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Background: An unprecedentedly large number of people worldwide are forcibly displaced, of which more than 40 percent are under 18 years of age. Forcibly displaced children and youth have often been exposed to stressful life events and are therefore at increased risk of developing mental health issues. Hence, early screening and assessment for mental health problems is of great importance, as is research addressing this topic. However, there is a lack of evidence regarding the reliability and validity of mental health assessment tools for this population. Objective: The aim of the present study was to synthesise the existing evidence on psychometric properties of patient reported outcome measures [PROMs] for assessing the mental health of asylum-seeking, refugee and internally displaced children and youth. Method: Systematic searches of the literature were conducted in four electronic databases: MEDLINE, PsycINFO, Embase and Web of Science. The methodological quality of the studies was examined using the COSMIN Risk of Bias checklist. Furthermore, the COSMIN criteria for good measurement properties were used to evaluate the quality of the outcome measures. Results: The search yielded 4842 articles, of which 27 met eligibility criteria. The reliability, internal consistency, structural validity, hypotheses testing and criterion validity of 28 PROMs were evaluated. Conclusion: Based on the results with regard to validity and reliability, as well as feasibility, we recommend the use of several instruments to measure emotional and behavioural problems, PTSD symptoms, anxiety and depression in forcibly displaced children and youth. However, despite a call for more research on the psychometric properties of mental health assessment tools for forcibly displaced children and youth, there is still a lack of studies conducted on this topic. More research is needed in order to establish cross-cultural validity of mental health assessment tools and to provide optimal cut-off scores for this population. HIGHLIGHTS Research on the psychometric properties of mental health screening and assessment tools for forcibly displaced children and youth is slowly increasing.However, based on the current evidence on the validity and reliability of screening and assessment tools for forcibly displaced children, we are not able to recommend a core set of instruments. Instead, we provide suggestions for best practice.More research of sufficient quality is important in order to establish crsoss-cultural validity and to provide optimal cut-off scores in mental health screening and assessment tools for different populations of forcibly displaced children and youth.
Antecedentes: Un número sin precedentes de personas en todo el mundo son desplazadas por la fuerza, de las cuales más del 40 por ciento son menores de 18 años. Los niños y jóvenes desplazados por la fuerza a menudo han estado expuestos a eventos vitales estresantes y, por lo tanto, corren un mayor riesgo de desarrollar problemas de salud mental. Por lo tanto, la detección temprana y la evaluación de los problemas de salud mental son de gran importancia, al igual que la investigación que aborda este tema. Sin embargo, hay una falta de evidencia con respecto a la confiabilidad y validez de las herramientas de evaluación de la salud mental para esta población.Objetivo: El objetivo del presente estudio fue sintetizar la evidencia existente sobre las propiedades psicométricas de los instrumentos de medición de resultado reportadas por el paciente [PROM, por sus siglas en inglés] para evaluar la salud mental de los niños y jóvenes solicitantes de asilo, refugiados y desplazados internos.Método: Se realizaron búsquedas sistemáticas de la literatura en cuatro bases de datos electrónicas: MEDLINE, PsycINFO, Embase y Web of Science. La calidad metodológica de los estudios se examinó mediante la lista de verificación de riesgo de sesgo de COSMIN. Además, se utilizaron los criterios COSMIN de buenas propiedades de medición para evaluar la calidad de los instrumentos de medición de resultados.Resultados: La búsqueda arrojó 4842 artículos, de los cuales 27 cumplieron con los criterios de elegibilidad. Se evaluaron la confiabilidad, consistencia interna, validez estructural, prueba de hipótesis y validez de criterio de 28 PROM.Conclusión: En base a los resultados con respecto a la validez y confiabilidad, así como la factibilidad, recomendamos el uso de varios instrumentos para medir problemas emocionales y de conducta, síntomas de TEPT, ansiedad y depresión en niños y jóvenes desplazados por la fuerza. Sin embargo, a pesar de la petición de más investigación sobre las propiedades psicométricas de las herramientas de evaluación de la salud mental para niños y jóvenes desplazados por la fuerza, todavía faltan estudios sobre este tema. Se necesita más investigación para establecer la validez transcultural de las herramientas de evaluación de la salud mental y proporcionar puntajes de corte óptimos para esta población.
Assuntos
Saúde Mental , Refugiados , Adolescente , Criança , Humanos , Programas de Rastreamento , Psicometria/métodos , Refugiados/psicologia , Reprodutibilidade dos TestesRESUMO
Even though Parenting Capacity Assessments (PCAs) are essential for child protection services to support placement decisions for maltreating families, presently no evidence-based PCA protocols are available. In this randomized controlled trial, we tested the quality of an attachment-based PCA protocol based on Video-feedback Intervention to promote Positive Parenting and Sensitive Discipline (VIPP-SD). We recruited 56 parent-child dyads (Mage children = 3.48 years) in Dutch family residential clinics that conduct PCAs to support placement decisions. After pretest, families were randomized to receive the Regular Assessment Procedure (RAP) (n = 28), or an additional assessment based on VIPP-SD (n = 28). An immediate post-test and a 10-month follow-up were conducted. Multilevel models showed that therapists felt equally confident about their recommendations regarding child placement for both groups and that they equally often modified their initial placement recommendations. Moreover, children in the VIPP-SD group did not show fewer behavior problems and did not experience recurring child maltreatment less often than children in the RAP group. Thus, we found no evidence that PCAs incorporating the VIPP-SD protocol outperformed PCAs as usual. We discuss possible explanations why in the current study VIPP-SD did not seem to add to the quality of the RAP.
A pesar de que las Evaluaciones de Capacidad de Crianza (PCA) son esenciales para los servicios de protección al niño para apoyar las decisiones de dónde colocarlo por razones de familias maltratadoras, en el presente no se encuentran disponibles ningún protocolo PCA basado en la evidencia. En este ensayo controlado al azar, pusimos a prueba la calidad de un protocolo PCA basado en la afectividad para lo cual nos basamos en la Intervención de Video Informativo para promover una Crianza Positiva y Disciplina Sensible (VIPP-SD). Reclutamos 56 díadas de progenitor-niño (edad promedio de los niños = 3.48 años) en clínicas residenciales de familias holandesas que utilizan las PCA para apoyar las decisiones de dónde colocar. Después del pre-examen, las familias fueron asignadas al azar para recibir el Procedimiento de Evaluación Regular (RAP) (n = 28), o una evaluación adicional basada en VIPP-SD (n = 28). Se llevaron a cabo un examen posterior inmediato y un seguimiento a los 10 meses. Los modelos de niveles múltiples mostraron que los terapeutas se sintieron igualmente confiados acerca de sus recomendaciones con respecto a dónde colocar al niño en ambos grupos y que ellos igualmente modificaron a menudo su recomendación inicial de dónde colocarlo. Es más, los niños en el grupo VIPP-SD no mostraron menos problemas de conducta y no experimentaron maltrato infantil recurrente menos a menudo que los niños en el grupo RAP. Por tanto, no encontramos evidencia de que las PCA que incorporan el protocolo VIPP-SD tuvieran mejores resultados que las PCA en su forma usual. Discutimos posibles explicaciones de por qué en el presente estudio los VIPP-SD no parecieron agregar nada a la calidad de RAP.
Contexte: Des interventions favorables et ciblées pour les familles sont nécessaires afin d'optimiser l'ajustement parental et la relation parent-bébé conformément à un diagnostic précédant de risque neurodéveloppemental pour les bébés. Buts: Le but de cette revue systématique était de déterminer l'efficacité des interventions pour l'amélioration de l'ajustement psychologique et le bien-être pour les parents ayant un bébé ayant été diagnostiqué comme ayant ou étant à risque d'avoir un trouble neurodéveloppemental. Méthodes: La stratégie de recherche du Cochrane Review Group a été suivie avec une recherche des essais contrôlés du Registre Cochrane Central, de PubMed, CINAHL, PsycINFO, et Embase entre juillet et décembre 2017. La qualité méthodologique des articles inclus a été évaluée au moyen de l'échelle de la base de données de preuve de physiothérapie (PEDro Physiotherapy Evidence Database) par deux évaluateurs indépendants. Résultats: Douze études ont rempli les critères d'inclusion. Un petit nombre d'essais de grande qualité ont révélé une efficacité modérée à importante de la réduction chez les parents de symptômes psychologiques indésirables de trauma et de stress des parents. Des améliorations importantes dans les symptômes de dépression et d'anxiété ont émergé lors de follow up post intervention à plus long terme (6 mois-8 ans). Conclusions: On constate un soutien prometteur pour l'efficacité de certaines interventions à réduire les symptômes psychologiques de mésadaptation chez les parents avec des bébés diagnostiqués comme étant à risque d'un trouble neurodéveloppemental. D'autres ECR de qualité d'intervention psychologiques portant sur les conditions plus grandes de risque neurodéveloppemental sont nécessaires.
Assuntos
Maus-Tratos Infantis/terapia , Apego ao Objeto , Relações Pais-Filho , Poder Familiar/psicologia , Adulto , Criança , Maus-Tratos Infantis/psicologia , Pré-Escolar , Retroalimentação Psicológica , Feminino , Humanos , Masculino , Comportamento Problema , Resultado do Tratamento , Gravação em VídeoRESUMO
BACKGROUND: To prevent negative effects of early-onset psychiatric disorders on children's development, structured diagnostics are needed. However, validated diagnostic instruments (based on DSM-5) for children aged 7 years and younger are scarce. The Diagnostic Infant and Preschool Assessment (DIPA) is a diagnostic interview developed in the USA for measuring 16 psychiatric disorders in young children. The psychometric properties of the American version of the DIPA have been validated. Here we determined the accuracy of the psychometric properties of the Dutch DSM-5 based version of the DIPA for the corresponding population. MATERIAL AND METHODS: Psychometric properties of the DSM-5 based version of the DIPA were determined based on a sample of 136 biological, foster, therapeutic foster and adoptive parents of clinically referred children and children involved in a serious accident (aged 1-7 years). In line with the American validation study, we included the following seven DIPA modules: posttraumatic stress disorder (PTSD), major depressive disorder (MDD), attention deficit hyperactivity disorder (ADHD), oppositional defiant disorder (ODD), separation anxiety disorder (SAD), generalized anxiety disorder (GAD), and obsessive-compulsive disorder (OCD). We administered the DIPA, Trauma Symptom Checklist for Young Children (TSCYC) and Child Behavior Checklist (CBCL). Analyses were conducted with continuous outcomes (number of symptoms) and categorical outcomes (diagnoses). RESULTS: The Dutch DSM-5 based version of the DIPA showed good internal consistency and interrater reliability with both continuous and categorical variables. The concurrent validity was good; we found a good concordance between the DIPA and corresponding questionnaires on both the symptom and diagnoses level. In addition, the divergence on symptom level between the DIPA and non-corresponding questionnaires was adequate, which indicated adequate divergent validity. Due to a limited number of positive cases, we could not draw conclusions regarding its psychometric properties in the GAD and OCD modules. CONCLUSIONS: Our study shows promising initial results regarding the reliability and validity of the Dutch version of the DIPA, that is based on the DSM-5. Therefore, we recommend the use of the DIPA in research and clinical practice.
Assuntos
Transtornos Mentais/diagnóstico , Escalas de Graduação Psiquiátrica/normas , Psicometria/estatística & dados numéricos , Inquéritos e Questionários/normas , Criança , Pré-Escolar , Manual Diagnóstico e Estatístico de Transtornos Mentais , Feminino , Humanos , Lactente , Entrevista Psicológica , Estudos Longitudinais , Masculino , Psiquiatria/métodos , Reprodutibilidade dos TestesRESUMO
Background: Child sexual abuse (CSA) is a worldwide problem affecting children of all ages and socioeconomic backgrounds. A knowledge gap exists regarding the psychological outcomes for children, boys in particular, who are abused during their early lives. Objective: To provide a descriptive psychological profile of children who experienced sexual abuse as infants or toddlers from a male daycare worker and babysitter, and to assess the psychopathological impact on their parents. Method: Parents of children involved in the Amsterdam Sexual Abuse Case (41 parents; 44 children, age range 3-11 years, 30 boys, 14 girls) completed measures on post-traumatic stress disorder (PTSD), dissociation, sexual and non-sexual behaviour problems, and attachment insecurity in their children, as well as on parental psychological well-being, 3 years after disclosure. Sexual abuse characteristics were obtained from police records. Results: We found that 3% of confirmed child victims had PTSD, 30% sexual behaviour problems, 24% internalizing problems, 27% attachment insecurity, and 18% any psychiatric disorder (including PTSD); 39% were asymptomatic. In parents, we found feelings of guilt, shame, and anger about the abuse of their child; 19% showed PTSD symptoms and 3% showed avoidant and 8% anxious attachment problems in their intimate relationship. Parental symptomatology was related to child symptomatology, except for child sexual behaviour problems. One-quarter of confirmed child victims and 45% of parents had received psychological treatment. Conclusions: Three years after disclosure, extrafamilial CSA in very young children was associated with sexual and non-sexual behaviour problems and attachment insecurity, but rarely with PTSD or dissociation. For parents it was associated with PTSD symptoms and emotional reactions. Assessments and interventions should focus on the wide spectrum of problems that follow CSA, as well as on parental psychopathology and the parent-child relationship. Future follow-up assessments in our longitudinal study should provide insights into longer-term outcomes.
Antecedentes: el abuso sexual infantil (ASI) es un problema mundial que afecta a niños de todas las edades y de todos los estratos socioeconómicos. Existe una brecha de conocimiento con respecto a los resultados psicológicos para los niños, en particular los varones, quienes son abusados durante sus primeros años de vida.Objetivo: Proporcionar un perfil psicológico descriptivo de niños que experimentaron abuso sexual cuando eran bebés o niños pequeños de un trabajador de guardería y niñera, y evaluar el impacto psicopatológico en sus padres.Método: Padres de niños involucrados en el caso de abuso sexual de Amsterdam (ASAC) (41 padres, 44 niños-rango de edad 311 años, 30 niños, 14 niñas) completaron medidas sobre trastorno de estrés postraumático (TEPT), disociación, problemas de conducta sexualy no sexualy apego inseguro en sus hijos, así como en el bienestar psicológico de los padres, 3 años después de la develación. Las características de abuso sexual se obtuvieron de los registros policiales.Resultados: encontramos que el 3% de las víctimas infantiles confirmadas tenían TEPT, 30% tenían problemas de conducta sexual, 24% problemas de internalización, 27% apego inseguro y 18% cualquier trastorno psiquiátrico (incluido el TEPT); 39% fueron asintomáticos. En los padres encontramos sentimientos de culpa, vergüenza e ira por el abuso de sus hijos; El 19% mostró síntomas de TEPT y el 3% mostró problemas de apego evitativo y el 8% ansioso en sus relaciones íntimas. La sintomatología de los padres se relacionó con la sintomatología de los niños, a excepción de los problemas de conducta sexual infantil. Una cuarta parte de las víctimas infantiles confirmadas y el 45% de los padres habían recibido tratamiento psicológico.Conclusiones: Tres años después de la develación, el ASI extrafamiliar en niños muy pequeños se asoció con problemas de comportamiento sexual y no sexual y apego inseguro, sin embargo, raramente con trastorno de estrés postraumático o disociación. Para los padres se asoció con síntomas de TEPT y reacciones emocionales. Las evaluaciones e intervenciones deben enfocarse en el amplio espectro de problemas que siguen al ASI, así como en la psicopatología de los padres y la relación entre padres e hijos. Las futuras evaluaciones de seguimiento en nuestro estudio longitudinal deberían proporcionar información sobre los resultados a más largo plazo.
RESUMO
Knowledge on children's capacities to consent to medical treatment is limited. Also, age limits for asking children's consent vary considerably between countries. Decision-making on predictive genetic testing (PGT) is especially complicated, considering the ongoing ethical debate. In order to examine just age limits for alleged competence to consent in children, we evaluated feasibility of a standardized assessment tool, and investigated cutoff ages for children's competence to consent to PGT. We performed a pilot study, including 17 pediatric outpatients between 6 and 18 years at risk for an autosomal dominantly inherited cardiac disease, eligible for predictive genetic testing. The reference standard for competence was established by experts trained in the relevant criteria for competent decision-making. The MacArthur Competence Assessment Tool for Treatment (MacCAT-T) served as index test. Data analysis included raw agreement between competence classifications, difference in mean ages between children judged competent and judged incompetent, and estimation of cutoff ages for judgments of competence. Twelve (71 %) children were considered competent by the reference standard, and 16 (94 %) by the MacCAT-T, with an overall agreement of 76 %. The expert judgments disagreed in most cases, while the MacCAT-T judgments agreed in 65 %. Mean age of children judged incompetent was 9.3 years and of children judged competent 12.1 years (p = .035). With 90 % sensitivity, children younger than 10.0 years were judged incompetent, with 90 % specificity children older than 11.8 years were judged competent. Feasibility of the MacCAT-T in children is confirmed. Initial findings on age cutoffs are indicative for children between the age of 12 and 18 to be judged competent for involvement in the informed consent process. Future research on appropriate age-limits for children's alleged competence to consent is needed.
Assuntos
Testes Genéticos/métodos , Cardiopatias Congênitas/diagnóstico , Consentimento Informado por Menores/psicologia , Consentimento Livre e Esclarecido/psicologia , Competência Mental/psicologia , Menores de Idade/psicologia , Adolescente , Criança , Compreensão , Tomada de Decisões , Estudos de Viabilidade , Feminino , Cardiopatias Congênitas/genética , Humanos , Masculino , Projetos PilotoRESUMO
IMPORTANCE: An objective assessment of children's competence to consent to research participation is currently not possible. Age limits for asking children's consent vary considerably between countries, and, to our knowledge, the correlation between competence and children's age has never been systematically investigated. OBJECTIVES: To test a standardized competence assessment instrument for children by modifying the MacArthur Competence Assessment Tool for Clinical Research (MacCAT-CR), to investigate its reliability and validity, and to examine the correlation of its assessment with age and estimate cutoff ages. DESIGN, SETTING, AND PARTICIPANTS: This prospective study included children and adolescents aged 6 to 18 years in the inpatient and outpatient departments of allergology, gastroenterology, oncology, ophthalmology, and pulmonology from January 1, 2012, through January 1, 2014. Participants were eligible for clinical research studies, including observational studies and randomized clinical trials. EXPOSURES: Competence judgments by experts aware of the 4 relevant criteria-understanding, appreciation, reasoning, and choice-were used to establish the reference standard. The index test was the MacCAT-CR, which used a semistructured interview format. MAIN OUTCOMES AND MEASURES: Interrater reliability, validity, and dimensionality of the MacCAT-CR and estimated cutoff ages for competence. RESULTS: Of 209 eligible patients, we included 161 (mean age, 10.6 years; 47.2% male). Good reproducibility of MacCAT-CR total and subscale scores was observed (intraclass correlation coefficient range, 0.68-0.92). We confirmed unidimensionality of the MacCAT-CR. By the reference standard, we judged 54 children (33.5%) to be incompetent; by the MacCAT-CR, 61 children (37.9%). Criterion-related validity of MacCAT-CR scores was supported by high overall accuracy in correctly classifying children as competent against the reference standard (area under the receiver operating characteristics curve, 0.78). Age was a good predictor of competence on the MacCAT-CR (area under the receiver operating characteristics curve, 0.90). In children younger than 9.6 years, competence was unlikely (sensitivity, 90%); in those older than 11.2 years, competence was probable (specificity, 90%). The optimal cutoff age was 10.4 years (sensitivity, 81%; specificity, 84%). CONCLUSIONS AND RELEVANCE: The MacCAT-CR demonstrated strong psychometric properties. In children aged 9.6 to 11.2 years, consent may be justified when competence can be demonstrated in individual cases by the MacCAT-CR. The results contribute to a scientific underpinning of regulations for clinical research directed toward children.