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The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN.
Raidt, Johanna; Maitre, Bernard; Pennekamp, Petra; Altenburg, Josje; Anagnostopoulou, Pinelopi; Armengot, Miguel; Bloemsma, Lizan D; Boon, Mieke; Borrelli, Melissa; Brinkmann, Folke; Carr, Siobhan B; Carroll, Mary P; Castillo-Corullón, Silvia; Coste, André; Cutrera, Renato; Dehlink, Eleonora; Destouches, Damien M S; Di Cicco, Maria E; Dixon, Lucy; Emiralioglu, Nagehan; Erdem Eralp, Ela; Haarman, Eric G; Hogg, Claire; Karadag, Bulent; Kobbernagel, Helene E; Lorent, Natalie; Mall, Marcus A; Marthin, June K; Martinu, Vendula; Narayanan, Manjith; Ozcelik, Ugur; Peckham, Daniel; Pifferi, Massimo; Pohunek, Petr; Polverino, Eva; Range, Simon; Ringshausen, Felix C; Robson, Evie; Roehmel, Jobst; Rovira-Amigo, Sandra; Santamaria, Francesca; Schlegtendal, Anne; Szépfalusi, Zsolt; Tempels, Petra; Thouvenin, Guillaume; Ullmann, Nicola; Walker, Woolf T; Wetzke, Martin; Yiallouros, Panayiotis; Omran, Heymut.
Afiliação
  • Raidt J; Dept of General Pediatrics, University Hospital Muenster, Muenster, Germany.
  • Maitre B; Service de Pneumologie, Hôpital Henri Mondor et Centre Hospitalier Intercommunal de Créteil, Assistance Publique-Hôpitaux de Paris (AP-HP), Créteil, France.
  • Pennekamp P; Dept of General Pediatrics, University Hospital Muenster, Muenster, Germany.
  • Altenburg J; Dept of Pulmonology, Amsterdam UMC, Location AMC, Amsterdam, the Netherlands.
  • Anagnostopoulou P; Medical School, University of Cyprus, Nicosia, Cyprus.
  • Armengot M; ENT Dept, La Fe Polytechnic and University Hospital, and Surgery Dept, University of Valencia, CIBER of Rare Diseases (CIBERES), Carlos III Health Institute, Ministry of Science and Innovation, Valencia, Spain.
  • Bloemsma LD; Dept of Respiratory Medicine, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.
  • Boon M; Dept of Pediatrics, University Hospital Leuven, Leuven, Belgium.
  • Borrelli M; Pediatric Pulmonology, Dept of Translational Medical Sciences, Federico II University, Azienda Ospedaliera Universitaria Federico II, Naples, Italy.
  • Brinkmann F; Dept of Paediatric Pulmonology, University Children's Hospital of Ruhr University Bochum at St Josef-Hospital, Bochum, Germany.
  • Carr SB; PCD Centre and Dept of Paediatric Respiratory Medicine, Royal Brompton Hospital and NHLI, Imperial College, London, UK.
  • Carroll MP; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
  • Castillo-Corullón S; Paediatric Pulmonology Unit, Hospital Clínico Universitario Valencia, Valencia, Spain.
  • Coste A; Service d'ORL, Hôpital Henri Mondor et Centre Hospitalier Intercommunal de Créteil, AP-HP, Créteil, France.
  • Cutrera R; Pediatric Pulmonology and Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Academic Department of Pediatrics (DPUO), Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
  • Dehlink E; Division of Pediatric Pulmonology, Allergology, and Endocrinology, Dept of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
  • Destouches DMS; Association des Patients Ayant une Dyskinésie Ciliaire Primitive (ADCP), Saint Etienne, France.
  • Di Cicco ME; Pulmonology and Allergology Section, Unit of Pediatrics, Pisa University Hospital, Pisa, Italy.
  • Dixon L; PCD Support UK, Buckingham, UK.
  • Emiralioglu N; Dept of Pediatric Pulmonology, Hacettepe University Faculty of Medicine, Ankara, Turkey.
  • Erdem Eralp E; Division of Pediatric Pulmonology, Pendik Training and Research Hospital, Marmara University, Istanbul, Turkey.
  • Haarman EG; Dept of Pediatric Pulmonology, Emma Children's Hospital, Amsterdam UMC, Location VUmc, Amsterdam, the Netherlands.
  • Hogg C; PCD Centre and Dept of Paediatric Respiratory Medicine, Royal Brompton Hospital and NHLI, Imperial College, London, UK.
  • Karadag B; Division of Pediatric Pulmonology, Pendik Training and Research Hospital, Marmara University, Istanbul, Turkey.
  • Kobbernagel HE; Danish Primary Ciliary Dyskinesia Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
  • Lorent N; Dept of Pediatrics, University Hospital Leuven, Leuven, Belgium.
  • Mall MA; Dept of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
  • Marthin JK; Berlin Institute of Health (BIH) at the Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin, Humboldt-Universität zu Berlin, Berlin, Germany.
  • Martinu V; German Center for Lung Research (DZL) (Associated Partner), Berlin, Germany.
  • Narayanan M; Danish Primary Ciliary Dyskinesia Centre, Paediatric Pulmonary Service, Dept of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Copenhagen, Denmark.
  • Ozcelik U; Dept of Paediatrics, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic.
  • Peckham D; PCD Diagnosis and Research, Dept of Respiratory Sciences, University of Leicester, Leicester, UK.
  • Pifferi M; Dept of Pediatric Pulmonology, Hacettepe University Faculty of Medicine, Ankara, Turkey.
  • Pohunek P; Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
  • Polverino E; Pulmonology and Allergology Section, Unit of Pediatrics, Pisa University Hospital, Pisa, Italy.
  • Range S; Dept of Paediatrics, Second Faculty of Medicine, Charles University and Motol University Hospital, Prague, Czech Republic.
  • Ringshausen FC; Pneumology Dept, Hospital Universitari Vall d'Hebron, Vall d'Hebron Institut de Recerca (VHIR), Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain.
  • Robson E; Dept of Respiratory Medicine, University Hospitals of Leicester, Leicester, UK.
  • Roehmel J; Dept of Respiratory Medicine, Hannover Medical School (MHH) and DZL, Hannover, Germany.
  • Rovira-Amigo S; Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
  • Santamaria F; Dept of Pediatric Respiratory Medicine, Immunology and Critical Care Medicine, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.
  • Schlegtendal A; Dept of Pediatric Pulmonology, Hospital Universitari Vall d'Hebron, VHIR, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain.
  • Szépfalusi Z; Primary Ciliary Dyskinesia Management Centre, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
  • Tempels P; Dept of Paediatric Pulmonology, University Children's Hospital of Ruhr University Bochum at St Josef-Hospital, Bochum, Germany.
  • Thouvenin G; Division of Pediatric Pulmonology, Allergology, and Endocrinology, Dept of Pediatrics and Adolescent Medicine, Medical University of Vienna, Vienna, Austria.
  • Ullmann N; Kartagener Syndrom and Primäre Ciliäre Dyskinesie e. V., Hannover, Germany.
  • Walker WT; Pediatric Pulmonology Dept, Reference Center for Rare Lung Diseases (RespiRare), Armand Trousseau Hospital, AP-HP, Paris, France.
  • Wetzke M; Pediatric Pulmonology and Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Academic Department of Pediatrics (DPUO), Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
  • Yiallouros P; Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton, UK.
  • Omran H; Dept of Respiratory Medicine, Hannover Medical School (MHH) and DZL, Hannover, Germany.
ERJ Open Res ; 8(3)2022 Jul.
Article em En | MEDLINE | ID: mdl-35983540
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Texto completo: 1 Coleções: 01-internacional Temas: Geral Base de dados: MEDLINE Tipo de estudo: Guideline Idioma: En Revista: ERJ Open Res Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Alemanha
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Temas: Geral Base de dados: MEDLINE Tipo de estudo: Guideline Idioma: En Revista: ERJ Open Res Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Alemanha