Patient perspectives of quality of life in chronic limb-threatening ischemia: a qualitative study.
ANZ J Surg
; 94(3): 429-437, 2024 Mar.
Article
en En
| MEDLINE
| ID: mdl-38012083
ABSTRACT
BACKGROUND:
Quality of life (QOL) is an outcome that matters to patients with chronic limb-threatening ischemia (CLTI). However, we identified the lack of and need for a CLTI-specific QOL instrument. Our group is developing this instrument which requires a deep understanding of patient perspectives of QOL in CLTI.METHODS:
Qualitative inquiry with patient and public involvement was performed in accordance with the Standards for Reporting Qualitative Research. Reflexive thematic analysis of semi-structured interviews was conducted within a constructivist-interpretivist research paradigm. Data were organized and managed in NVivo. Techniques to enhance trustworthiness included maintaining an audit trail, member checking, mentoring, and peer-debriefing. Patient and the public were consulted for feedback on codes, themes, and thematic maps.RESULTS:
Thirteen participants (median age 74 years, range 43-90 years) with a variety of patient demographics were interviewed. Four themes were developed on QOL in CLTI (i) 'independence as key to life satisfaction', (ii) 'change in identity when continuity is needed', (iii) 'coping with intractable disease', and (iv) 'not wanting to be alone'. Member checking with patient and public involvement confirmed the relevance and centrality of these themes to the lived experiences of patients with CLTI.CONCLUSIONS:
The thematic outputs contribute important insights into what QOL truly means to patients with CLTI and what matters for their QOL. The content validity of the new CLTI-specific QOL instrument is improved by giving patients voice. This study highlights the value of qualitative inquiry and patient and public involvement in vascular surgical research.Palabras clave
Texto completo:
1
Colección:
01-internacional
Asunto principal:
Enfermedad Arterial Periférica
/
Isquemia Crónica que Amenaza las Extremidades
Límite:
Aged
/
Humans
Idioma:
En
Revista:
ANZ J Surg
Año:
2024
Tipo del documento:
Article
País de afiliación:
Australia