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1.
J Pediatr Surg ; 59(7): 1315-1318, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38614949

RESUMO

BACKGROUND: Low health literacy (HL) has been associated with poor health outcomes in children. Optimal recovery after pediatric injury requires caregiver participation in complicated rehabilitative and medical aftercare. We aimed to quantify HL among guardians of injured children and identify factors associated with low HL of guardians. METHODS: A prospective observational cohort study was conducted to evaluate the HL using the Newest Vital Sign™ of guardians of injured children (≤18 years) admitted to a level 1 pediatric trauma center. Patient and guardian characteristics were compared across levels of HL using univariate statistics. We conducted multivariable logistic regression to identify factors independently-associated with low HL. RESULTS: A sample of 95 guardian-child dyads were enrolled. The majority of guardians had low HL (n = 52, 55%), followed by moderate HL (n = 36, 38%) and high HL (n = 7, 7%). Many families received public benefits (n = 47, 49%) and 12 guardians (13%) had both housing and employment insecurity. Guardians with low HL were significantly more likely to have insecure housing and not have completed any college. CONCLUSION: The majority of injured children had a primary guardian with low HL. Pediatric trauma centers should consider screening for low HL to ensure that families have adequate post-discharge support. LEVEL OF EVIDENCE: Level 3.


Assuntos
Letramento em Saúde , Centros de Traumatologia , Ferimentos e Lesões , Humanos , Estudos Prospectivos , Letramento em Saúde/estatística & dados numéricos , Criança , Feminino , Centros de Traumatologia/estatística & dados numéricos , Masculino , Ferimentos e Lesões/psicologia , Adolescente , Pré-Escolar , Adulto , Tutores Legais/psicologia , Lactente
2.
PLoS One ; 16(5): e0250570, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33983948

RESUMO

Iodine thyroid blocking (ITB) is effective for preventing childhood thyroid cancer when radioactive iodine is released into the environment during a nuclear power plant accident. Japan employs the pre-distribution of stable iodine (PDSI) to residents living near nuclear power plants; however, the number of residents who have actually received stable iodine to date remains limited. The aim of this study was to evaluate the profile of guardians of children living around the Genkai Nuclear Power Plant (GNPP) in Japan. We distributed self-administered questionnaires regarding perception of risks associated with administration of stable iodide to approximated 400 guardians of children aged 0-6 in 10 kindergartens located in four municipalities. We obtained responses from 286 guardians, and after excluding invalid responses, 247 were included in the analysis. Logistic regression analysis revealed that living within 5 km of the GNPP (odds ratio [OR] = 4.48, 95% confidence interval [CI]: 2.43-8.24), awareness of preferential implementation of ITB to children (OR = 3.33, 95%CI: 1.78-6.22), and awareness of the prophylaxis booklet published by the local government (OR = 2.53, 95%CI: 1.37-4.68) were independently associated with PDSI for children. The main reasons for not receiving PDSI were "anxiety about the side effects of stable iodine" (40.2%), "distrust of the effectiveness of SI" (23.5%), "complicated procedures for receiving stable iodine" (15.7%) and "missed the date for receiving stable iodine" (8.8%). In the case of ITB implementation during a nuclear emergency, it is necessary to clarify the risk perceptions of guardians and adapt risk communication accordingly.


Assuntos
Radioisótopos do Iodo/efeitos adversos , Iodo/uso terapêutico , Tutores Legais/psicologia , Neoplasias Induzidas por Radiação/prevenção & controle , Centrais Nucleares/normas , Percepção/fisiologia , Neoplasias da Glândula Tireoide/prevenção & controle , Adulto , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Recém-Nascido , Japão , Masculino , Pessoa de Meia-Idade , Neoplasias Induzidas por Radiação/etiologia , Inquéritos e Questionários/estatística & dados numéricos , Neoplasias da Glândula Tireoide/etiologia , Oligoelementos/uso terapêutico
3.
J Pediatr Surg ; 55(4): 590-596, 2020 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-31431293

RESUMO

INTRODUCTION: Although important, parental anxiety, health literacy and need-for-information in pediatric surgery outpatient clinics have not been extensively studied. Lower educational attainments, minorities and lower socioeconomic status have been associated with limited health literacy. Parental anxiety has been related to health literacy, sex, education and information needs. The aim of this study is to investigate health literacy and need-for-information and their association to parental anxiety in consultations of pediatric surgery. MATERIALS & METHODS: We conducted an observational, cross-sectional study in the outpatient pediatric surgery clinic from December 2016 to October 2017. Health literacy, anxiety and need-for-information of parents/guardians of children waiting for pediatric surgical consultation were evaluated. Multivariate regression analysis was used to examine the impact of health literacy and need-for-information on parental/guardian anxiety considering sociodemographic and clinical characteristics of the participants. RESULTS: Almost half (46.1%) of the 664 parents/guardians recruited had limited or problematic health literacy and 79.8% of the sample was classified as being anxious. Parental/guardian anxiety was associated at the multiple regression analysis with parental health literacy level (ß = -0.282, p < 0.001), need-for-information preoperatively (ß = 0.907, p < 0.001), educational level (ß = -0.716, p = 0.001), sex (ß = 1.563, p < 0.001), and severity of the condition of the child (ß = 0.379, p < 0.001). CONCLUSION: Parents/guardians experience high levels of anxiety, which is associated to health literacy and need-for-information. These factors should be considered in pediatric surgical consultations, aiming to reduce parental anxiety. TYPE OF STUDY: Retrospective Study. LEVEL OF EVIDENCE: Level II.


Assuntos
Ansiedade , Letramento em Saúde , Tutores Legais/psicologia , Pais/psicologia , Procedimentos Cirúrgicos Operatórios/psicologia , Procedimentos Cirúrgicos Ambulatórios , Criança , Pré-Escolar , Estudos Transversais , Escolaridade , Feminino , Humanos , Tutores Legais/educação , Masculino , Análise Multivariada , Pais/educação , Pediatria , Encaminhamento e Consulta , Análise de Regressão , Estudos Retrospectivos
4.
Artigo em Japonês | MEDLINE | ID: mdl-31341118

RESUMO

OBJECTIVES: In our previous study in which we aimed to clarify the factors related to salt intake in women aged 40-59 years, salt intake was found to be not related to salt-reduction cognizance. The aim of this research was to clarify factors related to salt intake in those who were cognizant of the importance of reducing their salt intake. METHODS: Two hundred and forty-seven female guardians (effective rate, 32.2%) in a medical university, aged 40-59 years old, participated in this study. The participants were divided into three groups according to their salt-reduction cognizance. RESULTS: There was no significant difference in salt intake between the three groups who were salt-reduction cognizant. Intakes of potassium (mg/1,000 kcal), vegetables, and fruits were higher in those who were cognizant of the importance of reducing their salt intake. The frequencies of consuming stewed foods, miso soup, and vinegared and marinated dishes were also higher. Those who were salt-reduction cognizant were knowledgeable about salt consumption, had experienced making low-salt dishes, used low-sodium seasoning, and made light-tasting dishes by regulating ingredients when cooking. However, when it came to eating, there was no difference in the percentage of those who left most of the broth when eating noodle soups and the frequency with which they added seasoning in terms of salt-reduction cognizance. CONCLUSION: Salt-reduction cognizant women aged 40-59 years made conscious efforts to use less salt at the time of cooking, but made no efforts when eating, even though they were cognizant of the importance of reducing their salt intake.


Assuntos
Estado de Consciência , Dieta Hipossódica/psicologia , Dieta Hipossódica/estatística & dados numéricos , Comportamentos Relacionados com a Saúde , Tutores Legais/psicologia , Cloreto de Sódio na Dieta/administração & dosagem , Estudantes de Medicina , Adulto , Feminino , Frutas , Humanos , Tutores Legais/estatística & dados numéricos , Modelos Logísticos , Pessoa de Meia-Idade , Potássio na Dieta/administração & dosagem , Verduras
5.
Hum Vaccin Immunother ; 15(7-8): 1678-1687, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31170031

RESUMO

Purpose: Despite its availability for more than a decade, the human papillomavirus (HPV) vaccine has low uptake in Texas (49%). The objective of this study was to understand parental knowledge and attitudes about HPV and the HPV vaccine as well as child experience with the HPV vaccine among a medically underserved, economically disadvantaged population. Methods: As part of a Cancer Prevention Research Institute of Texas-funded project to improve HPV vaccination rates, we surveyed parents / guardians of 4th-12th graders (ages 9-17) in the Rio Grande City Consolidated Independent School District (RGCCISD). Descriptive statistics were used to describe parents' knowledge and attitude and children's vaccine experience. Results: Of the 7,055 surveys distributed, 622 (8.8%) were returned. About 84% of the respondents were female. About 57.1% of the parents /guardians had female RGCCISD students with a mean age of 11.7 ± 1.8 years. Overall, 43.9% reported receiving a healthcare provider recommendation and 32.5% had their child vaccinated. Higher percentages were reported if the respondent was female and had a female child aged ≥15 years old. Among survey respondents, 28.2% reported their child initiated the HPV vaccine and 18.8% completed the series. Barriers of uptake included work / school schedule conflicts and no healthcare provider recommendation. Conclusions: There are still prominent gaps in parents' and students' complete understanding of HPV vaccination, gender preferences for vaccination, and provider recommendations. Future interventions must target men and minority populations in order to increase knowledge and awareness about HPV, the HPV vaccine, and HPV-associated cancers.


Assuntos
Conhecimentos, Atitudes e Prática em Saúde , Infecções por Papillomavirus/prevenção & controle , Vacinas contra Papillomavirus/administração & dosagem , Pais/educação , Adolescente , Adulto , Criança , Tomada de Decisões , Feminino , Humanos , Tutores Legais/educação , Tutores Legais/psicologia , Masculino , Pais/psicologia , Aceitação pelo Paciente de Cuidados de Saúde , Pobreza , Pesquisa Qualitativa , Instituições Acadêmicas , Estudantes , Inquéritos e Questionários , Texas , Cobertura Vacinal/estatística & dados numéricos
7.
J Pediatr Surg ; 52(5): 859-863, 2017 May.
Artigo em Inglês | MEDLINE | ID: mdl-28216078

RESUMO

PURPOSE: The purpose of this study was to develop and validate a checklist to standardize surgical informed consent process. METHODS: A checklist was created following a literature search. Consent processes were observed from general surgery (GS) and urology (US) in the pre- and post-intervention phases. Competent patients/guardians were asked to complete a satisfaction questionnaire. All trainees and staff surgeons were interviewed on the checklist's utility. RESULTS: 73 observations (GS=39, US=34) and 66 observations (GS=30, US=36) were made in the pre- and post-intervention phase, respectively. Our checklist increased the frequency with which surgeons explained alternative treatments (pre-intervention 23.3% vs. post-intervention 81.8%), the role of trainees (15.1% vs. 72.7%), and the potential outcomes of not pursuing surgery (60.3% vs. 87.9%). The patient/guardian average satisfaction score increased between phases within GS (mean[standard deviation] 3.55[0.58] vs. 3.85[0.24]); p=0.002), but not within US (3.53[0.61] vs. 3.52[0.54]); p=0.705) or the overall sample (3.54[0.59] vs. 3.67[0.46]); p=0.329). Interestingly, there was no significant improvement in patient/guardian average anxiety levels in GS (X2=0.069, p=0.793), US (X2=0, p=1) or the overall sample (X2=0.143, p=0.706) following the intervention. CONCLUSION: Our checklist aids in standardizing the informed consent process. However, it did not significantly change satisfaction or anxiety levels of patients and guardians. TYPE OF STUDY: Prognosis study. LEVEL OF EVIDENCE: Level III.


Assuntos
Lista de Checagem , Consentimento Livre e Esclarecido/normas , Melhoria de Qualidade , Procedimentos Cirúrgicos Operatórios/normas , Adolescente , Ansiedade/epidemiologia , Ansiedade/etiologia , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Recém-Nascido , Tutores Legais/psicologia , Masculino , Satisfação do Paciente/estatística & dados numéricos , Pediatria/normas , Projetos Piloto , Reprodutibilidade dos Testes , Especialidades Cirúrgicas/normas , Procedimentos Cirúrgicos Operatórios/psicologia , Inquéritos e Questionários
8.
Braz. oral res. (Online) ; 30(1): e14, 2016. tab
Artigo em Inglês | LILACS | ID: biblio-952005

RESUMO

Abstract The aim of the study was to evaluate parental influence on children's answers to an oral health-related quality of life (OHRQoL) questionnaire. A cross-sectional study was conducted with a non-probabilistic sample of 84 pairs of 5-year-olds and parents/guardians. The participants were selected from a primary family healthcare center in Campina Grande, Brazil. First, the children and parents answered respective versions of the Scale of Oral Health Outcomes for Five-Year-Old Children (SOHO-5). Seven days later, the children answered their version of the SOHO-5, without the presence of their parents/guardians, and underwent a clinical exam of dental caries, traumatic dental injury and malocclusion, by a previously calibrated researcher. Statistical analysis involved a comparison of mean scores and the calculation of the intraclass correlation coefficient (ICC). Poisson regression models were used to associate the variables (α = 5%). No significant differences were found between the mean SOHO-5 scores of the children when alone or accompanied by parents/guardians (p > 0.05). The ICC between the answers of the children alone or accompanied was 0.84. White spot (PR = 6.32; 95%CI: 1.36 - 29.40) and cavitated lesions (PR = 9.81; 95%CI: 3.22 - 29.85) had an impact on OHRQoL, according to the children's self-report, whereas cavitated lesions (PR = 90.52; 95%CI: 13.26 - 617.74) and anterior open bite (PR = 1.95; 95%IC: 1.07 - 3.53) remained on the final model, according to the parents' version of the SOHO-5. In conclusion, parents did not influence the children's responses, and dental caries are the oral health problem exerting the greatest impact on the children's OHRQoL.


Assuntos
Humanos , Masculino , Feminino , Pré-Escolar , Relações Pais-Filho , Qualidade de Vida/psicologia , Inquéritos de Saúde Bucal/métodos , Autorrelato , Pais/psicologia , Autoimagem , Brasil , Saúde Bucal , Estudos Transversais , Inquéritos e Questionários , Estatísticas não Paramétricas , Cárie Dentária/psicologia , Tutores Legais/psicologia , Má Oclusão/psicologia
9.
Clin Pediatr (Phila) ; 54(10): 987-91, 2015 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-26045587

RESUMO

INTRODUCTION: Rates of initiation and completion of the human papillomavirus (HPV) vaccine series remain below national goals. Because parents are responsible for ensuring vaccination of their children, we examined the accuracy of parental recall of the number of shots their daughters received. METHODS: Parents/guardians of girls aged 11 to 17 years were asked to recall the number of HPV doses received by their daughters. Dose number was confirmed using provider-verified medical records. Logistic regression assessed variables associated with correct recall. RESULTS: A total of 79 (63%) parents/guardians correctly identified the number of shots their daughters received. Ninety-one (73%) were aware of whether their daughter started the series at all. The only factor significantly associated with accurate recall in logistic regression models was female gender of parent/guardian. CONCLUSION: Nearly 40% of parents/guardians inaccurately recalled the number of HPV shots their children received, which may contribute to low rates of vaccine initiation and completion.


Assuntos
Vacinas contra a AIDS , Rememoração Mental , Pais/psicologia , Vacinação/estatística & dados numéricos , Adolescente , Adulto , Criança , Feminino , Humanos , Esquemas de Imunização , Tutores Legais/psicologia , Masculino , Prontuários Médicos , Pessoa de Meia-Idade
10.
São Paulo; s.n; 2015. 135 p.
Tese em Português | LILACS | ID: biblio-871018

RESUMO

A abertura política do Brasil à democracia promoveu uma série de mudanças legislativas e de organização do Estado. Na área da infância e adolescência, após a promulgação do Estatuto da Criança e do Adolescente (ECA), foram criados conselhos de nível federal, estadual e municipal, com o objetivo de promover e defender os direitos dessa população específica. Também foram formados os Conselhos Tutelares compostos por membros da sociedade civil, diretamente eleitos pela população, com a função de informar e promover esses direitos localmente. Utilizando a metodologia qualitativa-quantitativa do Discurso do Sujeito Coletivo, a pesquisa analisou a percepção e opinião dos conselheiros tutelares a respeito de situações que envolvem a prática sexual voluntária heterossexual e homossexual de adolescentes da faixa etária de 12 a 17 anos. Os dados foram colhidos com o uso de questionários semiestruturados para autopreenchimento, apresentados em visita técnica aos membros dos 44 Conselhos Tutelares do município de São Paulo. Além do perfil social e familiar, foram coletadas opiniões dos conselheiros quanto à autonomia dos adolescentes e suas noções de desrespeito legal, além de sugestões de orientação de condutas frente a três casos hipotéticos de prática sexual realizada por adolescentes. Responderam à pesquisa 80 (36,4 por cento ) conselheiros de um total de 220, de 29 (65,9 por cento ) dos 44 Conselhos Tutelares da cidade. Observou-se que apresentaram tendência a reproduzir os modelos tradicionais negativos da sociedade brasileira no julgamento da prática sexual de adolescentes, avaliando sua ocorrência pela ótica moral e de opinião de familiares e outros adultos


The political opening to democracy in Brazil promoted a series of changes of legislation and state organization. Concerning to the childhood and adolescence, after the promulgation of the Estatuto da Criança e do Adolescente (Statute for Children and Adolescents), councils were created at federal, state and municipal level, to promote and defend the rights of this specific group. The Conselhos Tutelares (Tutelary Councils) were also created, composed by civil society members, directly elected by the population, to inform and promote these rights locally. Using qualitative and qualitative-quantitative methodologies of the Discurso do Sujeito Coletivo (Discourse of the Collective Subject), the research analyzed the perception and the opinion of councilors regarding to situations involving heterosexual and homosexual voluntary sexual practices, among teenagers from 12 to 17 years old. Data were collected with semi-structured questionnaires for self-fulfillment, presented in technical visits to members of the 44 Tutelary Councils in São Paulo city. Beyond the social and family profile, opinions on the autonomy of adolescents and their notions of legal disrespect were collected and also the suggestions to orientation of conducts, facing three hypothetical cases of sexual practice performed by adolescents. The research was answered by 80 (36,4 per cent ) counselors from a total of 220, of 29 (65,9 per cent ) Tutelary Councils from the 44 placed in the city


Assuntos
Humanos , Criança , Adolescente , Defesa da Criança e do Adolescente , Percepção , Direitos Sexuais e Reprodutivos , Comportamento Sexual , Tutores Legais/psicologia , Orientação Infantil , Pesquisa Qualitativa , Reprodução
11.
Pflege Z ; 67(1): 32-6, 2014 Jan.
Artigo em Alemão | MEDLINE | ID: mdl-24720170

RESUMO

On September 1, 2009, the Guardianship Law (Betreuungsgesetz) changed for the third time. Thus, the rights of the people living in Germany have been improved with reference to the preventive instruments. The aim of the work was to find about the subject to what extent patients understand the subject and how many of them have such a preventive document. The area of research has been examined on the basis of a standardized questionnaire drawn up by means of anonymous data collection in the quantitative research design. After the pretest, the survey was done in form of a documented Face-to-face-questioning in the HELIOS hospital Leisnig. The sample size comprised 139 patients from which 84 patients (37 female, 47 male) agreed with the survey. 25 percent of the questioned patients knew the law of living will (Patientenverfügungsgesetz) and 27 percent knew about the content of preventive instruments. 46.4 percent of the surveyed patients, aged between 70 and 75, had at least one preventive instrument. 63.1 percent of the patients believed that a living will has to be in a written form. 21.4 percent said that, in addition, the document has to be authenticated by a notary public. A study by van Oorschot claims that between ten and 15 percent of the people living in Germany have a living will (van Oorschot 2008, p. 443, Sahm & Schroeder 2009, p. 98). The results of this study show a much higher proportion of existing living wills. For the majority of respondents a preventive instrument plays still a minor role, but 46 percent of the population already use a preventive instrument to make provisions for themselves. 27 percent did express their will in theform of a living will. Nevertheless, the survey shows a lack of knowledge of the correct handling of the living will.


Assuntos
Conscientização , Tutores Legais/legislação & jurisprudência , Tutores Legais/psicologia , Testamentos Quanto à Vida/legislação & jurisprudência , Testamentos Quanto à Vida/psicologia , Programas Nacionais de Saúde/legislação & jurisprudência , Idoso , Idoso de 80 Anos ou mais , Coleta de Dados , Feminino , Alemanha , Conhecimentos, Atitudes e Prática em Saúde , Hospitais Gerais/estatística & dados numéricos , Humanos , Tutores Legais/estatística & dados numéricos , Testamentos Quanto à Vida/estatística & dados numéricos , Masculino , Inquéritos e Questionários
12.
Wien Med Wochenschr ; 164(9-10): 167-71, 2014 May.
Artigo em Alemão | MEDLINE | ID: mdl-24158417

RESUMO

In patients with advanced dementia and dysphagia, regular fluid- and food intake together with oral medication can be guaranteed by insertion of a PEG tube. Consent to a treatment in a patient without legal capacity requires nomination of a legal substitute by an Austrian court. The following case report describes the problems associated with this particular situation exposing additional psychosocial stress to closest relatives and to the palliative care team in charge for the patient. This case report describes the legal options together with the finally chosen path of medical treatment which in clinical praxis may not always match.


Assuntos
Doença de Alzheimer/psicologia , Transtornos de Deglutição/psicologia , Transtornos de Deglutição/terapia , Gastrostomia/legislação & jurisprudência , Gastrostomia/psicologia , Consentimento Livre e Esclarecido/legislação & jurisprudência , Consentimento Livre e Esclarecido/psicologia , Tutores Legais/legislação & jurisprudência , Tutores Legais/psicologia , Competência Mental/legislação & jurisprudência , Competência Mental/psicologia , Áustria , Cuidadores/ética , Cuidadores/legislação & jurisprudência , Cuidadores/psicologia , Nutrição Enteral/ética , Nutrição Enteral/psicologia , Comissão de Ética/ética , Comissão de Ética/legislação & jurisprudência , Ética Médica , Gastrostomia/ética , Serviços de Assistência Domiciliar/ética , Serviços de Assistência Domiciliar/legislação & jurisprudência , Humanos , Consentimento Livre e Esclarecido/ética , Masculino , Pessoa de Meia-Idade , Cuidados Paliativos/ética , Cuidados Paliativos/legislação & jurisprudência , Cuidados Paliativos/psicologia
13.
Pediatr Emerg Care ; 29(6): 705-9, 2013 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-23714757

RESUMO

OBJECTIVES: We sought to quantify the knowledge base among parents and legal guardians presenting to our pediatric emergency department regarding radiation exposure during medical imaging and potential risks to children resulting from ionizing radiation. We sought to examine if a child's previous exposure to medical imaging changed caregiver knowledge base and discern caregivers' preference for future education on this topic. METHODS: A prospective convenience sample survey was performed of caregivers who presented with their child to our tertiary pediatric emergency department. Parents or legal guardians (18-89 years) who accompanied a child (0-17 years) were eligible for inclusion and approached for enrollment. A structured questionnaire was administered by trained interviewers, and a chart review was conducted to ascertain if their child had a history of previous imaging. RESULTS: Sixty percent of caregivers interviewed (n = 205 of 340) did not associate any long-term negative effects with medical imaging. Among participants who did express a perceived risk from medical imaging radiation exposure, only 50% could indicate a known negative effect from exposure. We found no significant association between a child having had documented imaging studies and awareness of long-term negative effects (P = 0.22). Participants preferred to learn more about this topic from an Internet-based resource (50%), informational pamphlet (38%), or via treating physician (33%). CONCLUSIONS: Parents and legal guardians are largely unaware that exposure to radiation during medical imaging carries an inherent risk for their child. Health care providers wishing to educate caregivers should utilize reliable Internet sources, educational pamphlets, and direct communication.


Assuntos
Cuidadores/psicologia , Serviços de Saúde da Criança/estatística & dados numéricos , Serviço Hospitalar de Emergência/estatística & dados numéricos , Letramento em Saúde , Tutores Legais/psicologia , Pais/psicologia , Educação de Pacientes como Assunto , Doses de Radiação , Lesões por Radiação/etiologia , Radiografia/efeitos adversos , Adolescente , Adulto , Criança , Comportamento do Consumidor , Escolaridade , Etnicidade/estatística & dados numéricos , Feminino , Humanos , Comportamento de Busca de Informação , Internet , Masculino , Rememoração Mental , Folhetos , Relações Médico-Paciente , Lesões por Radiação/psicologia , Inquéritos e Questionários , Virginia , Adulto Jovem
15.
Int J Law Psychiatry ; 33(5-6): 369-74, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-20884051

RESUMO

Some older individuals lack sufficient present cognitive and/or emotional ability to make and express autonomous decisions personally. In those situations, health-care providers routinely turn to available formal or informal surrogates who often must apply the best interests standard in making decisions for the incapacitated person. This article contends that defining the best interests standard of surrogate decision-making for older adults in terms of optimal or ideal choices (truly the patient's "best" interests) frequently sets out an unrealizable goal for surrogates to satisfy. Instead, a decision-making standard based on the incapacitated person's "therapeutic" interests is more realistic and hence more honest to adopt and apply from legal, ethical, and medical perspectives.


Assuntos
Comportamento de Escolha , Tomada de Decisões , Idoso Fragilizado , Consentimento Livre e Esclarecido/legislação & jurisprudência , Consentimento Livre e Esclarecido/normas , Tutores Legais/legislação & jurisprudência , Competência Mental/legislação & jurisprudência , Competência Mental/normas , Idoso , Idoso de 80 Anos ou mais , Beneficência , Humanos , Tutores Legais/psicologia , Cuidados para Prolongar a Vida/legislação & jurisprudência , Cuidados para Prolongar a Vida/psicologia , Cuidados para Prolongar a Vida/normas , Masculino , Competência Mental/psicologia , Cuidados Paliativos/legislação & jurisprudência , Cuidados Paliativos/psicologia , Cuidados Paliativos/normas , Seleção de Pacientes , Autonomia Pessoal , Garantia da Qualidade dos Cuidados de Saúde/legislação & jurisprudência , Garantia da Qualidade dos Cuidados de Saúde/normas , Estados Unidos
16.
J Psychosoc Nurs Ment Health Serv ; 48(7): 13-9, 2010 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-20608582

RESUMO

Aging often includes chronic disability and/or acute periods of illness. When seriously ill, people may be less able to participate in decision making. Decision making capacity, the ability to give informed consent or informed refusal, may not be accurately assessed or may not be assessed at all. Nurses are often ideally positioned to contribute to decision making by the clinical team and with the patient. Understanding how to assess capacity, and when and how to integrate surrogates into clinical decision making, can contribute to improved patient care. An example is used to explore the process of decision making based on medical indications, patient preferences, and the appropriate roles and responsibilities of the health care team and a surrogate decision maker.


Assuntos
Planejamento Antecipado de Cuidados , Doença Crônica/enfermagem , Tomada de Decisões , Competência Mental/psicologia , Relações Enfermeiro-Paciente , Prática Avançada de Enfermagem , Idoso , Doença Crônica/psicologia , Humanos , Tutores Legais/psicologia , Cuidados para Prolongar a Vida/psicologia , Masculino , Cuidados Paliativos/psicologia , Equipe de Assistência ao Paciente
17.
Pediatr Blood Cancer ; 51(5): 639-42, 2008 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-18668516

RESUMO

BACKGROUND: Abandonment of paediatric cancer treatment is a common problem in developing countries. Little is known about the guardians' perspective on cancer treatment in these countries, especially the factors that affect adherence. METHODS: Following a pilot study enquiring into the possible causes of abandonment, a problem analysis diagram was drawn which helped to develop the questionnaires. Semi-structured interviews (n = 83) and focus group discussions (n = 8) were held with the guardians of 25 Burkitt lymphoma patients and 7 Wilms tumour patients at different phases of therapy in Malawi. RESULTS: Parents in Malawi are very motivated to continue treatment if they think that it will cure their child. Financial costs are important concerns. Not all tasks at home are assumed by other household members. The diagnosis of cancer was unknown before being told about it in hospital and caused fear of recurrence and death. Guardians are reluctant to ask the health personnel questions. They worry that taking frequent blood samples will weaken their child. The side effects of the chemotherapy are seen as a proof of efficacy. CONCLUSION: It is important to appreciate the guardians' concerns when offering treatment that requires their sustained commitment. It is necessary to provide not only medical treatment, but also travel allowances and adequate nutritional support during long hospital stays to impoverished families. Information should be given proactively.


Assuntos
Países em Desenvolvimento , Conhecimentos, Atitudes e Prática em Saúde , Tutores Legais/psicologia , Neoplasias/terapia , Cooperação do Paciente/estatística & dados numéricos , Protocolos de Quimioterapia Combinada Antineoplásica/administração & dosagem , Protocolos de Quimioterapia Combinada Antineoplásica/economia , Criança , Tomada de Decisões , Humanos , Malaui , Projetos Piloto
18.
West Indian med. j ; 57(3): 287-292, June 2008. tab
Artigo em Inglês | LILACS | ID: lil-672364

RESUMO

BACKGROUND: Approximately 25% of the cumulative AIDS cases in Jamaica involve adolescents and young adults. However, the lives of adolescents living with HIV within Jamaica and the Caribbean have been understudied. OBJECTIVES: (1) To describe the sociodemographic characteristics of HIV+ Jamaican adolescents who have ever been a part of the Kingston Paediatric/Perinatal HIV Programme (KPAIDS) from September 1, 2002 to August 31, 2006 (2). To identify predictors of HIV/AIDS confirmation as well as factors associated or uniquely present in these adolescents by their guardian status. METHODS: Seventy-two HIV+ adolescents, ages 10-19 years, were included. Factors studied included demographics as well as time to and time between HIV and AIDS confirmation. Data were analyzed by bivariate and multivariate statistics. RESULTS: The mean age of the adolescents was 12.6 ± 2.8 years with slightly more males (52.8%) in the programme. There were equal proportions of adolescents living with HIV as with AIDS (43.1%). There were equal proportions who were lost to follow-up or deceased (8.3%). Twenty-two of them lived with parents, 25 with guardians and 18 in residential institutions. The primary mode of transmission was perinatal infection (68.1%), followed by sexual (20.8%), blood transfusion (2.9%) and unknown (8.3%). The mean time from HIV exposure to HIV confirmation and AIDS confirmation in mother-to-child transmission (MTCT) cases were 8.0 ± 2.9 years and 9.6 ± 3.3 years, respectively. In the multivariate analysis model, age and gender were significant in predicting time from HIV exposure to HIV confirmation. CONCLUSION: The majority of HIV-positive adolescents reside with parents and guardians and this might indicate support in spite of stigma and discrimination. However, the mean time to HIV confirmation in MTCT cases is quite long and must be reduced.


ANTECEDENTES: Aproximadamente el 25% de los casos cumulativos de SIDA en Jamaica comprenden adolescentes y adultos jóvenes. Sin embargo, las vidas de los adolescentes que viven con VIH en Jamaica y el Caribe no ha recibido suficiente estudio. OBJETIVOS: (1) Describir las características socio-demográficas de los adolescentes jamaicanos VIH+ que hayan sido alguna vez parte del Programa Pediátrico/Prenatal de Kingston contra el SIDA (KPAIDS) desde septiembre 1 de 2002 a agosto 31 de 2006. (2). Identificar los predictores de la confirmación del VIH/SIDA así como los factores asociados o presentes de forma única en estos adolescentes con respecto a su estatus de tutoría. MÉTODOS: Se incluyeron setenta y dos adolescentes VIH+, con edades de 10 a 19 años. Los factores estudiados comprendieron los datos demográficos así como el tiempo hasta la confirmación de VIH y el SIDA, así como el tiempo entre la confirmación de ambos. Los datos fueron analizados mediante estadísticas divariadas y multivariadas. RESULTADOS: La edad promedio de los adolescentes fue 12.6 ± 2.8 años siendo el número de varones ligeramente mayor (52.8%) en el programa. Las proporciones de adolescentes viviendo con VIH fueron iguales a las de los adolescentes viviendo con SIDA (43.1%). Hubo iguales proporciones perdidas al seguimiento o fallecidas (8.3%). Veintidós de ellos vivían con sus padres, 25 con tutores, y 18 en instituciones residenciales. El modo primario de transmisión fue la infección perinatal (68.1%), seguida por la sexual (20.8%), la transfusión de sangre (2.9%), y otros desconocidos (8.3%). Los tiempos medios desde la exposición al VIH hasta la confirmación de VIH y la confirmación del SIDA en los casos de transmisión madre a hijo (TMAH) fueron 8.0 ± 2.9 años y 9.6 ± 3.3 años, respectivamente. En el modelo de análisis multivariado, la edad y el género fueron significativos a la hora de predecir el tiempo desde la exposición al VIH hasta la confirmación del VIH. CONCLUSIÓN: La mayor parte de los adolescentes VIH positivos residen con sus padres y tutores y esto podría ser un índice de apoyo a pesar del estigma y la discriminación. Sin embargo, el tiempo medio hasta la confirmación del VIH en los casos de TMAH es bien largo y tiene que ser reducido.


Assuntos
Adolescente , Criança , Feminino , Humanos , Masculino , Gravidez , Adulto Jovem , Infecções por HIV/diagnóstico , Tutores Legais/psicologia , Pais/psicologia , Complicações Infecciosas na Gravidez/diagnóstico , Infecções por HIV/mortalidade , Infecções por HIV/psicologia , Infecções por HIV/transmissão , Tutores Legais/estatística & dados numéricos , Análise Multivariada , Relações Pais-Filho , Complicações Infecciosas na Gravidez/mortalidade , Complicações Infecciosas na Gravidez/psicologia , Fatores de Risco , Apoio Social , Fatores Socioeconômicos , Análise de Sobrevida , Fatores de Tempo
19.
Public Health ; 119(7): 578-81, 2005 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-15925671

RESUMO

Despite active epidemiological research related to smoking in Syria in the past few years, there is currently no population-based prevalence data for adult smoking in this country. This study presents the first such figures based on information about the smoking habits of 3066 couples in Aleppo, Syria collected during a survey on respiratory morbidity among 13-14-year-old youths. Reports from the young people indicated levels of parental smoking to be 54% for men and 18% for women. This figure for women is twice that reported previously. The mean number of smokers within the studied households was one smoker per household. Smoking among women was found to be strongly associated with their educational status and their spouse's smoking status. This information is of major importance for public health efforts to deal with the smoking epidemic in Syria, as it indicates a hidden epidemic of smoking among women, most likely due to under-reporting.


Assuntos
Tutores Legais , Pais , Procurador , Fumar/epidemiologia , Tabagismo/epidemiologia , Adolescente , Adulto , Feminino , Inquéritos Epidemiológicos , Humanos , Tutores Legais/psicologia , Tutores Legais/estatística & dados numéricos , Masculino , Pais/psicologia , Prevalência , Inquéritos e Questionários , Síria/epidemiologia
20.
Cancer ; 103(10): 2171-80, 2005 May 15.
Artigo em Inglês | MEDLINE | ID: mdl-15812823

RESUMO

BACKGROUND: Survivors of childhood cancer are at increased risk for osteoporosis, cardiovascular disease, and second malignancies-conditions for which modifiable risk factors are recognized and lifestyle interventions have shown benefit. Although some data regarding health behaviors of this population exist, receptivity to health promotion is largely unknown. METHODS: A survey was mailed to 380 survivors (age range, 11-33 years) of childhood leukemia, lymphoma, or central nervous system carcinomas (and guardians of survivors < 18 years old) to elicit data on exercise, dietary intake of calcium, fat, and fruits and vegetables, smoking status, readiness to pursue lifestyle change, quality of life, and interest in various health interventions. RESULTS: Responses from 209 survivors (a 55% response rate) suggested that most did not meet guidelines for fruit and vegetable consumption (79%), calcium intake (68%), or exercise (52%), 42% were overweight/obese, and 84% consumed > 30% of calories from fat. Older (> 18 years) compared with younger (< 18 years) survivors were more likely to smoke (17% vs. 1%), to be obese (21.6% vs. 14.6%), and to have suboptimal calcium intakes (75.6% vs. 57.6%). No differences in lifestyle behaviors were observed between cancer groups. Compared with interventions aimed at weight control, improving self-esteem, or smoking cessation, the highest levels of interest were found consistently for interventions aimed at getting in shape and eating healthy. Survivors preferred mailed interventions to those delivered in-person, by telephone counselors, or via computers. CONCLUSIONS: Survivors of childhood cancer practiced several suboptimal health behaviors. Health promotion interventions aimed at areas of interest and delivered through acceptable channels have the potential to improve long-term health and function of this vulnerable population.


Assuntos
Atitude Frente a Saúde , Comportamentos Relacionados com a Saúde , Promoção da Saúde , Tutores Legais/psicologia , Neoplasias , Sobreviventes/psicologia , Adolescente , Adulto , Fatores Etários , Cálcio da Dieta/administração & dosagem , Criança , Gorduras na Dieta/administração & dosagem , Exercício Físico/psicologia , Comportamento Alimentar , Feminino , Humanos , Estilo de Vida , Masculino , Obesidade/psicologia , Qualidade de Vida , Fatores de Risco , Autoimagem , Fumar/psicologia , Abandono do Hábito de Fumar
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