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Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey.
Wolters, Pamela L; Reda, Stephanie; Martin, Staci; Al Ghriwati, Nour; Baker, Melissa; Berg, Dale; Erickson, Gregg; Franklin, Barbara; Merker, Vanessa L; Oberlander, Beverly; Reeve, Stephanie; Rohl, Claas; Rosser, Tena; Toledo-Tamula, Mary Anne; Vranceanu, Ana-Maria.
Afiliación
  • Wolters PL; Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
  • Reda S; Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
  • Martin S; Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
  • Al Ghriwati N; Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
  • Baker M; Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
  • Berg D; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Erickson G; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Franklin B; NF Network, Wheaton, Illinois, USA.
  • Merker VL; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Oberlander B; Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, Massachusetts, USA.
  • Reeve S; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Rohl C; NF Network, Wheaton, Illinois, USA.
  • Rosser T; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Toledo-Tamula MA; Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration.
  • Vranceanu AM; NF Kinder, NF Patients United, Vienna, Austria.
Am J Med Genet A ; 188(1): 71-82, 2022 01.
Article en En | MEDLINE | ID: mdl-34536052
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Texto completo: 1 Colección: 01-internacional Asunto principal: Ansiedad / Estrés Psicológico / Salud Mental / Telemedicina / Neurofibromatosis / COVID-19 Tipo de estudio: Qualitative_research Límite: Adolescent / Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: America do norte / Europa Idioma: En Revista: Am J Med Genet A Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos
Texto completo
Imprimir
XML
PubMed Links
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Texto completo: 1 Colección: 01-internacional Asunto principal: Ansiedad / Estrés Psicológico / Salud Mental / Telemedicina / Neurofibromatosis / COVID-19 Tipo de estudio: Qualitative_research Límite: Adolescent / Adult / Aged / Aged80 / Female / Humans / Male / Middle aged País/Región como asunto: America do norte / Europa Idioma: En Revista: Am J Med Genet A Asunto de la revista: GENETICA MEDICA Año: 2022 Tipo del documento: Article País de afiliación: Estados Unidos