Maternal and child factors associated with the health-promoting behaviours of mothers of children with a developmental disability.

BACKGROUND/AIM: Mothers caring for their child or adult with a developmental disability can experience mental health disparity. Protective factors such as healthy behaviours are under-researched. This study investigated relationships between mental health, healthy behaviours, and disability factors. METHODS: The cross-sectional online survey included: Depression Anxiety Stress Scales (DASS); Family Empowerment Scale (FES); Health Promoting Activities Scale (HPAS); and a measure of childhood quality of life (QoL). RESULTS: All mothers were raising offspring (aged 3-36 years) with a developmental disability. Fifty-two percent of mothers (N = 81) had a mental health diagnosis. DASS scores were elevated for depression (58 %), anxiety (52 %) and stress (68 %). Mothers participated in health promoting activities infrequently and reported low satisfaction with community health-supporting facilities. Depressive symptoms, maternal empowerment and two indicators of child-related QoL explained 29.7 % of the variance in healthy behaviours. Depressive symptoms were the most important predictor of lack of health promoting behaviours. CONCLUSIONS: Better mental health predicted more frequent participation in health promoting behaviour. Future research might explore the extent to which health promoting behaviours protect mental health. Service changes including family health focused services, and custom designed health promotion or coaching programs may improve the health behaviours of mothers with high care responsibilities.

Validity of the Assistance to Participate Scale with Parents of typically developing Australian children aged three to eight years.

BACKGROUND/AIM: The Assistance to Participate Scale (APS) measures the assistance parents provide to children with disability to participate in play and leisure. The primary aim of this study was to extend the psychometric development of the APS through application to a typically developing sample. METHODS: Parents (N = 125) of typically developing Australian children aged three to eight years completed an online questionnaire comprising the APS, Pediatric Evaluation of Disability Inventory (PEDI), Pediatric Quality of Life Scale (PedsQL) (caregiver scales) and demographic questions. Guided by the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN), structural validity of the APS was investigated using principal components analysis; internal consistency reliability through calculation of Cronbach's α; construct validity through convergence with previously validated measures of paediatric occupational performance and quality of life (PEDI, PedsQL) and investigation of five research hypotheses developed a priori. RESULTS: Structural validity of the APS was confirmed. Internal consistency (Cronbach's α = 0.76) was good for this unidimensional scale. Construct validity was substantiated by moderate correlations with the PEDI and PedsQL (physical), and data that supported all research hypotheses. Statistically significant differences were found in APS scores based on sex (P = 0.018), age (P < 0.001), school attendance (P < 0.001) and elder sibling (P = 0.006). CONCLUSIONS: Results of this study indicate the APS is a valid and reliable measure of the parental role in a typically developing child's play. Validation upon a typically developing sample offers preliminary guidelines regarding the normative pattern of assistance provided to children during play. Further research in line with the COSMIN is required.