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2.
Eur J Cancer Care (Engl) ; 20(2): 212-9, 2011 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-20345459

RESUMO

Carers are central to the effective support of people affected by cancer. Little is known however about the specific support needs of carers of military personnel. This study aimed to determine the supportive care needs of unpaid carers within British Forces (including military/civilian personnel, their families and dependent adults) currently stationed in Germany. Qualitative semi-structured interviews were conducted with seven carers (six men and one woman) in three British army garrisons across Germany, to identify core aspects of the experience of caregiving in this environment. Analysis of interviews with carers was based on qualitative thematic and content analysis. Three key themes were identified: (1) impact on carers of their partners being diagnosed with cancer; (2) provision of support; and (3) challenges to accessing and obtaining support. Central issues pivot around the context of working and living in the armed forces and a lack of supportive care infrastructure. While drawing on a small sample size, this study nonetheless identifies that carers of people with cancer within the armed forces, who are stationed in Germany require a specialised and contextually specific set of services to address their supportive care needs.


Assuntos
Cuidadores/psicologia , Necessidades e Demandas de Serviços de Saúde , Militares/psicologia , Neoplasias/psicologia , Apoio Social , Adulto , Feminino , Alemanha , Acessibilidade aos Serviços de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Inquéritos e Questionários
3.
Arch Dis Child ; 95(3): 219-21, 2010 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-19948511

RESUMO

BACKGROUND: Prescribing errors complicate a significant number of paediatric admissions. Ongoing training and monitoring of prescribing competency in junior doctors has occurred in Cardiff since 2001, alongside national measures aimed at improving training and competency. AIM: Ongoing monitoring of junior doctors' prescribing competency to assess the effect of these national and local initiatives. METHODS: Junior doctors receive training and subsequent assessment on prescribing competency at induction. A 1 h bleep-free session concerning paediatric prescribing precedes completion of four prescribing tasks. British National Formulary for children and calculators are provided. Those scoring 0 or 1 are retrained before prescribing is permitted. Our previously published data of doctors between 2001 and 2004 was compared with assessment in 2007. RESULTS: 30 junior doctors were assessed in 2007 (32 in 2001-2004). All four questions were answered correctly by 22/30, compared to 10/32 (31%) in 2001-2004. The mean score in 2007 was 93.3% compared to 57.8% previously (see table 1). Comparison of means with previous results demonstrated statistically significant improvement with a mean difference of 36% (95% CI 24 to 47). In 2007, eight (27%) doctors got just one question wrong and no doctor answered all questions incorrectly. In 2001-2004, 22/32 (67%) made at least one error during previous assessment, and one doctor answered all questions incorrectly. Table 1Prescribing assessment scores in 2001-2004 and 2007 Answer scores2001-2004 (n=32)2007 (n=30)All questions correct10 (31%)22 (73%)One incorrect08 (27%)Two incorrect13 (41%)0Three incorrect8 (25%)0All questions incorrect1 (3%)0 CONCLUSION: Ongoing monitoring of junior doctors' prescribing ability has demonstrated improvements which may be due to local and national training initiatives.


Assuntos
Competência Clínica , Prescrições de Medicamentos/normas , Corpo Clínico Hospitalar/normas , Pediatria/normas , Criança , Educação Médica Continuada/métodos , Humanos , Estudos Longitudinais , Corpo Clínico Hospitalar/educação , Erros de Medicação/prevenção & controle , Pediatria/educação , País de Gales
4.
Eur J Cancer Care (Engl) ; 17(3): 233-44, 2008 May.
Artigo em Inglês | MEDLINE | ID: mdl-18419626

RESUMO

The purpose of the literature review was to find out why people affected by cancer have been involved in research; how they have been involved and the impact of their involvement. We used systematic methods to search for literature, applied inclusion and exclusion criteria, conducted a quality appraisal, selected relevant data from the included articles for analysis, and provided a narrative summary of these data. The literature shows that people affected by cancer, particularly women with breast cancer, have been involved in a range of research programmes, projects and initiatives especially in the USA, UK, Canada and Australia. Their involvement has impacted upon research design, accrual and response rates. There is increasing recognition of the need for an infrastructure, including formal recruitment procedures, training and mentoring, to support an agenda of involvement and a need to challenge the ethos of traditional research, which does not easily lend itself to this agenda. Further critique of the role of 'experiential knowledge' in research is required so that researchers and people affected by cancer can work in partnership.


Assuntos
Neoplasias/psicologia , Participação do Paciente , Pesquisa , Tomada de Decisões , Medicina Baseada em Evidências , Planejamento em Saúde , Política de Saúde , Necessidades e Demandas de Serviços de Saúde , Humanos , Oncologia , Projetos de Pesquisa
5.
Circulation ; 87(2 Suppl): I52-65, 1993 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-8425323

RESUMO

BACKGROUND: Quality of life of patients with congenital heart defects is an important aspect of the assessment of outcome of medical and surgical treatment. METHODS AND RESULTS: All participants in the Second Natural History Study of Congenital Heart Defects who completed the study questionnaire were included in this analysis. The questionnaire completed by the patients included inquiries relative to medical history, marital and family life, self-perception of well-being, insurability, and employability. The following general observations were apparent. The study cohort reported a self-perception of health status that was similar to that of the general population. Second, 35-40% of patients had not had a cardiac evaluation within the previous 10 years. Third, 16% of the patients had no health insurance, and 35.7% of the patients had no life insurance. For the patients with pulmonary stenosis and ventricular septal defect, the percent who were married was less than that of the corresponding national age- and sex-specific population. For patients with aortic stenosis, the percent married was greater than that of the general population for some age groups. The proportion of divorced or separated individuals was similar to that of the general population. For all three defects, the level of educational attainment exceeded the national average. Last, unemployment rates were similar to national averages except for women with aortic stenosis, who had a significantly higher unemployment rate than did age- and sex-matched controls. CONCLUSIONS: Patients initially identified with aortic stenosis, pulmonary stenosis, or ventricular septal defect in 1959-1973 have a quality of life in the mid-1980s similar to that of the general US population.


Assuntos
Estenose da Valva Aórtica , Comunicação Interventricular , Estenose da Valva Pulmonar , Qualidade de Vida , Adulto , Estenose da Valva Aórtica/complicações , Estenose da Valva Aórtica/mortalidade , Estudos de Coortes , Escolaridade , Família , Feminino , Nível de Saúde , Comunicação Interventricular/complicações , Comunicação Interventricular/mortalidade , Humanos , Seguro Saúde/estatística & dados numéricos , Seguro de Vida/estatística & dados numéricos , Masculino , Casamento , Estenose da Valva Pulmonar/complicações , Estenose da Valva Pulmonar/mortalidade , Inquéritos e Questionários , Taxa de Sobrevida , Desemprego/estatística & dados numéricos , Estados Unidos
6.
Am J Dis Child ; 145(12): 1397-400, 1991 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-1669668

RESUMO

We analyzed hospital use and inpatient charges retrospectively for infants hospitalized at a tertiary referral center in the first year of life for cardiac disease. For 93 infants hospitalized between August 1987 and June 1989, there were 1.8 admissions per patient, with a median stay of 14 days; 24.7% required more than 28 days of acute inpatient care. Total hospital charges (excluding professional fees) in the first year of life were $3,417,612, which represents $36,749 per infant and $35,386 per survivor. Reimbursement totaled 93.2% of charges. Multivariate analysis revealed that complex disease, surgery, and length of stay in the intensive care unit were significantly associated with increased charges, while extracardiac anomalies, birth weight, outcome, and type of insurance were not. The economic benefits of averting infant death outweigh the associated costs by as much as 5.4 to 1. We conclude that current treatment of most infants with cardiac disease is both effective and economically beneficial.


Assuntos
Cardiopatias/economia , Cardiopatias/terapia , Preços Hospitalares , Terapia Intensiva Neonatal/economia , Terapia Intensiva Neonatal/estatística & dados numéricos , Baltimore/epidemiologia , Peso ao Nascer , Análise Custo-Benefício , Pesquisa sobre Serviços de Saúde , Cardiopatias/mortalidade , Hospitais Universitários/economia , Humanos , Lactente , Recém-Nascido , Tempo de Internação/estatística & dados numéricos , Modelos Lineares , Análise Multivariada , Avaliação de Resultados em Cuidados de Saúde , Admissão do Paciente/estatística & dados numéricos , Mecanismo de Reembolso/estatística & dados numéricos , Estudos Retrospectivos , Índice de Gravidade de Doença , Taxa de Sobrevida
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