RESUMO
Families are critical in the provision of lifelong support to individuals with intellectual and developmental disabilities (IDD). Today, more people with IDD receive long-term services and supports while living with their families. Thus, it is important that researchers, practitioners, and policy makers understand how to best support families who provide at-home support to children and adults with IDD. This article summarizes (a) the status of research regarding the support of families who provide support at home to individuals with IDD, (b) present points of concern regarding supports for these families, and (c) associated future research priorities related to supporting families.
Assuntos
Cuidadores/economia , Cuidadores/psicologia , Deficiências do Desenvolvimento/economia , Deficiências do Desenvolvimento/reabilitação , Financiamento Governamental/economia , Política de Saúde/economia , Acessibilidade aos Serviços de Saúde/economia , Deficiência Intelectual/economia , Deficiência Intelectual/reabilitação , Adulto , Criança , Efeitos Psicossociais da Doença , Educação de Pessoa com Deficiência Intelectual/economia , Necessidades e Demandas de Serviços de Saúde/economia , Assistência Domiciliar/economia , Humanos , Inclusão Escolar/economia , Reabilitação Vocacional/economia , Tratamento Domiciliar/economia , Cuidados Intermitentes/economia , Apoio Social , Estados UnidosRESUMO
The article reviews the federal statutes and relevant decisions of the U.S. Supreme Court that constitute the core concepts of disability policy and their application to persons with disabilities (especially developmental disabilities) and their families.