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1.
Pflege ; 27(5): 285-96, 2014 Oct.
Artigo em Alemão | MEDLINE | ID: mdl-25253375

RESUMO

BACKGROUND: Families influence the wellbeing of patients and are influenced by illness themselves. Involving caregivers in patient care was examined in multiple studies. AIM: The aim of this literature review was to investigate the different approaches to family-centered interventions (FI) and to evaluate the tested outcomes as well as the detected effect sizes. METHODS: This search for a systematic literature review of randomized controlled trials and metaanalyses revealed three Meta Analyses with studies until 2007 and six randomized controlled studies from 2007 to 2012. RESULTS: FI showed small to middle positive effects on the outcomes depression, mental health, anxiety of patients and family members and on caregiver burden. A conclusive effect on physical health could not be shown. The results strongly depend on the enrolled patient population, the targeted participants of FI, as well as the focus, type and dose of FI. The studies showed vast differences in the length and type of intervention, the target population and the selection of outcomes. Comparing outcomes was difficult due to the use of different outcome measures. CONCLUSION: Further research with various populations, different FI intensity but with same, valid outcome measures is needed.


Assuntos
Cuidadores/psicologia , Doença Crônica/enfermagem , Efeitos Psicossociais da Doença , Enfermagem Familiar , Relações Profissional-Paciente , Adulto , Transtornos de Ansiedade/enfermagem , Transtornos de Ansiedade/psicologia , Doença Crônica/psicologia , Transtorno Depressivo/enfermagem , Transtorno Depressivo/psicologia , Alemanha , Humanos , Educação de Pacientes como Assunto , Qualidade de Vida/psicologia , Ensaios Clínicos Controlados Aleatórios como Assunto
2.
Pflege ; 26(4): 235-44, 2013 Aug.
Artigo em Alemão | MEDLINE | ID: mdl-23876660

RESUMO

Epilepsy is a common and chronic disease which affects persons at every age. Even though medication can prevent seizures, epilepsy has implications for daily living. Sorrows, increased depression rates and restrictions in everyday life were documented among family caregivers of adult persons with epilpesy. To date, no study investigated how parents adapt to the epilepsy of adult children over time. The aim of this study was to explore experiences of parents of adult patients with epilepsy. Applying an interpretative phenomenological approach, narrative interviews with parents were reviewed to investigate parents' experiences. All parents described how they did their best to live with their situation. However, parents' experiences were distinctive and can be described as: "Being on the way together", "walking on a thightrope" and "struggling and caring all along". Using paradigm cases to describe what the epilepsy of their adult children ment to parents allowed to consider the context of these parents' experiences and enhanced understanding. As parents continue to support their adult children with epilepsy they should be included in specialist counselling and involved in care planning of their adult children.


Assuntos
Filhos Adultos/psicologia , Cuidadores/psicologia , Efeitos Psicossociais da Doença , Epilepsia Generalizada/enfermagem , Epilepsia Generalizada/psicologia , Assistência Domiciliar/psicologia , Pais/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Avaliação das Necessidades , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Apoio Social , Suíça , Adulto Jovem
3.
Pflege ; 24(1): 43-56, 2011 Feb.
Artigo em Alemão | MEDLINE | ID: mdl-21274845

RESUMO

Current demographic developments and the high prevalence of chronic conditions require new approaches to nursing care of the elderly population in Switzerland. New care models need to be developed that go beyond traditional nursing practice with its focus on the individual. Existing preventive home visit and case management programmes have mostly focussed on the young old with the goal to maintain functional health and prevent institutionalisation. Families, who play a crucial role in the care of the elderly at home, were not included. The purpose of this article is to describe the development of the SpitexPlus Project, which is directed at people 80 years and older and their families, irrespective of their health status and social situation. It aims to improve self-care capabilities and quality of life in people 80+ and their families and to enable them to manage the challenges of daily life at home. Evidence based nursing interventions, based on the principles of health promotion, empowerment, family centeredness, and partnership were developed. The development of the programme phases, interventions, and the role of the advanced practice nurses are described in detail. Potential benefits for nursing practice are delineated.


Assuntos
Prática Avançada de Enfermagem/organização & administração , Cuidadores/educação , Doença Crônica/enfermagem , Serviços de Assistência Domiciliar/organização & administração , Idoso de 80 Anos ou mais , Pesquisa em Enfermagem Clínica , Comportamento Cooperativo , Documentação , Enfermagem Familiar/organização & administração , Feminino , Humanos , Comunicação Interdisciplinar , Masculino , Avaliação das Necessidades , Avaliação em Enfermagem , Educação de Pacientes como Assunto/organização & administração , Qualidade de Vida/psicologia , Suíça
4.
Pflege ; 21(6): 375-84, 2008 Dec.
Artigo em Alemão | MEDLINE | ID: mdl-19048516

RESUMO

In many Anglo-Saxon and North European countries nursing research agendas have been developed to address priorities in nursing research in accordance with a nationally defined health policy. In Switzerland, due to lack of a nationwide governmental health policy, co-ordination of nursing research so far was scarce. The "Swiss Research Agenda for Nursing (SRAN)" project developed an agenda for clinical nursing research between 2005 and 2007. Based on literature reviews, expert panels and a national survey a project team formulated an agenda which passed a consensus conference. The agenda recommends aspects that should lead research and defines seven research priorities for nursing in Switzerland for the time between 2007 and 2017. Nursing research should prioritize to investigate 1) the effectiveness of nursing interventions; 2) the influences of service adaptations in a changing health care system; 3) the phenomena in patients requiring nursing care; 4) the influence of the work environment on the quality of nursing care; 5) the functioning of family and social systems; 6) varieties of life circumstances and their integration; and 7) the implementation of ethical principles in nursing. Written in German and French, the Swiss Research Agenda for Nursing for the first time formulates priorities for nursing research in Switzerland and can be used for strategic discussions. As a next step, the development of an action plan to enhance nursing research will take place in Switzerland.


Assuntos
Pesquisa em Enfermagem Clínica/tendências , Pesquisa em Enfermagem Clínica/organização & administração , Atenção à Saúde/tendências , Política de Saúde , Inquéritos Epidemiológicos , Humanos , Suíça
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