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1.
Support Care Cancer ; 30(4): 3291-3302, 2022 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-34981198

RESUMO

BACKGROUND: Studies about support needs of young adult childhood cancer survivors (YACCS) previously focused mainly on information needs. This study assessed support needs and associated factors (sociodemographic, medical, and psychosocial functioning) in Dutch YACCS. METHODS: YACCS (aged 18-30, diagnosed ≤ 18 years, time since diagnosis ≥ 5 years) cross-sectionally filled out a questionnaire regarding their need for various types of support (concrete information, personal counseling, and peer contact) in eight domains (physical consequences of childhood cancer, social-emotional consequences, relationships and sexuality, fertility, lifestyle, school and work, future perspective, insurance and mortgage), and questionnaires assessing health-related quality of life (PedsQL-YA), anxiety and depression (HADS), and fatigue (CIS-20R). Descriptive statistics were used to describe support needs. Linear regression was used to identify characteristics associated with support needs. RESULTS: One hundred fifty-one YACCS participated (response = 40%). Most YACCS reported a need for support in one or more domains (88.0%, N = 133). More than half of the participants reported a need for concrete information in the domains lifestyle, fertility, and physical consequences of childhood cancer and 25-50% in the domains insurance and mortgages, future perspective, and social-emotional consequences of childhood cancer. In the domains lifestyle and physical as well as emotional consequences of childhood cancer, 25-50% reported a need for counseling. Overall need for support was positively associated with middle (ß = 0.26, p = 0.024) and high (ß = 0.35, p = 0.014) compared to low educational attainment and (sub)clinical anxiety (ß = 0.22, p = 0.017), and negatively associated with social functioning (ß = - 0.37, p = 0.002) in multivariate analyses. CONCLUSION: YACCS report the strongest need for support, for concrete information, in the domains lifestyle, fertility, and physical consequences of childhood cancer. Associated factors were mostly socioeconomic and psychosocial in nature. Psychosocial care should be an integral part of survivorship care for YACCS, with screening for psychosocial problems, information provision including associated emotional consequences and support if necessary (psycho-education) and tailored interventions, and adequate referrals to more specialized care if necessary.


Assuntos
Sobreviventes de Câncer , Neoplasias , Adolescente , Adulto , Criança , Necessidades e Demandas de Serviços de Saúde , Humanos , Neoplasias/psicologia , Neoplasias/terapia , Qualidade de Vida/psicologia , Apoio Social , Inquéritos e Questionários , Sobrevivência , Adulto Jovem
2.
Dermatol Online J ; 20(3)2014 Mar 17.
Artigo em Inglês | MEDLINE | ID: mdl-24656281

RESUMO

This document provides a summary of the Dutch S3-guidelines on the treatment of psoriasis. These guidelines were finalized in December 2011 and contain unique chapters on the treatment of psoriasis of the face and flexures, childhood psoriasis as well as the patient's perspective on treatment. They also cover the topical treatment of psoriasis, photo(chemo)therapy, conventional systemic therapy and biological therapy.


Assuntos
Psoríase/terapia , Adulto , Anti-Inflamatórios/uso terapêutico , Anticorpos Monoclonais/uso terapêutico , Produtos Biológicos/uso terapêutico , Criança , Terapia Combinada , Contraindicações , Vias de Administração de Medicamentos , Esquema de Medicação , Interações Medicamentosas , Quimioterapia Combinada , Humanos , Imunossupressores/uso terapêutico , Países Baixos , Aceitação pelo Paciente de Cuidados de Saúde , Psoríase/tratamento farmacológico , Psoríase/radioterapia , Retinoides/uso terapêutico , Terapia Ultravioleta/efeitos adversos , Terapia Ultravioleta/economia
3.
Endoscopy ; 44(1): 74-94, 2012 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-22198778

RESUMO

Atrophic gastritis, intestinal metaplasia, and epithelial dysplasia of the stomach are common and are associated with an increased risk for gastric cancer. In the absence of guidelines, there is wide disparity in the management of patients with these premalignant conditions. The European Society of Gastrointestinal Endoscopy (ESGE), the European Helicobacter Study Group (EHSG), the European Society of Pathology (ESP) and the Sociedade Portuguesa de Endoscopia Digestiva (SPED) have therefore combined efforts to develop evidence-based guidelines on the management of patients with precancerous conditions and lesions of the stomach (termed MAPS). A multidisciplinary group of 63 experts from 24 countries developed these recommendations by means of repeat online voting and a meeting in June 2011 in Porto, Portugal. The recommendations emphasize the increased cancer risk in patients with gastric atrophy and metaplasia, and the need for adequate staging in the case of high grade dysplasia, and they focus on treatment and surveillance indications and methods.


Assuntos
Mucosa Gástrica/patologia , Gastrite Atrófica/patologia , Gastrite Atrófica/terapia , Lesões Pré-Cancerosas/patologia , Lesões Pré-Cancerosas/terapia , Neoplasias Gástricas/patologia , Biópsia , Medicina Baseada em Evidências , Gastrite Atrófica/diagnóstico , Gastroscopia , Infecções por Helicobacter/tratamento farmacológico , Infecções por Helicobacter/economia , Infecções por Helicobacter/microbiologia , Helicobacter pylori , Humanos , Metaplasia/patologia , Metaplasia/terapia , Pepsinogênios/sangue , Vigilância da População , Lesões Pré-Cancerosas/diagnóstico
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