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1.
Cancer Nurs ; 47(1): 12-19, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-36624566

RESUMO

BACKGROUND: Symptom distress is related to decreased quality of life (QOL) among children with cancer, with high levels of pain, nausea, and anxiety reported. Creative arts therapy (CAT) has been related to improved QOL and symptoms in pediatric oncology, but the quality of evidence is mixed. OBJECTIVE: This article aims to examine the QOL symptom subscales in relation to CAT over time in children during the first year of cancer treatment. METHODS: A secondary analysis of prospective data was performed with linear mixed modeling on 267 observations with predictors of 2 groups: No CAT (n = 18) vs CAT (n = 65). The covariate of time (6 months) was used to explore the CAT relationship with the Pediatric Quality of Life Inventory (PedsQL) symptom subscales (pain and hurt, nausea, procedural anxiety, treatment anxiety, worry, cognitive problems, perceived physical appearance, and communication). RESULTS: Children (n = 83) were between 3 and 17 years old (M = 6), 51.2% female, and 32% minority. All tumor types were represented: liquid (37.3%), solid (24.1%), and central nervous system (38.6%). Reduced child report of procedural anxiety was significantly related to receiving CAT with a medium magnitude of association (adjusted effect size = 0.58, P = .01). CONCLUSION: Creative arts interventions were associated with a longitudinal improvement in anxiety in children with cancer. Further work is needed to target interventions to the appropriate specific burdensome symptoms. IMPLICATION FOR PRACTICE: Pediatric oncology nurses can advocate for CAT as an effective intervention to ameliorate the burdensome procedural anxiety experienced by patients.


Assuntos
Neoplasias , Qualidade de Vida , Criança , Humanos , Feminino , Pré-Escolar , Adolescente , Masculino , Qualidade de Vida/psicologia , Avaliação de Sintomas , Estudos Prospectivos , Neoplasias/complicações , Neoplasias/terapia , Neoplasias/psicologia , Dor , Ansiedade/etiologia , Ansiedade/terapia , Náusea
2.
J Hosp Palliat Nurs ; 22(1): 49-60, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31804281

RESUMO

Research is needed to examine new and innovative web-based intervention delivery methods that are feasible, cost-effective, and acceptable to children and their families to increase access to palliative care services in the home and community. Our previous work included the development of a legacy intervention using face-to-face digital storytelling for children with cancer that showed feasibility and strong promise to improve child outcomes. However, face-to-face intervention delivery techniques limited our recruitment, thus decreasing sample size and potential access to broader populations. Here we present the systematic steps of the development of a web-based legacy intervention for children (7-17 years of age) with relapsed or refractory cancer and their parent caregivers. Counts and frequencies for parent (n = 81) reports on satisfaction surveys are presented and parent suggestions for future work. Results suggest the web-based legacy intervention is feasible and acceptable, with parent-perceived beneficial outcomes for the child, parent, and family. Results provide a foundation for web-based intervention development in palliative care and the implementation of a theoretically grounded intervention to reduce suffering of seriously ill children and their family members, thereby advancing the science of symptom management in vulnerable palliative care populations.


Assuntos
Acessibilidade aos Serviços de Saúde/normas , Neoplasias/terapia , Cuidados Paliativos/métodos , Mídias Sociais/instrumentação , Adolescente , Distribuição de Qui-Quadrado , Criança , Pré-Escolar , Feminino , Acessibilidade aos Serviços de Saúde/tendências , Humanos , Internet , Masculino , Neoplasias/complicações , Neoplasias/psicologia , Cuidados Paliativos/tendências , Melhoria de Qualidade , Mídias Sociais/normas , Inquéritos e Questionários , Adulto Jovem
3.
Semin Oncol Nurs ; 35(3): 261-273, 2019 06.
Artigo em Inglês | MEDLINE | ID: mdl-31078340

RESUMO

OBJECTIVE: To report evidence regarding pain assessment and management for children and adolescents receiving treatment for cancer. DATA SOURCES: Published research and clinical guidelines. CONCLUSION: Children and adolescents experience multiple sources of pain across the cancer continuum. They require developmentally relevant approaches when assessing and managing pain. This review suggests that consideration of the developmental stage and age of the child are essential in both pain assessment and pain management. IMPLICATIONS FOR NURSING PRACTICE: Pediatric oncology nurses play a key role in developmentally appropriate pain assessment, identification of potential strategies to manage pain, and delivery of pharmacologic and nonpharmacologic therapies.


Assuntos
Dor do Câncer/diagnóstico , Dor do Câncer/terapia , Medição da Dor/métodos , Dor do Câncer/enfermagem , Criança , Humanos , Papel do Profissional de Enfermagem
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