Relatos de madres de desaparecidos: voces desde el colectivo / Stories of mothers of the disappeared: voices from the collective

La desaparición forzada en el país es alarmante, sobre todo de jóvenes de 15 a 29 años. Este evento rompe el lazo social y deja a las madres en estado traumático. El propósito de esta investigación fue triangularlas narrativas de desaparición, denuncia e integración de las madres al colectivo. Los resultados muestran que la vivencia de desaparición y el proceso de denuncia son tramas de degradación, donde las madres quedan revictimizadas, dado el maltrato de servidores públicos; mientras que, la integración a un colectivo hace de ideal reparatorio, pues confraternizan las madres en su dolor y resistencia en la búsqueda. Se concluye invitando a los psicólogos a buscar modos de elaboración acordes a la vivencia de trauma social AU

The enforced disappearance in this country is alarming, especially for young people between 15 and 29 years old. This event breaks the social bond and leaves mothers in a traumatic state. The purpose of this research is to triangulate the narratives of disappearance, filling in reportsand integration of the mothers into the collective. The results show that the experience of disappearance and the reporting processesare degrading,where the mothers are re-victimized, given the mistreatment of public servants. Beingthe integration to a collective a reparatory ideal, because the mothers fraternize in their pain and resistance in the searching. It concludes by inviting psychologists to seek ways of elaboration according to the experience of social trauma AU

Cinco semblanzas sobre Ignacio Mart{in-Baró / Five profiles on Ignacio Martín-Baró

Al cumplirse 25 años del asesinato de Martín-Baró, el boletín The Just Word, publicó una serie de breves testimonios en español y en inglés. Este artículo compila esos textos, a la vez que actualiza algunos de ellos. Son contribuciones de profesionales de Argentina, Austria, El Salvador y Estados Unidos que conocieron a Martín-Baró y/o interactuaron con su obra y su pensamiento. Aportan así información valiosa, a la vez que introducen la necesaria cuota de memoria y compromiso.

To commemorate the life and work of Ignacio MartínBaró, members and friends of the Martín-Baró Fund shared their reflections on Nacho's contributions to our lives and beyond. The Just Word devotes to these remembrances that include contributions from Argentina, El Salvador, Eastern Africa, and both coasts of the United States.

Pediatric Cancer Patients' Treatment Journey: Child, Adolescent, and Young Adult Cancer Narratives.

PURPOSE: The National Cancer Institute has acknowledged that for children, adolescents and young adults (AYAs), cancer is a leading cause of disability and death. This population has unique needs and until we fully understand those needs, we will not be able to provide optimal care. The purpose of this study was to understand the self-reported experience of cancer according to children and AYAs. DESIGN AND METHODS: A qualitative descriptive design was used. After obtaining IRB approval, participants were interviewed in Spanish or English. Thirty interviews were conducted with children and AYAs ages 10-22. Questions were asked about the patient's treatment journey and the impact on their lifestyle. The interviews were recorded directly in digital audio files, then transcribed using Verbal Ink®. Themes were derived after the data were organized using Dedoose® and then coded. RESULTS: Children and AYAs described the cancer experience as difficult due to activity challenges and disconnection from school. Patients noted that their physical inactivity led to deconditioning. Children and AYAs reported storytelling as a way to cope with newfound disabilities. Patients reported that their illness allowed them to build closer relationships to family. Feelings on other issues arose, such as communication challenges experienced with transition from adult to pediatric hospitals. The value of altruism emerged as a way to provide purpose in their journey. CONCLUSIONS: Children and AYAs have particular concerns that the healthcare community needs to address. These qualitative findings have specific recommendations for practice.

A hyaluronic acid- and chondroitin sulfate-based medical device improves gastritis pain, discomfort, and endoscopic features.

Gastritis is an inflammation of the gastric mucosa. In this study, we investigated the efficacy of a medical device, Esoxx®, based on hyaluronic acid and chondroitin sulfate on gastritis-related upper abdominal pain/discomfort and endoscopic features. Fifty patients, affected by gastritis, were randomised to receive the medical device or placebo. The primary endpoint was the medical device efficacy on upper abdominal pain/discomfort associated with gastritis and measured by Visual Analogue Scale (VAS). The secondary endpoints were the efficacy of the medical device on gastritis-related mucosal erosions, blood oozing, and hyperemia (redness)/edema, as assessed by endoscopy, and the patients' rating of their compliance with the treatments. A significant reduction in VAS pain was observed in the treatment group after a 5-week treatment, if compared with placebo (p < 0.001). In summary, administration of a medical device, based on hyaluronic acid and chondroitin sulfate, improves gastritis-related upper abdominal pain/discomfort and decreases mucosal erosions, blood oozing, and hyperemia (redness)/edema at 5-week follow-up in patients affected by gastritis.

A medicina é uma piada: representações humorísticas sobre médicos no jornal Santuário da Trindade / Medicine is a joke: humorous depictions of physicians in the Santuário da Trindade newspaper

O artigo analisa a representação do saber médico em Goiás nas primeiras décadas do século XX por meio de anedotas e artigos presentes no jornal católico Santuário da Trindade, em circulação de 1922 a 1931. Refletindo certo estranhamento à modernização da medicina, as anedotas ridicularizavam a ciência médica, demonstrando aquilo que Bakhtin caracterizou como a irreverência da cultura popular em relação às instituições sérias. Por outro lado, os saberes médicos foram altamente valorizados nos artigos do periódico, servindo como legitimadores do discurso moralizador de seus editores. Assim, no jornal, esses saberes foram representados, simultaneamente, de modo respeitoso e debochado, revelando a complexidade da absorção das mudanças nas práticas médicas no período.(AU)

This article analyzes representations of medical knowledge in Goiás in the early decades of the twentieth century through anecdotes and articles in the Catholic newspaper Santuário da Trindade, which circulated from 1922 to 1931. The anecdotes reflect a certain distancing from the modernization of medicine and ridicule medical science, demonstrating what Bakhtin characterized as the irreverence of popular culture in relation to serious institutions. On the other hand, medical knowledge was greatly esteemed in the paper's articles, and served to legitimize the moralizing discourse of its editors. Therefore, in the same newspaper this knowledge was simultaneously represented respectfully and mocked, revealing the complexity of how changes in medical practices during the period were absorbed.(AU)

End of life of patients treated with haemodialysis as narrated by their close relatives.

AIM: The study aimed to describe end of life for patients treated with maintenance haemodialysis as narrated by their close relatives. INTRODUCTION: Many patients undergoing haemodialysis are older, have several comorbidities and underestimated symptoms and are in their last year of life. To improve care, we need to know more about their end-of-life situation. DESIGN: Qualitative and descriptive. METHODS: Qualitative retrospective interviews were conducted with 14 close relatives of deceased haemodialysis patients (3-13 months after death). Data were analysed using qualitative content analysis. The study is ethically approved. FINDINGS: In the last months, a gradual deterioration in health with acute episodes necessitating hospital admissions was described. This involved diminishing living space and expressions of dejection, but also of joy. Three patterns emerged in the last weeks: uncertain anticipation of death as life fades away; awaiting death after haemodialysis withdrawal; and sudden but not unexpected death following intensive care. Findings show complexities of decisions on haemodialysis withdrawal. CONCLUSIONS: Different end-of-life patterns all involved increasingly complex care needs and existential issues. Findings show a need for earlier care planning. The identification of organisational factors to facilitate continuity and whole person care to meet these patients' specific care needs with their complex symptom burdens and comorbidities is needed. Findings indicate the need for integration of a palliative care approach in the treatment of patients in haemodialysis care.

"The Keepers of Stories": Personal Growth and Wisdom Among Oncology Nurses.

This study examined whether oncology nurses experience personal growth and wisdom as a result of caring for patients. Using a grounded theory approach, 30 nurses were interviewed regarding their experiences caring for cancer patients. Every nurse in this sample cited at least one example of growth and wisdom. Subthemes of personal growth were largely consistent with the documented domains of posttraumatic growth and included appreciation of life, new perspective on life, relating to others, spiritual/religious growth, and personal strength. Subthemes of wisdom were more varied, reflecting the diversity of this construct in the context of nursing. Benevolence arose as a unifying theme between personal growth and wisdom, with subthemes centering on altruistic attitudes and behavior toward patients and the greater community. Findings suggest that nurses develop personal growth, wisdom, and benevolence as a result of the emotional connections formed with patients and the subsequent struggle to cope with their loss. This process accords well with findings in other populations experiencing trauma and adversity directly.

A tale of 2 countries: the cost of my mother's cardiac care in the United States and India.

When my mother fell ill while visiting me in the United States, I had the opportunity to compare costs of surgical cardiac care in the United States and India. I faced challenges in making well-informed decisions in the United States due to the lack of cost transparency and the minimal flexibility offered in choice of care, whereas in India costs are readily available and allow most people to freely choose their preferred type of care.

The impact of the document international work group in death, dying and bereavement: assumptions and principles underlying standards for terminal care.

This article reflects on the development and impact of the International Workgroup on Death, Dying and Bereavement's (IWG) pivotal document on The Assumptions and Principles Underlying Standards for Terminal Care. It was at the Ars Moriendi meetings in Columbia, Maryland that the author first met Bob and Bunny Kastenbaum. The meeting led to the development of IWG and the first task of this group was the development of the "Standards" document. The initial document reflected the pioneering work already being done by Kastenbaum and others on the committee and then was formative in the development of other documents such as the National Hospice Association Standards. Participants in the original workgroup were asked for their reflections on the significance of the document and the literature was surveyed to assess the impact of the "Standards" document on the field.