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1.
BMJ Open Qual ; 13(2)2024 May 08.
Artigo em Inglês | MEDLINE | ID: mdl-38724111

RESUMO

INTRODUCTION: Transparency about the occurrence of adverse events has been a decades-long governmental priority, defining external feedback to healthcare providers as a key measure to improve the services and reduce the number of adverse events. This study aimed to explore surgeons' experiences of assessment by external bodies, with a focus on its impact on transparency, reporting and learning from serious adverse events. External bodies were defined as external inspection, police internal investigation, systems of patient injury compensation and media. METHODS: Based on a qualitative study design, 15 surgeons were recruited from four Norwegian university hospitals and examined with individual semi-structured interviews. Data were analysed by deductive content analysis. RESULTS: Four overarching themes were identified, related to influence of external inspection, police investigation, patient injury compensation and media publicity, (re)presented by three categories: (1) sense of criminalisation and reinforcement of guilt, being treated as suspects, (2) lack of knowledge and competence among external bodies causing and reinforcing a sense of clashing cultures between the 'medical and the outside world' with minor influence on quality improvement and (3) involving external bodies could stimulate awareness about internal issues of quality and safety, depending on relevant competence, knowledge and communication skills. CONCLUSIONS AND IMPLICATIONS: This study found that external assessment might generate criminalisation and scapegoating, reinforcing the sense of having medical perspectives on one hand and external regulatory perspectives on the other, which might hinder efforts to improve quality and safety. External bodies could, however, inspire useful adjustment of internal routines and procedures. The study implies that the variety and interconnections between external bodies may expose the surgeons to challenging pressure. Further studies are required to investigate these challenges to quality and safety in surgery.


Assuntos
Segurança do Paciente , Pesquisa Qualitativa , Cirurgiões , Humanos , Cirurgiões/psicologia , Cirurgiões/estatística & dados numéricos , Cirurgiões/normas , Noruega , Segurança do Paciente/normas , Segurança do Paciente/estatística & dados numéricos , Masculino , Feminino , Entrevistas como Assunto/métodos , Adulto , Pessoa de Meia-Idade , Melhoria de Qualidade , Qualidade da Assistência à Saúde/normas , Qualidade da Assistência à Saúde/estatística & dados numéricos , Atitude do Pessoal de Saúde
2.
J Hosp Palliat Nurs ; 26(3): E98-E105, 2024 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-38597638

RESUMO

Because of aging and rising rates of chronic diseases, the demand for palliative care services is increasing worldwide, and patients need family members to care for them throughout the palliative care process. This study aimed to investigate the experiences of the relatives of palliative care patients during hospitalization. This was a qualitative study conducted with 15 family members. A topic guide was used to conduct semistructured face-to-face interviews. Content analysis was used to analyze the textual data. As a result of the analysis, 3 main themes, 6 categories, and 24 subcategories emerged. The main themes were "reactions to the admission," "feeling obligated to care," and "coping processes." The interviews revealed that most participants had misconceptions and a lack of knowledge about palliative care. Almost all of the family members expressed that they experienced various emotions during this process and had trouble coping. The significant finding of our study is that culture and religious beliefs have a considerable influence on caregiving. A limited number of studies in the literature provide detailed insight into the state of patient relatives. Therefore, this study is critical in guiding palliative care professionals in understanding the requirements of this vulnerable group.


Assuntos
Adaptação Psicológica , Família , Cuidados Paliativos , Pesquisa Qualitativa , Humanos , Feminino , Masculino , Família/psicologia , Pessoa de Meia-Idade , Cuidados Paliativos/métodos , Cuidados Paliativos/psicologia , Adulto , Idoso , Entrevistas como Assunto/métodos
3.
Palliat Support Care ; 22(3): 487-492, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38129966

RESUMO

OBJECTIVES: Cancer is a life-changing experience, and side effects from treatment can make it difficult for survivors to return to their pre-cancer "normal life." We explored the "new normal" and barriers to achieving it among lung cancer survivors who underwent surgery. METHODS: Semi-structured interviews were conducted with 32 recurrence-free non-small cell lung cancer survivors. We asked survivors how life had changed; how they defined the "new normal"; barriers that prevent them from achieving a "normal" life; and unmet needs or support for normalcy. Thematic analysis was performed. RESULTS: Defining "new normal" subjectively depends on an individual's expectation of recovery: (1) being able to do what they want without pain or discomfort; (2) being able to do activities they could accomplish before their surgery; and (3) being able to work, earn money, and support their family. We found that (1) persistent symptoms, (2) fear of cancer recurrence, (3) high expectations in recovery, and (4) psychosocial stress and guilty feelings were barriers to achieving a "new normal." The needs and support for normalcy were information on expected trajectories, postoperative management, and support from family and society. SIGNIFICANCE OF RESULTS: Survivors defined the "new normal" differently, depending on their expectations for recovery. Informing survivors about the "new normal" so they could expect possible changes and set realistic goals for their life after cancer. Health professionals need to communicate with survivors about expectations for "normality" from the beginning of treatment, and it should be included in comprehensive survivorship care.


Assuntos
Adaptação Psicológica , Sobreviventes de Câncer , Carcinoma Pulmonar de Células não Pequenas , Pesquisa Qualitativa , Humanos , Carcinoma Pulmonar de Células não Pequenas/psicologia , Carcinoma Pulmonar de Células não Pequenas/complicações , Masculino , Feminino , Pessoa de Meia-Idade , Idoso , Sobreviventes de Câncer/psicologia , Neoplasias Pulmonares/psicologia , Neoplasias Pulmonares/complicações , Entrevistas como Assunto/métodos , Adulto , Idoso de 80 Anos ou mais , Qualidade de Vida/psicologia
4.
Value Health Reg Issues ; 41: 25-31, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38154366

RESUMO

OBJECTIVES: Financial toxicity (FT) is an important adverse effect of cancer. Recent systematic reviews have shown that FT may lead to treatment nonadherence and impaired health-related quality of life, both of which may adversely influence the survival rates of patients. However, less is known about how patients endure FT, particularly in low- and middle-income countries. The purpose of this study was to explore how patients with cancer experience and cope with FT in Indonesia. METHODS: Semistructured in-depth interviews were conducted to explore the experiences of Indonesian patients with cancer. Qualitative data were analyzed using interpretive phenomenological analysis approach. We purposefully recruited 8 patients undergoing active treatment (aged 27-69 years) who had been diagnosed of cancer over 5 years before and possessed health insurance at the time of diagnosis. RESULTS: We identified 2 main themes: (1) the experienced financial burden, with subthemes underinsurance, out-of-pocket nonhealthcare cancer-related costs, and negative income effect from employment disruption, and (2) the financial coping strategies, with subthemes reallocating household budget, seeking family support, rationalizing treatment decisions, and topping up insurance for family members. CONCLUSIONS: This is the first interpretive phenomenological study on FT in the literature and the first qualitative FT study in Indonesia. Our findings provide insight into the occurrence of FT and coping strategies used by Indonesian patients with cancer. The subjective experiences of patients may be considered to further improve oncology care, support the need for measurement of FT, and provide mitigation programs for patients.


Assuntos
Neoplasias , Pesquisa Qualitativa , Qualidade de Vida , Humanos , Indonésia/epidemiologia , Pessoa de Meia-Idade , Neoplasias/psicologia , Neoplasias/economia , Neoplasias/terapia , Feminino , Masculino , Adulto , Idoso , Qualidade de Vida/psicologia , Entrevistas como Assunto/métodos , Adaptação Psicológica , Efeitos Psicossociais da Doença , Gastos em Saúde/estatística & dados numéricos
5.
BMC Palliat Care ; 21(1): 134, 2022 Jul 23.
Artigo em Inglês | MEDLINE | ID: mdl-35869514

RESUMO

BACKGROUND: Among a growing population of older persons, many affected by multiple diseases and complex needs, are cared for in nursing homes. Previous studies of nursing homes have highlighted the importance of personalised palliative care. Nevertheless, we know little about whether everyday care practice involving assistant nurses and frail older persons accomplishes ethical encounters, especially in assisted bodily care. Therefore, the aim of this study was to understand and conceptualize the encounter between residents and assistant nurses in bodily care-situations at the end of life in a nursing home. METHODS: Focused ethnographic design was used. Residents and assistant nurses from one nursing home in an urban Swedish area participated in this study. Data were collected for 6 months and consisted of 170 h of fieldwork, including participant observation and interviews. Observations and digitally recorded interviews were analysed thematically. Five public community stakeholders contributed to the analysis by discussing preliminary results and clinical implications in a focus group. RESULTS: Four themes, each encompassing both barriers to and facilitators of ethical encounters in assisted bodily care, were identified: Coping with the impact of workplace demands; Interacting in dialogue and communication; Experiencing involvement in the provision of assisted bodily care; and Adapting to good care and comfort. CONCLUSIONS: The findings suggest that accomplishing ethical encounters in assisted bodily care practice in a nursing home context has many barriers that are related to communication, relationships, and quality of care. Barriers included lack of resources, ineffective communication, and work values, which hinder ethical encounters. Nevertheless, moral sensitivity, genuine interest in resident engagement, and collaborative practices facilitated ethical encounters and are thus central to person-centred care. Uniquely, assistant nurses must be aware of their responsibility for performing their tasks in response to residents' vulnerability. We therefore suggest that moral deliberation over issues of communication, compassion, decision-making, and behavior, with particular consideration for the care relationship. To further improve the quality of care, organisations must provide resources for the building of relationships, as well as time for assistant nurses to recover after long shifts. Additional research is warranted, including implementation of ethically grounded palliative care.


Assuntos
Antropologia Cultural/ética , Enfermagem de Cuidados Paliativos na Terminalidade da Vida/ética , Assistentes de Enfermagem/ética , Casas de Saúde/ética , Cuidados Paliativos/ética , Idoso , Idoso de 80 Anos ou mais , Morte , Idoso Fragilizado , Humanos , Entrevistas como Assunto/métodos , Princípios Morais , Observação , Suécia , População Urbana
6.
Psico USF ; 27(3): 411-424, July-Sept. 2022. tab
Artigo em Inglês | LILACS, INDEXPSI | ID: biblio-1422325

RESUMO

We investigated the process of meaning construction in pregnancy loss in 11 Brazilian couples. The reports were submitted to inductive and deductive thematic analysis using the categorization system from the integrative model of meaning construction in grief. Regarding the original dimensions of the model (Sense-making of death, benefit from the experience of loss, and identity change), there was a lack of meaning for death, perception of strengthened bonds within the couple as a benefit, and parenting as an identity project. We propose an additional dimension (Meaning-making process) that includes gender differences, lack of social recognition, and emotional intensity of the experience. As for coping strategies, spirituality and the search for peers were identified, especially in social media. After a pregnancy loss, the process of meaning construction proved similar to that of other types of loss, validating this experience. We discuss the implications of the category system used in this study. (AU)


Investigou-se o processo de construção de significados na perda gestacional em 11 casais brasileiros. Os relatos foram submetidos à análise temática indutiva e dedutiva, utilizando o sistema de categorização do modelo integrativo de construção de significado no luto. Em relação às dimensões originais do modelo (Sentido para a morte, benefício na experiência de perda e modificação da identidade), constatou-se falta de sentido para a morte, fortalecimento de vínculo do casal como benefício e parentalidade enquanto projeto identitário. Foi proposta uma dimensão adicional (Processo de construir significado) que incluiu diferenças de gênero, falta de reconhecimento social e intensidade emocional da experiência. Enquanto estratégias de enfrentamento, identificou-se espiritualidade e busca por iguais, especialmente nas mídias sociais. O processo de construir significados na perda gestacional mostrou-se semelhante ao de outros tipos de perdas, validando esta experiência. Foram discutidas as implicações do sistema de categorias utilizado. (AU)


Se investigó el proceso de construcción de significados en la pérdida gestacional en 11 parejas brasileñas. Los informes fueron sometidos a un análisis temático inductivo y deductivo, usando el sistema de categorización del modelo integrador de construcción de significado en el duelo. En cuanto a las dimensiones originales del modelo (Significado para la muerte, beneficio en la experiencia de pérdida, cambio de identidad), se encontró falta de significado para la muerte, fortificación de lazos de la pareja como un beneficio y la parentalidad como un proyecto de identidad. Se ha propuesto una dimensión adicional (Proceso de construcción de significado) que incluye diferencias de género, falta de reconocimiento social e intensidad emocional de la experiencia. Como estrategias de afrontamiento, se identificó la espiritualidad y la búsqueda de los iguales, especialmente en las redes sociales. El proceso de construir significado en la pérdida gestacional demostró ser similar al de los otros tipos de pérdida, validando esta experiencia. Son discutidas las implicaciones del sistema de categorías utilizado. (AU)


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Luto , Aborto Espontâneo/psicologia , Adaptação Psicológica , Entrevistas como Assunto/métodos , Pesquisa Qualitativa
7.
Psico USF ; 27(3): 477-487, July-Sept. 2022. tab
Artigo em Português | LILACS, INDEXPSI | ID: biblio-1422328

RESUMO

Trata-se de um estudo quantitativo, retrospectivo, correlacional e de corte transversal, com objetivo de fornecer dados normativos do TDR para idosos, levando em consideração diferentes faixas etárias e níveis de escolaridade. Duzentos e trinta e cinco foram entrevistados individualmente, distribuídos em cinco grupos etários e quatro níveis de escolaridade. Os instrumentos foram Ficha de Dados Sociodemográficos, Miniexame do Estado Mental (MEEM), Escala de Depressão Geriátrica, versão reduzida (GDS-15), Tarefa de Fluência Verbal Semântica (TFVS) e o TDR. Utilizou-se estatísticas descritivas, correlação de Pearson e análise univariada (one-way ANOVA) com post hoc Scheffe. Os escores do TDR apresentaram associações significativas com os anos de idade, anos de escolaridade, MEEM, TFVS e GDS-15. Houve diferença de desempenho no TDR ao considerarem os grupos por idade. O estudo fornece valores normativos para o TDR em uma amostra de idosos do sul do Brasil que foram influenciados pela idade, escolaridade, sintomatologia depressiva e fluência verbal. (AU)


This was a quantitative, retrospective, correlational, cross-sectional study that aimed to provide normative CDT (Clock-Drawing Test) data for older adults, taking into account different age groups and educational levels. The sample included 235 older adults distributed among five age groups and four levels of education. The instruments were Sociodemographic Data Sheet, the Mini-Mental State Examination (MMSE), the Geriatric Depression Scale reduced version (GDS-15), the Semantic Verbal Fluency Task (TFVS), and the CDT. Descriptive statistics, Pearson's correlation, and univariate analysis (one-way ANOVA) with Scheffe post hoc were used. The CDT scores showed significant associations with age, years of schooling, MMSE, TFVS, and GDS-15. There was a difference in performance in CDT when considering age groups. The present study was able to provide normative values ​​for CDT in a sample of older adults in southern Brazil that ​​were influenced by age, education, depressive symptoms, and verbal fluency. (AU)


Se trata de un estudio cuantitativo, retrospectivo, correlacional y transversal, con el objetivo de aportar datos normativos sobre el TDR para ancianos, teniendo en cuenta diferentes grupos de edad y niveles educativos. La muestra incluyó a 235 ancianos distribuidos en cinco grupos de edad y cuatro niveles de educación. Los instrumentos utilizados fueron Ficha de Datos Sociodemográficos, Mini Examen del Estado Mental (MMSE), Escala de Depresión Geriátrica, versión reducida (GDS-15), Tarea de Fluidez Verbal Semántica (TFVS) y TDR. Se emplearon estadísticas descriptivas, correlación de Pearson y análisis univariante (one-way ANOVA) con post hoc Scheffe. Los puntajes de TDR mostraron asociaciones significativas con la edad, años de escolaridad, MMSE, TFVS y GDS-15. Hubo diferencia en el desempeño en el TDR al considerar los grupos por edad. El presente estudio fue capaz de proporcionar valores normativos para TDR en una muestra de ancianos en el sur de Brasil influenciados por la edad, la escolaridad, los síntomas depresivos y la fluidez verbal. (AU)


Assuntos
Humanos , Masculino , Feminino , Pessoa de Meia-Idade , Idoso , Idoso de 80 Anos ou mais , Demência/psicologia , Depressão/psicologia , Testes Neuropsicológicos , Psicometria , Estudos Transversais/métodos , Entrevistas como Assunto/métodos , Estudos Retrospectivos , Análise de Variância , Escala Fujita-Pearson , Função Executiva , Testes de Estado Mental e Demência , Correlação de Dados , Fatores Sociodemográficos
8.
PLoS Med ; 19(2): e1003893, 2022 02.
Artigo em Inglês | MEDLINE | ID: mdl-35113870

RESUMO

BACKGROUND: Late-life exposure to ambient air pollution is a modifiable risk factor for dementia, but epidemiological studies have shown inconsistent evidence for cognitive decline. Air quality (AQ) improvement has been associated with improved cardiopulmonary health and decreased mortality, but to the best of our knowledge, no studies have examined the association with cognitive function. We examined whether AQ improvement was associated with slower rate of cognitive decline in older women aged 74 to 92 years. METHODS AND FINDINGS: We studied a cohort of 2,232 women residing in the 48 contiguous US states that were recruited from more than 40 study sites located in 24 states and Washington, DC from the Women's Health Initiative (WHI) Memory Study (WHIMS)-Epidemiology of Cognitive Health Outcomes (WHIMS-ECHO) study. They were predominantly non-Hispanic White women and were dementia free at baseline in 2008 to 2012. Measures of annual (2008 to 2018) cognitive function included the modified Telephone Interview for Cognitive Status (TICSm) and the telephone-based California Verbal Learning Test (CVLT). We used regionalized universal kriging models to estimate annual concentrations (1996 to 2012) of fine particulate matter (PM2.5) and nitrogen dioxide (NO2) at residential locations. Estimates were aggregated to the 3-year average immediately preceding (recent exposure) and 10 years prior to (remote exposure) WHIMS-ECHO enrollment. Individual-level improved AQ was calculated as the reduction from remote to recent exposures. Linear mixed effect models were used to examine the associations between improved AQ and the rates of cognitive declines in TICSm and CVLT trajectories, adjusting for sociodemographic (age; geographic region; race/ethnicity; education; income; and employment), lifestyle (physical activity; smoking; and alcohol), and clinical characteristics (prior hormone use; hormone therapy assignment; depression; cardiovascular disease (CVD); hypercholesterolemia; hypertension; diabetes; and body mass index [BMI]). For both PM2.5 and NO2, AQ improved significantly over the 10 years before WHIMS-ECHO enrollment. During a median of 6.2 (interquartile range [IQR] = 5.0) years of follow-up, declines in both general cognitive status (ß = -0.42/year, 95% CI: -0.44, -0.40) and episodic memory (ß = -0.59/year, 95% CI: -0.64, -0.54) were observed. Greater AQ improvement was associated with slower decline in TICSm (ßPM2.5improvement = 0.026 per year for improved PM2.5 by each IQR = 1.79 µg/m3 reduction, 95% CI: 0.001, 0.05; ßNO2improvement = 0.034 per year for improved NO2 by each IQR = 3.92 parts per billion [ppb] reduction, 95% CI: 0.01, 0.06) and CVLT (ßPM2.5 improvement = 0.070 per year for improved PM2.5 by each IQR = 1.79 µg/m3 reduction, 95% CI: 0.02, 0.12; ßNO2improvement = 0.060 per year for improved NO2 by each IQR = 3.97 ppb reduction, 95% CI: 0.005, 0.12) after adjusting for covariates. The respective associations with TICSm and CVLT were equivalent to the slower decline rate found with 0.9 to 1.2 and1.4 to 1.6 years of younger age and did not significantly differ by age, region, education, Apolipoprotein E (ApoE) e4 genotypes, or cardiovascular risk factors. The main limitations of this study include measurement error in exposure estimates, potential unmeasured confounding, and limited generalizability. CONCLUSIONS: In this study, we found that greater improvement in long-term AQ in late life was associated with slower cognitive declines in older women. This novel observation strengthens the epidemiologic evidence of an association between air pollution and cognitive aging.


Assuntos
Poluentes Atmosféricos/efeitos adversos , Poluição do Ar/efeitos adversos , Disfunção Cognitiva/epidemiologia , Exposição Ambiental/efeitos adversos , Vida Independente/tendências , Entrevistas como Assunto/métodos , Idoso , Idoso de 80 Anos ou mais , Poluentes Atmosféricos/análise , Poluição do Ar/análise , Disfunção Cognitiva/prevenção & controle , Disfunção Cognitiva/psicologia , Estudos de Coortes , Exposição Ambiental/prevenção & controle , Feminino , Seguimentos , Humanos , Vida Independente/psicologia , Estudos Longitudinais , Material Particulado/efeitos adversos , Material Particulado/análise , Melhoria de Qualidade , Estados Unidos/epidemiologia , Aprendizagem Verbal/fisiologia
9.
J Thorac Cardiovasc Surg ; 164(6): e475-e482, 2022 12.
Artigo em Inglês | MEDLINE | ID: mdl-34955283

RESUMO

OBJECTIVES: Cardiothoracic programs used virtual interviews exclusively this year. As programs consider using virtual interviews permanently, our goal was to evaluate the experience of applicants with virtual interviews. METHODS: All 2020-2021 traditional cardiothoracic fellowship applicants received an anonymous electronic survey after the Match process ended. The survey assessed the number of interviews, strengths, and inadequacies of virtual interviews and factors that affected rank decision. RESULTS: Forty-three percent of applicants responded (60/139). The average number of interviews was 16.0. Eighty percent (48/60) of respondents successfully matched. Eighty-seven percent (52/60) of respondents had a favorable experience with virtual interviews, and 97% (58/60) found them to be convenient. However, only 50% (30/60) were able to evaluate a program fully. Respondents who matched were more likely to have a favorable experience (P = .02), but not more likely to be able to evaluate a program fully (P = .35). The most valued aspect was the informal meet and greet session with fellows (4.2 of 5). The least valued aspect was the program's social media site (2.0 of 5). The factors most frequently used to decide ranking were case numbers by 92% (55/60) and culture/personality by 82% (49/60). CONCLUSIONS: Virtual interviews were perceived more favorably compared with last year, but half of applicants were still unable to evaluate a program fully. Fellow interactions were the most popular aspect of virtual interviews. As programs consider using virtual interviews permanently, more exposure to current trainees and a more robust social media/online presence will improve favorability.


Assuntos
Bolsas de Estudo , Entrevistas como Assunto , Cirurgia Torácica , Humanos , Percepção , Inquéritos e Questionários , Cirurgia Torácica/educação , Entrevistas como Assunto/métodos , Comunicação por Videoconferência
10.
Braz. J. Pharm. Sci. (Online) ; 58: e18593, 2022. tab
Artigo em Inglês | LILACS | ID: biblio-1403731

RESUMO

Abstract In the epistemic field, several studies demonstrate the importance of pharmaceutical services in health care networks. Nonetheless, literature still addresses the strengths and barriers present in the provision of these services in an incipient way. Thus, this study aimed to understand these contexts in the development of clinical services for primary health care in the Federal District, Brazil. A qualitative study adopted the technique of open-script interview, structured based on the logic of the SWOT matrix. Pharmacists reported weaknesses such as precariousness and scarcity of physical infrastructure, material, and human resources. As threats, they discussed the lack of social recognition, discontinuities of government actions, and lack of preparation of the pharmacist for the provision of clinical services. Regarding themes pertaining to the service's strengths and opportunities, the advances in propositions and executions of public policies, actions, and governmental programs that have expanded the pharmaceutical workforce in primary care and that are impelling the accomplishment of clinical services were listed. This study contributes to understanding the scenario of the development of clinical pharmaceutical services, and consequently provides subsidies for the actions of planning, evaluation and qualification of health services.


Assuntos
Masculino , Feminino , Farmacêuticos/ética , Assistência Farmacêutica/normas , Atenção Primária à Saúde/estatística & dados numéricos , Entrevistas como Assunto/métodos , Pesquisa sobre Serviços de Saúde/métodos
11.
JAMA Netw Open ; 4(10): e2128385, 2021 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-34709389

RESUMO

Importance: Pediatric acute myeloid leukemia (AML) requires multiple courses of intensive chemotherapy that result in neutropenia, with significant risk for infectious complications. Supportive care guidelines recommend hospitalization until neutrophil recovery. However, there are little data to support inpatient over outpatient management. Objective: To evaluate outpatient vs inpatient neutropenia management for pediatric AML. Design, Setting, and Participants: This cohort study used qualitative and quantitative methods to compare medical outcomes, patient health-related quality of life (HRQOL), and patient and family perceptions between outpatient and inpatient neutropenia management. The study included patients from 17 US pediatric hospitals with frontline chemotherapy start dates ranging from January 2011 to July 2019, although the specific date ranges differed for the individual analyses by design and relative timing. Data were analyzed from August 2019 to February 2020. Exposures: Discharge to outpatient vs inpatient neutropenia management. Main Outcomes and Measures: The primary outcomes of interest were course-specific bacteremia incidence, times to next course, and patient HRQOL. Course-specific mortality was a secondary medical outcome. Results: Primary quantitative analyses included 554 patients (272 [49.1%] girls and 282 [50.9%] boys; mean [SD] age, 8.2 [6.1] years). Bacteremia incidence was not significantly different during outpatient vs inpatient management (67 courses [23.8%] vs 265 courses [29.0%]; adjusted rate ratio, 0.73; 95% CI, 0.56 to 1.06; P = .08). Outpatient management was not associated with delays to the next course compared with inpatient management (mean [SD] 30.7 [12.2] days vs 32.8 [9.7] days; adjusted mean difference, -2.2; 95% CI, -4.1 to -0.2, P = .03). Mortality during intensification II was higher for patients who received outpatient management compared with those who received inpatient management (3 patients [5.4%] vs 1 patient [0.5%]; P = .03), but comparable with inpatient management at other courses (eg, 0 patients vs 5 patients [1.3%] during induction I; P = .59). Among 97 patients evaluated for HRQOL, outcomes did not differ between outpatient and inpatient management (mean [SD] Pediatric Quality of Life Inventory total score, 70.1 [18.9] vs 68.7 [19.4]; adjusted mean difference, -2.8; 95% CI, -11.2 to 5.6). A total of 86 respondents (20 [23.3%] in outpatient management, 66 [76.7%] in inpatient management) completed qualitative interviews. Independent of management strategy received, 74 respondents (86.0%) expressed satisfaction with their experience. Concerns for hospital-associated infections among caregivers (6 of 7 caregiver respondents [85.7%] who were dissatisfied with inpatient management) and family separation (2 of 2 patient respondents [100%] who were dissatisfied with inpatient management) drove dissatisfaction with inpatient management. Stress of caring for a neutropenic child at home (3 of 3 respondents [100%] who were dissatisfied with outpatient management) drove dissatisfaction with outpatient management. Conclusions and Relevance: This cohort study found that outpatient neutropenia management was not associated with higher bacteremia incidence, treatment delays, or worse HRQOL compared with inpatient neutropenia management among pediatric patients with AML. While outpatient management may be safe for many patients, course-specific mortality differences suggest that outpatient management in intensification II should be approached with caution. Patient and family experiences varied, suggesting that outpatient management may be preferred by some but may not be feasible for all families. Further studies to refine and standardize safe outpatient management practices are warranted.


Assuntos
Leucemia Mieloide Aguda/terapia , Neutropenia/etiologia , Avaliação de Resultados em Cuidados de Saúde/estatística & dados numéricos , Qualidade de Vida/psicologia , Adolescente , Criança , Pré-Escolar , Estudos de Coortes , Tratamento Farmacológico/métodos , Tratamento Farmacológico/psicologia , Tratamento Farmacológico/estatística & dados numéricos , Família/psicologia , Feminino , Humanos , Entrevistas como Assunto/métodos , Leucemia Mieloide Aguda/complicações , Leucemia Mieloide Aguda/epidemiologia , Masculino , Neutropenia/epidemiologia , Avaliação de Resultados em Cuidados de Saúde/métodos , Pediatria/métodos , Pediatria/estatística & dados numéricos , Pesquisa Qualitativa
12.
Am J Surg ; 222(6): 1085-1092, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34674848

RESUMO

PURPOSE: In the midst of a pandemic, residency interviews transitioned to a virtual format for the first time. Little is known about the effect this will have on the match process. The study aim is to evaluate resident application processes and perceived outcomes. METHODS: An electronic survey was distributed to 142 colon and rectal surgery residency applicants (95% of total). RESULTS: A total of 77 applicants responded to the survey (54% response rate). Applicants reported high levels of satisfaction with virtual interviews but less comfort. Utilizing the mute button and using notes in a different way from face-to-face interviews were significantly associated with applicant confidence that they ranked the right program highest. A majority of applicants (73%) would recommend virtual interviews next year even if COVID-19 is not a factor. CONCLUSION: While applicants appear generally satisfied with virtual interviews, they also reported less comfort. Applicant confidence was predicted by utilizing the unique technological affordances offered by the virtual platform.


Assuntos
COVID-19/epidemiologia , Internato e Residência/organização & administração , Entrevistas como Assunto/métodos , Critérios de Admissão Escolar , Autoimagem , Interface Usuário-Computador , Humanos , Inquéritos e Questionários
13.
Rev. Ciênc. Plur ; 7(3): 328-340, set. 2021. ilus
Artigo em Português | LILACS, BBO | ID: biblio-1344204

RESUMO

Introdução: A Síndrome Congênita do Zika constitui uma nova condição de saúde, advinda do surto do vírus Zika no Brasil no início do ano 2015. É caracterizada por um conjunto de anormalidades que envolve a desproporção craniofacial, irritabilidade, espasticidade, convulsões, dificuldades alimentares, anormalidades oculares e perda auditiva. Objetivo:Relatar a experiência do uso da Galeria Ilustrada da Classificação Internacional de Funcionalidade, Incapacidade e Saúde como auxílio para coleta de dados em pesquisa sobre funcionalidade e incapacidade em crianças com Síndrome congênita do Zika. Metodologia: Foram construídos 3 instrumentos visuais baseados na versão resumida da Classificação Internacional de Incapacidade e Funcionalidade em Saúde e aplicados com 32 pais de crianças com diagnóstico confirmado da Síndrome congênita do Zika. Foram capturadas as imagens da galeria ilustrada nos domínios de atividade e participação, funções do corpo e fatores ambientais, de modo a facilitar a elaboração de respostas das entrevistas. Resultados: O instrumento visual permitiu aos participantes da pesquisa um processo de entrevista dinâmico, compreensível e espontâneo através de uma melhor compreensão dos conceitosda Classificação Internacional de Incapacidade e Funcionalidade em Saúde, e desse modo permitiu aos pesquisadores obter suas percepções a respeito da condição de saúde dos filhos dos entrevistados. Conclusões: Ferramentas visuais envolvendo a galeria ilustrada podem ser utilizadas como auxílio na coleta de dados em pesquisas qualitativas que envolvem a Classificação Internacional de Funcionalidade, Incapacidade e Saúde (AU).


Introduction:Congenital Zika Syndrome is a new health condition, arising from the Zika virus outbreak in Brazil in early 2015. It is characterized by a set of abnormalities involving craniofacial disproportion, irritability, spasticity, seizures, eating difficulties, eye abnormalities and hearing loss.Objective:To report the experience of using the Illustrated Gallery of the International Classification of Functioning, Disability and Health as an aid to data collection in research on functionality and disability in children with congenital Zika Syndrome.Methodology:Three visual instruments were builtbased on the abridged version of the International Classification of Disability and Functioning in Health and applied to 32 parents of children with a confirmed diagnosis of congenital Zika Syndrome. Images from the illustrated gallery were captured in the domains of activity and participation, body functions and environmental factors, in order to facilitate the elaboration of interview responses. Results:The visual instrument allowed research participants a dynamic, understandable and spontaneous interview process through a better understanding of the concepts of the International Classification of Disability and Functioning in Health, and thus allowed the researchers to obtain their perceptions about the condition of your children's health. Conclusions:Visual tools involving the illustrated gallery can be used as an aid in data collection in qualitative research involving the International Classification of Functioning, Disability and Health (AU).


Introducción:El síndrome de Zika congénito es una nueva condición de salud, que surge del brote del virus del Zika en Brasil a principios de 2015. Se caracteriza por un conjunto de anomalías que involucran desproporción craneofacial, irritabilidad, espasticidad, convulsiones, dificultades para comer, anomalías oculares y auditivas. pérdida. Objetivo:Informar la experiencia de utilizar la Galería Ilustrada de la Clasificación Internacional del Funcionamiento, la Discapacidad y la Salud como ayuda para la recopilación de datos en la investigación sobre la funcionalidad y la discapacidad en niños con síndrome congénito del Zika. Metodología:Se construyeron tres instrumentos visuales basados en la versión abreviada de la Clasificación Internacional de Discapacidad y Funcionamiento en Salud y se aplicaron a 32 padres de niños con diagnóstico confirmado de síndrome congénito del Zika. Se capturaron imágenes de la galería ilustrada en los dominios de actividad y participación, funciones corporales y factores ambientales, con el fin de facilitar la elaboración de las respuestas de la entrevista. Resultados:El instrumento visual permitió a los participantes de la investigación un proceso de entrevista dinámico, comprensible y espontáneo a través de una mejor comprensión de los conceptos de la Clasificación Internacional de Discapacidad y Funcionamiento en Salud, y así permitió a los investigadores obtener sus percepciones sobre elestado de salud de sus hijos. Conclusiones:Las herramientas visuales que involucran la galería ilustrada se pueden utilizar para ayudar en la recopilación de datos en la investigación cualitativa que involucra la Clasificación Internacional de Funcionamiento, Discapacidad y Salud (AU).


Assuntos
Humanos , Masculino , Feminino , Classificação Internacional de Funcionalidade, Incapacidade e Saúde , Aprendizagem Baseada em Problemas/métodos , Pesquisa Qualitativa , Zika virus , Criança , Saúde da Criança , Entrevistas como Assunto/métodos , Grupos Focais/métodos , Relatório de Pesquisa
14.
Holist Nurs Pract ; 35(5): 281-289, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34407026

RESUMO

The aim of this study was to explore the psychological outcomes of a mindfulness-based Internet-streamed yoga video in breast cancer survivors. A one-group, repeated-measures, purposive sample using a directed qualitative descriptive and convergent mixed-methods approach was used. Participants were recruited from breast oncology practices across 2 settings in the northeastern United States in April 2019. Education about the video was provided, and the link to the video was sent to participants. Demographic information, Knowing Participation in Change Short Form (KPCSF), Short Warwick-Edinburgh Mental Well-being Scale (WEMWBS), and the Generalized Anxiety Distress Scale (GAD-7) were obtained at baseline and at 2 and 4 weeks. A semistructured interview was conducted at 4 weeks. Thirty-five women (mean age = 56 years) participated. A one-group, repeated-measures analysis of variance indicated statistically significant changes occurred in all measures between week 0 and week 4: decreased GAD (t = -2.97, P = .004), improved WEMWBS (t = 2.52, P = .008), and increased KPC (t = 2.99, P = .004). Qualitative findings suggest the overall experience of the video was positive and the women would recommend its use to others. Improvements in all psychological measures were achieved with video use. Findings indicate an improvement in psychological measures and support the theory of Knowing Participation in Change. This work further contributes to accessible, flexible interventions available through the Internet and/or mobile applications aimed at improving breast cancer survivorship.


Assuntos
Neoplasias da Mama/terapia , Atenção Plena/normas , Avaliação de Resultados em Cuidados de Saúde/estatística & dados numéricos , Yoga/psicologia , Adulto , Idoso , Ansiedade/psicologia , Neoplasias da Mama/psicologia , Sobreviventes de Câncer/psicologia , Sobreviventes de Câncer/estatística & dados numéricos , Depressão/psicologia , Feminino , Humanos , Internet , Entrevistas como Assunto/métodos , Pessoa de Meia-Idade , Atenção Plena/métodos , Atenção Plena/estatística & dados numéricos , New England , Avaliação de Resultados em Cuidados de Saúde/métodos , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Inquéritos e Questionários , Resultado do Tratamento
15.
BMC Cancer ; 21(1): 787, 2021 Jul 08.
Artigo em Inglês | MEDLINE | ID: mdl-34238236

RESUMO

BACKGROUND: Chest wall abnormalities are a poorly studied complication after treatment for childhood cancer. Chest wall abnormalities are not well-described in the literature, and little is known on the impact on daily life of survivors. METHODS: We investigated prevalence and risk factors of chest wall abnormalities in childhood cancer survivors in a nationwide, population-based cohort study (Swiss Childhood Cancer Survivor Study) with a questionnaire survey. We then interviewed a nested sample of survivors to validate types of chest wall abnormalities and understand their impact on the daily life of survivors. RESULTS: Forty-eight of 2382 (95%CI 2-3%) survivors reported a chest wall abnormality. Risk factors were older age at cancer diagnosis (16-20 years; OR 2.5, 95%CI 1.0-6.1), lymphoma (OR 3.8, 95%CI 1.2-11.4), and central nervous system tumors (OR 9.5, 95%CI 3.0-30.1) as underlying disease, and treatment with thoracic radiotherapy (OR 2.0, 95%CI 1.0-4.2), surgery to the chest (OR 4.5, 95%CI 1.8-11.5), or chemotherapy (OR 2.9, 95%CI 1.0-8.1). The nature of the chest wall abnormalities varied and included thoracic wall deformities (30%), deformations of the spine (5%) or both (55%), and scars (10%). Chest wall abnormalities affected daily life in two thirds (13/20) of those who reported these problems and necessitated medical attention for 15 (75%) survivors. CONCLUSION: It is important that, during follow-up care, physicians pay attention to chest wall abnormalities, which are rare late effects of cancer treatment, but can considerably affect the well-being of cancer survivors.


Assuntos
Sobreviventes de Câncer/estatística & dados numéricos , Entrevistas como Assunto/métodos , Parede Torácica/patologia , Adolescente , Adulto , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Reprodutibilidade dos Testes , Inquéritos e Questionários , Suíça , Adulto Jovem
18.
Aval. psicol ; 20(2): 163-170, abr.-jun. 2021. graf, tab
Artigo em Português | LILACS, INDEXPSI | ID: biblio-1285433

RESUMO

As práticas avaliativas estão na gama de possibilidades de atuação do psicólogo no Hospital. Buscou-se investigar o manejo dos processos avaliativos por psicólogos hospitalares inseridos em hospitais não psiquiátricos, quanto aos tipos, origens, características e necessidades solicitadas, identificando a conduta destes frente às demandas. Foi conduzido estudo observacional descritivo, de corte transversal, com levantamento de dados multimétodos por meio de entrevista estruturada com 14 psicólogos hospitalares de Natal/RN. Entre os resultados, observou-se que 87,7% consideram avaliação descritiva como mais frequente, 78,6% percebem que estas acontecem tanto por solicitação da equipe quanto por identificação da necessidade pelo próprio psicólogo e verificou-se um predomínio do uso de técnicas qualitativas como avaliação. Concluiu-se que o ambiente hospitalar oferece desafios para um amplo uso das técnicas existentes que, juntamente com a escassez de material e recursos humanos, tem-se uma conjuntura desfavorável para o uso destas no Hospital. (AU)


Evaluative practices are among the possibilities of a psychologist's work at the Hospital. The aim was to investigate the management of the evaluation processes by hospital psychologists working in non-psychiatric hospitals, regarding the types, characteristics and needs requested, identifying their actions faced with the demands. A cross-sectional, descriptive and observational study was conducted with multi-method data collection through a structured interview with 14 hospital psychologists from Natal/RN. Among the results, 87.7% considered the descriptive evaluation to be the most frequent, 78.6% perceived that these occur due to requests of the team and identification of the need by the psychologists themselves, with a predominance of the use of qualitative techniques in the evaluation. It was concluded that the hospital environment presents challenges for a wide use of the existing techniques, which together with the scarcity of material and human resources present unfavorable conditions for the use of those practices in the Hospital. (AU)


Las prácticas evaluativas se encuentran dentro del abanico de posibilidades de actuación del psicólogo en el ámbito hospitalario. Se buscó investigar la gestión de los procesos de evaluación por psicólogos clínicos insertados en hospitales no psiquiátricos, con respecto a los tipos, orígenes característicos y necesidades solicitadas, identificando la conducta de los psicólogos ante las demandas. Se realizó un estudio observacional descriptivo, de corte transversal, con levantamiento de datos multimétodos a través de una entrevista estructurada con 14 psicólogos clínicos hospitalarios de la ciudad de Natal, Río Grande do Norte. Entre los resultados, se observó que el 87,7% considera la evaluación descriptiva como la más frecuente, el 78,6% afirma que estas ocurren tanto por solicitud del equipo como por el propio psicólogo al identificar la necesidad, verificando un predominio del uso de técnicas cualitativas como evaluación. Se concluyó que el entorno hospitalario presenta desafíos para un amplio uso de las técnicas existentes, que junto con la escasez de recursos materiales y humanos, se da una coyuntura desfavorable para el uso de las mismas en el hospital. (AU)


Assuntos
Humanos , Feminino , Adulto , Pessoa de Meia-Idade , Psicologia , Técnicas Psicológicas/instrumentação , Hospitais , Estudos Transversais , Entrevistas como Assunto/métodos , Pesquisa Qualitativa
19.
Ann R Coll Surg Engl ; 103(6): 385-389, 2021 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-33955275

RESUMO

INTRODUCTION: National selection for higher surgical training (ST3+) recruitment in the UK is competitive. The process must prioritise patient safety while being credible, impartial and fair. During the COVID-19 pandemic, all face-to-face interviews were cancelled. Selection was based on a controversial isolated self-assessment score with no evidence checking taking place. From 2021, selection will take place entirely online. Although this has cost and time advantages, new challenges emerge. METHODS: We review surgical selection as it transitions to an online format and suggest validated methods that could be adapted from High Reliability Organisations (HRO). FINDINGS: Virtual selection methods include video interviewing, online examinations and aptitude testing. These tools have been used in business for many years, but their predictive value in surgery is largely unknown. In healthcare, the established online Multi-Specialty Recruitment Assessment (MSRA) examines generic professional capabilities. Its scope, however, is too limited to be used in isolation. Candidates and interviewers alike may have concerns about the technical aspects of virtual recruitment. The significance of human factors must not be overlooked in the online environment. Surgery can learn from HROs, such as aviation. Pilot and air traffic control selection is integral to ensuring safety. These organisations have already established digital selection methods for psychological aptitude, professional capabilities and manual dexterity. CONCLUSION: National selection for higher surgical training (ST3+) can learn from HROs, using validated methods to prioritise patient safety while being acceptable to candidates, trainers and health service recruiters.


Assuntos
COVID-19/epidemiologia , Cirurgia Geral/educação , Critérios de Admissão Escolar , Humanos , Entrevistas como Assunto/métodos , Segurança do Paciente , Reprodutibilidade dos Testes , Reino Unido , Comunicação por Videoconferência
20.
Plast Surg Nurs ; 41(2): 86-94, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34033632

RESUMO

Undergoing a rhinoplasty can affect an individual's mental health either positively or negatively, depending upon how he or she perceives the results. Because of the impact that rhinoplasty may have on an individual's mental health and the cost of this surgery, it is important to understand the reasons that men decide to undergo rhinoplasty and the challenges they face when making the decision to have a rhinoplasty. Using a grounded theory method, we collected data by conducting interviews with 20 participants. We analyzed the data and initially obtained 684 initial codes. After we removed duplicate codes and carefully analyzed participants' interviews, a total of 497 codes remained. We developed these codes into 10 main categories and 32 subcategories. We found that the causal factors affecting the decision of Iranian men to undergo rhinoplasty included the following 5 categories: a lack of confidence; a desire to improve their appearance; a desire for attention from others; a need to keep up with the Joneses (i.e., a desire to show that one is as good as other people by getting what others have and doing what others do); and persuasion by others. Intervening factors affecting the decision of Iranian men to undergo rhinoplasty included the following 4 categories: family challenge; social atmosphere; financial problems; and unwanted consequences. Iranian men make the decision to undergo rhinoplasty by overcoming and ignoring these intervening factors. The primary variable in participants' decision to undergo rhinoplasty was the desire to improve their appearance.


Assuntos
Tomada de Decisões , Rinoplastia/normas , Adulto , Feminino , Teoria Fundamentada , Humanos , Entrevistas como Assunto/métodos , Irã (Geográfico) , Masculino , Pesquisa Qualitativa , Rinoplastia/métodos , Rinoplastia/psicologia
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