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1.
Nurs Res ; 73(3): 224-231, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38329989

RESUMO

BACKGROUND: Fibromyalgia syndrome (FMS) is an idiopathic chronic disease characterized by widespread musculoskeletal pain, hyperalgesia, and allodynia that has been recently associated with risk of dysphagia. OBJECTIVE: We aimed to analyze the association between nutritional status, micro- and macronutrient intake, and quality of life (QoL) in a cohort of women with FMS and risk of dysphagia compared to women with FMS without risk of dysphagia. METHODS: A cross-sectional study was conducted in 46 women with FMS. Risk of dysphagia was assessed by the Eating Assessment Tool (EAT-10) and the Volume-Viscosity Swallow Test (V-VST). The Food Frequency Questionnaire and the Swallowing Quality of Life Questionnaire were used to assess dietary intake and QoL, respectively. RESULTS: Thirty women with FMS were at risk for dysphagia (65.21%), assessed by the EAT-10. Based on the V-VST, the frequency of risk of dysphagia was 63.04%. Significant differences in body mass index (BMI) were found between women at risk for dysphagia and those without risk. Women at risk for dysphagia had significantly lower overall QoL scores than those women without risk. No significant differences were found for dietary intake and dysphagia risk. DISCUSSION: Women with FMS at risk for dysphagia have significantly lower BMI values and worse QoL than women without dysphagia risk, supporting the importance of assessing dysphagia in clinical practice in persons with FMS.


Assuntos
Transtornos de Deglutição , Fibromialgia , Estado Nutricional , Qualidade de Vida , Humanos , Feminino , Fibromialgia/complicações , Fibromialgia/psicologia , Fibromialgia/fisiopatologia , Qualidade de Vida/psicologia , Transtornos de Deglutição/fisiopatologia , Transtornos de Deglutição/complicações , Transtornos de Deglutição/psicologia , Estudos Transversais , Pessoa de Meia-Idade , Estado Nutricional/fisiologia , Adulto , Inquéritos e Questionários , Índice de Massa Corporal , Idoso
2.
ABCS health sci ; 48: e023303, 14 fev. 2023. ilus, tab
Artigo em Inglês | LILACS | ID: biblio-1516701

RESUMO

Dysphagia is a common swallowing disorder in the pediatric population, which may influence the quality of life and well-being of the family. The literature points to stress, guilt, and social isolation of family members. However, the management of psychosocial aspects involved in the treatment of pediatric dysphagia is rarely discussed. This study aimed to carry out an integrative review of the literature regarding the emotional aspects of parents of children with dysphagia. Therefore a search in the databases SciELO and PubMed was made, from January 2013 to June 2020, using the descriptors in Health Sciences (DeCs): "deglutition disorders" and "child". The search was performed with English and Portuguese language limiters using associated descriptors. The selection of the studies was performed by reading the title, abstract and, if necessary, full text, applying the inclusion and exclusion criteria. There were 2,169 publications, and 8 met the inclusion criteria. The included studies were examined according to the author, type of study, goals, emotional aspects involved in the treatment of swallowing disorders, and conclusions. The analysis was performed according to the presence of certain variables of the emotional aspects presented in the face of swallowing disorders, namely, parental stress, negative impact on parent/child interaction, guilt and frustration, and social isolation. The literature points out that pediatric dysphagia causes an emotional impact on the parents; indicating that it is necessary to offer emotional support and to adapt the clinical management to the different demands present in the clinic.


A disfagia é um distúrbio de deglutição comum na população pediátrica, podendo influenciar na qualidade de vida e no bem-estar da família. A literatura aponta estresse, culpa e isolamento social dos familiares. Entretanto, o manejo dos aspectos psicossociais envolvidos no tratamento da disfagia pediátrica raramente é discutido. Este estudo teve como objetivo realizar uma revisão integrativa da literatura sobre os aspectos emocionais de pais de crianças com disfagia. Para tanto, foi realizada uma busca nas bases de dados SciELO e PubMed, no período de janeiro de 2013 a junho de 2020, utilizando os descritores em Ciências da Saúde (DeCs): "distúrbios da deglutição" e "criança". A busca foi realizada com limitadores dos idiomas inglês e português usando descritores associados. A seleção dos estudos foi realizada por meio da leitura do título, resumo e, se necessário, texto completo, aplicando-se os critérios de inclusão e exclusão. Houve 2.169 publicações e 8 preencheram os critérios de inclusão. Os estudos incluídos foram examinados quanto ao autor, tipo de estudo, objetivos, aspectos emocionais envolvidos no tratamento dos distúrbios da deglutição e conclusões. A análise foi realizada de acordo com a presença de algumas variáveis ​​dos aspectos emocionais apresentados diante dos distúrbios da deglutição, a saber, estresse parental, impacto negativo na interação pais/filhos, culpa e frustração e isolamento social. A literatura aponta que a disfagia pediátrica causa impacto emocional nos pais; indicando que é necessário oferecer suporte emocional e adequar o manejo clínico às diferentes demandas presentes na clínica.


Assuntos
Humanos , Criança , Pais/psicologia , Transtornos de Deglutição/psicologia , Saúde da Criança , Emoções , Relações Pais-Filho
3.
Br Dent J ; 233(9): 801-805, 2022 11.
Artigo em Inglês | MEDLINE | ID: mdl-36369571

RESUMO

Head and neck cancer (HNC) and its treatment can have a significant impact on physical and psychosocial wellbeing. A multidisciplinary team (MDT) approach is critical to reduce the potential acute, long-term and late effects of treatment by optimising function at baseline, supporting people during treatment and with rehabilitation post treatment. The key focus for speech and language therapists is to support the holistic needs of people with a focus on speech, swallowing, voice and mouth opening. Effective management is reliant on working with MDT members and interventions are implemented against the background of robust multidimensional baseline evaluation. There have been significant advances in treatment modalities for both primary and recurrent HNC. These include highly conformal radiotherapy modalities, including: image-guided radiotherapy; parotid-sparing and dysphagia-optimised intensity-modulated radiotherapy; and the introduction of intensity-modulated proton therapy, as well as immunotherapy, transoral robotic surgery and surgery with advanced reconstructive techniques. Such treatment advances coupled with a changing patient demographic means that people with HNC are now living longer. However, this is not always without consequences and late treatment effects are a new challenge facing MDTs, requiring high levels of support and rehabilitation.


Assuntos
Transtornos de Deglutição , Neoplasias de Cabeça e Pescoço , Humanos , Deglutição , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/psicologia , Transtornos de Deglutição/reabilitação , Transtornos de Deglutição/terapia , Neoplasias de Cabeça e Pescoço/complicações , Recidiva Local de Neoplasia , Fala , Trismo/etiologia , Trismo/reabilitação , Trismo/terapia
4.
Dysphagia ; 37(4): 946-953, 2022 08.
Artigo em Inglês | MEDLINE | ID: mdl-34427776

RESUMO

Dysphagia is a common adverse event among head and neck (H&N) cancer patients. We aimed, for the first time, to validate the Arabic version of the MD Anderson Dysphagia Inventory (MDADI) among 82 Saudi Arabian patients with H&N cancer. We followed established validation guidelines and translated the 20-item MDADI using the forward-backward method. Our results revealed 100% feasibility. Test-retest reliability demonstrated acceptable interclass correlation coefficients (ICC) for the subscale domains (emotional = 0.973, physical = 0.971, and functional = 0.956) and composite score (ICC = 0.984). The Cronbach's alpha coefficients for the emotional, functional, and physical subscales were 0.937, 0.825, and 0.945, respectively (composite score = 0.975). We confirmed concurrent validity by demonstrating significant correlations between the domains of the Arabic MDADI and European Organization for Research and Treatment of Cancer (EORTC) Quality-of-Life Head and Neck Module (QLQ-H&N35). Our study validated the Arabic version of the MDADI among H&N cancer patients from Saudi Arabia.


Assuntos
Transtornos de Deglutição , Neoplasias de Cabeça e Pescoço , Transtornos de Deglutição/diagnóstico , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/psicologia , Neoplasias de Cabeça e Pescoço/complicações , Humanos , Psicometria , Qualidade de Vida/psicologia , Reprodutibilidade dos Testes , Arábia Saudita , Inquéritos e Questionários
5.
PLoS One ; 16(9): e0257683, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-34555044

RESUMO

INTRODUCTION: Besides affecting physical health, Oropharyngeal Dysphagia (OD) entails limitations in daily activities and social participation for both patients and their informal caregivers. The identification of OD-related needs is crucial for designing appropriate person-centered interventions. AIMS: To explore and map the literature investigating the care needs related to OD management of adult persons with OD and their informal caregivers during the last 20 years. METHODS: A scoping review was conducted and reported following PRISMA guidelines. Five electronic databases and reference lists of eligible publications were searched for original works in English or Italian, published between January 2000 and February 2021. Two independent raters assessed studies' eligibility and extracted data; a third rater resolved disagreements. Extracted care needs were analyzed using a Best fit framework synthesis approach. RESULTS: Out of 2,534 records preliminarily identified, 15 studies were included in the review and 266 care needs were extracted. All studies were conducted in Western countries. Research methods primarily consisted of qualitative interviews and focus groups (14 studies, 93.3%); head and neck cancer was the most frequent cause of patients' dysphagia (8 studies, 53.3%); caregivers' perspective was seldom investigated (5 studies, 33.3%). Both patients and caregivers primarily reported social (N = 77; 28.9%) and practical (N = 67; 25.2%) needs, followed by informational (N = 55; 20.7%) and psychological (N = 54; 20.3%) ones. Only patients reported physical needs (N = 13; 4.9%), while spiritual needs were not cited. CONCLUSIONS: The recurrence of personal and social needs besides physical ones highlighted the manifold impact of OD on patients' and caregivers' lives. Larger and more focused studies are required in order to design tools and interventions tailored to patients' and caregivers' needs.


Assuntos
Cuidadores/psicologia , Transtornos de Deglutição/psicologia , Grupos Focais , Humanos , Assistência Centrada no Paciente , Pesquisa Qualitativa
6.
Nutrients ; 13(4)2021 Mar 29.
Artigo em Inglês | MEDLINE | ID: mdl-33805263

RESUMO

BACKGROUND: In older people with psychoneurological diseases, COVID-19 infection may be associated with a risk of developing or exacerbating dysphagia. The aim of the present study was to examine the relationship between eating/swallowing function and COVID-19 infection. METHODS: Subjects were 44 inpatients with confirmed COVID-19 infection being treated for schizophrenia in a psychiatric ward. Eating function was assessed using the Food Intake Level Scale (FILS) before and after infection. We also evaluated age, comorbidities, COVID-19 hospital stay, obesity index, weight loss rate, and chlorpromazine equivalent. RESULTS: Subjects had a mean age of 68.86 years. Pre-infection, 20 subjects had a FILS score of 7-9 (presence of eating/swallowing disorder) and 24 subjects had a score of 10 (normal). Eating function after infection resolution showed decreasing FILS score compared to that before infection in 14 subjects (74.14 years). Six subjects (79.3 years) transitioned from oral feeding to parenteral feeding. A ≥ 10% weight loss during infection treatment was significantly associated with decreased eating function and a transition to parenteral feeding. Chlorpromazine equivalents, comorbidities, and number of days of hospitalization showed no associations with decreased eating function. CONCLUSIONS: Preventing malnutrition during treatment for COVID-19 infection is important for improving post-infection life prognosis and maintaining quality of life (QOL).


Assuntos
COVID-19/complicações , Transtornos de Deglutição/etiologia , Transtornos da Alimentação e da Ingestão de Alimentos/etiologia , Esquizofrenia/complicações , Redução de Peso , Idoso , COVID-19/fisiopatologia , COVID-19/psicologia , Transtornos de Deglutição/fisiopatologia , Transtornos de Deglutição/psicologia , Ingestão de Alimentos/fisiologia , Ingestão de Alimentos/psicologia , Transtornos da Alimentação e da Ingestão de Alimentos/fisiopatologia , Transtornos da Alimentação e da Ingestão de Alimentos/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estado Nutricional , Esquizofrenia/virologia
7.
Asian J Surg ; 44(1): 158-163, 2021 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-32423838

RESUMO

BACKGROUND: To evaluate the clinical outcomes and satisfaction of patients following laparoscopic Heller myotomy for achalasia cardia in four tertiary centers. METHODS: Fifty-five patients with achalasia cardia who underwent laparoscopic Heller myotomy between 2010 and 2019 were enrolled. The adverse events and clinical outcomes were analyzed. Overall patient satisfaction was also reviewed. RESULTS: The mean operative time was 144.1 ± 38.33 min with no conversions to open surgery in this series. Intraoperative adverse events occurred in 7 (12.7%) patients including oesophageal mucosal perforation (n = 4), superficial liver injury (n = 1), minor bleeding from gastro-oesophageal fat pad (n = 1) & aspiration during induction requiring bronchoscopy (n = 1). Mean time to normal diet intake was 3.2 ± 2.20 days. Mean postoperative stay was 4.9 ± 4.30 days and majority of patients (n = 46; 83.6%) returned to normal daily activities within 2 weeks after surgery. The mean follow-up duration was 18.8 ± 13.56 months. Overall, clinical success (Eckardt ≤ 3) was achieved in all 55 (100%) patients, with significant improvements observed in all elements of the Eckardt score. Thirty-seven (67.3%) patients had complete resolution of dysphagia while the remaining 18 (32.7%) patients had some occasional dysphagia that was tolerable and did not require re-intervention. Nevertheless, all patients reported either very satisfied or satisfied and would recommend the procedure to another person. CONCLUSIONS: Laparoscopic Heller myotomy and anterior Dor is both safe and effective as a definitive treatment for treating achalasia cardia. It does have a low rate of oesophageal perforation but overall has a high degree of patient satisfaction with minimal complications.


Assuntos
Acalasia Esofágica/cirurgia , Miotomia de Heller/métodos , Laparoscopia/métodos , Satisfação do Paciente/estatística & dados numéricos , Adulto , Idoso , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/psicologia , Transtornos de Deglutição/cirurgia , Acalasia Esofágica/complicações , Acalasia Esofágica/psicologia , Perfuração Esofágica/epidemiologia , Perfuração Esofágica/etiologia , Feminino , Seguimentos , Miotomia de Heller/efeitos adversos , Miotomia de Heller/psicologia , Humanos , Complicações Intraoperatórias/epidemiologia , Complicações Intraoperatórias/etiologia , Laparoscopia/efeitos adversos , Laparoscopia/psicologia , Malásia/epidemiologia , Masculino , Pessoa de Meia-Idade , Segurança , Centros de Atenção Terciária/estatística & dados numéricos , Fatores de Tempo , Resultado do Tratamento
8.
Audiol., Commun. res ; 26: e2351, 2021. tab, graf
Artigo em Português | LILACS | ID: biblio-1249000

RESUMO

RESUMO Objetivo Verificar a associação do letramento funcional em saúde de adultos e idosos com disfagia com os dados socioeconômicos, clínicos e de habilidade de deglutição, de acordo com o rastreio cognitivo. Métodos Estudo observacional analítico transversal, com 49 participantes com disfagia de um ambulatório de reabilitação. Os procedimentos para coleta de dados foram análise dos prontuários, Critério de Classificação Econômica Brasil, Mini Exame do Estado Mental, Short Assessment of Health Literacy for Portuguese-speaking Adults, Protocolo Fonoaudiológico de Avaliação do Risco para Disfagia, Functional Oral Intake Scale e Índice de Desvantagem da Disfagia. Foram realizadas análises descritiva, bivariada e regressão logística múltipla. Resultados A maioria dos participantes apresentou letramento funcional em saúde inadequado, doença neurológica, escore superior no rastreio cognitivo, disfagia leve e moderada e alimentava-se por via oral, com restrições. Houve associação na regressão logística múltipla do letramento funcional em saúde com a escolaridade e a doença de base para o grupo com escore superior, no rastreio cognitivo. Os participantes com maior escolaridade apresentaram 11,9 mais chances de ter letramento funcional em saúde adequado; os participantes neurológicos demonstraram 93,0 vezes mais chances de apresentar o letramento em saúde inadequado. Conclusão Indivíduos com maior escolaridade e aqueles que não apresentavam doença neurológica demonstraram menos chance de ter letramento funcional em saúde inadequado.


ABSTRACT Purpose To verify the association between Functional Health Literacy in adults and elderly with dysphagia and socioeconomic, clinical, and swallowing ability data according to cognitive screening. Methods Observational analytical cross-sectional study with 49 participants in a rehabilitation clinic. We analyzed medical records, Brazil Economic Classification Criteria, Mini Mental State Examination, Short Assessment of Health Literacy for Portuguese-speaking Adults, Speech Therapy Protocol for Dysphagia Risk Assessment, Functional Oral Intake Scale, and Dysphagia Handicap Index. Descriptive, bivariate, and multiple logistic regression analyzes were performed. Results Most participants presented functional literacy in inadequate health, neurological disease, higher score on cognitive performance, mild and moderate dysphagia, and were fed orally with restrictions. There was an association in the multiple logistic regression of functional health literacy with schooling and underlying disease for the group with a higher score on cognitive performance, participants with higher education were 11.9 more likely to have adequate health literacy, neurological participants demonstrated 93.0 times more likely to have inadequate health literacy. Conclusion Individuals with a higher level of education and those who did not have underlying neurological disease sowed less chance of having inadequate Functional Health Literacy.


Assuntos
Humanos , Adulto , Idoso , Fatores Socioeconômicos , Transtornos de Deglutição/psicologia , Fonoaudiologia , Letramento em Saúde , Estudos Transversais , Escolaridade , Estudo Observacional
9.
Health Qual Life Outcomes ; 18(1): 316, 2020 Sep 25.
Artigo em Inglês | MEDLINE | ID: mdl-32977815

RESUMO

BACKGROUND: The aim of this study was to adapt the instrument and evaluate the psychometric properties of the Swedish version of the Swallowing Quality of Care questionnaire (S-SWAL-CARE) in patients with oropharyngeal dysphagia. METHODS: Translation and adaptation of the original SWAL-CARE into Swedish was performed according to established international guidelines. Field testing was performed using 100 patients with oropharyngeal dysphagia due to multiple reasons such as head and neck cancer and neurologic/neuromuscular disease, who had undergone swallowing evaluation within 6 months prior to the study. The patients answered the S-SWAL-CARE, the Quality from the Patient's Perspective (QPP) and the Swallowing Quality of Life (SWAL-QOL). Test-retest was performed in 20% of the participants. The reliability and validity of the S-SWAL-CARE were assessed by Pearson correlation coefficient and Cronbach's alpha as well as convergent and discriminative validity, respectively. RESULTS: The field testing of the S-SWAL-CARE resulted in sufficient reliability, with Cronbach's alpha values exceeding 0.90 for all domains. All items correlated strongly to their own domain, with weaker correlations to the other domains, indicating proper scale structure. Results also indicate sufficient convergent and discriminant validity when tested for association to the QPP domains and the SWAL-QOL Total score. The test-retest reliability of the S-SWAL-CARE demonstrated sufficient intraclass correlation coefficient (ICC) for the General advice domain (0.73) and Clinical advice domain (0.82). The ICC for the Patient satisfaction domain was lower (0.44). CONCLUSION: The S-SWAL-CARE can be considered a reliable and valid tool to assess the dysphagia-related quality of care in a mixed Swedish dysphagia patient population.


Assuntos
Transtornos de Deglutição/psicologia , Qualidade de Vida , Inquéritos e Questionários/normas , Adulto , Idoso , Idoso de 80 Anos ou mais , Transtornos de Deglutição/terapia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Satisfação do Paciente , Psicometria/instrumentação , Qualidade da Assistência à Saúde/normas , Reprodutibilidade dos Testes , Suécia , Traduções
10.
Dysphagia ; 35(2): 314-320, 2020 04.
Artigo em Inglês | MEDLINE | ID: mdl-31264004

RESUMO

Neurological impairment is an important cause of dysphagia. This study analyzed whether quality of life (QoL) is improved after coblation-assisted endoscopic cricopharyngeal myotomy (CAECPM) for patients with persistent neurological dysphagia who meet the criteria by using the Chinese version of the Swallow Quality-of-Life Questionnaire (CSWAL-QOL). 22 patients with dysphagia for more than 6 months after stroke or lateral skull base surgery were screened. All patients exhibited a poor response to conservative treatment such as swallowing rehabilitation. Videofluoroscopic swallowing studies (VFSS) showed a restricted cricopharyngeal opening. The preoperative CSWAL-QOL score was 377.7 (311.3-493.0) out of 1000; the postoperative score was 641.7 (293.7-758.3) out of 1000; the preoperative median dysphagia frequency was 41.4 (25.7-61.4) out of 100; and the postoperative median score was 64.3 (24.3-80.0). A significant difference was found between preoperative and postoperative scores together with dysphagia frequency (P < 0.05). Among all the variables, laryngeal elevation ability was statistically significantly correlated with efficacy of CAECPM (P = 0.01). These values indicate that quality of life could be improved after CAECPM for patients with persistent neurological dysphagia, who have cricopharyngeal achalasia. The ability of laryngeal elevation has significant influence. The CSWAL-QOL can be used to assess different aspects of the swallow-related quality of life of these patients.


Assuntos
Transtornos de Deglutição/psicologia , Esfíncter Esofágico Superior/cirurgia , Miotomia/psicologia , Doenças do Sistema Nervoso/psicologia , Qualidade de Vida/psicologia , Idoso , Cinerradiografia , Deglutição , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/cirurgia , Endoscopia/métodos , Endoscopia/psicologia , Esfíncter Esofágico Superior/inervação , Feminino , Humanos , Laringe/cirurgia , Masculino , Pessoa de Meia-Idade , Miotomia/métodos , Doenças do Sistema Nervoso/etiologia , Doenças do Sistema Nervoso/cirurgia , Período Pós-Operatório , Período Pré-Operatório , Estudos Retrospectivos , Inquéritos e Questionários/normas , Resultado do Tratamento
11.
Dysphagia ; 35(1): 52-65, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-30887116

RESUMO

Dysphagia is a very common symptom in people of advanced age and with neurological diseases, although it often remains undiagnosed. At present, there are few assessment tools adapted for the Spanish-speaking population; of the few existing, most of them follow a self-reporting format, which requires a well-preserved cognitive state in the patient in order to be tested. Therefore, the main aim of this study was to design and validate an instrument for screening dysphagia without food, which could have a quick application and did not compromise the patient's safety. A secondary aim was to study the test's ability to examine this symptom in people with cognitive disorders. The study was carried out with 206 participants divided into three groups: people with dysphagia and with preserved cognitive abilities, people with dysphagia and with altered cognitive abilities, and people without dysphagia and with preserved cognitive skills (control group). Participants were assessed with the designed Oropharyngeal Dysphagia Screening Test for Patients and Professionals and other dysphagia tests. The results revealed appropriate psychometric features: reliability and validity both for screening dysphagia directly with the patients or if the tester is the professional caregiver responsible for feeding (in cases of altered cognitive abilities). As conclusion, the Oropharyngeal Dysphagia Screening Test for Patients and Professionals is an instrument of easy use and of short duration that has shown adequate results of reliability and validity, thus being useful for the screening of dysphagia in Spanish-speaking populations.


Assuntos
Disfunção Cognitiva/psicologia , Transtornos de Deglutição/diagnóstico , Programas de Rastreamento/normas , Doenças do Sistema Nervoso/psicologia , Avaliação de Sintomas/normas , Idoso , Idoso de 80 Anos ou mais , Disfunção Cognitiva/complicações , Transtornos de Deglutição/psicologia , Feminino , Humanos , Idioma , Masculino , Programas de Rastreamento/métodos , Programas de Rastreamento/psicologia , Doenças do Sistema Nervoso/complicações , Psicometria , Reprodutibilidade dos Testes , Avaliação de Sintomas/métodos , Avaliação de Sintomas/psicologia
12.
Dysphagia ; 35(4): 702-716, 2020 08.
Artigo em Inglês | MEDLINE | ID: mdl-31748827

RESUMO

Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients' perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients' perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.


Assuntos
Transtornos de Deglutição/psicologia , Neoplasias de Cabeça e Pescoço/psicologia , Terapia Miofuncional/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Idoso , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/reabilitação , Feminino , Neoplasias de Cabeça e Pescoço/complicações , Humanos , Masculino , Pessoa de Meia-Idade , Motivação , Pesquisa Qualitativa , Resiliência Psicológica , Apoio Social
13.
Rev. bras. enferm ; 73(2): e20180360, 2020.
Artigo em Inglês | LILACS, BDENF | ID: biblio-1098768

RESUMO

ABSTRACT Objectives: to understand the psychosocial repercussions experienced by caregiving parents, resulting from care for the child with dysphagic cleft lip and palate. Methods: qualitative study, developed in a tertiary hospital in September 2016. The sample defined by theoretical saturation consisted of seven mothers. Data collection was performed by unstructured interview, being audio-recorded and fully transcribed. Symbolic Interactionism was used as theoretical framework, and Thematic Content Analysis as methodological framework. Results: the following themes emerged: diagnosisimpact and coping; coping with overload and stress; interaction between caregivers as an acceptance and coping strategy; impact on family and social life of caregivers; and curiosity coping, and family and community prejudice. Final considerations: despite the physical and emotional overload, the mother figure plays the main and determining role in care, reflecting the complexity of care.


RESUMEN Objetivos: comprender las repercusiones psicosociales experimentadas por los padres cuidadores, como resultado del cuidado del niño con labio leporino y paladar hendido disfagico. Métodos: estudio cualitativo, desarrollado en un hospital terciario en septiembre de 2016. La muestra definida por saturación teórica consistió en siete madres. La recopilación de datos se realizó mediante entrevista no estructurada, grabada en audio y totalmente transcrita. Se utilizó como referencia teórica el interaccionismo simbólico y como referencia metodológica, el análisis de contenido temático. Resultados: se aclararon cinco categorías: impacto y afrontamiento del diagnóstico; hacer frente a la sobrecarga y el estrés; interacción entre cuidadores como una estrategia de aceptación y afrontamiento; impacto en la vida familiar y social de los cuidadores; y afrontamiento de curiosidad y prejuicio familiar y comunitario. Consideraciones finales: a pesar de la sobrecarga física y emocional, la figura materna desempeña el papel principal y determinante en la atención, lo que refleja la complejidad del proceso de lo cuidado.


RESUMO Objetivos: compreender as repercussões psicossociais vivenciadas por pais cuidadores, decorrentes do cuidado do filho com fissura labiopalatina, disfágico e em uso de sonda alimentadora. Métodos: estudo qualitativo, desenvolvido em um hospital terciário em setembro de 2016. A amostra definida por saturação teórica constou sete mães. A coleta de dados foi realizada por entrevista não estruturada, audiogravada e transcrita na íntegra. Utilizou-se como referencial teórico o Interacionismo Simbólico e como referencial metodológico, a Análise de Conteúdo Temática. Resultados: foram elucidadas cinco categorias: impacto e enfrentamento do diagnóstico; enfrentamento da sobrecarga e o estresse; interação entre cuidadores como estratégia de aceitação e enfrentamento; impacto no convívio familiar e social dos cuidadores; e enfrentamento da curiosidade e o preconceito familiar e comunitário. Considerações finais: apesar da sobrecarga física e emocional, a figura materna exerce o papel principal e determinante no cuidado, refletindo a complexidade do processo de cuidar.


Assuntos
Adulto , Feminino , Humanos , Lactente , Masculino , Poder Familiar/psicologia , Nutrição Enteral/psicologia , Pais/psicologia , Adaptação Psicológica , Transtornos de Deglutição/dietoterapia , Transtornos de Deglutição/psicologia , Entrevistas como Assunto/métodos , Inquéritos e Questionários , Cuidadores/psicologia , Nutrição Enteral/enfermagem , Pesquisa Qualitativa
14.
Head Neck ; 41(11): 3880-3894, 2019 11.
Artigo em Inglês | MEDLINE | ID: mdl-31441572

RESUMO

BACKGROUND: The purpose of this study was to quantify the association of late lower cranial neuropathy (late LCNP) with swallowing-related quality of life (QOL) and functional status among long-term oropharyngeal cancer (OPC) survivors. METHODS: Eight hundred eighty-nine OPC survivors (median survival time: 7 years) who received primary treatment at a single institution between January 2000 and December 2013 completed a cross-sectional survey (56% response rate) that included the MD Anderson Dysphagia Inventory (MDADI) and self-report of functional status. Late LCNP events ≥3 months after cancer therapy were abstracted from medical records. Multivariate models regressed MDADI scores on late LCNP status adjusting for clinical covariates. RESULTS: Overall, 4.0% (n = 36) of respondents developed late LCNP with median time to onset of 5.25 years post-treatment. LCNP cases reported significantly worse mean composite MDADI (LCNP: 68.0 vs no LCNP: 80.2; P < .001). Late LCNP independently associated with worse mean composite MDADI (ß = -6.7, P = .02; 95% confidence interval [CI], -12.0 to -1.3) as well as all MDADI domains after multivariate adjustment. LCNP cases were more likely to have a feeding tube at time of survey (odds ratio [OR] = 20.5; 95% CI, 8.6-48.9), history of aspiration pneumonia (OR = 23.5; 95% CI, 9.6-57.6), and tracheostomy (OR = 26.9; 95% CI, 6.0-121.7). CONCLUSIONS: In this large survey study, OPC survivors with late LCNP reported significantly poorer swallowing-related QOL and had significantly higher likelihood of poor functional status. Further efforts are necessary to optimize swallowing outcomes to improve QOL in this subgroup of survivors.


Assuntos
Sobreviventes de Câncer/psicologia , Doenças dos Nervos Cranianos/epidemiologia , Transtornos de Deglutição/epidemiologia , Transtornos de Deglutição/psicologia , Neoplasias Orofaríngeas/complicações , Qualidade de Vida , Adulto , Idoso , Idoso de 80 Anos ou mais , Doenças dos Nervos Cranianos/psicologia , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias Orofaríngeas/psicologia , Neoplasias Orofaríngeas/terapia , Fatores de Risco , Inquéritos e Questionários , Fatores de Tempo
15.
Eur Arch Otorhinolaryngol ; 276(10): 2661-2671, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31414222

RESUMO

OBJECTIVE: Dysphagia after uncomplicated thyroidectomy is commonly reported and it includes a broad spectrum of swallowing complaints. Though various causes have been hypothesized, it remains not completely understood. METHODS: A systematic review was performed to identify studies concerning dysphagia post uncomplicated thyroid surgery. A qualitative analysis of data extracted was conducted. RESULTS: We have included 16 studies of which 15 are prospective and one are retrospective. The number of subjects varied from 12 to 254, the mean age from 39 to 54 years with an overall prevalence of females. The duration of the follow-up ranges from 1 month to 4 years. All the included trials documented postoperative dysphagia, 12 of which have detected it in the early postoperative period. Considering long-term follow-up period, 12 studies reported an overall improvement of swallow symptoms. The instrumental findings revealed non-specific alterations of swallowing. CONCLUSIONS: Dysphagia after uncomplicated thyroidectomy can arise early in the postoperative period resolving spontaneously in the first year. Diagnostic methods failed to identify the physio pathological mechanism of swallow alteration leaving this condition still unclear. Since these symptoms can reduce patient's quality of life, we suggest an appropriate education before thyroid surgery.


Assuntos
Transtornos de Deglutição , Complicações Pós-Operatórias , Qualidade de Vida , Tireoidectomia , Transtornos de Deglutição/diagnóstico , Transtornos de Deglutição/epidemiologia , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Complicações Pós-Operatórias/diagnóstico , Complicações Pós-Operatórias/epidemiologia , Complicações Pós-Operatórias/fisiopatologia , Complicações Pós-Operatórias/psicologia , Prevalência , Remissão Espontânea , Tireoidectomia/efeitos adversos , Tireoidectomia/métodos
16.
J Pain Symptom Manage ; 58(6): 949-958.e2, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31445137

RESUMO

CONTEXT: Dysphagia is usually associated with malignancies of the head, neck, and upper gastrointestinal tract but also occurs in those with tumors outside anatomic swallow regions. It can lead to aspiration pneumonia, malnutrition, reduced quality of life, and psychosocial distress. No studies have yet reliably described dysphagia prevalence in those with malignancies outside anatomic swallow regions. OBJECTIVE: The objective of this study was to establish the prevalence and predictors of dysphagia in adults with solid malignancies outside the head, neck, and upper gastrointestinal tract. METHODS: A cross-sectional, observational study using consecutive sampling was conducted. There were 385 participants (mean age 66 ± 12 years) with 21 different primary cancer sites from two acute hospitals and one hospice. Locoregional disease was present in 33%, metastatic in 67%. Dysphagia was screened by empirical questionnaire and confirmed through swallow evaluation. Demographic and clinical predictors were determined by univariate and multivariate binary regression. RESULTS: Dysphagia occurred in 19% of those with malignancies outside anatomic swallow regions. Prevalence was 30% in palliative care and 32% in hospice care. Dysphagia was most strongly associated with cough, nausea, and worse performance status. It was also associated with lower quality of life and nutritional difficulties. CONCLUSION: Dysphagia was common and usually undiagnosed before study participation. It occurred at all disease stages but coincided with functional decline. It may therefore represent a cancer frailty marker. Oncology and palliative care services should routinely screen for this symptom. Timely dysphagia identification and management may improve patient well-being and prevent adverse effects like aspiration pneumonia and weight loss.


Assuntos
Transtornos de Deglutição/epidemiologia , Transtornos de Deglutição/etiologia , Neoplasias/diagnóstico , Neoplasias/epidemiologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Estudos Transversais , Deglutição , Transtornos de Deglutição/psicologia , Feminino , Neoplasias Gastrointestinais , Neoplasias de Cabeça e Pescoço , Hospitais para Doentes Terminais , Humanos , Masculino , Desnutrição/epidemiologia , Desnutrição/etiologia , Pessoa de Meia-Idade , Neoplasias/psicologia , Cuidados Paliativos , Valor Preditivo dos Testes , Prevalência , Qualidade de Vida , Inquéritos e Questionários , Trato Gastrointestinal Superior
17.
Health Qual Life Outcomes ; 17(1): 132, 2019 Jul 26.
Artigo em Inglês | MEDLINE | ID: mdl-31349839

RESUMO

BACKGROUND: Swallowing function and swallowing-related quality of life (QoL) can be adversely affected in patients after partial laryngectomy, but are often neglected by patients and clinical workers. This study aimed to investigate the degree of swallowing function and swallowing-related QoL after partial laryngectomy in patients with laryngeal carcinoma. METHODS: Sixty-eight hospitalized patients undergoing partial laryngectomy due to laryngeal carcinoma at the Second Affiliated Hospital of Xi'an Jiao Tong University were included in this prospective study. A general information questionnaire was used to collect baseline characteristics. The water swallow test and swallowing quality of life questionnaire (SWAL-QOL) were carried out the day before surgery and at 2, 4, 12, 24 and 48 weeks after surgery. RESULTS: Swallowing dysfunction occurred in 1 case (1.5%) the day before surgery and in 49 (72.1%), 44 (64.7%), 33 (49.3%), 19 (28.4%) and 8 (11.9%) cases at 2, 4, 12, 24 and 48 weeks after surgery, respectively. Mean SWAL-QOL total scores were 4266.3 ± 232.0 the day before surgery, and 1992.9 ± 1062.4, 2473.9 ± 962.9, 3169.2 ± 753.6, 3696.7 ± 718.3 and 3910.8 ± 1510.4 at 2, 4, 12, 24 and 48 weeks, respectively. SWAL-QOL total scores increased gradually after operation, and the differences were statistically significant (P < 0.05). There was no statistical difference between postoperative 24 and 48 weeks (P = 0.379). CONCLUSIONS: Partial laryngectomy affects swallowing function and swallowing-related QoL in patients with laryngeal carcinoma. While swallowing function and swallowing-related QoL increase gradually over time, in some patients, nearly a year after surgery they are not fully restored. Therefore, attention should be paid during postoperative nursing to improve swallowing function.


Assuntos
Transtornos de Deglutição/psicologia , Laringectomia/efeitos adversos , Qualidade de Vida , Idoso , China , Deglutição/fisiologia , Transtornos de Deglutição/epidemiologia , Transtornos de Deglutição/etiologia , Feminino , Humanos , Neoplasias Laríngeas/cirurgia , Masculino , Pessoa de Meia-Idade , Período Pós-Operatório , Estudos Prospectivos , Inquéritos e Questionários , Fatores de Tempo
18.
Pflege ; 32(4): 201-207, 2019 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-31157593

RESUMO

Nurse-performed screening to identify dysphagia for neurological patients Abstract. Background: Dysphagia is often underestimated, although it can have serious consequences if it is not treated. In the literature a multidisciplinary approach is often recommended in the diagnosis of dysphagia, with care playing an increasingly major role. A quick and easy assessment of the risk of dysphagia is absolutely essential. Aim: Identification of screening tools for the detection of neurogenic dysphagia by nurses and to describe the psychometric characteristics. Method: A literature review was carried out in 2017 between June and the end of July, resulting in 14 included studies. Results: A total of seven screening tools were identified. Due to its good practicability and psychometric properties, the RBWH DST appears to be particularly suitable for the use of screening in the nursing context, especially when the studies are given differentiated consideration. Conclusion: The relevant validation of already existing tools, aimed at creating a standard for the early detection of dysphagia, is not yet available. When this is concluded, the nursing staff need to be trained in the correct use of the tools.


Assuntos
Transtornos de Deglutição/enfermagem , Programas de Rastreamento/enfermagem , Doenças do Sistema Nervoso/complicações , Diagnóstico de Enfermagem , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/psicologia , Humanos , Psicometria
19.
J Clin Nurs ; 28(19-20): 3441-3450, 2019 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-31162849

RESUMO

AIM: To explore symptom clusters experienced by patients with oesophageal cancer 3 months after surgery and examine whether symptom clusters are related to demographic, clinical and quality of life variables. BACKGROUND: There are multiple symptoms in patients with oesophageal cancer after surgery, which seriously affect their quality of life. Exploring the mechanics of concurrent symptoms such as symptom clusters may facilitate the development of strategies to reduce the impact of these symptoms and improve quality of life. DESIGN: Cross-sectional survey. The STROBE Statement was chosen as the EQUATOR checklist. METHODS: A convenience sample of 128 oesophageal cancer patients was followed up at 3 months after surgery. Participants completed the demographic questionnaire, the M. D. Anderson Symptom Inventory for Gastrointestinal Cancer, the Functional Assessment of Cancer Therapy-General and the Connor-Davidson Resilience Scale. Exploratory factor analysis, stepwise regression and correlation analysis were applied. RESULTS: Four symptom clusters were identified: dysphagia-psychological, chemoradiotherapy side-effect, digestive tract reconstruction and fatigue-sleep. Gender, stage of disease and resilience influenced the dysphagia-psychological symptom cluster. Gender, stage of disease, resilience and treatment were significant factors affecting the chemoradiotherapy side-effect and fatigue-sleep symptom clusters. Gender, stage of disease, resilience and anastomotic position were significant factors influencing the digestive tract reconstruction symptom cluster. The correlations between symptom clusters and quality of life were significant, with the highest correlation between the dysphagia-psychological cluster and quality of life. CONCLUSIONS: Nurses should pay more attention to symptom management in patients with oesophageal cancer 3 months after surgery by focusing on four symptom clusters. It is necessary to implement individualised care depending on the influence factors including gender, stage of disease, resilience, treatment and anastomotic position. RELEVANCE TO CLINICAL PRACTICE: These findings will help develop targeted interventions to facilitate further symptom management for transitional nursing from the peri-operative phase to long-term rehabilitation.


Assuntos
Neoplasias Esofágicas/enfermagem , Neoplasias Esofágicas/cirurgia , Qualidade de Vida , Adulto , Idoso , Estudos Transversais , Transtornos de Deglutição/etiologia , Transtornos de Deglutição/enfermagem , Transtornos de Deglutição/psicologia , Neoplasias Esofágicas/psicologia , Análise Fatorial , Fadiga/etiologia , Fadiga/enfermagem , Fadiga/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Período Pós-Operatório , Procedimentos de Cirurgia Plástica/efeitos adversos , Procedimentos de Cirurgia Plástica/enfermagem , Procedimentos de Cirurgia Plástica/psicologia , Inquéritos e Questionários , Síndrome , Adulto Jovem
20.
Georgian Med News ; (287): 7-12, 2019 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-30958280

RESUMO

The aim of this study is to evaluate outcomes of Nissen-Rossetti fundoplication in-terms of objective measures and quality of life evaluation instruments. For the period in observation, the chronic GERD patients, who had undergone LNRF surgery, were evaluated. The long-term outcome was assessed by subjectively comparing the preoperative and postoperative symptoms and Gastroesophageal reflux-Health related quality of life index. As an objective assessment of the pathological reflux, patients underwent 24-hour pH monitoring in the preoperative and postoperative period. Thirty-two patients, who met the criteria and volunteered to participate, were included in the study. The median postoperative follow-up period for the patients was 28±7.92 (16-52) months. A significant increase was observed in the quality of life scores in the postoperative period when compared to the preoperative period (p=0.001) and the DeMeester scores have decreased significantly (p=0.001). The postoperative dysphagia was observed even in the long term in most of the patients, without having a significant effect on the quality of life. In the treatment of gastroesophageal reflux disease, laparoscopic Nissen Rossetti fundoplication is an effective and successful method in achieving the desired outcome such as preventing pathological reflux, relieving the symptoms and improving the quality of life in the long term.


Assuntos
Transtornos de Deglutição/psicologia , Transtornos de Deglutição/cirurgia , Fundoplicatura/métodos , Refluxo Gastroesofágico/psicologia , Refluxo Gastroesofágico/cirurgia , Laparoscopia/métodos , Qualidade de Vida/psicologia , Adulto , Transtornos de Deglutição/etiologia , Feminino , Seguimentos , Fundoplicatura/efeitos adversos , Refluxo Gastroesofágico/complicações , Refluxo Gastroesofágico/diagnóstico , Humanos , Masculino , Resultado do Tratamento
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