Nurse and Social Worker Palliative Telecare Team and Quality of Life in Patients With COPD, Heart Failure, or Interstitial Lung Disease: The ADAPT Randomized Clinical Trial.

Importance: Many patients with chronic obstructive pulmonary disease (COPD), heart failure (HF), and interstitial lung disease (ILD) endure poor quality of life despite conventional therapy. Palliative care approaches may benefit this population prior to end of life. Objective: Determine the effect of a nurse and social worker palliative telecare team on quality of life in outpatients with COPD, HF, or ILD compared with usual care. Design, Setting, and Participants: Single-blind, 2-group, multisite randomized clinical trial with accrual between October 27, 2016, and April 2, 2020, in 2 Veterans Administration health care systems (Colorado and Washington), and including community-based outpatient clinics. Outpatients with COPD, HF, or ILD at high risk of hospitalization or death who reported poor quality of life participated. Intervention: The intervention involved 6 phone calls with a nurse to help with symptom management and 6 phone calls with a social worker to provide psychosocial care. The nurse and social worker met weekly with a study primary care and palliative care physician and as needed, a pulmonologist, and cardiologist. Usual care included an educational handout developed for the study that outlined self-care for COPD, ILD, or HF. Patients in both groups received care at the discretion of their clinicians, which could include care from nurses and social workers, and specialists in cardiology, pulmonology, palliative care, and mental health. Main Outcomes and Measures: The primary outcome was difference in change in quality of life from baseline to 6 months between the intervention and usual care groups (FACT-G score range, 0-100, with higher scores indicating better quality of life, clinically meaningful change ≥4 points). Secondary quality-of-life outcomes at 6 months included disease-specific health status (Clinical COPD Questionnaire; Kansas City Cardiomyopathy Questionnaire-12), depression (Patient Health Questionnaire-8) and anxiety (Generalized Anxiety Disorder-7) symptoms. Results: Among 306 randomized patients (mean [SD] age, 68.9 [7.7] years; 276 male [90.2%], 30 female [9.8%]; 245 White [80.1%]), 177 (57.8%) had COPD, 67 (21.9%) HF, 49 (16%) both COPD and HF, and 13 (4.2%) ILD. Baseline FACT-G scores were similar (intervention, 52.9; usual care, 52.7). FACT-G completion was 76% (intervention, 117 of 154; usual care, 116 of 152) at 6 months for both groups. Mean (SD) length of intervention was 115.1 (33.4) days and included a mean of 10.4 (3.3) intervention calls per patient. In the intervention group, 112 of 154 (73%) patients received the intervention as randomized. At 6 months, mean FACT-G score improved 6.0 points in the intervention group and 1.4 points in the usual care group (difference, 4.6 points [95% CI, 1.8-7.4]; P = .001; standardized mean difference, 0.41). The intervention also improved COPD health status (standardized mean difference, 0.44; P = .04), HF health status (standardized mean difference, 0.41; P = .01), depression (standardized mean difference, -0.50; P < .001), and anxiety (standardized mean difference, -0.51; P < .001) at 6 months. Conclusions and Relevance: For adults with COPD, HF, or ILD who were at high risk of death and had poor quality of life, a nurse and social worker palliative telecare team produced clinically meaningful improvements in quality of life at 6 months compared with usual care. Trial Registration: ClinicalTrials.gov Identifier: NCT02713347.

Efectividad de Intervención en enfermería para fortalecer la cooperación al tratamiento en pacientes con falla cardiaca / Effectiveness of nursing intervention to strengthen treatment cooperationinpatients with heart failure

Introducción: La falla cardiaca (FC) afecta a más de 23 millones de personas en el mundo. Se ha demostrado que las intervenciones de enfermería mejoran el conocimiento, comportamientos y reingresos hospitalarios. Objetivo: Determinar la efectividad de intervención de enfermería para fortalecer la cooperación al tratamiento en pacientes con FC. Métodos: Estudio pretest y postest cuasi experimental en una muestra conveniente de 70 pacientes con FC, grupo control (n=35) que recibió atención habitual y grupo experimental (n=35) tuvo la IE. Se utilizaron dos instrumentos: Escala Europea de Autocuidado EHFScB y la nueva escala de cooperación ECOOPFRGv1 previo proceso de validación por expertos. El estudio contó con el aval de comité de ética institucional y consentimiento informado de pacientes. Resultados: Se evaluó el efecto de la intervención de enfermería, los hallazgos evidenciaron que existió diferencia estadísticamente significativa (p=<0,001) en el grupo experimental con respecto a las mediciones obtenidas en el grupo control. Conclusiones: Se comprueba la efectividad de la intervención de enfermería para fortalecer la cooperación al tratamiento en los pacientes con FC. Los hallazgos sugieren la importancia de desarrollar programas de educación que se centren en mejorar la cooperación al tratamiento y los comportamientos de gestión del cuidado. (AU)

Introduction: Heart failure (HR) affects more than 23 million people worldwide. Nursing interventions have been shown to improve hospital knowledge, behaviors, and readmissions. Objective: To determine the effectiveness of nursing intervention to strengthen treatment cooperation in patients with CF. Methods: Pretest and quasi- experimental posttest study in a suitable sample of 70 patients with CF, control group(n=35) who received usual care and experimental group (n=35) had EI. Two instruments were used: European Self-Care Scale EHFScB and the new ECOOPFRGv1 cooperation scale after validation process by experts. The study was endorsed by the institutional ethics committee and informed consent of patients. Results: The effect of the nursing intervention was evaluated, the findings showed that there was a statistically significant difference (p = < 0.001) in the experimental group with respect to the measurements obtained in the control group. Conclusions: The effectiveness of nursing intervention to strengthen treatment cooperation in patients with CF was verified. The findings suggest the importance of developing education programs that focus on improving treatment cooperation and care management behaviors. (AU)

Characterizing shared and distinct symptom clusters in common chronic conditions through natural language processing of nursing notes.

Data-driven characterization of symptom clusters in chronic conditions is essential for shared cluster detection and physiological mechanism discovery. This study aims to computationally describe symptom documentation from electronic nursing notes and compare symptom clusters among patients diagnosed with four chronic conditions-chronic obstructive pulmonary disease (COPD), heart failure, type 2 diabetes mellitus, and cancer. Nursing notes (N = 504,395; 133,977 patients) were obtained for the 2016 calendar year from a single medical center. We used NimbleMiner, a natural language processing application, to identify the presence of 56 symptoms. We calculated symptom documentation prevalence by note and patient for the corpus. Then, we visually compared documentation for a subset of patients (N = 22,657) diagnosed with COPD (n = 3339), heart failure (n = 6587), diabetes (n = 12,139), and cancer (n = 7269) and conducted multiple correspondence analysis and hierarchical clustering to discover underlying groups of patients who have similar symptom profiles (i.e., symptom clusters) for each condition. As expected, pain was the most frequently documented symptom. All conditions had a group of patients characterized by no symptoms. Shared clusters included cardiovascular symptoms for heart failure and diabetes; pain and other symptoms for COPD, diabetes, and cancer; and a newly-identified cognitive and neurological symptom cluster for heart failure, diabetes, and cancer. Cancer (gastrointestinal symptoms and fatigue) and COPD (mental health symptoms) each contained a unique cluster. In summary, we report both shared and distinct, as well as established and novel, symptom clusters across chronic conditions. Findings support the use of electronic health record-derived notes and NLP methods to study symptoms and symptom clusters to advance symptom science.

Terminologia especializada de enfermagem para cuidado à pessoa com insuficiência cardíaca crônica / Terminología de enfermería especializada para el cuidado de personas con insuficiencia cardíaca crónica / Specialized Nursing terminology for the care of people with chronic heart failure

Resumo Objetivo Construir uma terminologia especializada de enfermagem para o cuidado à pessoa com insuficiência cardíaca crônica. Método Estudo metodológico, realizado em duas etapas: identificação dos conceitos relevantes em artigos científicos relacionados à prioridade de saúde eleita e mapeamento cruzado dos conceitos identificados com os conceitos da CIPE®. Resultados Extraíram-se 333 conceitos únicos úteis ao cuidado de enfermagem relacionado à afecção em questão, logo submetidos à etapa do mapeamento cruzado com os conceitos da CIPE® 2019-2020. Foram classificados 201 conceitos como constantes e 132 não constantes. Na análise de similaridade e abrangência, 85% foram classificados como iguais e 15% similares. Os conceitos não constantes caracterizaram-se 44% como mais abrangentes, 11% mais restritos e 45% sem concordância. Quanto à classificação dos conceitos nos sete Eixos da CIPE®, caracterizou-se por Eixo Foco (50%), Eixo Julgamento (13%), Eixo Meio (12%), Eixo Ação (10%), Eixo Localização (9%), Eixo Tempo (4%) e Eixo Cliente (2%). Conclusões e implicações para a prática Foi possível construir terminologia especializada de enfermagem com base na CIPE® para o cuidado à pessoa com insuficiência cardíaca crônica, em que 40% dos conceitos que compõem a terminologia não estão constantes na versão 2019-2020 da classificação, sendo passíveis de inserção em versão posterior.

Resumen Objetivo Construir una terminología de enfermería especializada para el cuidado de personas con insuficiencia cardíaca crónica. Método Estudio metodológico, realizado en dos etapas: identificación de conceptos relevantes en artículos científicos relacionados con la prioridad de salud elegida y mapeo cruzado de los conceptos identificados con los conceptos de ICNP®. Resultados Se extrajeron 333 conceptos únicos útiles para la atención de enfermería relacionados con la afección en cuestión, que luego se sometieron a la etapa de mapeo cruzado con los conceptos de CIPE® 2019-2020. 201 conceptos se clasificaron como constantes y 132 como no constantes. En el análisis de similitud y exhaustividad, el 85% se clasificó como iguales y el 15%, como similares. Los conceptos no constantes se caracterizaron en un 44% como más completos, 11% más restringidos y 45% sin acuerdo. En cuanto a la clasificación de conceptos en los siete Ejes CIPE®, se caracterizó por el eje de Enfoque (50%), el Eje de Juicio (13%), el Eje Medio (12%), el Eje de Acción (10%), el Eje de Ubicación (9%), Eje de Tiempo (4%) y Eje de Cliente (2%). Conclusiones y contribuciones a la práctica fue posible construir una terminología de enfermería especializada basada en CIPE® para el cuidado de personas con insuficiencia cardíaca crónica, en la cual el 40% de los conceptos que componen la terminología no están incluidos en la versión 2019-2020 de la clasificación, estando sujetos a inserción en una versión posterior.

Abstract Objective To build specialized Nursing terminology for the care of people with chronic heart failure. Method Methodological study, carried out in two stages: identification of relevant concepts in scientific articles related to the elected health priority and cross-mapping of the concepts identified with the ICNP® concepts. Results A total of 333 unique concepts useful for Nursing care related to the condition in question were extracted, soon submitted to the cross-mapping stage with the concepts of ICNP® 2019-2020. 201 concepts were classified as constant and 132 as non-constant. In the analysis of similarity and comprehensiveness, 85% were classified as equal and 15% as similar. The non-constant concepts were characterized by 44% as more comprehensive, 11% more restricted and 45% without agreement. As for the classification of concepts in the seven ICNP® Axes, it was characterized by the Focus Axis (50%), Judgment Axis (13%), Middle Axis (12%), Action Axis (10%), Location Axis (9%), Time Axis (4%) and Customer Axis (2%). Conclusions and contributions to the practice It was possible to build specialized Nursing terminology based on the ICNP® for the care of people with chronic heart failure, in which 40% of the concepts that make up the terminology are not included in the 2019-2020 version of the classification, being subjected to insertion in a later version.

O gerenciamento do autocuidado de pacientes com insuficiência cardíaca / Self-care management of patients with heart failure

Introdução: A insuficiência cardíaca (IC) configura-se como a via final das doenças cardiovasculares e como grande problema de saúde pública. Com o envelhecimento da população e consequente aumento do aparato tecnológico houve um incremento da sobrevida de pacientes com outros transtornos cardiovasculares, que ao longo do tempo evoluem para IC, imprimindo a estes pacientes a necessidade de estabelecer o autocuidado a fim de retardar a progressão da doença ou mantê-la sobre controle. Objetivos: Identificar as variáveis clínicas, sociais e demográficas do paciente assistido no ambulatório de Insuficiência Cardíaca em um Hospital público universitário; Verificar o autocuidado de pacientes com Insuficiência Cardíaca em um Hospital público universitário através do SCHFI v 6.2; Correlacionar o autocuidado com as variáveis clínicas, sociais e demográficas do paciente assistido no ambulatório de Insuficiência Cardíaca em um Hospital público universitário; Discutir os fatores intervenientes para o gerenciamento do autocuidado pelos pacientes de IC, a partir das variáveis clínicas, sociais e demográficas. Método: estudo transversal de abordagem quantitativa. Resultados: A amostra foi composta de indivíduos de idade entre 52 a 76 anos (78%), pretos e pardos compõe a maioria (62%), moradores da Baixada Fluminense (39,2%) e da Zona Norte do Rio de Janeiro (34,2%) e de escolaridade de até o Ensino Fundamental Incompleto (27,3%) e Completo (36,4%), com Classe Funcional II (41,8%), Fração de Ejeção Reduzida (57,4%), Etiologia predominante Isquêmica (32,9%), não reconhecem ter tido informações sobre a doença (61,5%), e já sofreram internação devido à Insuficiência Cardíaca (60,6%). O autocuidado foi inadequado na maioria dos participantes (81,4%), Escore Manutenção inadequado (88,6%), e Escore Manejo inadequado (61,8%), Escore Confiança inadequado (48,1%). Não houve correlação entre escores de autocuidado com as variáveis estudadas, porém houve correlação da manutenção inadequada com a prática de atividade física, e do manejo inadequado com o fato de afetar a família. Conclusão: O autocuidado como um processo de tomada de decisão precisa de suporte social, estruturas das equipes e articulação nos serviços de saúde para a equidade da assistência de enfermagem, e dos serviços de saúde.

Introduction: Heart failure (HF) is configured as the final route of cardiovascular diseases and as a major public health problem. With the aging of the population and the consequent increase in the technological apparatus, there was an increase in the survival of patients with other cardiovascular disorders, which over time evolve to HF, giving these patients the need to establish self-care in order to delay the progression of the disease. or keep it under control. Objectives: To identify the clinical, social and demographic variables of the patient assisted at the Heart Failure outpatient clinic in a public university hospital; To verify the self-care of patients with Heart Failure in a public university Hospital through SCHFI v 6.2; Correlate self-care with the clinical, social and demographic variables of the patient assisted at the Heart Failure outpatient clinic in a public university hospital; Discuss the intervening factors for the management of self-care by HF patients, based on clinical, social and demographic variables. Method: cross-sectional study with a quantitative approach. Results: The sample was composed of individuals aged 52 to 76 years (78%), blacks and browns make up the majority (62%), residents of Baixada Fluminense (39.2%) and the North Zone of Rio de Janeiro (34.2%) and schooling up to Incomplete (27.3%) and Complete (36.4%) Elementary Education, with Functional Class II (41.8%), Reduced Ejection Fraction (57.4%) , Ischemic predominant etiology (32.9%), do not recognize having had information about the disease (61.5%), and have already suffered hospitalization due to Heart Failure (60.6%). Self-care was inadequate in most participants (81.4%), Inadequate Maintenance Score (88.6%), and Inappropriate Management Score (61.8%), Inappropriate Trust Score (48.1%). There was no correlation between self-care scores and the variables studied, but there was a correlation between inadequate maintenance and the practice of physical activity, and inadequate management with the fact that it affects the family. Conclusion: Self-care as a decision- making process needs social support, team structures and articulation in health services for the equity of nursing care, and health services.

The efficacy of a nursing care and follow-up program for patients with heart failure: Study protocol for a randomized controlled trial.

BACKGROUND: Heart failure (HF) is one of the primary causes of the increasing public health costs, incidence rate and mortality of heart disease. As treatment options for the HF have evolved, people have a better understanding of overall burden of HF, resulting a more centralized method for the treatment of these patients with chronic diseases. At present, with the rapid progress of medical technology, the nursing mode must be updated accordingly. The objective of this trial is to investigate the effects of the program of nursing care and follow-up on life quality, self-care, and the rehospitalization of patients with HF. METHOD: This is a randomized controlled study to be carried out from November 2020 to March 2021 and was granted through the Ethics Committee of Changshan County People's Hospital (CCPH002376). The patients meet the following criteria will be included: the age of the patients is 18 years and above, and the functional classification is NYHA II or NYHA III. The patients with the following criteria will be excluded: patients who have received the by-pass surgery in the last 6 months; cancer patients are given radiotherapy or chemotherapy; patients with severe renal failure requiring dialysis; patients with chronic obstructive pulmonary disease who need ventilation; and patients with hearing or visual impairment. In our experiment, patient information scale, the life quality scale (The Left Ventricular Dysfunction Scale) and Self-Care of HF Index are utilized for the assessment. All the analyses are implemented with SPSS for Windows Version 20.0. RESULTS: Impact of experimental programs on outcomes will be illustrated in the Table. CONCLUSION: We hypothesize that the nursing care conducted for the HF patients may improve the life quality and self-care. TRIAL REGISTRATION NUMBER: researchregistry 6129.

Utility of the integrated palliative care outcome scale (IPOS): a cross-sectional study in hospitalised patients with heart failure.

AIM: The aim of this study was to evaluate the suitability and comprehensibility of the integrated palliative care outcome scale for the evaluation of palliative care needs in patients with heart failure. METHODS AND RESULTS: This cross-sectional study investigated 100 heart failure patients (40 women, 60 men; median age 79 years) within the first few days of their hospitalisation by applying the integrated palliative care outcome scale (3-day recall period) and two additional self-developed questions about the suitability and comprehensibility of the integrated palliative care outcome scale. Clinically relevant somatic and psycho-emotional symptoms were reported very frequently (approximately 75% each), followed by communicational needs or practical issues. Ninety-five per cent of patients thought the integrated palliative care outcome scale very easy to understand, and 91% judged the integrated palliative care outcome scale suitable to assess palliative care needs. CONCLUSION: The integrated palliative care outcome scale was well accepted by hospitalised patients with heart failure and identified a high burden of both physical and psycho-emotional symptoms. Screening for palliative care has to consider patients and their relatives alike, and should be part of a comprehensive care concept jointly integrated into clinical routine by primary and specialised palliative care teams.

Characteristics for a tool for timely identification of palliative needs in heart failure: The views of Dutch patients, their families and healthcare professionals.

BACKGROUND: Palliative care can improve outcomes for patients with advanced chronic heart failure and their families, but timely recognition of palliative care needs remains challenging. AIM: The aim of this study was to identify characteristics of a tool to assess palliative care needs in chronic heart failure that are needed for successful implementation, according to patients, their family and healthcare professionals in The Netherlands. METHODS: Explorative qualitative study, part of the project 'Identification of patients with HeARt failure with PC needs' (I-HARP), focus groups and individual interviews were held with healthcare professionals, patients with chronic heart failure, and family members. Data were analysed using the Consolidated Framework for Implementation Research. RESULTS: A total of 13 patients, 10 family members and 26 healthcare professionals participated. Direct-content analysis revealed desired tool characteristics for successful implementation in four constructs: relative advantage, adaptability, complexity, and design quality and packaging. Healthcare professionals indicated that a tool should increase awareness, understanding and knowledge concerning palliative care needs. A tool needs to: be adaptable to different disease stages, facilitate early identification of palliative care needs and ease open conversations about palliative care. The complexity of chronic heart failure should be considered in a personalized approach. CONCLUSIONS: The current study revealed the characteristics of a tool for timely identification of palliative care needs in chronic heart failure needed for successful implementation. The next steps will be to define the content of the tool, followed by development of a preliminary version and iterative testing of this version by the different stakeholders.

B-type natriuretic peptide levels and diagnostic accuracy: excess fluid volume / Niveles del péptido natriurético tipo B y precisión diagnóstica: volumen de líquidos excesivo / Níveis do peptídeo natriurético tipo B e acurácia diagnóstica: volume de líquidos excessivo

ABSTRACT Aim: To analyze the behavior of B-type natriuretic peptide (BNP) in the presence of defining characteristics (DCs) of the nursing diagnosis Excess fluid volume (00026) in patients hospitalized for acute decompensated heart failure. Methods: Cohort study of patients admitted with acute decompensated heart failure (September 2015 to September 2016) defined by Boston Criteria. Patients hospitalized for up to 36 h with BNP values ≥ 100 pg/ml were included; BNP values at baseline-final assessment were compared by Wilcoxon test, the number of DCs at baseline-final assessment was compared by paired t-test. Results: Sixty-four patients were included; there was a significant positive correlation between delta of BNP and the number of DCs present at initial clinical assessment. Conclusions: The behavior of BNP was correlated to the DCs indicating congestion. With clinical compensation, DCs and BNP decreased. The use of this biomarker may provide additional precision to the nursing assessment.

RESUMEN Objetivo: Analizar el comportamiento del péptido natriurético tipo B (BNP) en presencia de características definitorias (CD) del diagnóstico de enfermería Exceso de volumen de líquidos (00026) en pacientes hospitalizados por insuficiencia cardíaca aguda descompensada (ICAD). Métodos: Estudio de cohorte de pacientes ingresados ​​con ICAD (septiembre/2015 a septiembre/2016).Se incluyeron pacientes hospitalizados hasta 36 h con valores de BNP ≥ 100 pg / ml; Los valores de BNP en la evaluación inicial basal se compararon mediante la prueba de Wilcoxon, el número de CD en la evaluación inicial basal se comparó mediante el Test-T apareado. Resultados: Se incluyeron 64 pacientes; hubo una correlación positiva significativa entre el delta del BNP y las CD presentes en la evaluación clínica inicial. Conclusiones: El comportamiento del BNP se correlacionó con las CD que indican congestión. Con compensación clínica, las CD y el BNP disminuyeron. El uso del BNP puede proporcionar precisión adicional a la evaluación de enfermería.

RESUMO Objetivo: Analisar o comportamento do peptídeo natriurético tipo B (BNP) na presença de características definidoras (CDs) do diagnóstico de enfermagem Excesso de volume de líquidos (00026) em pacientes hospitalizados por insuficiência cardíaca descompensada. Métodos: Estudo de coorte com pacientes internados com insuficiência cardíaca descompensada (setembro-2015 a setembro-2016), definida pelos Critérios de Boston. Pacientes hospitalizados por mais de 36 horas, valor de BNP ≥ 100 pg/ml foram incluídos; valores de BNP basal-final foram comparados pelo teste Wilcoxon; as CDs no basal-final foram comparadas pelo teste t pareado. Resultados: Sessenta e quatro pacientes foram incluídos; houve correlação positiva significativa entre o delta de BNP com o número de CDs presentes na avaliação clínica inicial. Conclusões: O comportamento do BNP foi correlacionado com as CDs, indicando congestão. Com a compensação clínica, as CDs e a concentração de BNP diminuíram. O uso deste biomarcador pode fornecer precisão adicional à avaliação de enfermagem.

Nursing taxonomies in hospital discharge planning: a quasi-experimental study / Taxonomías de enfermería en la planificación del alta hospitalaria: investigación cuasi experimental / Taxonomias de enfermagem no planejamento de alta hospitalar: estudo quase experimental

ABSTRACT Objective: to evaluate the effect of implementation of hospital discharge planning based on the taxonomies of NANDA-International, nursing interventions classification (NIC) and nursing outcomes classification (NOC) for patients with heart failure (HF) or diabetes mellitus (DM). Methods: quasi-experimental quantitative study conducted in a public university hospital located in the state of Rio Grande do Sul, Brazil. Convenience sampling included 28 adult patients hospitalized for HF or DM with the nursing diagnosis Ineffective Health Management (00078), who received the following nursing interventions: Teaching: Disease Process, Teaching: Prescribed Medication and Teaching: Prescribed Diet. Before and after the intervention, the following nursing outcomes were evaluated : Knowledge: Diabetes Management and Knowledge: Heart Failure Management. Results: the score of the nursing outcome Knowledge: Heart Failure Management went from 2.05±0.28 to 2.54±0.30 (P=0.002), and of the nursing outcome Knowledge: Diabetes Management went from 2.61±0.55 to 3.21±0.57 (P=0.000). Conclusion: discharge planning based on the NIC improves the NOC score and may interfere in the health outcomes.

RESUMEN Objetivo: evaluar el efecto de la implementación de un plan de alta hospitalaria basado en la taxonomía de NANDA-Internacional, clasificación de intervenciones de enfermería (NIC) y clasificación de resultados de enfermería (NOC), para pacientes con insuficiencia cardíaca (IC) o diabetes mellitus (DM). Métodos: estudio cuantitativo cuasi experimental realizado en un hospital universitario público ubicado en el estado de Rio Grande do Sul, Brasil. El muestreo de conveniencia incluyó a 28 pacientes adultos hospitalizados por IC o DM con el diagnóstico de enfermería Gestión de Salud Inefectiva (00078), que recibieron las siguientes intervenciones de enfermería: Enseñanza: Proceso de la enfermedad, Enseñanza: Medicación prescrita y Enseñanza: Dieta prescrita. Antes y después de la intervención, se evaluaron los siguientes resultados de enfermería: Conocimiento: Control de la diabetes y Conocimiento: Control de la insuficiencia cardíaca congestiva. Resultados: la puntuación del resultado de enfermería Conocimiento: Control de la insuficiencia cardíaca congestiva pasó de 2.05±0.28 a 2.54±0.30 (P=0.002), y del resultado de enfermería Conocimiento: Control de la diabetes pasó de 2.61±0.55 a 3.21±0.57 (P=0,000). Conclusión: la planificación de alta basada en la NIC mejora la puntuación de NOC y puede interferir en los resultados de salud.

RESUMO Objetivo: avaliar o efeito de um planejamento de alta baseado nas taxonomias NANDA-I, Classificação das intervenções de enfermagem (NIC) e Classificação dos resultados de enfermagem (NOC), implementado para pacientes com insuficiência cardíaca (IC) ou diabetes mellitus (DM). Método: Estudo quantitativo quase-experimental realizado em hospital público e universitário do Sul do Brasil. Amostragem por conveniência com 28 pacientes internados por IC ou DM com Diagnóstico de enfermagem Controle ineficaz da saúde, que receberam as intervenções Ensino: processo de doença, Ensino: medicação prescrita e Ensino: dieta prescrita. Antes e após, foram avaliados os Resultados Conhecimento: controle do diabetes e Conhecimento: controle da insuficiência cardíaca congestiva. Resultados: O NOC Conhecimento: controle da insuficiência cardíaca congestiva passou de 2,05±0,28 a 2,54±0,30 (P=0,002) e o Resultado Conhecimento: controle do diabetes passou de 2,61±0,55 a 3,21±0,57 (P=0,000). Conclusão: O planejamento de alta utilizando as intervenções NIC melhora a pontuação dos resultados NOC e pode interferir nos desfechos de saúde.

What are the main symptoms and concerns reported by patients with advanced chronic heart failure?-a secondary analysis of the Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS).

There is a lack of valid disease-specific patient-reported outcome measures (PROMs) for detecting symptoms and concerns in patients with advanced chronic heart failure (CHF). The Palliative care Outcome Scale (POS) and Integrated Palliative care Outcome Scale (IPOS) are specifically developed to capture the main symptoms and concerns of people severely affected by advanced disease. The aim of this study was to determine whether POS and IPOS captures the main symptoms and concerns self-reported by patients with advanced CHF. A secondary analysis of existing POS/IPOS data collected in three longitudinal studies was conducted. POS and IPOS start with an open-ended question for patients to report their main problems and concerns, followed by subsequent closed questions on a range of symptoms and other concerns. Descriptive statistics were used to report the results. The 102 participants from the three datasets had median age 81 years (SD ±9.84 years); 62% male; 87% white. A total of 107 concerns were reported in the first, open POS/IPOS question seeking the patient's main concerns. Of these, 83 (77%) were reflected in the subsequent IPOS/POS closed questions. The high correspondence between the free-text responses and the closed questions indicates that most issues are captured by the POS/IPOS items. In conclusion, the generic versions of POS and IPOS do capture the main problems and concerns of patients with advanced CHF. Minor adaptations and further psychometric validation of POS and IPOS are needed in this population.

Perspectives on Implementing a Multidomain Approach to Caring for Older Adults With Heart Failure.

BACKGROUND/OBJECTIVES: The American College of Cardiology (ACC) Geriatric Cardiology Section Leadership Council recently outlined 4 key domains (which are composed of 14 subdomains) that are important to assess in older adults with heart failure (HF). We sought to determine which geriatric domains/subdomains are routinely assessed, how they are assessed, and how they impact clinical management in the care of ambulatory older adults with HF. DESIGN: Survey. SETTING: Ambulatory. PARTICIPANTS: Fifteen active ACC member physicians from the geriatric cardiology community. MEASUREMENTS: Electronic survey assessing which domains/subdomains are currently assessed in these selected real-world practices, how they are assessed, and how they are incorporated into clinical management. RESULTS: Of 15 clinicians, 14 responded to the survey. The majority routinely assess 3 to 4 domains (median, 3; interquartile range, 3-4) and a range of 4 to 12 subdomains (median, 8; interquartile range, 6-11). All respondents routinely assess the medical and physical function domains, 71% routinely assess the mind/emotion domain, and 50% routinely assess the social domain. The most common subdomains included comorbidity burden (100%), polypharmacy (100%), basic function (93%), mobility (86%), falls risk (71%), frailty (64%), and cognition (57%). Sensory impairment (50%), social isolation (50%), nutritional status (43%), loneliness (7%), and financial means (7%) were least frequently assessed. There was significant heterogeneity with regard to the tools used to assess subdomains. Common themes for how the subdomains influenced clinical care included informing prognosis, informing risk-benefit of pharmacologic therapy and invasive procedures, and consideration for palliative care. CONCLUSIONS: While respondents routinely assess multiple domains and subdomains and view these as important to clinical care, there is substantial heterogeneity regarding which subdomains are assessed and the tools used to assess them. These observations provide a foundation that inform a research agenda with regard to providing holistic and patient-centered care to older adults with HF. J Am Geriatr Soc 67:2593-2599, 2019.

O difícil cotidiano dos pacientes com insuficiência cardíaca / The difficult daily life of heart failure bearing patients / El difícil cotidiano de los pacientes com insuficiencia cardiaca

Objective: The study's purpose has been to assess the main limitations reported by heart failure bearing patients. Methods: It is a secondary analysis of an exploratory study with a qualitative approach. This study was performed with 15 patients with heart failure, out of the 167 undergoing ambulatory care, and over the period from March to July 2011. The collection of primary data was based on semi-structured interviews with subsequent analysis according to the Bardin's perspective. The secondary analysis was performed according to the retrospective interpretation strategy. Results: There were female predominance (73.3%); incomplete elementary school (80.2%); hypertensive patients (80.2%); dyslipidemic patients (53.4%); and diabetics patients (33.3%). Concerning the daily limitations, the following stand out: impaired walking, precarious sleep pattern, fatigue, dyspnea, loss of autonomy, dependence on others, poor sleep pattern, low sexual activity. Conclusion: By taking into consideration the heart failure, a chronic disease, it is fundamental for nurses to look for guidelines and strategies that are able to develop the capacity for self-care, prevention and health promotion

Objetivo: Analisar as principais limitações relatadas por pacientes com insuficiência cardíaca. Método: análise secundária de um estudo exploratório, de abordagem qualitativa, realizado com 15 pacientes portadores de insuficiência cardíaca no período de março a julho de 2011, dentre os 167 em atendimento ambulatorial. A coleta de dados primários deu-se a partir de uma entrevista semi-estruturada, com posterior análise de Bardin, e para presente análise secundária foi utilizada como estratégia a interpretação retrospectiva. Resultados: predominância do sexo feminino (73,3%); ensino fundamental incompleto (80,2%); hipertensos (80,2%); dislipidêmicos (53,4%); diabéticos (33,3%). Quanto às limitações no cotidiano, destacam-se: deambulação prejudicada, padrão de sono precário, fadiga, dispneia, perda de autonomia, dependência de terceiros, padrão de sono precário, baixa frequência da atividade sexual. Conclusão: na insuficiência cardíaca, uma doença crônica, é fundamental que o enfermeiro busque por orientações e estratégias, as quais possam desenvolver a capacidade de autocuidado, prevenção e promoção da saúde

Objetivo: Analizar las principales limitaciones relatadas por pacientes con insuficiencia cardiaca. Método: análisis secundario de un estudio exploratorio, de abordaje cualitativo, realizado con 15 pacientes portadores de insuficiencia cardíaca en el período de marzo a julio de 2011, entre los 167 en atención ambulatoria. La recolección de datos primarios se dio a partir de una entrevista semiestructurada, con posterior análisis de Bardin, y para el presente análisis secundario se utilizó como estrategia la interpretación retrospectiva. Resultados: predominio del sexo femenino (73,3%); educación básica incompleta (80,2%); hipertensos (80,2%); dislipidémicos (53,4%); diabéticos (33,3%). En cuanto a las limitaciones en el cotidiano, se destacan: deambulación perjudicada, patrón de sueño precario, fatiga, disnea, pérdida de autonomía, dependencia de terceros, patrón de sueño precario, baja frecuencia de la actividad sexual. Conclusión: en la insuficiencia cardíaca, una enfermedad crónica, es fundamental que el enfermero busque orientaciones y estrategias, que puedan desarrollar la capacidad de autocuidado, prevención y promoción de la salud

Expanding Access to Home-Based Palliative Care: A Randomized Controlled Trial Protocol.

Introduction: Studies show that home-based palliative care (HBPC) improves participant outcomes and satisfaction with care while also decreasing hospitalizations and emergency department visits. U.S. health care payment reforms create financial opportunities to offer HBPC. Consequently, more HBPC programs are emerging, heightening the need to evaluate their effectiveness. Methods: This randomized, controlled trial is comparing the effectiveness of an evidence-based model of HBPC and enhanced usual primary care for participants who receive primary care from medical groups and clinics organized under an accountable care organization or Medicare Advantage plan. Palliative care services are reimbursed by our partnering health plan provider. The five-year trial will enroll 1155 seriously ill participants (and ∼884 of their caregivers) with heart failure, chronic obstructive pulmonary disease, or advanced cancer. We are collecting data via telephone surveys with participants at baseline and one and two months postenrollment and with caregivers at baseline, one and two months postenrollments, and following the death of a loved one. We are collecting participant-reported outcome measures of pain, symptoms, anxiety, depression, participant-provider communication, and hope. Caregiver outcome measures include caregiver burden, communication with providers, anxiety, and depression. Additional outcomes are participant survival time and participants' emergency department visits and hospitalizations. Study Implementation: Challenges and Contributions: Our research team has encountered several significant challenges in early study implementation. These include engaging primary care providers in the study and coordinating logistics with a health plan. Both challenges have contributed to a lag in participant enrollment. Despite these challenges, our study holds tremendous promise to accelerate adoption and spread of an evidence-based HBPC model across the country.

[Driveline Wound Care: Key to the Long-Term Use of Implantable Ventricular Assist Devices].

Heart failure is a complicated chronic disease. Although numerous new medications are used to treat and improve the quality of life of patients with heart failure, the final treatment for terminal heart failure still relies heavily on heart transplants. However, as the number of heart donations is limited, many health institutions implant mechanical assist devices to perform heart functions temporarily. These implanted ventricular assist devices help reduce heart failure symptoms and enhance quality of life. However, driveline infection is one of the more severe complications associated with these devices. If this infection is not controlled, another heart surgery will be necessary to replace the device. Severe driveline infection may even lead to patient death. An approach to care that includes driveline wound care standardization and immobilization of the driveline has been shown to effectively decrease the incidence of driveline infections and to increase the survival rate. As Taiwan still lacks the relevant clinical care standards for implantable ventricular assist device support and driveline wound care, this study introduces the relevant Western literature and the author's clinical experience related to driveline wound management. We hope that this article serves as a useful reference for related nursing care.

Feasibility of Implementing a Palliative Care Intervention for People with Heart Failure: Learnings from a Pilot Randomized Clinical Trial.

Background: People with heart failure (HF) have high morbidity and mortality and may benefit from palliative care (PC). Objective: To pilot a randomized, clinical trial of a PC intervention for people with HF. Design: Participants were randomized to usual care (UC) or intervention (UC plus specialty PC) between January 2012 and December 2013. The initial PC consultation was conducted in-hospital, with six additional contacts from the PC team over six months. Setting/Subjects: The study was undertaken in a large, urban, academic medical center with patients (n = 30) with New York Heart Association HF Class II-IV. Measurements: Patients completed a survey at baseline, three and six months, assessing pain, dyspnea, depression, and quality of life (QoL). Results: Although there were significant improvements in mean scores from baseline to six months for pain (4.3 vs. 2.4, p = 0.05), dyspnea (3.9 vs. 2.2, p = 0.03), and QoL (59.2 vs. 42.7, p = 0.001), there were no differences between study groups over time. On average, participants in the intervention group received 5 out of 6 contacts and were satisfied with the intervention. Conclusions: The intervention was well accepted by patients, safe, and feasible. Our findings suggest that PC interventions for people with HF should match the PC needs of the patient. Given the trajectory of HF, studies may need to recruit outpatients and follow patients for a longer period to fully evaluate the impact of PC interventions. Clinical trials Identifier: NCT01461681.

Percutaneous Biventricular Mechanical Heart Support in Cardiogenic Shock: A Nursing Case Report.

INTRODUCTION: Only a few cases of biventricular cardiogenic shock have been treated with Impella circulatory assist devices in the United States. CLINICAL FINDINGS: A 29-year-old man came to the emergency department because of cough, shortness of breath, fever, and chills. Initial assessment revealed hypotension; an elevated creatinine level of 2.1 mg/dL; and markedly elevated results on liver function tests, with alanine transaminase 5228 IU/L and aspartate aminotransferase 6200 IU/L. The patient's signs and symptoms met criteria for New York Heart Association class IV heart failure and associated poor prognosis for recovery. DIAGNOSIS: Echocardiography revealed dilated cardiomyopathy and biventricular failure with an ejection fraction of 15%. Results of an endomyocardial biopsy confirmed the diagnosis of myocarditis. INTERVENTIONS: After unsuccessful treatment with inotropes, biventricular support was started with an Impella CP device in the left ventricle and an Impella RP device in the pulmonary artery. OUTCOMES: The patient was maintained on support for 8 days and was discharged to home from the hospital after 27 days. Repeat echocardiography 90 days after discharge indicated improvement in ejection fraction to 40%. At follow-up 16 weeks after discharge, all signs and symptoms of heart failure had resolved. The patient has not had any inpatient readmissions to the hospital to date. CONCLUSION: This case presents an opportunity for analysis of care activities and role responsibilities of bedside nurses in caring for this patient. Discussion of this case expands the literature describing nursing activities associated with caring for patients with Impella devices.

Impact of Hospice and Palliative Care Service Utilization on All-Cause 30-Day Readmission Rate for Older Adults Hospitalized with Heart Failure.

BACKGROUND: Acute decompensated heart failure (HF) is the leading cause for hospital readmission. Large-scale sustainable interventions to reduce readmission rate have not been fully explored or proven effective. OBJECTIVE: We studied the impact of hospice and palliative care service utilization on 30-day all-cause hospital readmissions for patients with HF. METHODS AND RESULTS: Data were retrieved from the Department of Veterans Affairs Corporate Data Warehouse. The study included 238 116 HF admissions with primary diagnosis of HF belonging to 130 812 patients. Among these patients, 2592 had hospice and palliative care utilizations and 68 245 patients did not. Rehospitalization was calculated within 30 days of index hospitalization. Propensity scores were used to match hospice and nonhospice patients on demographics, Charlson comorbidity categories, and 30-day survival. In the matched group, logistic regression was used to estimate effects of hospice on readmission, controlling for any covariates that had failed to balance. The average age of the matched patients was 74 years old, 14% were African American, 75% Caucasian, 2% Asian, and 17% female. After propensity matching, the odds ratio for readmission was 1.29. The 95% confidence interval for the odds was 1.13 to 1.48, suggesting that veterans receiving services have a higher chance of readmission. CONCLUSION: In a large cohort study of older US Veterans, utilization of hospice and palliative care services was associated with a higher 30-day all-cause readmission rate among hospitalized patients with HF. Further prospective studies should be conducted to confirm results and test generalizability outside the Veterans Affairs system of care.