RESUMO
Many critics of the legalization of physician-assisted death oppose it in part because they fear it will further disadvantage those who are already economically disadvantaged. This argument points to a serious problem of how economic considerations can influence medical decisions, but in the context of PAD, the concern is not borne out. We will provide empirical evidence suggesting that concerns about money influence medical decisions throughout the full course of illness, but at the end of life, financial pressure is much more likely to influence a decision to pursue or reject aggressive life-extending care than it is to influence a request for PAD. We will also address the question of whether financial pressure as a result of being poor-particularly in the context of an inadequate social safety net-robs people of their autonomy, rendering their informed request and consent invalid. We argue that it does not. We will emphasize the impracticality and injustice of rejecting the role of poverty as a legitimate factor in decision-making, the irrational distinction between PAD and withdrawal of life-sustaining care, and the more appropriate focus on the great flaws in the American health care system.
Assuntos
Tomada de Decisões , Pobreza , Suicídio Assistido/ética , Suicídio Assistido/legislação & jurisprudência , Custos e Análise de Custo , Humanos , Consentimento Livre e Esclarecido/ética , Autonomia Pessoal , Assistência Terminal/ética , Assistência Terminal/legislação & jurisprudência , Suspensão de Tratamento/éticaRESUMO
While the bioethics literature demonstrates that the field has spent substantial time and thought over the last four decades on the goals, methods, and desired outcomes for service and training in bioethics, there has been less progress defining the nature and goals of bioethics research and scholarship. This gap makes it difficult both to describe the breadth and depth of these areas of bioethics and, importantly, to gauge their success. However, the gap also presents us with an opportunity to define this scope of work for ourselves and to help shape the broader conversation about the impact of academic research. Because of growing constraints on academic funding, researchers and scholars in many fields are being asked to demonstrate and also forecast the value and impact of their work. To do that, and also to satisfy ourselves that our work has meaningful effect, we must understand how our work can motivate change and how that change can be meaningfully measured. In a field as diverse as bioethics, the pathways to and metrics of change will likewise be diverse. It is therefore critical that any assessment of the impact of bioethics research and scholarship be informed by an understanding of the nature of the work, its goals, and how those goals can and ought to be furthered. In this paper, we propose a conceptual model that connects individual bioethics projects to the broader goals of scholarship, describing the translation of research and scholarly output into changes in thinking, practice, and policy. One of the key implications of the model is that impact in bioethics is generally the result of a collection of projects rather than of any single piece of research or scholarship. Our goal is to lay the groundwork for a thoroughgoing conversation about bioethics research and scholarship that will advance and shape the important conversation about their impact.
Assuntos
Temas Bioéticos , Bioética/tendências , Pesquisa Empírica , Análise Ética , Teoria Ética , Eticistas , Objetivos , Humanos , Apoio à Pesquisa como AssuntoAssuntos
Coragem , Atenção à Saúde/ética , Teoria Ética , Ética Institucional , Pesquisas sobre Atenção à Saúde , Futilidade Médica , Relações Enfermeiro-Paciente/ética , Cultura Organizacional , Avaliação de Processos e Resultados em Cuidados de Saúde , Satisfação do Paciente , Relações Médico-Paciente/ética , Percepção Social , Estresse Psicológico/etiologia , Procedimentos Desnecessários , Virtudes , HumanosRESUMO
Patient-satisfaction surveys can call attention to the importance of treating patients with dignity and respect, but good ratings depend more on manipulable patient perceptions than on good medicine. In fact, the pressure to get good ratings can lead to bad medicine.
Assuntos
Atenção à Saúde/ética , Pesquisas sobre Atenção à Saúde , Futilidade Médica , Avaliação de Processos e Resultados em Cuidados de Saúde , Satisfação do Paciente , Percepção Social , Procedimentos Desnecessários , Comunicação , Formação de Conceito , Atenção à Saúde/métodos , Atenção à Saúde/normas , Atenção à Saúde/tendências , Pesquisas sobre Atenção à Saúde/ética , Pesquisas sobre Atenção à Saúde/métodos , Pesquisas sobre Atenção à Saúde/normas , Pesquisas sobre Atenção à Saúde/tendências , Humanos , Futilidade Médica/ética , Futilidade Médica/psicologia , Avaliação de Processos e Resultados em Cuidados de Saúde/ética , Avaliação de Processos e Resultados em Cuidados de Saúde/normas , Avaliação de Processos e Resultados em Cuidados de Saúde/tendências , Satisfação Pessoal , Relações Profissional-Paciente/ética , Procedimentos Desnecessários/ética , Procedimentos Desnecessários/psicologiaRESUMO
BACKGROUND: Do-Not-Resuscitate (DNR) patients tend to receive less medical care after the order is written. To provide a clearer approach, the Ohio Department of Health adopted the Do-Not-Resuscitate law in 1998, indicating two distinct protocols of DNR orders that allow DNR patients to choose the medical care: DNR Comfort Care (DNRCC), implying DNRCC patients receive only comfort care after the order is written; and DNR Comfort Care-Arrest (DNRCC-Arrest), implying that DNRCC-Arrest patients are eligible to receive aggressive interventions until cardiac or respiratory arrest. The aim of this study was to examine the medical care provided to patients with these two distinct protocols of DNR orders. METHODS: Data were collected from August 2002 to December 2005 at a medical intensive care unit in a university-affiliated teaching hospital. In total, 188 DNRCC-Arrest patients, 88 DNRCC patients, and 2,051 non-DNR patients were included. Propensity score matching using multivariate logistic regression was used to balance the confounding variables between the 188 DNRCC-Arrest and 2,051 non-DNR patients, and between the 88 DNRCC and 2,051 non-DNR patients. The daily cost of intensive care unit (ICU) stay, the daily cost of hospital stay, the daily discretionary cost of ICU stay, six aggressive interventions, and three comfort care measures were used to indicate the medical care patients received. The association of each continuous variable and categorical variable with having a DNR order written was analyzed using Student's t-test and the χ2 test, respectively. The six aggressive interventions and three comfort care measures performed before and after the order was initiated were compared using McNemar's test. RESULTS: DNRCC patients received significantly fewer aggressive interventions and more comfort care after the order was initiated. By contrast, for DNRCC-Arrest patients, the six aggressive interventions provided were not significantly decreased, but the three comfort care measures were significantly increased after the order was initiated. In addition, the three medical costs were not significantly different between DNRCC and non-DNR patients, or between DNRCC-Arrest and non-DNR patients. CONCLUSIONS: When medical care provided to DNR patients is clearly indicated, healthcare professionals will provide the medical care determined by patient/surrogate decision-makers and healthcare professionals, rather than blindly decreasing medical care.
Assuntos
Avaliação de Resultados em Cuidados de Saúde , Ordens quanto à Conduta (Ética Médica) , APACHE , Idoso , Bases de Dados Factuais , Tomada de Decisões , Feminino , Custos de Cuidados de Saúde , Hospitais Universitários , Humanos , Unidades de Terapia Intensiva/estatística & dados numéricos , Tempo de Internação , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Ohio , Pontuação de PropensãoAssuntos
Menores de Idade , Ordens quanto à Conduta (Ética Médica) , Direito a Morrer , Estudantes , Adolescente , Adulto , Criança , Política de Saúde , Parada Cardíaca/terapia , Humanos , Ohio , Ordens quanto à Conduta (Ética Médica)/ética , Ordens quanto à Conduta (Ética Médica)/legislação & jurisprudência , Serviços de Saúde Escolar/ética , Serviços de Saúde Escolar/legislação & jurisprudência , Serviços de Saúde Escolar/normas , Instituições Acadêmicas/ética , Instituições Acadêmicas/legislação & jurisprudência , Instituições Acadêmicas/normasRESUMO
Protection of human subjects from investigators' conflicts of interest is critical to the integrity of clinical investigation. Personal financial conflicts of interest are addressed by university policies, professional society guidelines, public standards, and government regulation, but "intrinsic conflict of interest"--conflicts of interest inherent in all clinical research--have received relatively less attention. Such conflicts arise in all clinical research endeavors as a result of the tension among professionals' responsibilities to their research and to their patients and both academic and financial incentives. These conflicts should be disclosed to research subjects and managed as assiduously as are financial conflicts of interest.
Assuntos
Ensaios Clínicos como Assunto/ética , Conflito de Interesses , Revelação/ética , Experimentação Humana/ética , Seleção de Pacientes/ética , Pesquisadores , Pesquisa Biomédica/ética , Ética em Pesquisa , Humanos , Consentimento Livre e Esclarecido , Relações Médico-Paciente/ética , Médicos/economia , Médicos/psicologia , Pesquisadores/economia , Pesquisadores/psicologia , Apoio à Pesquisa como Assunto , Estados UnidosAssuntos
Bioética , Transplante de Órgãos/legislação & jurisprudência , Doadores de Tecidos/legislação & jurisprudência , Obtenção de Tecidos e Órgãos/legislação & jurisprudência , Humanos , Seguro , Motivação , Transplante de Órgãos/economia , Transplante de Órgãos/normas , Doadores de Tecidos/provisão & distribuição , Obtenção de Tecidos e Órgãos/economia , Obtenção de Tecidos e Órgãos/normas , Estados Unidos , Listas de EsperaRESUMO
A panel of ethicists, organ procurement organization executives, physicians, and surgeons was convened by the sponsorship of the American Society of Transplant Surgeons to determine whether an ethically acceptable pilot trial could be proposed to provide a financial incentive for a family to consent to the donation of organs from a deceased relative. An ethical methodology was developed that could be applied to any proposal for monetary compensation to elucidate its ethical acceptability. An inverse relationship between financial incentives for increasing the families' consent for cadaver donation that clearly would be ethically acceptable (e.g., a contribution to a charity chosen by the family or a reimbursement for funeral expenses) and those approaches that would more likely increase the rate of donation (e.g., direct payment or tax incentive) was evident. The panel was unanimously opposed to the exchange of money for cadaver donor organs because either a direct payment or tax incentive would violate the ideal standard of altruism in organ donation and unacceptably commercialize the value of human life by commodifying donated organs. However, a majority of the panel members supported reimbursement for funeral expenses or a charitable contribution as an ethically permissible approach. The panel concluded that the concept of the organ as a gift could be sustained by a funeral reimbursement or charitable contribution that conveyed the appreciation of society to the family for their donation. Depending on the amount of reimbursement provided for funeral expenses, this approach could be ethically distinguished from a direct payment, by their intrusion into the realm of altruism and voluntariness. We suggest that a pilot project be conducted to determine whether this kind of a financial incentive would be acceptable to the public and successful in increasing organ donation.