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1.
Am Surg ; 88(2): 177-180, 2022 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-33381978

RESUMO

BACKGROUND: As technology becomes more prominent in today's society, more patients turn to the Internet to self-refer for a range of surgical problems. Frequently, patients search a nearby hospital's website in order to find a physician. We hypothesized that the variability in hospital websites would make it difficult for patients to find a general surgeon for their care. METHODS: We used the US News and World Report's Hospital Rankings 2018-2019 for this study. The "Find A Doctor" page within each hospital's website was searched for the following conditions: "hernia" and "gallbladder." Information on all suggested providers was collected, including medical specialty and gender. Descriptive statistics were used to analyze the data. RESULTS: The median number of providers listed in each search was 18 (range: 1-204). For "hernia," general surgeons were not the majority of providers suggested at 12/16 institutions. For "gallbladder," general surgeons were not the majority of providers suggested at 14/16 institutions, and 3/16 institutions did not suggest any. All 16 institutions suggested a strong majority of male providers (range: 62-100% male; median: 83% male). DISCUSSION: Considerable variation exists in the suggestion of medical providers for common general surgical problems among the top academic hospitals. Most notably, general surgeons are not listed as the primary providers for these conditions which they commonly manage. Health systems need to examine how their website suggest providers and ensure that patients can easily find the physician most suitable for their care.


Assuntos
Acesso à Internet/estatística & dados numéricos , Corpo Clínico Hospitalar/provisão & distribuição , Encaminhamento e Consulta/estatística & dados numéricos , Cirurgiões/provisão & distribuição , Feminino , Vesícula Biliar , Hérnia , Hospitais , Humanos , Masculino , Sistemas On-Line/organização & administração , Sistemas On-Line/estatística & dados numéricos , Médicas/provisão & distribuição , Encaminhamento e Consulta/organização & administração , Distribuição por Sexo
2.
Ann Oncol ; 30(1): 96-102, 2019 01 01.
Artigo em Inglês | MEDLINE | ID: mdl-30335127

RESUMO

Background: Multiple features in the presentation of randomized controlled trial (RCT) results are known to influence comprehension and interpretation. We aimed to compare interpretation of cancer RCTs with time-to-event outcomes when the reported treatment effect measure is the hazard ratio (HR), difference in restricted mean survival times (RMSTD), or both (HR+RMSTD). We also assessed the prevalence of misinterpretation of the HR. Methods: We carried out a randomized experiment. We selected 15 cancer RCTs with statistically significant treatment effects for the primary outcome. We masked each abstract and created three versions reporting either the HR, RMSTD, or HR+RMSTD. We randomized corresponding authors of RCTs and medical residents and fellows to one of 15 abstracts and one of 3 versions. We asked how beneficial the experimental treatment was (0-10 Likert scale). All participants answered a multiple-choice question about interpretation of the HR. Participants were unaware of the study purpose. Results: We randomly allocated 160 participants to evaluate an abstract reporting the HR, 154 to the RMSTD, and 155 to both HR+RMSTD. The mean Likert score was statistically significantly lower in the RMSTD group when compared with the HR group (mean difference -0.8, 95% confidence interval, -1.3 to -0.4, P < 0.01) and when compared with the HR+RMSTD group (difference -0.6, -1.1 to -0.1, P = 0.05). In all, 47.2% (42.7%-51.8%) of participants misinterpreted the HR, with 40% equating it with a reduction in absolute risk. Conclusion: Misinterpretation of the HR is common. Participants judged experimental treatments to be less beneficial when presented with RMSTD when compared with HR. We recommend that authors present RMST-based measures alongside the HR in reports of RCT results.


Assuntos
Neoplasias/mortalidade , Sistemas On-Line/estatística & dados numéricos , Ensaios Clínicos Controlados Aleatórios como Assunto , Terapia Combinada , Humanos , Neoplasias/patologia , Neoplasias/terapia , Prognóstico , Taxa de Sobrevida , Fatores de Tempo
3.
Am J Mens Health ; 12(5): 1728-1745, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-30045654

RESUMO

The purpose of this study was to identify effective channels, sources, and content approaches for communicating prostate cancer prevention information to Black men. The Web of Science, PubMed and GoogleScholar databases, as well as reviews of reference lists for selected publications, were searched to select articles relevant to cancer communication channels, sources or content for Black men, focused on male-prevalent cancers and published in English. Articles were excluded if they examined only patient-provider communication, dealt exclusively with prostate cancer patients or did not separate findings by race. The selection procedures identified 41 relevant articles, which were systematically and independently reviewed by two team members to extract data on preferred channels, sources, and content for prostate cancer information. This review revealed that Black men prefer interpersonal communication for prostate cancer information; however, video can be effective. Trusted sources included personal physicians, clergy, and other community leaders, family (especially spouses) and prostate cancer survivors. Men want comprehensive information about screening, symptoms, treatment, and outcomes. Messages should be culturally tailored, encouraging empowerment and "ownership" of disease. Black men are open to prostate cancer prevention information through mediated channels when contextualized within spiritual/cultural beliefs and delivered by trusted sources.


Assuntos
Negro ou Afro-Americano/estatística & dados numéricos , Informática Aplicada à Saúde dos Consumidores/métodos , Sistemas On-Line/estatística & dados numéricos , Educação de Pacientes como Assunto/métodos , Preferência do Paciente , Neoplasias da Próstata/terapia , Idoso , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Satisfação do Paciente , Relações Médico-Paciente , Neoplasias da Próstata/diagnóstico , Neoplasias da Próstata/etnologia , Fatores de Risco , Estados Unidos
4.
Am J Mens Health ; 12(5): 1665-1669, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-29888641

RESUMO

Reading and understanding health information, both components of health literacy, can influence patient decisions related to disease management. Older adults, the population of males at greatest risk for prostate cancer, may have compromised capacity to understand and use health information. The purpose of this study was to determine the readability of prostate cancer materials on the Internet using five recommended readability tests. Using a cleared Internet browser, a search was conducted for "prostate cancer." The URLs of the first 100 websites in English were recorded to create the sample. The readability scores for each website were determined using an online, recommended service. This service generates five commonly recommended readability tests. All five tests revealed that the majority of websites had difficult readability. There were no significant differences identified between websites with .org, .gov, or .edu extension versus those with .com, .net, or other extension. It is apparent that the Internet is used often as a resource for health-related information. This study demonstrates that the large majority of information available on the Internet about prostate cancer will not be readable for many individuals.


Assuntos
Compreensão , Informação de Saúde ao Consumidor/normas , Letramento em Saúde , Internet/estatística & dados numéricos , Sistemas On-Line/estatística & dados numéricos , Idoso , Informação de Saúde ao Consumidor/tendências , Estudos Transversais , Humanos , Masculino , Informática Médica , Pessoa de Meia-Idade , Estados Unidos
5.
Future Oncol ; 14(6s): 23-28, 2018 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-29664356

RESUMO

This report highlights the results of the Italian video-assisted thoracoscopic surgery (VATS) Group, launched in mid 2013, which now has a website and an established database with over 4000 VATS lobectomy cases recruited from 67 thoracic surgery units across Italy. The year 2016 has been crucial for the following steps: inclusion of a dedicated biostatistician and a 'Survey Analysis & Data Quality Check'; the First Consensus Meeting with statements consequently adopted as Recommendations for the Italian Thoracic Surgery Society and published in a peer-reviewed journal; two papers published under the logo Italian VATS Group and seven abstracts accepted at annual international meetings (European Society of Thoracic Surgeons, European Association of Cardio-Thoracic Surgeons, European Lung Cancer Conference and European Respiratory Society); the institution of a Master Course on VATS lobectomy; the partnership with AME Publishing Company.


Assuntos
Neoplasias Pulmonares/cirurgia , Sistemas On-Line/estatística & dados numéricos , Pneumonectomia/normas , Sistema de Registros/estatística & dados numéricos , Cirurgia Torácica Vídeoassistida/normas , Conferências de Consenso como Assunto , Bases de Dados como Assunto , Humanos , Itália/epidemiologia , Pulmão/patologia , Pulmão/cirurgia , Neoplasias Pulmonares/epidemiologia , Neoplasias Pulmonares/patologia , Pneumonectomia/efeitos adversos , Pneumonectomia/economia , Pneumonectomia/métodos , Cirurgia Torácica Vídeoassistida/efeitos adversos , Cirurgia Torácica Vídeoassistida/economia , Cirurgia Torácica Vídeoassistida/métodos , Resultado do Tratamento
6.
Int J Comput Assist Radiol Surg ; 13(6): 769-776, 2018 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-29594854

RESUMO

PURPOSE: Surgical robots are increasingly common, yet routine tasks such as tissue grasping remain potentially harmful with high occurrences of tissue crush injury due to the lack of force feedback from the grasper. This work aims to investigate whether a blended shared control framework which utilizes real-time identification of the object being grasped as part of the feedback may help address the prevalence of tissue crush injury in robotic surgeries. METHODS: This work tests the proposed shared control framework and tissue identification algorithm on a custom surrogate surgical robotic grasping setup. This scheme utilizes identification of the object being grasped as part of the feedback to regulate to a desired force. The blended shared control is arbitrated between human and an implicit force controller based on a computed confidence in the identification of the grasped object. The online identification is performed using least squares based on a nonlinear tissue model. Testing was performed on five silicone tissue surrogates. Twenty grasps were conducted, with half of the grasps performed under manual control and half of the grasps performed with the proposed blended shared control, to test the efficacy of the control scheme. RESULTS: The identification method resulted in an average of 95% accuracy across all time samples of all tissue grasps using a full leave-grasp-out cross-validation. There was an average convergence time of [Formula: see text] ms across all training grasps for all tissue surrogates. Additionally, there was a reduction in peak forces induced during grasping for all tissue surrogates when applying blended shared control online. CONCLUSION: The blended shared control using online identification more successfully regulated grasping forces to the desired target force when compared with manual control. The preliminary work on this surrogate setup for surgical grasping merits further investigation on real surgical tools and with real human tissues.


Assuntos
Algoritmos , Retroalimentação , Força da Mão , Sistemas On-Line/estatística & dados numéricos , Procedimentos Cirúrgicos Robóticos/métodos , Humanos
7.
Facial Plast Surg ; 34(1): 82-87, 2018 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-29278863

RESUMO

Physicians should be aware of both websites and videos available online regarding the otoplasty procedure to provide quality care. This study systematically analyzes the authorships, reliability, quality, and readability of the websites, as well as the authorships and primary objectives of the videos regarding otoplasty. Validated instruments were used to analyze the reliability, quality, and readability of websites, and videos were systematically categorized and analyzed. A Google search was conducted, and the first five pages of results were included in this study. After excluding unrelated websites, the remaining 44 websites were categorized by authorship (physician, patient, academic, or unaffiliated) and were analyzed using the validated DISCERN instrument for reliability and quality, as well as various other validated instruments to measure readability. A YouTube search was also conducted, and the first 50 relevant videos were included in the study. These videos were categorized by authorship and their primary objective. Website authorships were physician-dominated. Reliability, quality, and overall DISCERN score differ between the four authorship groups by a statistically significant margin (Kruskall-Wallis test, p < 0.05). Unaffiliated websites were the most reliable, and physician websites were the least reliable. Academic websites were of the highest quality, and patient websites were of the lowest quality. Readability did not differ significantly between the groups, though the readability measurements made showed a general lack of material easily readable by the general public. YouTube was likewise dominated by physician-authored videos. While the physician-authored videos sought mainly to inform and to advertise, patient-authored videos sought mainly to provide the patient's perspective. Academic organizations showed very little representation on YouTube, and the YouTube views on otoplasty videos were dominated by the top 20 videos, which represented over 93% of the total views of videos included in this study.


Assuntos
Orelha Externa/cirurgia , Internet/estatística & dados numéricos , Sistemas On-Line/estatística & dados numéricos , Educação de Pacientes como Assunto/métodos , Cirurgia Plástica/métodos , Gravação em Vídeo/métodos , Informação de Saúde ao Consumidor/estatística & dados numéricos , Feminino , Humanos , Disseminação de Informação , Masculino , Procedimentos Cirúrgicos Otológicos/métodos
9.
World Neurosurg ; 105: 394-398, 2017 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-28599904

RESUMO

BACKGROUND: The importance of videos in social media communications in the context of health care and neurosurgery is becoming increasingly recognized. However, there has not yet been a systematic analysis of these neurosurgery-related communications. Accordingly, this study was aimed at characterizing the online video content pertaining to neurosurgery. METHODS: Neurosurgery-related videos uploaded on YouTube were collected using a comprehensive search strategy. The following metrics were extracted for each video: number of views, likes, dislikes, comments, shares, date of upload, and geographic region of origin where specified. A quantitative and qualitative evaluation was performed on all videos included in the study. RESULTS: A total of 713 nonduplicate videos met the inclusion criteria. The overall number of views for all videos was 90,545,164. Videos were most frequently uploaded in 2016 (n = 348), with a 200% increase in uploads compared with the previous year. Of the videos that were directly relevant to clinical neurosurgery, the most frequent video categories were "educational videos" (25%), followed by "surgical and procedure overview" (20%), "promotional videos" (17%), and "patient experience" (16%). The remainder of the videos consisted primarily of unrealistic simulations of cranial surgery for entertainment purposes (20%). CONCLUSIONS: The findings from this study highlight the increasing use of video communications related to neurosurgery and show that institutions, neurosurgeons, and patients are using YouTube as an educational and promotional platform. As online communications continue to evolve, it will be important to harness this tool to advance patient-oriented communication and knowledge dissemination in neurosurgery.


Assuntos
Neurocirurgia/estatística & dados numéricos , Sistemas On-Line/estatística & dados numéricos , Mídias Sociais/normas , Humanos , Disseminação de Informação , Neurocirurgia/métodos , Mídias Sociais/estatística & dados numéricos , Gravação em Vídeo
11.
J Hand Surg Am ; 41(8): 813-8, 2016 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-27311862

RESUMO

PURPOSE: Patients with brachial plexus injury (BPI) and their family members contribute to Internet discussion groups dedicated to BPI. We hypothesized that a thematic analysis of posts from BPI Internet discussion groups would reveal common themes related to the BPI patient experience, providing topics for patient education and counseling. METHODS: Internet discussion boards were identified using the search term "brachial plexus injury support group" in Google, Bing, and Yahoo! search engines. Two discussion boards had substantially more posts than other Web sites and were chosen for analyses. Posts from January 1, 2015, through January 1, 2016, were examined. Using an iterative and established process, 2 investigators (M.T.M. and C.J.D) independently analyzed each post using thematic analysis in 3 steps (open coding, axial coding, and selective coding) to determine common themes. In this process, each post was reviewed 3 times. RESULTS: A total of 328 posts from the 2 leading discussion boards were analyzed. Investigators reached a consensus on themes for all posts. One central theme focused on emotional aspects of BPI. Four other central themes regarding information support were identified: BPI disease, BPI treatment, recovery after BPI treatment, and process of seeking care for BPI. CONCLUSIONS: Examination of posts on Internet support groups for BPI revealed recurring concerns, questions, and opinions of patients and their family members. The most common themes related to disease information, treatment, recovery, and the emotional element of BPI. CLINICAL RELEVANCE: These findings provide a helpful starting point in refining topics for patient education and support that are targeted on patients' interests and concerns.


Assuntos
Neuropatias do Plexo Braquial/diagnóstico , Neuropatias do Plexo Braquial/terapia , Informática Médica , Sistemas On-Line/estatística & dados numéricos , Educação de Pacientes como Assunto/métodos , Pesquisa Qualitativa , Plexo Braquial/lesões , Feminino , Humanos , Masculino , Satisfação do Paciente/estatística & dados numéricos , Estados Unidos
12.
J Electrocardiol ; 49(3): 462-6, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27055937

RESUMO

INTRODUCTION: It is not known whether there is a specific training method that improves the accuracy of physician interpretations of pre-participation electrocardiograms (ECGs). METHODS: Participants took an online test and interpreted a series of normal, normal variant and abnormal ECGs. They then reviewed the BMJ's ECG interpretation online learning module and completed a post-test and a follow-up examination three months later. RESULTS: 28 fellows enrolled. The average correct for the pre-test was 63.57%, which increased to 81.19% for the post-test (p≤0.0001). When evaluating for retention, the average fell to 73.33% (p=0.0116) but was still significantly improved from baseline (p=0.0253). CONCLUSIONS: This study demonstrated that the accuracy of fellows' interpretation of ECGs significantly improved after completion of BMJ modules. Results of this study will likely impact the training of future sports medicine fellows and should encourage fellowship directors to incorporate the BMJ's ECG interpretation module as part of their curriculum.


Assuntos
Cardiologia/educação , Competência Clínica/estatística & dados numéricos , Instrução por Computador/estatística & dados numéricos , Escolaridade , Eletrocardiografia/estatística & dados numéricos , Programas de Rastreamento/estatística & dados numéricos , Feminino , Humanos , Internet/estatística & dados numéricos , Masculino , Sistemas On-Line/estatística & dados numéricos , Reino Unido , Adulto Jovem
14.
Support Care Cancer ; 23(10): 2907-16, 2015 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-25701437

RESUMO

PURPOSE: Patients often struggle to express their emotional concerns to their oncology providers and may therefore experience unmet needs. This paper describes the development and implementation of an online program that teaches patients how to communicate their emotions to their oncology providers. METHODS: The intervention was developed by a multidisciplinary team consisting of palliative care physicians, psychologists, and an intervention software developer and included input from patients. It incorporated elements of Social Cognitive Theory and validated cognitive behavioral strategies for communication skills training. Strategies to increase intervention adherence were implemented midway through the study. RESULTS: The intervention consists of four interactive, online modules to teach patients strategies for expressing emotional concerns to their providers and asking for support. In addition to skill-building, the intervention was designed to raise patients' expectations that expressing emotional concerns to providers would be helpful, to enhance their self-efficacy for doing so, and to help them overcome barriers to having these conversations. After implementing strategies to improve adherence, usage rates increased from 47 to 64 %. CONCLUSIONS: This intervention addresses an unmet educational need for patients with advanced cancer. Strategies to increase adherence led to improvements in usage rates in this population of older patients. We are currently evaluating the intervention in a randomized clinical trial to determine its efficacy in increasing patient expression of emotional concerns and requests for support. If successful, this intervention could serve as a model for future online patient education programs.


Assuntos
Neoplasias/psicologia , Sistemas On-Line/estatística & dados numéricos , Relações Médico-Paciente , Adulto , Idoso , Idoso de 80 Anos ou mais , Comunicação , Emoções , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/terapia , Autoeficácia , Adulto Jovem
15.
J Clin Epidemiol ; 68(6): 693-7, 2015 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-25450450

RESUMO

OBJECTIVES: To compare the impact of unconditional and conditional financial incentives on response rates among Australian general practitioners invited by mail to participate in an online survey about cancer care and to investigate possible differential response bias between incentive groups. STUDY DESIGN AND SETTING: Australian general practitioners were randomly allocated to unconditional incentive (book voucher mailed with letter of invitation), conditional incentive (book voucher mailed on completion of the online survey), or control (no incentive). Nonresponders were asked to complete a small subset of questions from the online survey. RESULTS: Among 3,334 eligible general practitioners, significantly higher response rates were achieved in the unconditional group (167 of 1,101, 15%) compared with the conditional group (118 of 1,111, 11%) (P = 0.0014), and both were significantly higher than the control group (74 of 1,122, 7%; both P < 0.001). Although more positive opinions about cancer care were expressed by online responders compared with nonresponders, there was no evidence that the magnitude of difference varied by the incentive group. The incremental cost for each additional 1% increase above the control group response rate was substantially higher for the unconditional incentive group compared with the conditional incentive group. CONCLUSION: Both unconditional and conditional financial incentives significantly increased response with no evidence of differential response bias. Although unconditional incentives had the largest effect, the conditional approach was more cost-effective.


Assuntos
Participação da Comunidade/psicologia , Participação da Comunidade/estatística & dados numéricos , Pesquisa Participativa Baseada na Comunidade/métodos , Clínicos Gerais/estatística & dados numéricos , Inquéritos Epidemiológicos/métodos , Inquéritos Epidemiológicos/estatística & dados numéricos , Motivação/classificação , Austrália , Pesquisa Participativa Baseada na Comunidade/organização & administração , Pesquisa Participativa Baseada na Comunidade/estatística & dados numéricos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Sistemas On-Line/estatística & dados numéricos , Avaliação de Programas e Projetos de Saúde
16.
J Eval Clin Pract ; 20(6): 853-6, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-24799003

RESUMO

RATIONALE, AIMS AND OBJECTIVES: Guideline development requires considerable time and financial resources. New technical devices such as software for online conferences may help to reduce time and financial efforts of guidelines development. The present survey may serve as an explorative pilot for a future study to determine the technical feasibility, acceptability and possible weaknesses of online consensus conferences for clinical guidelines development. METHODS: An anonymous online survey was conducted among participants in the online consensus conference of the International League of Dermatological Societies (ILDS) Guidelines for the Treatment of Actinic Keratosis. RESULTS: The majority of participants reported no technical problems with the participation in the online consensus conference; one participant had substantial technical problems accountable to a regional telephone breakdown. The majority of participants would not have preferred a traditional face-to-face conference, and all participants rated online consensus conferences for international guidelines as absolutely acceptable. Rates of acceptance were particularly high among those participants with prior experience with consensus conferences. Certain aspects, particularly the possibilities of debating, were rated as possibly superior in face-to-face conferences by some participants. CONCLUSIONS: The data from the online survey indicate that online consensus conferences may be an appropriate alternative to traditional face-to-face consensus conferences, especially within the frame of international guidelines that would require high travel costs and time. Further research is necessary to confirm the data from this explorative pilot study.


Assuntos
Conferências de Consenso como Assunto , Ceratose Actínica/terapia , Sistemas On-Line/estatística & dados numéricos , Guias de Prática Clínica como Assunto/normas , Adulto , Coleta de Dados , Medicina Baseada em Evidências/métodos , Feminino , Humanos , Ceratose Actínica/diagnóstico , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
17.
Ann Surg Oncol ; 21(9): 3132-41, 2014 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-24590433

RESUMO

PURPOSE: The objective of the study was to validate the previously reported lookup Table and Bladder Cancer Research Consortium (BCRC) nomogram in predicting cancer-specific mortality (CSM) and all-cause mortality (ACM) after radical cystectomy using an external cohort from South Korea. METHODS: The study comprised 409 patients. Discrimination was quantified with the concordance index. The relationship between the model-derived and actual CSM and ACM was graphically explored within calibration plots. Clinical net benefit was evaluated by decision curve analysis. RESULTS: Of the 409 patients, 147 (35.9 %) had died from various causes. One hundred two deaths were attributable to bladder cancer. For CSM at 5 years, the bootstrap-corrected concordance indices of the American Joint Committee on Cancer (AJCC) staging system, lookup Table, and BCRC nomogram were 71.8 % (95 % confidence interval [CI] 66.9-76.5), 73.0 % (95 % CI 67.9-78.0), and 76.2 % (95 % CI 71.6-80.9), respectively. For ACM at the same time point, the discrimination accuracies of these models were 70.7 % (95 % CI 66.7-74.6), 72.8 % (95 % CI 68.5-76.9), and 76.2 % (95 % CI 72.3-80.2), respectively. The calibration plots tended to exaggerate both survival outcomes in all models. When compared to the lookup Table as well as the AJCC staging system, the BCRC nomogram performed well across a wide range of threshold probabilities using decision curve analysis. CONCLUSIONS: The BCRC nomogram was characterized by higher accuracy and larger potential clinical benefit compared to the lookup Table. However, there is a great need for additional models that consider outcomes of patients for whom the existing models do not apply.


Assuntos
Adenocarcinoma/mortalidade , Carcinoma in Situ/mortalidade , Modelos Estatísticos , Sistemas On-Line/estatística & dados numéricos , Neoplasias da Bexiga Urinária/mortalidade , Adenocarcinoma/secundário , Adenocarcinoma/terapia , Adulto , Idoso , Idoso de 80 Anos ou mais , Carcinoma in Situ/patologia , Carcinoma in Situ/terapia , Causas de Morte , Terapia Combinada , Análise Discriminante , Feminino , Seguimentos , Humanos , Masculino , Pessoa de Meia-Idade , Gradação de Tumores , Invasividade Neoplásica , Estadiamento de Neoplasias , Nomogramas , Valor Preditivo dos Testes , Prognóstico , Curva ROC , Fatores de Risco , Taxa de Sobrevida , Neoplasias da Bexiga Urinária/patologia , Neoplasias da Bexiga Urinária/terapia , Adulto Jovem
18.
BMC Cancer ; 14: 83, 2014 Feb 11.
Artigo em Inglês | MEDLINE | ID: mdl-24517384

RESUMO

BACKGROUND: There is a need for psychosocial interventions for men with prostate cancer to promote adaptive coping with the challenges and distress associated with diagnosis, treatment and recovery. In addition, interventions are needed that help to overcome barriers to psychosocial treatment such as limited face-to-face psychosocial support services, a shortage of adequately trained professionals, geographical distance, perceived and personal stigma and a preference for consumer-centric and self-directed learning. My Road Ahead is an online cognitive behaviour therapy (CBT) intervention for prostate cancer. This protocol describes a randomised controlled trial (RCT) that will evaluate the efficacy of this online intervention alone, the intervention in combination with a moderated online forum, and the moderated online forum alone. METHODS/DESIGN: This study utilises a RCT design with three groups receiving: 1) the 6-module My Road Ahead intervention alone; 2) the My Road Ahead intervention plus a moderated online forum; and 3) the moderated online forum alone. It is expected that 150 men with localised prostate cancer will be recruited into the RCT. Online measures will assess men's psychological distress as well as sexual and relationship adjustment at baseline, post-intervention, 3 month follow-up and 6 month follow-up. The study is being conducted in Australia and participants will be recruited from April 2012 to Feb 2014. The primary aim of this study is to evaluate the efficacy of My Road Ahead in reducing psychological distress. DISCUSSION: To our knowledge, My Road Ahead is the first self-directed online psychological intervention developed for men who have been treated for localised prostate cancer. The RCT will assess the efficacy of this intervention in improving psychological well-being, sexual satisfaction, relationship satisfaction and overall quality of life. If successful, this intervention could provide much needed support to men receiving treatment for localised prostate cancer in a highly accessible manner. TRIAL REGISTRATION: Australian New Zealand Clinical Trials Registry Identifier: ACTRN12611000278932.


Assuntos
Terapia Cognitivo-Comportamental/métodos , Sistemas On-Line/estatística & dados numéricos , Neoplasias da Próstata/psicologia , Neoplasias da Próstata/terapia , Qualidade de Vida/psicologia , Estresse Psicológico/psicologia , Estresse Psicológico/terapia , Adaptação Psicológica/fisiologia , Intervenção Médica Precoce/métodos , Humanos , Masculino , Neoplasias da Próstata/diagnóstico , Psicoterapia/métodos , Estresse Psicológico/diagnóstico , Resultado do Tratamento
19.
J Cancer Educ ; 29(2): 241-6, 2014 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-24234166

RESUMO

As Web 2.0 technologies proliferate, patient education is changing dramatically. Information about prevention and survivorship arrives from a mix of sources. The present manuscript describes a study to shed light on how young adults (YAs) affected by cancer manage the digital world. Our investigation was guided by a research question asking how young adults affected by cancer engage in communication work in an environment of mass personal communication. The sample for this research consisted of 500 posts comprising 50 complete threads from an online support community for young adults affected by cancer. Threads were purposively sampled in a multi-stage process. Researchers used constant comparison to define themes, examining text in increments. Individuals harnessed assets of various communication tools for the purposes of message preparation and credibility checking. YAs demonstrated the multi-channel way they move between channels for different purposes, driven by preparation for future interactions. The result is a process that allows co-creation of knowledge in a trusted community. Findings indicate that completing communication work through multiple channels in a deliberate and savvy way is normal for YAs, particularly for message preparation and credibility checking. The multidirectional nature of digital tools plays an important role for YAs, as interactive resources appear to be the first or second stop for information after key events in the cancer trajectory. Results from this study are important as guidance to help manage the volume and depth of information common to the cancer experience in the Web 2.0 world.


Assuntos
Meios de Comunicação/estatística & dados numéricos , Amigos , Promoção da Saúde/organização & administração , Neoplasias/psicologia , Sistemas On-Line/estatística & dados numéricos , Sobreviventes/psicologia , Adulto , Aconselhamento , Humanos , Neoplasias/prevenção & controle , Adulto Jovem
20.
J Cancer Educ ; 29(1): 25-9, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-23943278

RESUMO

Colorectal cancer (CRC) incidence rates have decreased due to the increased use of CRC screenings that permit the detection and removal of polyps. However, CRC is still the second most common cause of cancer death among men ages 40 to 79 years; incidence and mortality rates for CRC are higher among African American (AA) men than among white men and AA women. CRC screening rates for AA men are comparable to their counterparts of other racial groups, but adherence to the screening guidelines is less, contributing to disparities in CRC mortality. Internet use is widespread and could be a channel to reach and disseminate health information to AA men; however, there are disparities in Internet use, and limited literature exists on how to best address this divide. This pilot project sought to understand African American male attitudes on colorectal cancer screening (CRCS), receipt of CRCS information, and the best strategy to provide African American men online CRCS education. Three focus groups and a feasibility trial were completed with African American men, ages of 45 to 75. Data suggest that disseminating information online is not a very effective way to reach older African American men with limited education. Although we do not recommend using websites among this population, email was more effective in getting participants to the website even though participants expressed a preference for phone messages. Recommendations for future research are provided.


Assuntos
Atitude Frente a Saúde , Negro ou Afro-Americano/psicologia , Neoplasias Colorretais/etnologia , Neoplasias Colorretais/psicologia , Educação em Saúde/métodos , Conhecimentos, Atitudes e Prática em Saúde , Sistemas On-Line/estatística & dados numéricos , Idoso , Neoplasias Colorretais/diagnóstico , Detecção Precoce de Câncer/estatística & dados numéricos , Feminino , Grupos Focais , Humanos , Masculino , Pessoa de Meia-Idade , Projetos Piloto
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