-related self-stigma (the internalized sense of shame about having cancer) has been found to associate with poorer quality of life (QoL) among cancer survivors. However, culturally salient illness beliefs (e.g., cancer is contagious; cancer is a result of karma; and cancer brings shame to the family) may make Chinese cancer survivors vulnerable to self-stigmatization. This study examined the association between self-stigma and QoL among Chinese American breast cancer survivors (BCS). To understand the potential mechanism, the mediating role of self-perceived burden to caregivers between self-stigma and QoL was also examined. METHODS: Chinese American BCS (n = 136) were recruited through community-based cancer associations. Participants' self-stigma, self-perceived burden, and QoL were measured in a questionnaire package. RESULTS: Structural equation modeling results supported the proposed mediation model in predicting physical QoL (χ2(100) = 123.041, CFI = 0.982, TLI = 0.975, RMSEA = 0.041) and emotional QoL (χ2(84) = 137.277, CFI = 0.958, TLI = 0.940, RMSEA = 0.069), with satisfactory model fit indices. Both the indirect effects from self-stigma to QoL via self-perceived burden (physical: ß = - 0.13; 95% CI = - 0.22, - 0.07 and emotional: ß = - 0.11; 95% CI = - 0.22, - 0.04) and the direct effects from self-stigma to poorer QoL were significant (physical: ß = - 0.22; 95% CI = -0.34, -0.10 and emotional: ß = - 0.39; 95% CI = - 0.54, - 0.23), suggesting a partial mediation effect of self-perceived burden between self-stigma and QoL. CONCLUSIONS: Self-stigma could reduce physical and emotional QoL through increasing self-perceived burden. Interventions aiming to reduce Chinese American BCS' self-stigma and perceptions of burdensomeness may facilitate improvement in QoL, which in turn promotes better cancer survivorship.


Assuntos
Asiático/psicologia , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Qualidade de Vida/psicologia , Cuidadores/psicologia , Feminino , Humanos , Pessoa de Meia-Idade , Autoimagem , Vergonha , Estigma Social , Inquéritos e Questionários
11.
Eur J Cancer Care (Engl) ; 27(5): e12872, 2018 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-29956873

RESUMO

Caregiver guilt (i.e., feeling of inadequacy in providing care to patients) is commonly experienced and studied among husbands of breast cancer survivors in Western countries. However, little is known about the psychosocial correlates of caregiver guilt in their Chinese counterparts. A total of 176 husbands of Chinese breast cancer survivors completed a cross-sectional survey in Weifang, Shandong province, China. As expected, hierarchical regression results showed that higher caregiving burden was associated with higher levels of caregiver guilt. However, for those who had stronger endorsement of the "Masculinity strength" gender-role norm, higher seeking social support from spouse was associated with higher guilt; for those with higher levels of marital satisfaction, higher protective buffering (i.e., hiding of concerns and negative emotions to protect others) was associated with lower caregiver guilt. Western assumptions on the harm of protective buffering and the benefits of support seeking as well as related supportive evidence among Western populations do not directly apply to the Chinese culture, which should be brought awareness to research and practice. Practitioners should consider the cultural background of the caregivers and should not simply encourage support seeking and discourage protective buffering.


Assuntos
Adaptação Psicológica , Neoplasias da Mama , Cuidadores/psicologia , Culpa , Cônjuges/psicologia , Adulto , Idoso , Neoplasias da Mama/enfermagem , Neoplasias da Mama/psicologia , China , Efeitos Psicossociais da Doença , Estudos Transversais , Feminino , Humanos , Masculino , Casamento/psicologia , Pessoa de Meia-Idade , Apoio Social , Estresse Psicológico/psicologia
12.
Cancer Nurs ; 41(1): 53-61, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-27442209

RESUMO

BACKGROUND: Studies have shown that social support is positively associated with posttraumatic growth (PTG) among white cancer survivors. Whether the same relationship holds among Asian American cancer survivors and through what mechanism social support may influence PTG is unclear. OBJECTIVE: This study examined the association between social support and PTG among Chinese American breast cancer survivors and proposed perceived stress as a mediator. METHODS: Chinese American breast cancer survivors (n = 118) were recruited from Southern California. Participants' social support, perceived stress, and PTG were measured in a questionnaire package. RESULTS: Social support was associated with lower perceived stress (r= -0.34, P<.001) and higher PTG (r=0.44, P<.001). Perceived stress was negatively associated with PTG (r=-0.36, P< .001). Results from structural equation modeling supported the mediation model, with satisfactory model fit indices (χ37= 65.55, comparative fit index= 0.98, Tucker-Lewis Index = 0.97, root-mean-square error of approximation = 0.08). Both the indirect effect from social support to PTG via perceived stress (ß = .07, P< .05) and the direct effect from social support and PTG (ß= .40, P< .001) were statistically significant, suggesting a partial mediation effect of perceived stress between social support and PTG. CONCLUSIONS: The positive association between social support and Chinese American breast cancer survivors' PTG was supported. Our findings also suggested that social support may facilitate PTG through reduction of perceived stress. IMPLICATIONS FOR PRACTICE: Interventions that help to enhance Chinese American breast cancer survivors' social support may also facilitate their PTG.


Assuntos
Adaptação Psicológica , Asiático/psicologia , Neoplasias da Mama/etnologia , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Apoio Social , Estresse Psicológico/psicologia , Asiático/estatística & dados numéricos , California , Sobreviventes de Câncer/estatística & dados numéricos , Feminino , Humanos , Pessoa de Meia-Idade , Inquéritos e Questionários
13.
Int J Behav Med ; 24(6): 827-835, 2017 12.
Artigo em Inglês | MEDLINE | ID: mdl-28585073

RESUMO

PURPOSE: Little is known about the psychological well-being and social barriers among immigrant Chinese American breast cancer survivors. The aim of the present study was to explore the social needs and challenges of Chinese American immigrant breast cancer survivors. METHOD: This study used the expressive writing approach to explore the experiences among 27 Chinese American breast cancer survivors. The participants were recruited through community-based organizations in Southern California, most of whom were diagnosed at stages I and II (33 and 48%, respectively). Participants, on average, had been living in the USA for 19 years. Participants were asked to write three 20-min essays related to their experience with breast cancer (in 3 weeks). Participants' writings were coded with line-by-line analysis, and categories and themes were generated. RESULTS: Emotion suppression, self-stigma, and perceived stigma about being a breast cancer survivor were reflected in the writings. Interpersonally, participants indicated their reluctance to disclose cancer diagnosis to family and friends and concerns about fulfilling multiple roles. Some of them also mentioned barriers of communicating with their husbands. Related to life in the USA, participants felt unfamiliar with the healthcare system and encountered language barriers. CONCLUSION: Counseling services addressing concerns about stigma and communication among family members may benefit patients' adjustments. Tailor-made information in Chinese about diagnosis and treatment for breast cancer and health insurance in the USA may also help patients go through the course of recovery.


Assuntos
Asiático , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Emigrantes e Imigrantes/psicologia , Comunicação , Família/psicologia , Feminino , Amigos/psicologia , Humanos , Pessoa de Meia-Idade , Pesquisa Qualitativa , Redação
14.
Support Care Cancer ; 25(7): 2249-2257, 2017 07.
Artigo em Inglês | MEDLINE | ID: mdl-28190157

RESUMO

PURPOSE: Previous studies primarily fo c used on how disease- and treatment-related variables affect cancer survivors' sleep quality. Little is known about the impact of the psychosocial factors on their sleep quality. Social constraints are perceived negative social interactions inhibiting one's disclosure. This study examined the association between social constraints and Chinese American breast cancer survivors' (BCS) sleep quality and tested perceived stress as a mediator explaining the association. METHODS: Chinese American BCS (n = 94) were recruited from Southern California. Participants' social constraints, perceived stress, and sleep quality were measured in a questionnaire package. RESULTS: Social constraints were associated with higher perceived stress (r = 0.32, p = .002) and poorer sleep quality (r = 0.33, p < .001). Perceived stress was associated with poorer sleep quality (r = 0.47, p < .001). Results from structural equation modeling supported the proposed mediation model, with satisfactory model fit indices (χ 2 (23) = 33.28, p = .08, comparative fit index = 0.98, Tucker-Lewis index = 0.97, root-mean-square error of approximation = 0.07). The indirect effect from social constraints to poor sleep quality (indicated by the Pittsburgh Sleep Quality Index; PSQI) via perceived stress was significant (ß = 0.20; 95% confidence intervals (CI) = 0.06, 0.40). The path coefficient for direct effect from social constraints to PSQI significantly dropped from ß = 0.32 (95% CI = 0.11, 0.51) to ß = 0.13 (95% CI = -0.12, 0.35) after considering perceived stress as a mediator, suggesting a mediation effect. CONCLUSIONS: This study implied that social constraints may worsen sleep quality among Chinese American BCS through increasing perceived stress. Interventions to reduce social constraints and perceived stress may improve sleep quality.


Assuntos
Neoplasias da Mama/psicologia , Transtornos do Sono-Vigília/psicologia , Sobreviventes/psicologia , Asiático , Neoplasias da Mama/mortalidade , Feminino , Humanos , Pessoa de Meia-Idade , Percepção , Inquéritos e Questionários
15.
Support Care Cancer ; 25(4): 1141-1149, 2017 04.
Artigo em Inglês | MEDLINE | ID: mdl-27924358

RESUMO

PURPOSE: The degree to which conscientiousness contributes to well-being in Chinese cancer survivors and the mechanisms through which conscientiousness is associated with well-being remain unclear. Based on Lent's restorative well-being model [1], the current study tested a mediation model of the contribution of conscientiousness, positive reappraisal, and hopelessness to fear of cancer recurrence (FCR), and physical well-being in a sample of 238 Chinese cancer survivors. METHOD: Participants completed self-report questionnaires. Path analysis was used to analyze the linear relationships between the variables. RESULTS: The empirical model supported the mediator roles of positive reappraisal and hopelessness. Specifically, the results indicated that conscientiousness was first associated with positive reappraisal, which in turn was associated with decreased hopelessness, resulting in decreased FCR and improved physical well-being. In addition, the results showed that conscientiousness was associated with decreased hopelessness, which was then associated with decreased FCR and greater physical well-being. CONCLUSION: Conscientiousness confers benefits on FCR and physical well-being through the mechanisms of positive reappraisal and decreased hopelessness.


Assuntos
Povo Asiático/psicologia , Medo/psicologia , Recidiva Local de Neoplasia/psicologia , Sobreviventes/psicologia , Adaptação Psicológica , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Psicológicos , Inquéritos e Questionários
17.
Int J Behav Med ; 21(4): 629-37, 2014 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-24570036

RESUMO

BACKGROUND: General self-efficacy has been shown to be a protective factor of cancer survivors' quality of life (QoL). Coping self-efficacy includes multiple aspects, such as maintaining positive attitudes, regulating emotion, seeking social support, and seeking medical information. How these various aspects are related to multiple domains of QoL is unclear. PURPOSE: This study examined the associations between different aspects of coping self-efficacy and QoL among Chinese cancer survivors. METHODS: A sample of 238 Chinese cancer survivors (mean age = 55.7, 74.4 % female) in Beijing, China participated in the survey. Coping self-efficacy and QoL were measured by the Cancer Behavior Inventory and Quality of Life-Cancer Survivor Instrument. RESULTS: After controlling for demographic and disease-related variables, hierarchical regression analyses showed that coping self-efficacy in accepting cancer/maintaining a positive attitude was positively associated with physical, psychological, and spiritual QoL. Self-efficacy in affective regulation was positively associated with psychological and social QoL, but negatively associated with spiritual well-being. Self-efficacy in seeking support was positively associated with spiritual well-being, but negatively associated with physical QoL. Self-efficacy in seeking and understanding medical information was negatively associated with psychological and social QoL. CONCLUSIONS: Our findings imply the specificity of coping self-efficacy in predicting QOL. Our findings could be helpful for designing future interventions. Increasing cancer survivors' self-efficacies in accepting cancer/maintaining a positive attitude, affective regulation, and seeking support may improve cancer survivors' QoL depending on the specific domains.


Assuntos
Adaptação Psicológica , Neoplasias/psicologia , Qualidade de Vida , Autoeficácia , China , Emoções , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Análise de Regressão , Apoio Social , Sobreviventes/psicologia
18.
J Health Psychol ; 19(11): 1420-9, 2014 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-23864070

RESUMO

This study examined the association between mental adjustment styles and quality of life, and affect as a mediator among 238 Chinese cancer survivors. Regression analysis showed that quality of life was positively associated with fighting spirit and negatively associated with fatalism. Path analysis showed that greater fighting spirit was associated with more positive affect, which in turn was associated with higher quality of life. Greater fatalism was associated with less positive affect and more negative affect, which in turn was associated with lower quality of life. Findings suggest that positive affect and negative affect are important in understanding mental adjustment styles and its health implications.


Assuntos
Adaptação Psicológica , Afeto , Neoplasias/psicologia , Qualidade de Vida/psicologia , Sobreviventes/psicologia , Adulto , Idoso , Atitude Frente a Saúde , China/epidemiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Testes Psicológicos , Inquéritos e Questionários
19.
Cancer Nurs ; 36(6): 463-73, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23059765

RESUMO

BACKGROUND: The Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales are commonly used to assess health-related quality of life of healthy children and pediatric patients. Validation of the Generic Core Scales among Chinese pediatric cancer patients has not been reported in the literature. The scales can serve to measure different quality-of-life domains that are not captured by the PedsQL Cancer Module. OBJECTIVE: Psychometric properties of the Chinese version of the PedsQL 4.0 among pediatric cancer patients and their caretakers were examined. METHODS: The Generic Core Scales were administered to 335 pairs of pediatric cancer patients (aged 8-18 years) and their caretakers in Hong Kong. RESULTS: A 5-factor structure (physical, emotional, social, school-related cognitive function, and missed school) was identified in the patient and proxy versions of the scales using confirmatory factor analysis. Both versions of the total scale reported Cronbach α's of .90 or greater, with almost all subscales reporting α's of .70 or greater. Test-retest reliability at 2 weeks was acceptable (intraclass correlations ≥0.60) for a majority of subscales. Agreement between patients' and caretakers' ratings was medium. CONCLUSIONS: The scales demonstrated acceptable psychometric properties and construct validity. IMPLICATIONS FOR PRACTICE: This study validated the Chinese version of the Generic Core Scales among pediatric cancer patients and their caretakers, which supports the future use of the scales in clinical settings. The Generic Core Scales can also be supplementary to the PedsQL Cancer Module for measuring multiple domains of quality of life in cancer population.


Assuntos
Neoplasias/enfermagem , Pediatria , Qualidade de Vida , Adolescente , Adulto , Criança , China , Hong Kong , Humanos , Neoplasias/psicologia , Pediatria/métodos , Pediatria/normas , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários
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