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1.
Rev. polis psique ; 13(2): 29-56, 2023-11-13.
Artigo em Português | LILACS, INDEXPSI | ID: biblio-1517839

RESUMO

Esta pesquisa busca compreender a relação do expressar-se com o cuidado em saúde mental dos usuários de uma Unidade Básica de Saúde (UBS) de um município no Rio Grande do Sul. Como pesquisa qualitativa, os dados foram coletados em entrevistas semiestruturadas. A amostra inicial foi de dez participantes que compareceram a cinco atendimentos psicológicos feitos semanalmente pela estagiária de psicologia, sendo que sete deles permaneceram até o fim devido às faltas aos atendimentos associadas ao tempo reduzido para a realização da coleta de dados. Os resultados indicaram o acompanhamento psicológico como um espaço de escuta associado à livre expressão, proporcionando significados aos usuários, como: percepção de mudanças em seus sentimentos, pensamentos e comportamento, além das dificuldades e melhorias durante o processo. Estes dados trazem um novo significado atribuído pelos usuários sobre a realização dos atendimentos psicológicos, o autoconhecimento, descentralizando a ideia de busca pelo cuidado apenas quando há adoecimento. (AU)


This research aims to understand the relation between self-expression and the mental health care of users from a Basic Health Unit (BHU) located in a city of Rio Grande do Sul. As a qualitative research, the data were collected using semi-structured interviews. The initial sample consisted of ten users that had participated in five psychological consultations done by the psychology intern. However, due to the reduced time for data collection, associated to the absences of some participants, the final number of seven users was reached. The results indicated the psychological follow-up as a listening place, associated with freedom of speech, providing meanings such as: perception of changes in their feelings, thoughts and behavior. Besides that, the difficulties and improvements during the process were also related. These data show the new meanings reported by users aboutgoing to psychological follow-up, like the self-knowledge, decentralizing the idea of seeking mental care only when there is illness. (AU)


Esta investigación busca comprender la relación entre la expresión de sí mismo y la atención a la salud mental de usuarios de una Unidad Básica de Salud (UBS) de un municipio de Rio Grande do Sul. Como investigación cualitativa, los datos fueron colectadosen entrevistas semiestructuradas. La muestra inicial fue compuesta por diez participantes que asistieron a cinco sesiones de terapia hechas por estudiantes de psicología semanalmente, siete de los cuales permanecieron hasta el final por faltas a citas asociadas a la reducción del tiempo de recogida de datos. Los resultados indicaron apoyo psicológico como momento de escucha asociado a la libre expresión, ofreciendo habilidades a los usuarios como: percepción de cambios en sus sentimientos, pensamientos y comportamiento, además de dificultades y mejoras durante el proceso. Estos datos dan nuevo significado atribuido por los usuarios a la prestación de atención psicológica, el autoconocimiento, desconcentrando la idea de buscar atención sólo cuando hay una enfermedad. (AU)


Assuntos
Humanos , Atenção Primária à Saúde , Psicologia/métodos , Autoimagem , Saúde Mental , Assistência ao Paciente/estatística & dados numéricos , Pesquisa Qualitativa , Assistência ao Paciente/psicologia
2.
Rev. enferm. Inst. Mex. Seguro Soc ; 30(4): 86-87, Oct 3, 2022.
Artigo em Espanhol | LILACS, BDENF | ID: biblio-1436011

RESUMO

Todo paciente terminal y su entorno pasan por una difícil situación que involucra la muerte, el dolor y la decisión. Para cualquier profesional de la salud es necesario contar con los conocimientos necesarios acerca de los cuidados tanatológicos al paciente o familia, para lograr incrementar el grado de conciencia en lo concerniente a su significado, divulgación y accesibilidad, teniendo en cuenta que es importante la comprensión de dichos cuidados. Los cuidados tanatológicos ante situaciones terminales son la expresión y el cumplimiento de un servicio indispensable en determinadas circunstancias de la vida. El acompañamiento en la última fase de la vida debe ser comprendido con la naturaleza y el conocimiento necesario, por lo que toda escuela que forme recursos en salud debe ofrecer al alumno las herramientas adecuadas para que, a su egreso como profesional de la salud, pueda atender correctamente al paciente en esta fase. La profesión de Enfermería se ha caracterizado por su gran labor humanística, por el ímpetu de aminorar el dolor de todo enfermo, comprendiendo el eje bio-psico-social que rodea a todo paciente y su enfermedad. En el camino asistencial de todo enfermo, el personal de Enfermería juega un rol muy importante al estar en mayor contacto con el paciente, es en este punto donde dos ciencias (Enfermería y Tanatología) se unen para asistir decorosamente a pacientes terminales. Las escuelas formadoras de capital humano en salud deben enfocarse en esta nueva necesidad de la sociedad y crear modelos de atención específicos para pacientes terminales.


Every terminal patient and their environment go through a difficult situation, death, pain and decision. For any health professional, it is necessary to have the necessary knowledge about thanatological care for the individual or family, in order to increase the degree of awareness regarding its meaning, dissemination and accessibility, taking into account that it is important to understand said care. Thanatological care in terminal situations is the expression and fulfillment of an essential service in certain life circumstances. The accompaniment in the last phase of life must be understood with the nature and the necessary knowledge, so that every school that trains health resources must have the correct training so that the health professional who graduates can properly attend to the patient In this phase. The nursing profession has been characterized for many years by its great humanistic work, by the impetus to reduce the pain of every patient, understanding the bio-psycho-social axis that surrounds every patient and their illness. In the care path of every patient, the nursing staff plays a very important role by being in greater contact with the patient, it is at this point where two sciences (nursing and tanology) come together to decently assist terminal patients. Schools that train human capital in health should focus on this new need of society and create specific care models for terminal patients.


Assuntos
Humanos , Masculino , Feminino , Assistência Terminal/tendências , Educação em Enfermagem/tendências , Cuidados de Enfermagem/psicologia , Tanatologia , Assistência ao Paciente/psicologia , Enfermeiras e Enfermeiros/psicologia
3.
Ciênc. cuid. saúde ; 21: e59265, 2022. tab, graf
Artigo em Português | LILACS, BDENF | ID: biblio-1384519

RESUMO

RESUMO Objetivo: verificar os fatores de estresse comumente vivenciados por estudantes do curso de Enfermagem na realização de atividades teóricas e práticas da formação acadêmica. Método: estudo descritivo, transversal, desenvolvido com 142 discentes do curso de Enfermagem de uma universidade pública localizada em Mato Grosso do Sul, Brasil. Os dados foram coletados em fevereiro de 2020 por meio de questionário sociodemográfico/acadêmico e da escala de Avaliação de Estresse em Estudantes de Enfermagem e, posteriormente, analisados de maneira descritiva, segundo a moda e percentis superiores e inferiores à moda das variáveis. Resultados: medo de cometer erros durante a assistência ao paciente (57,4%), sentimento de ter adquirido pouco conhecimento para fazer provas práticas (52,1%), insegurança ou medo de fazer provas teóricas (44,7%) e obrigatoriedade de realizar trabalhos extraclasse (41,5%) foram fatores que provocaram níveis muito altos de estresse entre os estudantes. Conclusão: os resultados podem auxiliar faculdades de Enfermagem no planejamento e fortalecimento de intervenções preventivas com foco no gerenciamento do estresse e seu enfrentamento.


RESUMEN Objetivo: verificar los factores de estrés comúnmente experimentados por estudiantes del curso de Enfermería en la realización de actividades teóricas y prácticas de la formación académica. Método: estudio descriptivo, transversal, desarrollado con 142 discentes del curso de Enfermería de una universidad pública ubicada en Mato Grosso do Sul, Brasil. Los datos fueron recogidos en febrero de 2020 a través de cuestionario sociodemográfico/académico y de la escala de Evaluación de Estrés en Estudiantes de Enfermería y, posteriormente, analizados de manera descriptiva, según la moda y percentiles superiores e inferiores a la moda de las variables. Resultados: miedo de cometer errores durante la atención al paciente (57,4%), sentimiento de haber adquirido poco conocimiento para hacer pruebas prácticas (52,1%), inseguridad o miedo de hacer pruebas teóricas (44,7%) y obligatoriedad de realizar trabajos extraclase (41,5%) fueron factores que provocaron niveles muy altos de estrés entre los estudiantes. Conclusión: los resultados pueden auxiliar facultades de Enfermería en la planificación y fortalecimiento de intervenciones preventivas con enfoque en el manejo del estrés y su enfrentamiento.


ABSTRACT Objective: to verify the stress factors commonly experienced by nursing students in carrying out theoretical and practical activities of academic training. Method: descriptive, cross-sectional study, developed with 142 students of the nursing course of a public university located in Mato Grosso do Sul, Brazil. Data were collected in February 2020 through a sociodemographic/academic questionnaire and the Stress Assessment scale in Nursing Students and, later, analyzed descriptively, according to fashion and upper and lower percentiles than the fashion of the variables. Results: fear of making mistakes during patient care (57.4%), feeling of having acquired little knowledge to take practical tests (52.1%), insecurity or fear of taking theoretical tests (44.7%) and mandatory to perform extra-class work (41.5%) were factors that caused very high levels of stress among students. Conclusion: the results can help nursing colleges in the planning and strengthening of preventive interventions focused on stress management and coping.


Assuntos
Humanos , Masculino , Feminino , Adulto , Instituições Acadêmicas/organização & administração , Estresse Psicológico/psicologia , Estudantes de Enfermagem/psicologia , Ensino/organização & administração , Emoções , Estresse Psicológico/enfermagem , Adaptação Psicológica , Atitude , Saúde Mental/educação , Estudos Transversais , Conhecimento , Programas de Graduação em Enfermagem/métodos , Medo/psicologia , Estudo Clínico , Assistência ao Paciente/métodos , Assistência ao Paciente/psicologia , Fatores Sociodemográficos
5.
Holist Nurs Pract ; 35(5): 248-256, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34407022

RESUMO

Cancer affects not only the patient but also family members as informal caregivers. In order for family caregivers to achieve balance and improve their caregiving roles, it is essential to identify the beliefs and psychological aspects affecting them. The present study was carried out qualitatively with a descriptive phenomenological design in 2020. The main participants in this study were selected from one of the major referral centers for cancer patients in West Azerbaijan Province, located in northwestern, Iran. Twenty-two family caregivers were selected through a purposive sampling method. Data analysis showed that the 3 main themes of "emotional and religious preconceptions," "feeling committed to caring for beloveds," and "resilience" played a prominent role in family caregivers. These factors led to caregivers' commitment to and responsibility for care. Holistic care necessitates consideration of all aspects of human life. The results of this study led to an understanding of the complex tendencies and feelings of family caregivers. Based on the results, it was found that care is influenced by beliefs, religious preconceptions, sociocultural, and psychological factors. Identifying these variables helps medical staff share planning, interventions, and counseling with family caregivers and address issues that affect them.


Assuntos
Cuidadores/psicologia , Neoplasias/enfermagem , Assistência ao Paciente/psicologia , Psicologia , Adaptação Psicológica , Humanos , Irã (Geográfico) , Neoplasias/psicologia , Assistência ao Paciente/normas , Pesquisa Qualitativa
6.
J. health med. sci. (Print) ; 7(2): 121-126, abr.-jun. 2021. ilus
Artigo em Espanhol | LILACS | ID: biblio-1391698

RESUMO

Las principales repercusiones de pandemias anteriores en el personal sanitario son los problemas de salud mental. Sin embargo, existe poca evidencia disponible relacionada a cómo el COVID-19 está afectando la salud mental en el personal sanitario. El objetivo de esta revisión de literatura fue analizar el impacto que ha tenido la pandemia en la salud mental de los profesionales de salud. Se realizó una revisión de literatura narrativa utilizando las bases de datos de Proquest y PubMed, 11 artículos fueron seleccionados de acuerdo al cumplimiento de los criterios definidos. Los trastornos mentales más frecuentes en el personal sanitario que trabaja directamente en la atención de pacientes Covid-19 son: el estrés, depresión, ansiedad y la angustia, insomnio, hiperactividad y baja calidad de vida, afectan también al personal sanitario. Estos trastornos mentales son provocados por diversos factores como el exceso de carga laboral, miedo a infectarse e infectar a sus familias, falta de medios de protección personal y temor de ser discriminados entre otros. La pandemia del COVID-19 afecta negativamente la salud mental de los profesionales de salud que trabajan directamente en la atención de pacientes, así también como la calidad de vida, por lo que es fundamental tomar acciones para proteger a los funcionarios de salud.


The main repercussions of previous pandemics on health workers are mental health problems. However, there is little evidence available related to how COVID-19 is affecting mental wellbeing in healthcare personnel. This literature review's objective was to analyze the impact that the pandemic has had on the mental wellbeing of health professionals. A narrative literature review was carried out using the Proquest and PubMed databases; 11 articles were selected according to the defined criteria' fulfillment. The most frequent mental disorders in health personnel who work directly in the care of Covid-19 patients are: stress, depression, anxiety and anguish, insomnia, hyperactivity, and low quality of life, which also affect health personnel. These mental disorders are caused by various factors such as excessive workload, fear of becoming infected and infecting their families, lack of means of personal protection, and fear of being discriminated against, among others. The COVID-19 pandemic negatively affects the mental wellbeing of health professionals who work directly in patient care and the quality of life, so it is essential to take action to protect health workers.


Assuntos
Humanos , Pessoal de Saúde/psicologia , Fadiga de Alarmes do Pessoal de Saúde , COVID-19 , Saúde Mental , Fatores de Risco , Assistência ao Paciente/psicologia
7.
Eur J Oncol Nurs ; 50: 101881, 2021 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-33340842

RESUMO

PURPOSE: The oncology workforce has been found to have high risk of burnout; however, limited research has explored the experiences of health professionals working with head and neck cancer patients. The objective of this qualitative study was to explore the experiences of health professionals who work directly with patients diagnosed with head and neck cancers, with a focus on work-life balance, mental health and wellbeing. METHOD: A total of 21 in-depth semi-structured interviews were conducted with health professionals including radiation oncologists, medical oncologists, nurses, and associated medical and allied health professionals. A qualitative research approach based on social constructionist theory was used. Thematic analysis was used to identify and code themes. RESULTS: Five main themes emerged: 1. Conscientiousness; 2. Empathy; 3. Challenges; 4. Coping; and 5. Burnout or Fade Away. Challenges included sub-themes of Time & Resource Constraints, Work-Life Imbalance, Patients with Complex Needs, and Lack of Self-Care. CONCLUSION: It is vital to the sustainability of head and neck oncology services that this highly skilled workforce is retained. The development of interventions that will reduce the risk of burnout and improve retention and capacity of health professionals may include advanced communication skills training, trauma sensitivity training, self-compassion and stress management skills.


Assuntos
Esgotamento Profissional/psicologia , Neoplasias de Cabeça e Pescoço/terapia , Pessoal de Saúde/psicologia , Assistência ao Paciente , Adaptação Psicológica , Adulto , Atitude do Pessoal de Saúde , Fadiga de Compaixão , Empatia , Feminino , Humanos , Masculino , Oncologia , Saúde Mental , Pessoa de Meia-Idade , Assistência ao Paciente/psicologia , Pesquisa Qualitativa
8.
BMC Palliat Care ; 19(1): 186, 2020 Dec 08.
Artigo em Inglês | MEDLINE | ID: mdl-33292214

RESUMO

BACKGROUND: Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia. METHODS: This was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis. RESULT: The mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden. CONCLUSION: Caregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies.


Assuntos
Sobrecarga do Cuidador/psicologia , Cuidados Paliativos/métodos , Assistência ao Paciente/efeitos adversos , Adaptação Psicológica , Adulto , Idoso , Sobrecarga do Cuidador/etiologia , Estudos Transversais , Feminino , Humanos , Malásia , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/psicologia , Cuidados Paliativos/normas , Assistência ao Paciente/métodos , Assistência ao Paciente/psicologia , Quartos de Pacientes , Inquéritos e Questionários
10.
BMC Palliat Care ; 19(1): 133, 2020 Aug 20.
Artigo em Inglês | MEDLINE | ID: mdl-32819349

RESUMO

BACKGROUND: Palliative care is increasingly becoming an accepted treatment choice for many individuals diagnosed with end-stage kidney disease (ESKD). Yet, its utilisation is non-existent in many lower- and middle-income countries (LMICs). This study explored the perceptions of individuals with ESKD and their informal caregivers on palliative care as a treatment option for the disease in Ghana. METHODS: This was a phenomenological study, with an in-depth analysis of data collected from nine individuals with ESKD and six informal caregivers through individual, face-to-face semi-structured interviews. The study was conducted in two renal centres within the Kumasi metropolis, Ghana among individuals with ESKD seeking care from both renal centres and their informal caregivers. RESULTS: Three main themes were derived from this study - motivation for initiating haemodialysis, facing realities of haemodialysis, and considering palliative care. Participants felt that haemodialysis (HD) was not meeting their health expectations and demonstrated a general willingness to utilise palliative care if it would reduce suffering. CONCLUSIONS: This study has shown that individuals with ESKD or their informal caregivers would consider palliative care services, if available. It paves the way for discussions about palliative care for ESKD to begin across renal centres within Ghana and other similar settings. Exploring perspectives of clinicians in such settings could inform strategies on how to implement palliative care for ESKD management in such settings.


Assuntos
Falência Renal Crônica/complicações , Assistência ao Paciente/psicologia , Percepção , Adolescente , Adulto , Idoso , Feminino , Gana , Humanos , Falência Renal Crônica/psicologia , Masculino , Pessoa de Meia-Idade , Motivação , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Cuidados Paliativos/normas , Assistência ao Paciente/métodos , Pesquisa Qualitativa
11.
BMC Palliat Care ; 19(1): 106, 2020 Jul 11.
Artigo em Inglês | MEDLINE | ID: mdl-32652992

RESUMO

BACKGROUND: Although cancer patients experience distressing symptoms and health-related changes in their quality of life, they may report positive emotional states. The lives of informal caregivers of cancer patients may also be affected by the patient's cancer diagnosis; however, they may also find benefits in their experiences. Noticeable changes are reported in personal priorities after an oncologic diagnosis that can lead individuals to restructure their values and the way they perceive life. This study aims to assess happiness/satisfaction with life and positive and negative affect in cancer patients and informal caregivers compared with healthy people in the general population. METHODS: A cross-sectional study with participants recruited online in five regions of Brazil through the social network site Facebook® and the application WhatsApp®. Surveys were completed using the SurveyMonkey® platform. A different sample of cancer patients and informal caregivers that was personally interviewed with the same forms was also grouped in the present analysis. Variables with p-values < 0.05 in the univariate analysis were included in linear regression models (stepwise, backward). RESULTS: A total of 2580 participants were included, of whom 2112 were healthy representatives of the general population, 342 were cancer patients, and 126 were informal caregivers of cancer patients. In the multivariate analysis, the cancer patients and informal caregivers were happier than the healthy people in the general population, even after controlling for age, sex, educational level, and income. The patients and caregivers had lower scores for positive affect and higher scores for negative affect. CONCLUSIONS: Overall, the conditions related to happiness, satisfaction with life and positive affect are similar for all groups. However, cancer patients and informal caregivers report increased rates of happiness and satisfaction with life compared with theoretically healthy people, although they have lower positive affect scores and higher negative affect scores. It is suggested that cancer patients and caregivers of cancer patients experience more difficulties (suffering) on ​​a daily basis. However, given the increased difficulties, they perceive life differently, reporting that they are happier.


Assuntos
Cuidadores/psicologia , Felicidade , Neoplasias/psicologia , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Brasil , Estudos Transversais , Feminino , Humanos , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Neoplasias/complicações , Assistência ao Paciente/métodos , Assistência ao Paciente/psicologia , Satisfação Pessoal , Inquéritos e Questionários
12.
Aust J Gen Pract ; 49(5): 288-292, 2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-32416654

RESUMO

BACKGROUND: The number of people living with and beyond cancer is increasing substantially. Primary care has an important role in the ongoing management of cancer survivors. OBJECTIVE: The aim of this article is to outline common concerns of cancer survivors, evidence to support the role of general practitioners (GP) in survivorship care and key aspects of primary care-led survivorship care. DISCUSSION: Clinical trials have shown that, in particular circumstances and with well­designed models, GP-led care is as effective as oncology specialist-led care. Regardless of the model of care, general practice has key roles in care coordination, management of multimorbidity, secondary prevention and health promotion, management of psychosocial care and promotion of self-management. Communication and collaboration between GPs and specialist cancer services is critical to support patients and healthcare providers in the delivery of care.


Assuntos
Sobreviventes de Câncer/psicologia , Medicina Geral/métodos , Assistência ao Paciente/métodos , Papel Profissional/psicologia , Austrália , Medicina Geral/tendências , Humanos , Assistência ao Paciente/psicologia , Sobrevivência
13.
Qual Health Res ; 30(4): 491-503, 2020 03.
Artigo em Inglês | MEDLINE | ID: mdl-31216932

RESUMO

Men are increasingly participating, and acknowledging their roles, as informal carers. Yet, there has been comparatively little exploration of their experiences therein, especially within the context of cancer care. Here, drawing on semi-structured qualitative interviews with 16 Australian male carers for a relative with cancer, and using constructivist grounded theory, we explore their experiences of informal caring. Our analysis highlights a series of tensions, including the following: the meanings and practicalities of care provision including notions of reciprocity, duty, autonomy, and interdependence; the discomforts of dependency and vulnerability; and the complicated moralities that inflect "caring well." Given the shifting dynamics around informal care, we argue for increased attention to the affective tensions that arise at the nexus of moralities and masculinities in informal caring relations, especially as they are articulated in the context of illness, affliction, and dependency.


Assuntos
Cuidadores/psicologia , Masculinidade , Homens/psicologia , Neoplasias/terapia , Assistência ao Paciente/psicologia , Autonomia Pessoal , Adulto , Idoso , Idoso de 80 Anos ou mais , Austrália , Teoria Fundamentada , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
14.
Support Care Cancer ; 28(5): 2105-2112, 2020 May.
Artigo em Inglês | MEDLINE | ID: mdl-31396744

RESUMO

BACKGROUND: Cancer is recognized as a family illness as many head and neck cancer (HNC) patients after treatment require assistance from a family caregiver throughout the rest of their life. The purpose of this study was to explore the lived experience of primary family caregivers of HNC patients dealing with laryngectomy regarding their complex supportive role. METHODS: Phenomenological study based on individual interviews of twelve primary caregivers of HNC patients, recruited by purposeful sampling. Interview contents were analyzed in depth, in accordance with Colaizzi's descriptive analysis framework, to explore and identify significant themes and subthemes. RESULTS: Analysis evidenced three main topics and subthemes embracing various aspects of the caregiver's lived experiences: (1) experiencing disease and the pathway of care, (2) handling changes to everyday life, and (3) support received by others. CONCLUSION: Given the essential role the caregiver has in the patient's post-treatment recovery, future planning of HNC patient care must consider the caregivers' needs. In order to guarantee an appropriate and effective health professional care, it is important to consider caregivers' issues and needs as part of HNC patient care planning from the diagnosis to the follow-up.


Assuntos
Cuidadores/psicologia , Família/psicologia , Neoplasias de Cabeça e Pescoço/terapia , Assistência ao Paciente/psicologia , Atividades Cotidianas , Idoso , Feminino , Humanos , Entrevistas como Assunto , Laringectomia , Masculino , Pessoa de Meia-Idade
15.
Cancer Nurs ; 43(5): E283-E290, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-31361672

RESUMO

BACKGROUND: Rates of burnout and compassion fatigue among oncology nurses are rising, and the emotional impact of the work increases the risk. This study examined how oncology nurses describe the evolution of emotions from first significant patient loss through cumulative patient death. OBJECTIVE: To explore the emotional evolution of being an oncology nurse. METHODS: Semistructured interviews with 7 oncology nurses. Thematic analysis was used to analyze the data. RESULTS: Participant's mean age was 41.3 years, with 13.9 years of nursing experience and 10.6 years of oncology experience. One metatheme, "riding the roller coaster," described the overall emotional experience of the nurses. Three subthemes, "all in and then," "finding your way," and "impact on self," further outlined the process taken to cope with workplace emotions. CONCLUSIONS: Oncology nurses are frequently exposed to loss and suffering. Findings from this study suggest that new nurses are underprepared for the emotional experience of being an oncology nurse. Further, they define their emotional boundaries in isolation and without guidance on how to develop healthy coping skills. Changing the culture of silence around mental health and well-being among healthcare professionals can provide space for important conversations to occur. IMPLICATIONS FOR PRACTICE: Oncology nurses have few resources to teach them how to cope with the emotions experienced while caring for oncology patients. These findings suggest that alternative approaches to the traditional bereavement programs and innovative interventions offered to new oncology nurses within their first few years are needed.


Assuntos
Adaptação Psicológica , Esgotamento Profissional/psicologia , Neoplasias/enfermagem , Neoplasias/psicologia , Enfermeiros Clínicos/psicologia , Assistência ao Paciente/psicologia , Local de Trabalho/psicologia , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Enfermagem Oncológica , Pesquisa Qualitativa
16.
J Cyst Fibros ; 19(3): 499-502, 2020 05.
Artigo em Inglês | MEDLINE | ID: mdl-31735561

RESUMO

In a recent James Lind Alliance Priority Setting Partnership in cystic fibrosis (CF) the top priority clinical research question was: "What are effective ways of simplifying the treatment burden of people with CF?" We aimed to summarise the lived experience of treatment burden and suggest research themes aimed at reducing it. An online questionnaire was co-produced and responses subjected to quantitative and thematic analysis. 941 survey responses were received (641 from lay community). People with CF reported a median of 10 (interquartile range: 6-15) current treatments. Seven main themes relating to simplifying treatment burden were identified. Treatment burden is high, extending beyond time taken to perform routine daily treatments, with impact varying according to person-specific factors. Approaches to communication, support, evaluation of current treatments, service set-up, and treatment logistics (obtaining/administration) contribute to burden, offering scope for evaluation in clinical trials or service improvement.


Assuntos
Efeitos Psicossociais da Doença , Procedimentos Clínicos/organização & administração , Fibrose Cística , Assistência ao Paciente , Adulto , Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Ensaios Clínicos como Assunto , Fibrose Cística/psicologia , Fibrose Cística/terapia , Feminino , Humanos , Masculino , Assistência ao Paciente/métodos , Assistência ao Paciente/psicologia , Preferência do Paciente , Inquéritos e Questionários , Reino Unido
17.
Palliat Support Care ; 18(3): 277-284, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-31699175

RESUMO

OBJECTIVES: Latino-advanced cancer patients engage in advance care planning (ACP) at lower rates than non-Latino patients. The goal of the present study was to understand patients' and caregivers' preferred methods of communicating about ACP. METHODS: Patients and caregivers were interviewed about cultural, religious, and familial beliefs that influence engagement in ACP and preferences for ACP communication. RESULTS: Findings highlighted that Latino patients respect doctors' medical advice, prefer the involvement of family members in ACP discussions with doctors, hold optimistic religious beliefs (e.g., belief in miracles) that hinder ACP discussions, and prefer culturally competent approaches, such as using their native language, for learning how to discuss end-of-life (EoL) care preferences. SIGNIFICANCE OF RESULTS: Key cultural, religious, and familial beliefs and dynamics influence Latino engagement in ACP. Patients prefer a family-centered, physician informed approach to discussing ACP with consideration and incorporation of their religious medical beliefs about EoL care. Promising targets for improving the communication of and engagement in ACP include integrating cultural and religious beliefs in ACP discussions, providing information about ACP from the physician, involving family members in ACP discussions and decision-making, and giving instructions on how to engage in ACP discussions.


Assuntos
Planejamento Antecipado de Cuidados/tendências , Comunicação , Hispânico ou Latino/psicologia , Neoplasias/complicações , Relações Profissional-Paciente , Idoso , Cuidadores/psicologia , Comportamento do Consumidor , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/psicologia , Assistência ao Paciente/métodos , Assistência ao Paciente/psicologia , Pesquisa Qualitativa , Assistência Terminal/métodos , Assistência Terminal/psicologia , Assistência Terminal/normas
18.
Rev. bras. enferm ; 73(5): e20190403, 2020. tab, graf
Artigo em Inglês | LILACS, BDENF | ID: biblio-1115370

RESUMO

ABSTRACT Objectives: to identify patients' and informal caregivers' questions related to alveolar bone graft post-operative care. Methods: analytical and cross-sectional study, developed in a public and tertiary hospital between October 2017 and February 2018. The sample consisted of 46 participants. Data collection occurred during the preoperative nursing consultation through interview. The doubts were described in a form prepared by the researchers and later grouped by similarity of the subject. Results: doubts referred to diet (type of food, consistency, temperature and time period), surgical wound care (oral hygiene, graft rejection, removal of surgical points), post-operative complications (bleeding and edema), convalescence period (sun exposure, physical effort, time away from activities, length of stay) and medications. Conclusions: identifying the doubts allowed planning and implementing nursing care focused on the real needs of the clientele, favoring the rehabilitation process.


RESUMEN Objetivos: identificar las dudas de pacientes y cuidadores informales referentes a los cuidados posoperatorios de injerto óseo alveolar. Métodos: estudio analítico y transversal, desarrollado en un hospital público y terciario entre octubre de 2017 y febrero de 2018. La muestra ha constado de 46 participantes. La recogida de datos ha ocurrido durante la consulta de enfermería preoperatoria por medio de entrevista. Las dudas han sido descriptas en impreso elaborado por los investigadores y, posteriormente, agrupadas por similitud de asunto. Resultados: las dudas se refirieron a la alimentación (tipo de alimento, consistencia, temperatura y período de tiempo), cuidados con la herida operatoria (higiene oral, rechazo del injerto, retirada de los puntos quirúrgicos), complicaciones posoperatorias (hemorragia y edema), período de convalecencia (exposición al sol, esfuerzo físico, tiempo de alejarse de las actividades, tiempo de internación) y medicaciones. Conclusiones: Identificar las dudas permitió planear e implementar la asistencia de enfermería vuelta a las reales necesidades de la clientela, favoreciendo la rehabilitación.


RESUMO Objetivos: identificar as dúvidas de pacientes e cuidadores informais relativas aos cuidados pós-operatórios de enxerto ósseo alveolar. Métodos: estudo analítico e transversal, desenvolvido em um hospital público e terciário entre outubro de 2017 e fevereiro de 2018. A amostra constou de 46 participantes. A coleta de dados ocorreu durante a consulta de enfermagem pré-operatória por meio de entrevista. As dúvidas foram descritas em impresso elaborado pelos pesquisadores e, posteriormente, agrupadas por similaridade de assunto. Resultados: as dúvidas referiram-se a alimentação (tipo de alimento, consistência, temperatura e período de tempo), cuidados com a ferida operatória (higiene oral, rejeição do enxerto, retirada dos pontos cirúrgicos), complicações pós-operatórias (sangramento e edema), período de convalescência (exposição ao sol, esforço físico, tempo de afastamento das atividades, tempo de internação) e medicações. Conclusões: identificar as dúvidas permitiu planejar e implementar a assistência de enfermagem voltada às reais necessidades da clientela, favorecendo o processo reabilitador.


Assuntos
Adolescente , Criança , Feminino , Humanos , Masculino , Cuidados Pós-Operatórios/métodos , Enxerto de Osso Alveolar/métodos , Assistência ao Paciente/psicologia , Estudos Transversais , Inquéritos e Questionários , Enxerto de Osso Alveolar/tendências , Assistência ao Paciente/métodos
19.
Int. j. odontostomatol. (Print) ; 14(3): [271-278], 2020.
Artigo em Espanhol | LILACS | ID: biblio-1087922

RESUMO

En diciembre de 2019, en China surgió un nuevo brote de neumonía la cual fue identificada como SARS-CoV-2 el cual tiene una rápida propagación al ser trasmitido principalmente mediante tos, estornudo o contacto. Presenta diversos síntomas como fiebre, tos seca y mialgia. Puede afectar a cualquier edad siendo principalmente leve y con resolución espontánea, pero en personas mayores y/o con comorbilidades puede presentar un curso severo o mortal. Para su diagnóstico es importante evaluar la presencia de fiebre, realizar una historia epidemiológica, TC de tórax y pruebas de laboratorio como RT-PCR o muestras del tracto respiratorio.Se realizó una revisión sistemática cualitativa realizando una búsqueda en las bases de datos Medline y ClinicalKey, se encontraron 72 artículos, los cuales se leyeron por completo, de ellos 16 cumplieron los criterios de inclusión y exclusión. La gran parte de las acciones odontológicas producen gotas o aerosoles, por esta razón se deben tomar medidas de protección, selección de pacientes y tipos de tratamientos para disminuir la posibilidad de infecciones en el personal de salud y pacientes, evaluar el uso de goma dique y colutorios previos a la atención, evitar instrumental generador de aerosoles, postergar atenciones electivas, tratar solamente emergencias dentales y extremar las medidas de desinfección de las instalaciones utilizando agentes biocidas efectivos contra el coronavirus. La trasmisión por fómites y aerosoles está comprobada por lo que debemos extremar precauciones. En situaciones de pandemia hay que considerar entregar un soporte psicológico a los pacientes, especialmente con patologías orales psicosomáticas las que pueden empeorar. La posibilidad de trasmisión en el periodo de recuperación no está comprobada ni descartada.


Assuntos
Humanos , Assistência Odontológica/normas , Infecções por Coronavirus/prevenção & controle , Infecções por Coronavirus/transmissão , Assistência ao Paciente/psicologia , Controle de Doenças Transmissíveis/instrumentação , Contenção de Riscos Biológicos/instrumentação , Pandemias/prevenção & controle , Betacoronavirus
20.
Psicol. Estud. (Online) ; 25: e43673, 2020.
Artigo em Português | INDEXPSI, LILACS | ID: biblio-1135769

RESUMO

RESUMO. O objetivo desta pesquisa foi o de compreender as práticas discursivas entre psicóloga/o e usuária/o no cotidiano de um serviço de proteção social básica do Sistema Único de Assistência Social no Brasil. Para tanto, foi observado o cotidiano de um Centro de Referência em Assistência Social. O registro em diário de campo foi analisado a partir da proposta teórico-metodológica construcionista social de análise de práticas discursivas e produção de sentidos. Os sentidos sobre relacionamento psicólogo/a-usuários/as nessas práticas foram discutidos em termos dos jogos de posicionamentos que implicavam e dos discursos sociais que os atravessavam. Destacaram-se a disputa de entendimentos entre profissional e usuária/o sobre possíveis planos de ação, a influência de discursos de julgamento moral e responsabilização individual nesse processo, os efeitos do lugar da/o profissional como especialista, a dificuldade de se pensar estratégias com o foco grupal, coletivo e comunitário e os efeitos de um olhar psicologizante sobre a/o usuária/o.


RESUMEN. El objetivo de esta investigación fue el de comprender las prácticas discursivas de psicólogo y usuario en el cotidiano de un servicio de protección social básica del Sistema Único de Asistencia Social en Brasil. Para ello, se realizó la observación en el cotidiano de un Centro de Referencia en Asistencia Social. Se analizó el registro en diario de campo a partir de la propuesta teórico-metodológica construccionista social de análisis de producción de sentidos. Los sentidos sobre relación psicólogo-usuarios en esas prácticas fueron discutidos en términos de los juegos de posicionamientos que implicaban y de los discursos sociales que los atravesaban. Se destacaron la disputa de entendimientos entre profesional y usuario sobre los planes de acción, la influencia de discursos de juicio moral y responsabilización individual en ese proceso, los efectos del lugar del profesional como especialista, la dificultad de pensar estrategias con el objeto el foco grupal, colectivo y comunitario y los efectos de una mirada psicologizante sobre el usuario.


ABSTRACT. The aim of this study was to understand the psychologist-user discursive practices in the quotidian of a basic social protection service of the Brazilian Unified Social Welfare System. In order to do so, the observation of the quotidian of a Social Welfare Referral Center was carried out. The field notes were analyzed from the social constructionist theoretical-methodological proposal of making meaning analysis. The meanings about the psychologist-users relationship implied in these practices were discussed in terms of the games of positioning that they implied and of the social discourses that ran through them. The dispute of understandings regarding action plans between professional and user and the influence of discourses of moral judgment and individual responsibilization were highlighted in this process, as were the effects of the professional's place as a specialist, the difficulty of thinking about strategies with a group, collective and community focus and the effects of a psychologizing view regarding the user.


Assuntos
Humanos , Masculino , Feminino , Psicologia , Assistentes Sociais , Serviços de Saúde , Psicoterapia , Serviço Social , Terapêutica/psicologia , Assistência ao Paciente/psicologia
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