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1.
Medellín; s.n; 2022.
Tese em Espanhol | LILACS, BDENF - Enfermagem, COLNAL | ID: biblio-1443569

RESUMO

Objetivo: comprender el rol de los hombres en enfermería, teniendo en cuenta su reconocimiento y las emociones que subyacen en el ejercicio de su práctica profesional. Metodología: esta tesis fue realizada desde la metodología de estudio de casos colectivo propuesta por Robert E. Stake. Se entrevistaron 12 enfermeros con desempeño en diferentes escenarios laborales empleando entrevistas en profundidad, notas de campo y memorando analíticos para registrar las experiencias emotivas de los participantes. El análisis se realizó por medio de agrupamiento y reducción de los fragmentos de las entrevistas y la construcción de un mapa conceptual. Resultados: los roles de género son producto de una construcción social, y en este sentido, se moldean y cambian con el devenir histórico y cultural, prueba de esto es el ingreso de los hombres a la enfermería. Sin embargo, a nivel social persiste una naturalización de la enfermería como un oficio femenino que se traduce en una imagen estereotipada del papel de los enfermeros que dificulta su reconocimiento. Conclusiones: los hombres desde el momento en que manifiestan su intención de convertirse en enfermeros, inician un proceso de adaptación en diferentes esferas, donde no solo deben negociar sus emociones, sino emprender una lucha permanente por el reconocimiento como un motor para el desarrollo y el cambio en diferentes aspectos de su vida. (Tomado del repositorio institucional)


Objective: to understand the role of men in nursing, taking into account their recognition and the emotions that underlie their professional practice. Methodology: This thesis was conducted using the collective case study methodology proposed by Robert E. Stake. Twelve nurses with performance in different work scenarios were interviewed using in-depth interviews, field notes, and analytical memorandum to record the emotional experiences of the participants. The analysis was carried out by grouping and reducing the fragments of the interviews and constructing a conceptual map. Results: gender roles are the product of a social construction, and in this sense, they are molded and change with historical and cultural evolution, proof of which is the entry of men into nursing. However, at the social level, a naturalization of nursing as a female profession persists, which translates into a stereotyped image of the role of female patients that hinders its recognition. Conclusions: men, from the moment they express their intention to become nurses, begin a process of adaptation in different areas, where they must, in addition to negotiating their emotions, constantly fight for recognition as the engine of change and development in different aspects of their lives. (Tomado del repositorio institucional)


Assuntos
Humanos , Masculino , Papel do Doente , Prática Profissional , Conhecimentos, Atitudes e Prática em Saúde , Enfermeiros
2.
Omega (Westport) ; 83(3): 470-486, 2021 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-31213151

RESUMO

The concept of roles has been crucial to the theoretical understanding of the construction of the dying process and the subjective experience of dying. Talcott Parsons first outlined the sick role in 1951. Beginning in the early 1960s, the academic literature recognized that those with chronic illness do not fit the criteria for the sick role as Parsons defined it. Since the introduction of hospice and palliative care, a new intermediate role has been constructed by the medical system. This role has been designated the chronic sick role. Formally defining the intermediate role between the sick and dying roles will help alleviate the issue of role confusion and serves to define what is now a gray and liminal phase between sickness and dying.


Assuntos
Cuidados Paliativos na Terminalidade da Vida , Papel do Doente , Humanos , Cuidados Paliativos
3.
Qual Health Res ; 31(2): 298-308, 2021 01.
Artigo em Inglês | MEDLINE | ID: mdl-33176575

RESUMO

Little is known about what recovery means to those with chronic fatigue syndrome/myalgic encephalomyelitis, a poorly understood, disabling chronic health condition. To explore this issue, semi-structured interviews were conducted with patients reporting improvement (n = 9) and deterioration (n = 10) after a guided self-help intervention, and analyzed via "constant comparison." The meaning of recovery differed between participants-expectations for improvement and deployment of the sick role (and associated stigma) were key influences. While some saw recovery as complete freedom from symptoms, many defined it as freedom from the "sick role," with functionality prioritized. Others redefined recovery, reluctant to return to the lifestyle that may have contributed to their illness, or rejected the concept as unhelpful. Recovery is not always about eliminating all symptoms. Rather, it is a nexus between the reality of limited opportunities for full recovery, yet a strong desire to leave the illness behind and regain a sense of "normality."


Assuntos
Síndrome de Fadiga Crônica , Doença Crônica , Síndrome de Fadiga Crônica/terapia , Humanos , Narração , Pesquisa Qualitativa , Papel do Doente
4.
Chía; s.n; 2021. 98 p. tab.
Tese em Espanhol | LILACS, BDENF - Enfermagem, COLNAL | ID: biblio-1359155

RESUMO

A través de una Metasíntesis guiados por el método propuesto por Sandelowsky y Barroso, se pretende profundizar en el concepto de patrón de M. Rogers y M. Newman, evidenciando, los atributos y cualidades en el uso de este concepto, que permiten el estudio del ser desde perspectivas diferentes a las convencionales para la disciplina de la enfermería. De igual manera, se identifica la necesidad de realizar un estudio dirigido a las personas que se enfrentan a situaciones difíciles a través de una articulación con la intervención de enfermería. Una intervención diferente y novedosa donde no se realiza la observación del ser desde aspectos físicos, sino por el contrario, se compone de estructuras que corresponden al transcurso de la vida de las personas. Así mismo, el acompañamiento de la enfermera en este proceso se vio reflejado en el bienestar de las personas y el reconocimiento del significado de su vida mediante la identificación del patrón; realizar cambios en rutinas que permitan el crecimiento personal o la expansión de la conciencia beneficiarán a la enfermera y a la persona.


Assuntos
Humanos , Masculino , Feminino , Conforto do Paciente , Cuidados de Enfermagem , Papel do Doente , Saúde
5.
Soc Sci Med ; 237: 112447, 2019 09.
Artigo em Inglês | MEDLINE | ID: mdl-31376531

RESUMO

This article extends deservingness debates in social welfare to a new domain by exploring how deservingness features in the experiences of people who are in paid work when diagnosed with cancer. In doing so, it explores the interrelationship between deservingness criteria and Parsons' sick role. Narrative interview data was collected from people with cancer who were employed when they were diagnosed (n = 14) and line managers with experience of managing an employee with cancer (n = 7). Semi-structured interviews were conducted with members of occupational health and human resources staff (n = 3), health care professionals (n = 5) and staff from a UK cancer support charity (n = 7). Data was analysed thematically. Deservingness featured, and mattered, in how participants understood cancer in relation to work, and ensuing workplace interactions. Though cancer was generally seen as deserving; employees with cancer were perceived to be in need, and not blamed for their condition, this deservingness was subject to question. Employees with cancer were not necessarily considered equally deserving, dependent on their contribution as workers pre-diagnosis, and their efforts to contribute since being diagnosed. In a reflection of the fixed-term, time constricted nature of the sick role, work and welfare institutions required a definite timeline for employees to return to, or depart from work. The paper evidences an important gap between the fixed sick role as perceived by employers and the UK state welfare system, and the complex experiences of people diagnosed with cancer when in paid work.


Assuntos
Atitude Frente a Saúde , Emprego/psicologia , Neoplasias/psicologia , Humanos , Entrevistas como Assunto , Papel do Doente , Seguridade Social , Reino Unido
6.
Aktuelle Urol ; 50(4): 392-397, 2019 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-31067579

RESUMO

BACKGROUND: Online support groups are discussion boards on the internet in which users exchange experience, advice and information. The Bundesverband Prostatakrebs Selbsthilfe e. V. (BPS) operates the largest German-language internet forum for prostate cancer patients. MATERIALS AND METHODS: Several aspects of the BPS Forum were examined: content analysis, language use and interaction, influence on treatment decisions, comparison with conventional face-to-face support groups, and use by relatives and friends. RESULTS: The online support group is dominated by a tentative style of communication with reserved language features. In addition to the exchange of information, emotional support seems to be very welcome to many users and represents an essential part of the exchange. The use of the internet forum leads to a change in the initial treatment decision in 29 % of patients. In comparison with the general population, rates of patients with anxiety and depression were two to three times as high among the users. Compared with the patients themselves, family members in particular had higher values for anxiety and depression and described a higher rate of metastatic diseases in the patients known to them. Users of the online support group were younger, had a higher educational level and a higher income than participants in conventional face-to-face support groups. CONCLUSIONS: Online support groups are rated positively by their users and contribute to the acquisition of information and emotional support. They probably have a significant influence on the primary treatment decision and thus actively shape the reality of care for prostate cancer patients.


Assuntos
Sistemas On-Line , Neoplasias da Próstata/psicologia , Grupos de Autoajuda , Papel do Doente , Cuidadores/psicologia , Alemanha , Troca de Informação em Saúde , Humanos , Masculino , Neoplasias da Próstata/terapia , Autocuidado/psicologia
7.
Psychooncology ; 28(7): 1477-1482, 2019 07.
Artigo em Inglês | MEDLINE | ID: mdl-31046153

RESUMO

OBJECTIVE: Diagnosis and treatment of breast cancer are psychologically stressful events, and hope and hardiness have been found to be important constructs for women with breast cancer. Therefore, this research sought to examine the relationships of perceived stress and hardiness with hope, and the buffering role of hardiness in the link between perceived stress and hope among Iranian women with breast cancer. METHODS: Two hundred and twenty Iranian women with breast cancer from three hospitals completed online measures evaluating perceived stress, hardiness, and hope. RESULTS: Using structural equation modelling, perceived stress was found to be negatively related to hope. Additionally, there was a positive relationship between hardiness and hope. The findings indicate that hardiness is a buffer in the link between perceived stress and hope for women with breast cancer. CONCLUSIONS: These findings demonstrate the importance of hardiness in reducing the effects of perceived stress on hope and have clinical implications for health professionals.


Assuntos
Adaptação Psicológica , Neoplasias da Mama/psicologia , Esperança , Resiliência Psicológica , Papel do Doente , Adulto , Feminino , Humanos , Irã (Geográfico) , Acontecimentos que Mudam a Vida , Pessoa de Meia-Idade , Estresse Psicológico/psicologia
8.
Psychol Health Med ; 24(7): 827-835, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-30821471

RESUMO

Despite improvement in the cancer treatment modalities, recurrence is still common. This study was conducted to explore Jordanian colorectal cancer patients' experience during the recurrence phase. Phenomenology - Qualitative design with semi-structured individual interviews with open questions was used. Three main themes and several subthemes were emerged: (1) adequate information and support from professionals (helpful relationship with professionals and disease orientation), (2) disease and treatment impact (being shocked, uncertainty, losing autonomy, isolation, and discomfort), and (3) seeking complementary treatment (spiritual activities and complementary therapy). The results can be helpful in increasing our understanding of the CRC experience during recurrence phase.


Assuntos
Neoplasias Colorretais/psicologia , Países em Desenvolvimento , Recidiva Local de Neoplasia/psicologia , Papel do Doente , Adulto , Idoso , Feminino , Humanos , Jordânia , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Incerteza
9.
Psychol Health Med ; 24(7): 781-787, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-30714815

RESUMO

The aim of this study was to measure the prevalence of FCR among a sample of French lymphoma survivors and to determine factors associated with clinical levels of FCR. The study was conducted with two cross-sectional measures: sociodemographic and anxiety, depression as well as health-related quality of life (HRQoL) scores were measured at the baseline of the post-cancer period and FCR was evaluated during the first 3 years of survivorship. The prevalence of clinical levels of FCR (≥13) was evaluated by the Fear of Cancer Recurrence Inventory - Short Form (FCRI-SF) among non- and Hodgkin lymphoma survivors undergoing prior first-line chemotherapy. Among 108 lymphoma survivors with an average follow-up of 1.6 years (range 0.3-3.0 years), clinical levels of FCR (≥13) were observed for 44.4% (n = 48). Multivariate analysis indicated that baseline anxiety and low quality of life were related to clinically significant FCR levels.


Assuntos
Ansiedade/psicologia , Sobreviventes de Câncer/psicologia , Depressão/psicologia , Medo , Doença de Hodgkin/psicologia , Linfoma não Hodgkin/psicologia , Recidiva Local de Neoplasia/psicologia , Adulto , Idoso , Estudos Transversais , Feminino , Seguimentos , França , Humanos , Masculino , Pessoa de Meia-Idade , Qualidade de Vida/psicologia , Papel do Doente , Inquéritos e Questionários
10.
Disabil Rehabil ; 41(25): 3092-3102, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-29929450

RESUMO

Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), there has been a strong impetus to tackle the illness utilizing a biopsychosocial model. However, many sufferers of this disabling condition report distress and dissatisfaction following medical encounters. This review seeks to account for this discord.Methods: A narrative review methodology is employed to synthesize the evidence for potential iatrogenesis.Results: We identify seven potential modalities of iatrogenesis or harm reported by patients:difficulties in reaching an acceptable diagnosis;misdiagnosis, including of other medical and psychological conditions;difficulties in accessing the sick role, medical care and social support;high levels of patient dissatisfaction with the quality of medical care;negative responses to controversial therapies (cognitive behavioral therapy and graded exercise therapy);challenges to the patient narrative and experience;psychological harm (individual and collective distress).Conclusion: The biopsychosocial framework currently applied to ME/CFS is too narrow in focus and fails to adequately incorporate the patient narrative. Misdiagnosis, conflict, and harm are observable outcomes where doctors' and patients' perspectives remain incongruent. Biopsychosocial practices should be scrutinized for potential harms. Clinicians should consider adopting alternative patient-centred approaches.Implications for rehabilitationPatients with ME/CFS may report or experience one or more of the modalities of harms and distress identified in this review.It is important health and rehabilitation professionals seek to avoid and minimize harms when treating or assisting ME/CFS patients.There are conflicting models of ME/CFS; we highlight two divergent models, a biopsychosocial model and a biomedical model that is preferred by patients.The 'biopsychosocial framework' applied in clinical practice promotes treatments such as cognitive behavioral therapy and exercise therapy, however, the evidence for their success is contested and many patients reject the notion their illness is perpetuated by dysfunctional beliefs, personality traits, or behaviors.Health professionals may avoid conflict and harm causation in ME/CFS by adopting more concordant 'patient-centred' approaches that give greater prominence to the patient narrative and experience of illness.


Assuntos
Síndrome de Fadiga Crônica/psicologia , Dano ao Paciente , Angústia Psicológica , Terapia Cognitivo-Comportamental , Erros de Diagnóstico , Terapia por Exercício , Síndrome de Fadiga Crônica/diagnóstico , Síndrome de Fadiga Crônica/terapia , Humanos , Modelos Psicológicos , Satisfação do Paciente , Qualidade da Assistência à Saúde , Papel do Doente , Apoio Social
11.
Qual Health Res ; 29(5): 758-773, 2019 04.
Artigo em Inglês | MEDLINE | ID: mdl-30296921

RESUMO

Within mainstream cancer literature, policy documents, and clinical practice, "work" is typically characterized as being synonymous with paid employment, and the problem of work is situated within the "return to work" discourse. The work that patients perform in managing their health, care, and everyday life at times of illness, however, is largely overlooked and unsupported. Drawing on feminist political economy theory, we report on a qualitative study of 12 women living with cancer. Major findings show that the work of patienthood cut across multiple fields of practice and included both paid and unpaid labor. The most prevalent types of work included illness work, body work, identity work, everyday work, paid employment and/or the work of maintaining income, and coordination work. The findings of this study disrupt popular conceptualizations of work and illuminate the nuanced and often invisible work that cancer patients may encounter, and the health consequences and inequities therein.


Assuntos
Neoplasias/psicologia , Pacientes/psicologia , Papel do Doente , Saúde da Mulher , Trabalho/psicologia , Adulto , Idoso , Antropologia Cultural , Canadá , Emprego/psicologia , Feminino , Feminismo , Identidade de Gênero , Humanos , Entrevistas como Assunto , Pessoa de Meia-Idade , Política
12.
BMJ Open ; 8(12): e022711, 2018 12 06.
Artigo em Inglês | MEDLINE | ID: mdl-30530472

RESUMO

AIM: This study aimed to assess the health-related quality of life (HRQoL) of patients with colorectal cancer (CRC) and its determinants. METHODS: A cross-sectional questionnaire survey was conducted on 300 newly diagnosed patients with CRC in China's Heilongjiang province, measuring HRQoL using the EuroQol five-dimension five-level (EQ-5D-5L). Kruskal-Wallis analyses were performed to identify the independent variables associated with the EQ-5D-5L utility scores. Predictors of the utility scores were confirmed using a Tobit regression model. RESULTS: The respondents had a mean EQ-5D-5L utility score of 0.617 (SD=0.371) and a median of 0.740 (range: -0.348 to 1.000). Pain/discomfort and anxiety/depression were major concerns of the respondents, with a prevalence of over 60% (all levels inclusive). The Kruskal-Wallis analyses found lower utility scores in those who were not married, worked as a farmer, enrolled with the new rural cooperative medical scheme and had lower household income (p<0.05). Those who were at a later stage of CRC, underwent surgical only therapy and had a stoma also had lower EQ-5D-5L scores than others (p<0.05). The Tobit regression model confirmed these predictors, except for occupation and marital status. CONCLUSION: Patients with CRC have poor HRQoL, with pain/discomfort and depression/anxiety as the most frequently reported problems. The poor HRQoL is associated with the seriousness of the disease condition, as well as the low socioeconomic status of the patients.


Assuntos
Neoplasias Colorretais/psicologia , Qualidade de Vida/psicologia , Inquéritos e Questionários , Adulto , Idoso , Idoso de 80 Anos ou mais , Transtornos de Ansiedade/diagnóstico , Transtornos de Ansiedade/psicologia , China , Neoplasias Colorretais/diagnóstico , Neoplasias Colorretais/cirurgia , Estudos Transversais , Transtorno Depressivo/diagnóstico , Transtorno Depressivo/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estadiamento de Neoplasias , Dor/diagnóstico , Dor/psicologia , População Rural , Papel do Doente , Fatores Socioeconômicos , Estomas Cirúrgicos/efeitos adversos
13.
Acta bioeth ; 24(2): 199-210, Dec. 2018. tab
Artigo em Espanhol | LILACS | ID: biblio-973424

RESUMO

Resumen: La idiosincrasia de la profesión médica, los rasgos de personalidad característicos del médico y la falta de formación específica para reconocer y tratar adecuadamente la propia vulnerabilidad, predisponen a este colectivo a padecer más patología mental y, probablemente, un deficiente tratamiento de otras enfermedades. La mayoría de los estudios realizados hasta el momento se centran en la patología mental y adictiva del médico, desde el punto de vista del riesgo para la mala praxis y la seguridad de sus pacientes. La revisión narrativa de la literatura científica realizada (MEDLINE, EMBASE e IME 1985-2016) ha mostrado que, en el entorno hispanoparlante, apenas disponemos de información actualizada sobre el médico como paciente, a pesar de ser un tema de indudable relevancia desde el punto de vista de la seguridad asistencial, del profesionalismo y del propio bienestar de los profesionales. La situación del médico que enferma es compleja y poco conocida, con conflicto de roles y con repercusiones en la ética profesional y la calidad asistencial.


Abstract: The idiosyncrasy of the medical profession, the characteristic personality traits of the physician and the lack of specific training to properly recognize and treat one's own vulnerability dispose this group to suffer more mental pathology and probably worse control of other medical diseases. Most of the studies promoted so far focus on the psychiatric and addictive concerns of the physician, from the point of view of the sick doctor as being at risk for malpractice and to guarantee the safety of their patients. The narrative review of scientific literature (MEDLINE, EMBASE and IME 1985-2016) has shown that we do not have in the Spanish-speaking environment updated information about the doctor as a patient, despite being a topic of incipient media repercussion and undoubtedly relevant from the point of view of patient safety, professionalism and medical ethics and as well as the welfare of professionals. The characteristic of a sick doctor are more complex than the rest of patients with a conflict of roles and repercussions on professional ethics and the quality of care.


Resumo: A idiossincrasia da profissão médica, as características de personalidade característica do médico e a falta de formação específica para reconhecer e, corretamente, tratar a própria vulnerabilidade, predispõem esse grupo a sofrer mais patologias mentais, e provavelmente tratamento deficiente de outras doenças. A maioria dos estudos realizados até agora tem como foco a patologia mental e o comportamento aditivo do médico, do ponto de vista do risco por negligência e segurança de seus pacientes. A revisão narrativa da literatura científica realizada (MEDLINE, EMBASE e IME 1985-2016) tem mostrado que no ambiente de idioma hispânico temos apenas informações atualizadas sobre o médico como paciente, apesar de ser uma questão de relevância inquestionável do ponto de vista da segurança assistencial, do profissionalismo e do próprio bem-estar dos profissionais. A situação do médico enfermo é complexa e pouco conhecida, com conflito de papéis e impacto sobre a ética profissional e a qualidade dos cuidados médicos. São necessários mais estudos, tanto quantitativos como qualitativos, que permitam compreender o processo do adoecimento dos médicos em cada um dos seus estágios profissionais (desde a graduação até a aposentadoria) para ser capaz de considerar estratégias para a melhoria na atenção da saúde desses profissionais.


Assuntos
Humanos , Médicos/psicologia , Papel do Doente , Ética Médica , Profissionalismo , Automedicação , Saúde Mental , Saúde Ocupacional , Licença Médica
15.
Psychooncology ; 27(6): 1553-1558, 2018 06.
Artigo em Inglês | MEDLINE | ID: mdl-29490120

RESUMO

OBJECTIVE: Little is known about survivors' understanding of the cause of their cancer and of their recovery, nor how these ways of understanding relate to their well-being. No study has examined both secular and religious appraisals of the same event. The current study aimed to examine both religious (God) and secular (self) appraisals of both the cause (attributions) and course/cure of cancer in relation to multiple aspects of adjustment. METHODS: Data were obtained from a sample of cancer survivors at Time 1 (n = 250) and 1 year later (Time 2, n = 167). RESULTS: Cancer survivors endorsed higher appraisals relating to course/cure of their cancer than those relating to cause, and they endorsed both secular and religious appraisals. Appraisals of the cause and course/cure of cancer were differentially related to adjustment, such that self-attributions of cause and God-attributions of cause were related to negative aspects of adjustment (eg, negative affect and pessimism), while appraisals of self and God's control over the course/cure were related to positive aspects of adjustment (eg, perceived positive life and health changes since cancer). Religiosity did not moderate most of relationships between religious appraisals and adjustment outcomes. CONCLUSIONS: Secular and religious appraisals of cancer are not mutually exclusive, and religious appraisals are associated with adjustment regardless of survivors' religiosity. Appraisals relating to cause and course/cure have differential relationships with well-being. Addressing cancer survivors' appraisals-religious or nonreligious-in a therapeutic setting may be beneficial regardless of their reported religiosity.


Assuntos
Sobreviventes de Câncer/psicologia , Neoplasias/psicologia , Qualidade de Vida/psicologia , Religião e Psicologia , Papel do Doente , Adaptação Psicológica , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Religião e Medicina
16.
Strahlenther Onkol ; 194(7): 655-663, 2018 07.
Artigo em Inglês | MEDLINE | ID: mdl-29532098

RESUMO

BACKGROUND: Cancer patients frequently suffer from physical and psychosocial impairments due to their disease and its treatment. Psychooncology (PO) can help to cope with stress resulting from outpatient radiotherapy (RT) treatment. There are currently few data regarding patients' wishes for PO support. The aim of this study was to investigate the number of patients with a wish for PO, treatment paths, and predictors of the wish for PO among cancer patients at the beginning of RT. METHODS: The results of routine psychological stress screening (Hornheide screening instrument; cut-off  ≥ 4) of 944 cancer patients between 2015 and 2017 were analyzed in a retrospective cross-sectional study. Predictors for a wish for PO support were identified by stepwise binary logistic regression, in which sociodemographic and treatment data were included in addition to the screening items. RESULTS: Around 20% of patients had above-average stress levels and 13% expressed a wish for PO support (participation rate was approximately 55%). Low emotional wellbeing (OR = 11.3) and lack of social support (OR = 9.4) were strong predictors for this treatment wish. Among patients with pancreatic cancer, head and neck tumors, and hematologic disease, there was a substantial difference between the degree of psychological stress and the wish for treatment. Patients with urological (23.5%) and lung tumors (20.9%) most frequently expressed a wish for PO support. CONCLUSION: Patient-reported psychosocial problems were better predictors of a wish for PO support than sociodemographic or clinical data. Stress screening should thus be implemented in clinical routine.


Assuntos
Adaptação Psicológica , Assistência Ambulatorial/psicologia , Necessidades e Demandas de Serviços de Saúde , Neoplasias/psicologia , Neoplasias/radioterapia , Sistemas de Apoio Psicossocial , Papel do Doente , Adulto , Idoso , Efeitos Psicossociais da Doença , Estudos Transversais , Feminino , Humanos , Comunicação Interdisciplinar , Colaboração Intersetorial , Masculino , Programas de Rastreamento , Pessoa de Meia-Idade , Qualidade de Vida/psicologia , Encaminhamento e Consulta , Estudos Retrospectivos
17.
Pflege ; 31(4): 191-202, 2018 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-29592536

RESUMO

"Alone with the taboo" - The social support experienced by women with vulvar neoplasia: a qualitative study Abstract. BACKGROUND: Cancer of the vulva is a gynaecological disease often with relevant impact for these women's daily life. On top of the medical complications, psychological problems might arise as well, due to the impaired quality of life and the withdrawal from social life. We do not know whether and what type of support is given to these patients. AIM: The qualitative study aimed at describing how the affected women experience the support they receive from their social environment from the time of the diagnosis to six months postoperatively. METHODS: A qualitative design was used. In a secondary analysis, 20 transcribed interviews from the WOMN-PRO study were analysed by qualitative content analysis according to Mayring. RESULTS: The findings from the study resulted in four main categories: having a serious disease shows how the patients experience the diagnosis as a shock and are confronted with questions of guilt and taboos. The category feel alone was strongly represented with features of not-speaking out, not looking at it and not-acting. Do it on your own features descriptions of the strategies the women use to get out of their loneliness. In experience help, it is shown that women who try to get in touch with their social environment usually receive support. CONCLUSIONS: Patients have a high demand for information concerning the disease and its possible impacts on their daily life as well as emotional and practical support from their families / partners and especially from health professionals. We recommend designating someone who acts throughout the whole treatment process as a mediator and a person of trust.


Assuntos
Papel do Doente , Apoio Social , Tabu , Neoplasias Vulvares/enfermagem , Neoplasias Vulvares/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Alemanha , Humanos , Pessoa de Meia-Idade , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Suíça
18.
Urologe A ; 57(4): 444-452, 2018 Apr.
Artigo em Alemão | MEDLINE | ID: mdl-29476193

RESUMO

BACKGROUND: Psychological stress of patients with penile cancer arises from the cancer diagnosis itself and the treatment consequences. In addition, there is cancer-specific distress. There is the chance of cure in localized stages and in those with limited regional lymph node metastases but this requires surgery and often adjuvant chemotherapy. This systematic review gives a summary of the existing literature to date. MATERIALS AND METHODS: A critical database search using Medline was made in Ovid from 1946 to 2017, in the Cochrane Central Register of Controlled Trials (CENTRAL) and in the Web of Science from 1900 to 2017. This was complemented by a search of the World Health Organization's International Clinical Trials Registry Platform Search Portal and ClinicalTrials.gov. The reference lists of the included studies were manually searched for additional references. RESULTS: Selected studies (n = 10) addressed the psychosocial effects of penile cancer treatment on quality of life and sexual function. Due to the heterogeneity of the study designs only a narrative description of the results was possible. Defects or mutilation due to penile cancer cause psychological distress in a significant number of patients. Organ-sparing interventions have a positive impact on quality of life and sexual function. CONCLUSION: The external genitals are a focus of sexual identity. Mutilating treatment causes significant distress but organ-sparing treatment and reconstruction positively influence quality of life.


Assuntos
Neoplasias Penianas/psicologia , Qualidade de Vida/psicologia , Papel do Doente , Adaptação Psicológica , Quimioterapia Adjuvante , Terapia Combinada , Progressão da Doença , Humanos , Metástase Linfática/diagnóstico , Metástase Linfática/patologia , Masculino , Estadiamento de Neoplasias/psicologia , Tratamentos com Preservação do Órgão/psicologia , Orgasmo , Neoplasias Penianas/diagnóstico , Neoplasias Penianas/patologia , Neoplasias Penianas/terapia , Pênis/patologia , Pênis/cirurgia , Procedimentos de Cirurgia Plástica/psicologia , Resultado do Tratamento
19.
J Relig Health ; 57(1): 366-383, 2018 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-28916918

RESUMO

Some health research suggests that religious and spiritual variables positively predict health-screening behaviours. However, much of the literature on this topic has utilized exclusively religious samples, or has sampled from populations without uniform access to health care. Either of these issues may have artificially inflated the relationship between religion/spirituality and health-screening behaviours. The current study used data from the 2012 Canadian Community Health Survey to examine a general sample of women from New Brunswick and Manitoba (N > 1200). Results indicated that lower levels of church attendance were positive predictors of papanicolaou tests and mammograms, while higher levels of attendance were generally associated with poorer screening behaviours. Religiosity was a uniformly non-significant predictor of screening behaviours. Finally, religious affiliation was inconsistently related to screening behaviours, but tended to favour religious non-affiliation when it was. Religion/spirituality does not appear to have a uniformly positive nor linear effect in predicting health-screening behaviours in women.


Assuntos
Comportamentos Relacionados com a Saúde , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Serviços Preventivos de Saúde/estatística & dados numéricos , Religião , Espiritualidade , Adolescente , Adulto , Canadá , Estudos Transversais , Feminino , Fidelidade a Diretrizes , Humanos , Mamografia , Programas de Rastreamento , Teste de Papanicolaou , Papel do Doente
20.
Psychiatr Danub ; 29(4): 451-458, 2017 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-29197202

RESUMO

BACKGROUND: Patients with cancer should be systematically screened for psychological problems at key points in their pathway. Usage of self-report scales for measuring anxiety and depression (such as Hospital Anxiety and Depression scale (HADS)) is a very practical methodfor detecting anxiety and depression. The aim of this research was to determine latent structure, reliability and cut-off scores of HADSin a Croatian sample of adult patients suffering from advanced metastatic cancer. SUBJECTS AND METHODS: According to inclusion and exclusion criteria, participant were recruited at University Hospital Centre Zagreb (N=46; January 2015) and Clinical Hospital Centre 'Sisters of Mercy' (N=29; April 2015). All participants underwent short structured psychodiagnostic interview, cognitive evaluation (usingMontreal Cognitive Assessment (MoCA) test) and were given HADS. RESULTS: When using PCA separately for the items of each original scale of HADS, only four items for the component Depression satisfactorily saturate principal component and when using PCA for all the items, only seven items from the original scale satisfactorily saturate unique principal component. Maximum Likelihood extraction method showed that only four items from the original scale satisfactorily saturated the theoretical scales. CONCLUSIONS: The results show that the best solution to use HADS, in defined Croatian population, is as one-dimensional screening instrument (Cronbach's alpha coefficient of internal consistency=0.774) with cut-off score 11/12.


Assuntos
Transtornos de Ansiedade/diagnóstico , Comparação Transcultural , Transtorno Depressivo/diagnóstico , Neoplasias/psicologia , Escalas de Graduação Psiquiátrica/estatística & dados numéricos , Idoso , Transtornos de Ansiedade/psicologia , Croácia , Transtorno Depressivo/psicologia , Feminino , Hospitais Universitários , Humanos , Masculino , Programas de Rastreamento , Pessoa de Meia-Idade , Psicometria/estatística & dados numéricos , Reprodutibilidade dos Testes , Papel do Doente
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