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1.
PLoS One ; 17(2): e0263264, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-35139107

RESUMO

OBJECTIVE: The primary objective was to develop a computerized culturally adapted health literacy intervention for older Hispanics with type 2 diabetes (T2D). Secondary objectives were to assess the usability and acceptability of the intervention by older Hispanics with T2D and clinical pharmacists providing comprehensive medication management (CMM). MATERIALS AND METHODS: The study occurred in three phases. During phase I, an integration approach (i.e., quantitative assessments, qualitative interviews) was used to develop the intervention and ensure cultural suitability. In phase II, the intervention was translated to Spanish and modified based on data obtained in phase I. During phase III, the intervention was tested for usability/acceptability. RESULTS: Thirty participants (25 older Hispanics with T2D, 5 clinical pharmacists) were included in the study. Five major themes emerged from qualitative interviews and were included in the intervention: 1) financial considerations, 2) polypharmacy, 3) social/family support, 4) access to medication/information, and 5) loneliness/sadness. Participants felt the computerized intervention developed was easy to use, culturally appropriate, and relevant to their needs. Pharmacists agreed the computerized intervention streamlined patient counseling, offered a tailored approach when conducting CMM, and could save them time. CONCLUSION: The ability to offer individualized patient counseling based on information gathered from the computerized intervention allows for precision counseling. Future studies are needed to determine the effectiveness of the developed computerized intervention on adherence and health outcomes.


Assuntos
Diabetes Mellitus Tipo 2/tratamento farmacológico , Letramento em Saúde/organização & administração , Hispânico ou Latino , Conduta do Tratamento Medicamentoso/organização & administração , Educação de Pacientes como Assunto/organização & administração , Aculturação , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Instrução por Computador/economia , Instrução por Computador/métodos , Análise Custo-Benefício , Aconselhamento/economia , Aconselhamento/métodos , Diabetes Mellitus Tipo 2/sangue , Diabetes Mellitus Tipo 2/economia , Diabetes Mellitus Tipo 2/etnologia , Feminino , Letramento em Saúde/economia , Letramento em Saúde/métodos , Letramento em Saúde/normas , Humanos , Masculino , Adesão à Medicação/etnologia , Conduta do Tratamento Medicamentoso/economia , Pessoa de Meia-Idade , Educação de Pacientes como Assunto/economia , Educação de Pacientes como Assunto/métodos , Farmacêuticos/organização & administração , Medicina de Precisão/economia , Medicina de Precisão/métodos , Relações Profissional-Paciente , Desenvolvimento de Programas
2.
Bull Cancer ; 108(11): 1019-1029, 2021 Nov.
Artigo em Francês | MEDLINE | ID: mdl-34556293

RESUMO

The Institut Curie initiated a therapeutic patient education activity in 2011 by creating several programs. Coordinated and animated by different multidisciplinary teams, these functioned autonomously, with a different initial educational assessment for each one. This organization broke up the patient's educational pathway, and the educational offer, which sometimes proved to be redundant, most often corresponding to the needs shared by all cancer patients. The transversal therapeutic education unit allowed the creation of a single educational pathway per patient. It was necessary to imagine a common initial educational assessment. How can we move from eight specific educational assessments to a single educational assessment? After the harmonization of the different workshops, we moved from seven programs with several workshops to one program with eight themes and 26 workshops. Then several working groups led to the creation of a common, unique framework for the initial educational assessment. In seven months, a total of 119 unique educational assessments were carried out. The majority of those who wanted to undertake an educational process were women (96%). 7% had localized breast cancer, and 66% were undergoing treatment. Each workshop chosen corresponded to a need identified during the assessment. The themes mostly requested were nutrition, communication, and pain. Several advantages have been felt in the implementation of this educational assessment: single entry for the patient reinforced therapeutic alliance, transversal reading of the patient's educational needs. What remains to be done is to train therapeutic education practitioners about this global vision.


Assuntos
Academias e Institutos , Avaliação Educacional/métodos , Educação de Pacientes como Assunto/métodos , Desenvolvimento de Programas/métodos , Neoplasias da Mama/terapia , Dor do Câncer , Comunicação , Exercício Físico , Feminino , França , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Fenômenos Fisiológicos da Nutrição , Educação de Pacientes como Assunto/organização & administração , Autocuidado , Fatores Sexuais , Sexualidade , Fatores de Tempo
3.
J Bone Joint Surg Am ; 103(16): 1473-1481, 2021 08 18.
Artigo em Inglês | MEDLINE | ID: mdl-33999877

RESUMO

BACKGROUND: Anterior cruciate ligament (ACL) injuries can be treated with or without ACL reconstruction (ACLR), and more high-quality studies evaluating outcomes after the different treatment courses are needed. The purpose of the present study was to describe and compare 5-year clinical, functional, and physical activity outcomes for patients who followed our decision-making and treatment algorithm and chose (1) early ACLR with preoperative and postoperative rehabilitation, (2) delayed ACLR with preoperative and postoperative rehabilitation, or (3) progressive rehabilitation alone. Early ACLR was defined as that performed ≤6 months after the preoperative rehabilitation program, and late ACLR was defined as that performed >6 months after the preoperative rehabilitation program. METHODS: We included 276 patients from a prospective cohort study. The patients had been active in jumping, pivoting, and cutting sports before the injury and sustained a unilateral ACL injury without substantial concomitant knee injuries. The patients chose their treatment through a shared decision-making process. At 5 years, we assessed the International Knee Documentation Committee Subjective Knee Form (IKDC-SKF), Knee injury and Osteoarthritis Outcome Score (KOOS), Marx Activity Rating Scale, sports participation, quadriceps muscle strength, single-legged hop performance, and new ipsilateral and contralateral knee injuries. RESULTS: The 5-year follow-up rate was 80%. At 5 years, 64% of the patients had undergone early ACLR, 11% had undergone delayed ACLR, and 25% had had progressive rehabilitation alone. Understandably, the choices that participants made differed by age, concomitant injuries, symptoms, and predominantly level-I versus level-II preinjury activity level. There were no significant differences in any clinical, functional, or physical activity outcomes among the treatment groups. Across treatment groups, 95% to 100% of patients were still active in some kind of sports and 65% to 88% had IKDC-SKF and KOOS scores above the threshold for a patient acceptable symptom state. CONCLUSIONS: Patients with ACL injury who were active in jumping, pivoting, and cutting sports prior to injury; who had no substantial concomitant knee injuries; and who followed our decision-making and treatment algorithm had good 5-year knee function and high sport participation rates. Three of 4 patients had undergone ACLR within 5 years. There were no significant differences in any outcomes among patients treated with early ACLR, delayed ACLR, or progressive rehabilitation alone. LEVEL OF EVIDENCE: Therapeutic Level II. See Instructions for Authors for a complete description of levels of evidence.


Assuntos
Lesões do Ligamento Cruzado Anterior/terapia , Reconstrução do Ligamento Cruzado Anterior/métodos , Procedimentos Clínicos , Terapia por Exercício/métodos , Educação de Pacientes como Assunto/métodos , Adolescente , Adulto , Ligamento Cruzado Anterior/fisiopatologia , Ligamento Cruzado Anterior/cirurgia , Reconstrução do Ligamento Cruzado Anterior/estatística & dados numéricos , Atletas/estatística & dados numéricos , Tomada de Decisão Compartilhada , Delaware , Terapia por Exercício/organização & administração , Feminino , Seguimentos , Humanos , Masculino , Noruega , Educação de Pacientes como Assunto/organização & administração , Cuidados Pré-Operatórios/métodos , Estudos Prospectivos , Volta ao Esporte/estatística & dados numéricos , Tempo para o Tratamento/estatística & dados numéricos , Resultado do Tratamento , Adulto Jovem
4.
J Clin Pharm Ther ; 46(5): 1301-1307, 2021 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-33904165

RESUMO

WHAT IS KNOWN AND OBJECTIVE: Even if total joint arthroplasty (TJA) patients have received conventional antithrombotic therapy, the incidence of thrombosis remains high. Clinical pharmacists have been involved in the multidisciplinary team of orthopaedics, but their roles and functions are not yet defined. The objective of this study was to assess the impact of clinical pharmacist services on the use of anticoagulant drugs, the rationality of medication and the incidence of thrombosis in patients with TJA. METHODS: This retrospective, observational cohort study was conducted for patients undergoing TJA procedures. Study variables were collected for a baseline period of 1 January 2016 to 30 June 2017 and an intervention period of 1 January 2018 to 30 June 2019, allowing for a 6-month run-in period. For demographic characteristics, the use of anticoagulant drugs and the incidence of thrombosis between the baseline and intervention periods, the data were statistically analysed. RESULTS AND DISCUSSION: During the 36-month study timeframe, a total of 591 TJA procedures were performed. A total of 577 participants were included in the study (240 in the baseline group and 377 in the intervention group). After clinical pharmacist participation, the prevention rate of anticoagulant drugs (p < 0.05), the proportion of oral anticoagulants (p = 0.000) and the course of preventive treatment (p = 0.004) increased significantly. The time of administration was shortened from after 24 h to within 24 h post-surgery (p = 0.000). Although the incidence of symptomatic DVT reduced in the intervention period, there was no statistical difference in either the hospital, 1-month follow-up, or 3-month follow-up after surgery (all p > 0.05). WHAT IS NEW AND CONCLUSION: Within the limitations of a retrospective study, clinical pharmacist intervention was associated with improvements in anticoagulation management of TJA procedures, likely conferring beneficial effects.


Assuntos
Anticoagulantes/administração & dosagem , Educação de Pacientes como Assunto/organização & administração , Farmacêuticos/organização & administração , Serviço de Farmácia Hospitalar/organização & administração , Trombose/prevenção & controle , Adulto , Idoso , Idoso de 80 Anos ou mais , Anticoagulantes/efeitos adversos , Artroplastia de Substituição , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estudos Retrospectivos , Trombose/epidemiologia
5.
J Surg Res ; 264: 30-36, 2021 08.
Artigo em Inglês | MEDLINE | ID: mdl-33744775

RESUMO

BACKGROUND: The onset of the COVID-19 pandemic led to the postponement of low-acuity surgical procedures in an effort to conserve resources and ensure patient safety. This study aimed to characterize patient-reported concerns about undergoing surgical procedures during the pandemic. METHODS: We administered a cross-sectional survey to patients who had their general and plastic surgical procedures postponed at the onset of the pandemic, asking about barriers to accessing surgical care. Questions addressed dependent care, transportation, employment and insurance status, as well as perceptions of and concerns about COVID-19. Mixed methods and inductive thematic analyses were conducted. RESULTS: One hundred thirty-five patients were interviewed. We identified the following patient concerns: contracting COVID-19 in the hospital (46%), being alone during hospitalization (40%), facing financial stressors (29%), organizing transportation (28%), experiencing changes to health insurance coverage (25%), and arranging care for dependents (18%). Nonwhite participants were 5 and 2.5 times more likely to have concerns about childcare and transportation, respectively. Perceptions of decreased hospital safety and the consequences of possible COVID-19 infection led to delay in rescheduling. Education about safety measures and communication about scheduling partially mitigated concerns about COVID-19. However, uncertainty about timeline for rescheduling and resolution of the pandemic contributed to ongoing concerns. CONCLUSIONS: Providing effective surgical care during this unprecedented time requires both awareness of societal shifts impacting surgical patients and system-level change to address new barriers to care. Eliciting patients' perspectives, adapting processes to address potential barriers, and effectively educating patients about institutional measures to minimize in-hospital transmission of COVID-19 should be integrated into surgical care.


Assuntos
Agendamento de Consultas , COVID-19/transmissão , Procedimentos Cirúrgicos Eletivos/psicologia , Medo , Acessibilidade aos Serviços de Saúde/organização & administração , Adulto , COVID-19/epidemiologia , COVID-19/prevenção & controle , COVID-19/psicologia , Estudos Transversais , Procedimentos Cirúrgicos Eletivos/estatística & dados numéricos , Feminino , Acessibilidade aos Serviços de Saúde/estatística & dados numéricos , Humanos , Controle de Infecções/organização & administração , Transmissão de Doença Infecciosa do Profissional para o Paciente/prevenção & controle , Masculino , Pessoa de Meia-Idade , Pandemias/prevenção & controle , Pandemias/estatística & dados numéricos , Educação de Pacientes como Assunto/organização & administração , Centro Cirúrgico Hospitalar/organização & administração , Inquéritos e Questionários/estatística & dados numéricos , Incerteza
6.
Arch Dermatol Res ; 313(4): 217-224, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-32785836

RESUMO

BACKGROUND: Traditional in-person discussion alone is often used for preoperative education in Mohs micrographic surgery (MMS). The appropriate use of more modern education techniques is not well defined in the MMS literature. OBJECTIVE: The authors aim to evaluate patient education techniques for MMS, address education in special populations, and highlight opportunities for improvement. METHODS AND MATERIALS: We performed a PubMed literature search with keywords "Mohs" and "education", "teaching", "understanding", "explanation", "preoperative", or "consent" with no restriction on publication time frame due to literature scarcity. RESULTS: Teledermatology consultation, MMS videos, 3D models, pamphlets/online materials, and shared medical appointments appear to be effective techniques (GRADE B). Analogies are also anecdotally helpful when integrated into traditional verbal education (GRADE C). The role of preoperative educational phone calls is more controversial (GRADE C). CONCLUSION: Regardless of the education technique utilized, no singular technique entirely replaces the traditional in-person discussion. Having access to multiple modalities can be beneficial for patients, allowing them options to choose their preferred method(s) of education. MMS is a difficult topic to conceptualize, and further research into educational techniques is needed to provide clear guidelines for Mohs surgeons.


Assuntos
Dermatologia/métodos , Cirurgia de Mohs , Educação de Pacientes como Assunto/métodos , Neoplasias Cutâneas/cirurgia , Dermatologia/instrumentação , Dermatologia/organização & administração , Humanos , Modelos Anatômicos , Educação de Pacientes como Assunto/organização & administração , Satisfação do Paciente , Cuidados Pré-Operatórios/métodos , Melhoria de Qualidade , Consulta Remota/instrumentação , Consulta Remota/métodos , Consulta Remota/organização & administração , Gravação em Vídeo
8.
Medicine (Baltimore) ; 99(51): e23572, 2020 Dec 18.
Artigo em Inglês | MEDLINE | ID: mdl-33371086

RESUMO

ABSTRACT: The chronic kidney disease (CKD) patients may have a variety of complications during receiving peritoneal dialysis (PD). The malnutrition in CKD patients is related to their lower life quality, higher hospitalization rates, and higher risk of cardiovascular disease, as well as the increased morbidity and mortality. Hence, it is very important to monitor and then manage the nutritional status of CKD patients. Thus, we perform this randomized controlled study protocol to introduce a continuing nursing program based on Omaha system (OS) for the patients with CKD receiving PD treatment.The randomized trial will be implemented from November 2020 to May 2021 and was granted through the Research Ethics Committee of Wuhan No.1 Hospital (2020003281). Two hundred patients meet inclusion criteria and exclusion criteria are included.Patients who meet the following criteria will be selected: voluntary participation, aged 20 to 60; undergoing the regular PD treatment for at least 3 months. Patients will be excluded if the patients are in unstable status, or experience the intermittent PD or some other kinds of dialysis mode, have severe cachexia, infection, or malnutrition, or if they have mental disorders. In control group, patients are given routine treatment, containing general guidance associated with PD and the outpatient telephone calls from the clinical nurses during follow-up. In study group, the patients are given the continuous nursing treatment scheme based on OS. The clinical results are the biochemical parameters after intervention, anthropometry, as well as the subjective global assessment.Table 1 reveals the clinical endpoints between the 2 groups.This protocol can guide nurses to develop a nursing program based on evidence for patients with CKD receiving PD. TRIAL REGISTRATION: This study protocol was registered in Research Registry (researchregistry6202).


Assuntos
Dieta/normas , Planejamento de Assistência ao Paciente/organização & administração , Educação de Pacientes como Assunto/organização & administração , Diálise Peritoneal/enfermagem , Insuficiência Renal Crônica/terapia , Adulto , Índice de Massa Corporal , Pesos e Medidas Corporais , Feminino , Força da Mão , Humanos , Masculino , Pessoa de Meia-Idade , Estado Nutricional , Adulto Jovem
9.
Ann Acad Med Singap ; 49(9): 652-660, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-33241253

RESUMO

INTRODUCTION: Coronavirus Disease 2019 (COVID-19) has significantly affected the way healthcare is delivered in Singapore. Healthcare services such as renal transplantation had to rapidly adjust and meet the needs to (1) protect patients and staff, (2) ramp up, conserve or redeploy resources while (3) ensuring that critical services remained operational. This paper aims to describe the experience of the renal transplant programme at the Singapore General Hospital (SGH) in responding to the risks and constraints posed by the pandemic. METHODS AND MATERIALS: This is a review and summary of the SGH renal transplant programme's policy and protocols that were either modified or developed in response to the COVID-19 Pandemic. RESULTS: A multi-pronged approach was adopted to respond to the challenges of COVID-19. These included ensuring business continuity by splitting the transplant team into different locations, adopting video and tele-consults to minimise potential patient exposure to COVID-19, streamlining work processes using electronic forms, ensuring safe paths for patients who needed to come to hospital, ring-fencing and testing new inpatients at risk for COVID-19, enhancing precautionary measures for transplant surgery, ensuring a stable supply chain of immunosuppression, and sustaining patient and staff education programmes via video conferencing. CONCLUSIONS: Though the COVID-19 pandemic has reduced access to kidney transplantation, opportunities arose to adopt telemedicine into mainstream transplant practice as well as use electronic platforms to streamline work processes. Screening protocols were established to ensure that transplantation could be performed safely, while webinars reached out to empower patients to take precautions against COVID-19.


Assuntos
COVID-19/prevenção & controle , Atenção à Saúde/organização & administração , Imunossupressores/provisão & distribuição , Transplante de Rim , Telemedicina , Comunicação por Videoconferência , COVID-19/diagnóstico , COVID-19/epidemiologia , Atenção à Saúde/métodos , Rejeição de Enxerto/prevenção & controle , Humanos , Imunossupressores/uso terapêutico , Programas de Rastreamento , Política Organizacional , Educação de Pacientes como Assunto/métodos , Educação de Pacientes como Assunto/organização & administração , Admissão e Escalonamento de Pessoal , Distanciamento Físico , Singapura/epidemiologia , Fluxo de Trabalho
10.
Gynecol Oncol ; 159(3): 785-793, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-32962898

RESUMO

OBJECTIVE: Radiotherapy for gynaecological cancer is associated with multiple adverse effects. This randomised controlled trial evaluated the impact of a combined nurse- and peer-led psycho-educational intervention on psychological distress, preparation for treatment, quality of life, psychosexual function, unmet needs and vaginal stenosis. METHODS: Eligible women had a confirmed diagnosis of gynaecological cancer, scheduled to receive radiotherapy with curative intent, aged ≥18 years, and able to read and write English. Participants randomly assigned one-to-one to either four nurse-led consultations plus four peer-led telephone sessions, or to usual care. Participants completed study measures at baseline, immediately before first radiotherapy (FU1), and four weeks (FU2), three (FU3), six (FU4), and 12 months (FU5) post radiotherapy. The primary outcomes were psychological distress at FU1 and FU2 measured by the Hospital Anxiety and Depression Scale. RESULTS: Of 840 eligible participants, 625 were approached and 319 (51%) consented; 158 assigned to intervention, 160 to usual care with 1 withdrawing before randomisation. Between-groups differences for primary outcomes were trivial- and small-sized, (both p > 0.05). Notable effects on secondary outcomes favouring the intervention at FU2 included preparation for treatment (sensory/psychological concerns, d = 0.57; and procedural concerns, d = 0.52) and specific needs domains (sexuality needs, d = 0.38; and health system and information needs, d = 0.41). CONCLUSIONS: There was no evidence that a nurse- and peer-led intervention had a beneficial effect on psychological distress compared to usual care. However, improved treatment readiness and lower health system and sexuality needs indicate the intervention may have addressed outcomes known to be important to this population.


Assuntos
Neoplasias dos Genitais Femininos/radioterapia , Educação de Pacientes como Assunto/métodos , Angústia Psicológica , Encaminhamento e Consulta/organização & administração , Sexualidade/psicologia , Adulto , Idoso , Ansiedade , Sobreviventes de Câncer/psicologia , Depressão , Feminino , Seguimentos , Humanos , Pessoa de Meia-Idade , Enfermeiras e Enfermeiros/organização & administração , Educação de Pacientes como Assunto/organização & administração , Estudos Prospectivos , Qualidade de Vida , Radioterapia/efeitos adversos , Radioterapia/psicologia , Grupos de Autoajuda/organização & administração , Telefone , Resultado do Tratamento
12.
Eur J Oncol Nurs ; 47: 101765, 2020 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-32563842

RESUMO

PURPOSE: To analyse the importance and performance of key elements in patient-centered care coordination, education and counseling of patients treated with oral anticancer drugs. METHOD: In four Belgian non-academic hospitals, the importance and performance of a set of 82 key elements was cross-sectionally evaluated by primary and secondary healthcare professionals and by patients. These key elements were divided in 6 themes: coordination of care, style and content of patient contacts, medication counseling at treatment initiation, follow-up of treatment, psychosocial support, and involvement of family and friends. Participants were asked to indicate for each key element if it was implemented in the current care process for patients on oral anticancer drugs ('yes', 'no', 'I don't know') and if they considered it important that the component was implemented or would be in the future ('yes' or 'no'). Three levels of performance were defined, based on the number of participants who had answered 'yes' or 'no': 'systematically performed' (≥90% of participants), 'not systematically performed' (≥75% and <90%) and 'not performed' (<75%). Importance-rates were based on the number of 'yes' or 'no'. RESULTS: In total, 85 participants evaluated the key elements. More than half of key elements, 13/82 (15.9%) and 35/82 (42.6%) respectively, were considered as 'not' or 'not systematically performed'. The majority of these elements concerned coordination of care, medication counseling at treatment initiation and follow-up of treatment. Especially key elements on involving primary care and on discussing adherence had low performance rates. Nearly all key elements were assigned an importance score of ≥90%. CONCLUSIONS: Performance of key elements of patient-centered care coordination, education and counseling of patients treated with oral anticancer drugs proved moderate. Our findings suggest that strategies are needed to prioritize and operationalize key elements to coordinate transmural care and to provide effective education and counseling.


Assuntos
Antineoplásicos/administração & dosagem , Aconselhamento/organização & administração , Neoplasias/tratamento farmacológico , Educação de Pacientes como Assunto/organização & administração , Assistência Centrada no Paciente/organização & administração , Administração Oral , Adulto , Bélgica , Estudos Transversais , Feminino , Pesquisas sobre Atenção à Saúde , Hospitais , Humanos , Masculino , Análise e Desempenho de Tarefas
13.
Cancer Prev Res (Phila) ; 13(9): 715-720, 2020 09.
Artigo em Inglês | MEDLINE | ID: mdl-32493702

RESUMO

Many people are diagnosed with cancer after presenting with signs and symptoms of their disease to a healthcare provider. Research from developed countries suggests that, in addition to indicating later-stage disease, symptoms can also indicate earlier-stage disease, leading to investment in research and quality improvement efforts in the early detection of symptomatic cancers. This approach, labeled early diagnosis of symptomatic cancers, focuses on identifying cancer at the earliest possible stage in patients with potential signs and symptoms of cancer, and subsequently diagnosing and treating the cancer without delay. In the United States, early detection has focused on cancer screening, with relatively less research focused on early diagnosis of symptomatic cancers. In this commentary, we propose that research focused on early diagnosis of symptomatic cancers provides an important opportunity to achieve more earlier-stage cancer diagnoses in the United States. We highlight the potential of these efforts to improve cancer outcomes, and outline a research agenda to improve early diagnosis of symptomatic cancers in the United States focused on defining and describing pathways to cancer diagnosis, identifying signs and symptoms that can be used to promote early cancer detection, and developing interventions to improve early diagnosis of symptomatic cancers.


Assuntos
Detecção Precoce de Câncer , Neoplasias/diagnóstico , Atenção Primária à Saúde/organização & administração , Melhoria de Qualidade , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Incidência , Estadiamento de Neoplasias , Neoplasias/epidemiologia , Neoplasias/prevenção & controle , Educação de Pacientes como Assunto/organização & administração , Testes Imediatos/organização & administração , Estados Unidos/epidemiologia
14.
BMC Cancer ; 20(1): 561, 2020 Jun 16.
Artigo em Inglês | MEDLINE | ID: mdl-32546140

RESUMO

BACKGROUND: Racial disparities are well-documented in preventive cancer care, but they have not been fully explored in the context of lung cancer screening. We sought to explore racial differences in lung cancer screening outcomes within a lung cancer screening program (LCSP) at our urban academic medical center including differences in baseline low-dose computed tomography (LDCT) results, time to follow-up, adherence, as well as return to annual screening after additional imaging, loss to follow-up, and cancer diagnoses in patients with positive baseline scans. METHODS: A historical cohort study of patients referred to our LCSP was conducted to extract demographic and clinical characteristics, smoking history, and lung cancer screening outcomes. RESULTS: After referral to the LCSP, blacks had significantly lower odds of receiving LDCT compared to whites, even while controlling for individual lung cancer risk factors and neighborhood-level factors. Blacks also demonstrated a trend toward delayed follow-up, decreased adherence, and loss to follow-up across all Lung-RADS categories. CONCLUSIONS: Overall, lung cancer screening annual adherence rates were low, regardless of race, highlighting the need for increased patient education and outreach. Furthermore, the disparities in race we identified encourage further research with the purpose of creating culturally competent and inclusive LCSPs.


Assuntos
Negro ou Afro-Americano/estatística & dados numéricos , Detecção Precoce de Câncer/estatística & dados numéricos , Disparidades em Assistência à Saúde/estatística & dados numéricos , Neoplasias Pulmonares/diagnóstico , Programas de Rastreamento/estatística & dados numéricos , Centros Médicos Acadêmicos/estatística & dados numéricos , Assistência ao Convalescente/estatística & dados numéricos , Idoso , Feminino , Humanos , Perda de Seguimento , Masculino , Pessoa de Meia-Idade , Cooperação do Paciente/estatística & dados numéricos , Educação de Pacientes como Assunto/organização & administração , Encaminhamento e Consulta/estatística & dados numéricos , Estudos Retrospectivos , Fatores de Tempo , Tomografia Computadorizada por Raios X , População Branca/estatística & dados numéricos
15.
BMC Cancer ; 20(1): 559, 2020 Jun 16.
Artigo em Inglês | MEDLINE | ID: mdl-32546177

RESUMO

BACKGROUND: Pain self-management support interventions were effective in controlled clinical trials and meta analyses. However, implementation of these complex interventions may not translate into identical effects. This paper evaluates the implementation of ANtiPain, a cancer pain self-management support intervention in routine clinical practice according to the Reach Efficacy-Adoption Implementation Maintenance framework. METHODS: In this cluster randomized study with a stepped wedge design, N = 153 adult patients with cancer-related pain were recruited from 01/17 to 05/18 on 17 wards of 3 hospitals in Vienna, Austria. ANtiPain entailed a face-to-face in-hospital session by a trained nurse to prepare discharge according to key strategies, information on pain self-management, and skills building. After discharge, cancer-pain self-management was coached via phone calls. Patient-level data were collected at recruitment, and 2, 4 and 8 weeks after discharge via postal or online questionnaire. Primary outcome was pain interference with daily activities. Secondary outcomes included pain intensity, self-efficacy, and patient satisfaction. Organizational-level data (e.g., on implementation procedures) were collected by study or intervention nurses. The mixed model to analyze patient-level data included a random intercept and a random slope for individual and a random intercept for ward. RESULTS: Recruitment was slower than expected and unevenly distributed over wards and hospitals. The face-to-face session was clinically feasible (mean duration = 33 min) as well as the mean amount (n = 2) and duration of phone calls (mean = 17 min). Only 16 (46%) of 35 trained nurses performed the intervention on nine wards. To deal with the loss of power, analyses were adapted. Overall effects on pain interference were not significant. However, effects were significant in sub analyses of the nine wards that recruited patients in the intervention period (p = .009). Regarding secondary outcomes, the group-by-time effect was significant for self-efficacy (p = .033), and patient satisfaction with information on pain-self-management (p = .002) and in-hospital pain management (p = .018). CONCLUSIONS: The implementation of ANtiPain improved meaningful patient outcomes on wards that applied the intervention routinely. Our analyses showed that the implementation benefited from being embedded in larger scale projects to improve cancer pain management and that the selection of wards with a high percentage of oncology patients may be crucial. TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT02891785 Date of registration: September 8, 2016.


Assuntos
Dor do Câncer/terapia , Manejo da Dor/métodos , Educação de Pacientes como Assunto/organização & administração , Padrões de Prática em Enfermagem/organização & administração , Autogestão/métodos , Idoso , Áustria , Dor do Câncer/diagnóstico , Estudos de Viabilidade , Feminino , Implementação de Plano de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Medição da Dor/estatística & dados numéricos , Alta do Paciente , Educação de Pacientes como Assunto/métodos , Satisfação do Paciente , Padrões de Prática em Enfermagem/estatística & dados numéricos , Avaliação de Programas e Projetos de Saúde , Resultado do Tratamento
17.
Clin J Oncol Nurs ; 24(3): 42-48, 2020 06 01.
Artigo em Inglês | MEDLINE | ID: mdl-32441697

RESUMO

BACKGROUND: eHealth can enhance the delivery of clinical cancer care by offering unique education opportunities for oncology nurses, patients, and family caregivers throughout the cancer trajectory. OBJECTIVES: This article reviews eHealth technology that can be applied to oncology education, such as mobile health applications, text messaging, web-based education, and audio- and videoconferencing. METHODS: Case studies provide exemplars of eHealth technologies used for delivering oncology education to nurses, patients, and caregivers. FINDINGS: By using eHealth technologies to obtain and provide education, oncology nurses are well positioned to improve the lives of patients and caregivers.


Assuntos
Cuidadores/educação , Educação em Saúde/organização & administração , Neoplasias/enfermagem , Enfermeiros Clínicos/educação , Enfermagem Oncológica/educação , Educação de Pacientes como Assunto/organização & administração , Telemedicina/organização & administração , Adulto , Idoso , Idoso de 80 Anos ou mais , Currículo , Educação Continuada em Enfermagem , Família , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Aplicativos Móveis
18.
J Prim Health Care ; 12(1): 88-95, 2020 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-32223855

RESUMO

INTRODUCTION Internationally, the inclusion of pharmacists into general practice as clinical pharmacy facilitators has improved patient outcomes. However, clinical pharmacists are relatively new to southern New Zealand general practices and their range of services has not been studied. AIMS To describe the implementation of clinical pharmacist services in general practices in the Southern region; to examine the tasks conducted by clinical pharmacy facilitators; and to determine the characteristics of patients who access this service. METHODS The establishment and development of the clinical pharmacy facilitator role was determined by documentation held within the local Primary Health Organisation. The activities performed by clinical pharmacy facilitators were collected from patient medical records for the period 31 March 2015 to 31 March 2018. To describe the characteristics of patients receiving these services, a retrospective case note review of patients seen by the facilitators was conducted. RESULTS The clinical pharmacy facilitator role was initiated with three pharmacists in three geographical locations across the region. Within 18 months, the number of facilitators was increased to eight. As a result of collaboration with the general practice team, 42% of referrals came from general practitioners directly. Overall, 2621 medicine-related problems were identified in 2195 patients. Dosage adjustment was the most common recommendation made by pharmacy facilitators. They consulted mostly older patients and patients taking five or more medicines. DISCUSSION With effective collaboration, clinical pharmacy facilitators can play a key role in optimisation of medicines therapy.


Assuntos
Serviços Comunitários de Farmácia/organização & administração , Medicina Geral/organização & administração , Farmacêuticos/organização & administração , Papel Profissional , Adulto , Planejamento Antecipado de Cuidados/organização & administração , Fatores Etários , Idoso , Idoso de 80 Anos ou mais , Serviços de Informação sobre Medicamentos/organização & administração , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Nova Zelândia , Educação de Pacientes como Assunto/organização & administração , Assistência Centrada no Paciente/organização & administração , Polimedicação , Encaminhamento e Consulta , Estudos Retrospectivos , Abandono do Hábito de Fumar/métodos
19.
Support Care Cancer ; 28(11): 5419-5427, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32146546

RESUMO

PURPOSE: International and national studies have shown unmet information needs regarding nutrition in breast cancer patients. An intervention study has examined the question of the extent to which a fact sheet on the topic of nutrition is suitable to cover the need for information of breast cancer patients. METHOD: The fact sheet with basic information on nutrition was distributed in 21 intervention breast care centres in 2017. The use of the fact sheets was evaluated in a quasi-experimental design as part of the annual breast cancer patients' survey of the University of Cologne. The breast cancer patients considered were being treated with primary breast carcinoma in a hospital in North Rhine-Westphalia. A multilevel analysis was carried out in order to quantify the effect of the intervention. RESULTS: Unmet information needs are experienced more by younger and non-native German-speaking patients. With regard to education, patients without a graduation and a high grade of education express more unmet information needs. The multilevel analysis showed that patients who were treated at an intervention site and therefore possibly received the fact sheet have a significantly higher chance of their information needs being met (OR = 1.45; p ≤ 0.05). CONCLUSION: The intervention study showed that a fact sheet with basic information on nutrition is a possible instrument to satisfy the information needs of breast cancer patients and therefore reduce unmet information needs regarding nutrition. This intervention study is a pragmatic example on how to reduce unmet information needs among breast cancer patients in Germany.


Assuntos
Neoplasias da Mama/terapia , Dieta , Necessidades e Demandas de Serviços de Saúde , Folhetos , Educação de Pacientes como Assunto , Acesso à Informação , Adulto , Idoso , Idoso de 80 Anos ou mais , Neoplasias da Mama/dietoterapia , Neoplasias da Mama/epidemiologia , Feminino , Alemanha/epidemiologia , Necessidades e Demandas de Serviços de Saúde/organização & administração , Necessidades e Demandas de Serviços de Saúde/normas , Necessidades e Demandas de Serviços de Saúde/estatística & dados numéricos , Hospitais , Humanos , Pessoa de Meia-Idade , Estado Nutricional , Educação de Pacientes como Assunto/métodos , Educação de Pacientes como Assunto/organização & administração , Educação de Pacientes como Assunto/normas , Avaliação de Programas e Projetos de Saúde , Recomendações Nutricionais , Inquéritos e Questionários , Adulto Jovem
20.
BMC Fam Pract ; 21(1): 48, 2020 03 03.
Artigo em Inglês | MEDLINE | ID: mdl-32126965

RESUMO

BACKGROUND: To evaluate the impact of integrating diabetes education teams in primary care on glycemic control, lipid, and blood-pressure management in type 2 diabetes patients. METHODS: A historical cohort design was used to assess the integration of teams comprising nurse and dietitian educators in 11 Ontario primary-care sites, which delivered individualized self-management education. Of the 771 adult patients with A1C ≥ 7% recruited, 487 patients attended appointments with the diabetes teams, while the remaining 284 patients did not. The intervention's primary goal was to increase the proportion of patients with A1C ≤7%. Secondary goals were to reduce mean A1C, low-density lipoprotein, total cholesterol-high density lipoprotein, and diastolic and systolic blood pressure, as recommended by clinical-practice guidelines. RESULTS: After 12 months, a higher proportion of intervention-group patients reached the target for A1C, compared with the control group. Mean A1C levels fell significantly among all patients, but the mean reduction was larger for the intervention group than the control group. Although more intervention-group patients reached targets for all clinical outcomes, the between-group differences were not statistically significant, except for A1C. CONCLUSIONS: Nurse and dietitian diabetes-education teams can have a clinically meaningful impact on patients' ability to meet recommended A1C targets. Given the study's historical cohort design, results are generalizable and applicable to day-to-day primary-care practice. Longer follow-up studies are needed to investigate whether the positive outcomes of the intervention are sustainable.


Assuntos
Automonitorização da Glicemia/métodos , Monitorização Ambulatorial da Pressão Arterial/métodos , Diabetes Mellitus Tipo 2 , Hemoglobinas Glicadas/análise , Hiperlipidemias , Educação de Pacientes como Assunto , Atenção Primária à Saúde/métodos , Autocuidado/métodos , Diabetes Mellitus Tipo 2/sangue , Diabetes Mellitus Tipo 2/complicações , Diabetes Mellitus Tipo 2/psicologia , Diabetes Mellitus Tipo 2/terapia , Feminino , Educação em Saúde/métodos , Letramento em Saúde/métodos , Humanos , Hiperlipidemias/sangue , Hiperlipidemias/complicações , Hiperlipidemias/terapia , Masculino , Pessoa de Meia-Idade , Motivação , Enfermeiras e Enfermeiros , Nutricionistas , Ontário/epidemiologia , Equipe de Assistência ao Paciente/organização & administração , Educação de Pacientes como Assunto/métodos , Educação de Pacientes como Assunto/organização & administração
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