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1.
J Am Med Dir Assoc ; 24(1): 105-112.e1, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36442539

RESUMO

OBJECTIVE: Approximately 2% of older adults currently live in nursing homes. It is important that the risks for vision loss be characterized to ensure appropriate vision care is provided for nursing home patients. Our objective was to evaluate the association of age-related eye diseases (AREDs) and multimorbidities with vision loss. DESIGN: Cross-sectional study. SETTING AND PARTICIPANTS: This is a cross-sectional analysis of comprehensive eye examination records for 7753 residents of 74 North Carolina nursing homes who were ≥65 years of age at time of the initial patient visit. METHODS: Complete data on vision and associated factors were included from the standardized Centers for Medicare and Medicaid Services eye examination. We defined vision impairment and blindness respectively as best-corrected visual acuity between 20/40 and 20/200, and 20/200 or worse. Clinical diagnoses of AREDs were defined by the attending clinician. Data were extracted from electronic health records, and all analyses were conducted in SAS v 9.4. We used descriptive statistics to summarize the resident characteristics and AREDs and logistic regression analysis to examine independent risk factors for vision impairment. RESULTS: A total of 7753 initial eye examination records with complete data were included in the analysis. Overall, 34% of the residents had normal vision, 43% had vision impairment, and 23% were blind. Among participants with various AREDs, the prevalence of vision impaired/blind ranged from 63% to 76%, while blindness ranged from 23% to 53%. We found correction of refractive error alone served to reduce vision impairment or blindness. CONCLUSIONS AND IMPLICATIONS: Comprehensive eye examinations showed vision impairment and blindness affected 66% of nursing home residents, overall. This study substantiates the positive impact of comprehensive eye examinations to promote visual, systemic, and cognitive health and well-being and the need that eye care service be used to inform policy and practice to improve patient functioning and independence.


Assuntos
Medicare , Transtornos da Visão , Estados Unidos/epidemiologia , Humanos , Idoso , Estudos Transversais , Acuidade Visual , Transtornos da Visão/epidemiologia , Transtornos da Visão/complicações , Cegueira/epidemiologia , Cegueira/etiologia , Cegueira/psicologia , Fatores de Risco , Casas de Saúde , Prevalência
2.
J Fr Ophtalmol ; 43(8): 742-752, 2020 Oct.
Artigo em Francês | MEDLINE | ID: mdl-32653097

RESUMO

PURPOSE: To evaluate the ARAMAV 13-30 questionnaire, a new autonomy and quality of life questionnaire developed for visually impaired patients. METHODS: We carried out a single-center prospective study at the ARAMAV institute in collaboration with the University Hospital of Nîmes. The patients included were admitted for low vision rehabilitation. Each patient received an occupational therapy assessment, the Short Forms 36 (SF36) quality of life questionnaire and the ARAMAV 13-30 questionnaire at the start and at the end of rehabilitation. We verified the reproducibility, the sensitivity to change, and internal and external consistency of the questionnaire. RESULTS: We included 231 patients over a period of 4 years. All the patients were blind or visually impaired. We observed excellent intra- and interuser reproducibility of the questionnaire, with a Lin coefficient>0.9 (0.99 and 0.91, respectively). By comparing the variations of the different scores between before and after low vision rehabilitation, we observed excellent sensitivity to change for both the autonomy and quality of life portions of the questionnaire. Finally, we observed excellent internal and external consistency. CONCLUSION: We therefore propose the ARAMAV 13-30 questionnaire as a new tool in evaluating autonomy and quality of life specifically in visually impaired patients, which may also be used to assess the effect of low vision rehabilitation.


Assuntos
Autonomia Pessoal , Psicometria/métodos , Qualidade de Vida , Inquéritos e Questionários , Pessoas com Deficiência Visual , Adulto , Idoso , Idoso de 80 Anos ou mais , Cegueira/epidemiologia , Cegueira/psicologia , Cegueira/reabilitação , Feminino , Hospitais Universitários , Humanos , Masculino , Pessoa de Meia-Idade , Satisfação Pessoal , Psicometria/normas , Reprodutibilidade dos Testes , Inquéritos e Questionários/normas , Baixa Visão/epidemiologia , Baixa Visão/psicologia , Pessoas com Deficiência Visual/psicologia , Pessoas com Deficiência Visual/reabilitação , Pessoas com Deficiência Visual/estatística & dados numéricos
3.
Laryngoscope ; 130(7): 1674-1679, 2020 07.
Artigo em Inglês | MEDLINE | ID: mdl-31846094

RESUMO

OBJECTIVES: Advanced nasal malignancies may require rhinectomy, which can have profound psychosocial impacts. Rhinectomy defects can be rehabilitated through surgery or prosthetics. We seek to understand the health utility of the rhinectomy defect, surgical, and prosthetic reconstruction, which have not been previously studied. STUDY DESIGN: Prospective clinical study METHODS: Adult naïve observers (n = 273) ranked the utility of five randomized health states (monocular blindness, binocular blindness, post-rhinectomy nasal defect, postsurgical reconstruction, and post-prosthetic rehabilitation). Health utilities were measured using visual analogue scale (VAS), standard gamble (SG), and time trade-off (TTO). One-way analysis of variance (ANOVA) with post hoc Scheffe's test and the independent samples T-test for a priori comparisons were performed. Multiple linear regression was performed using participant demographics as independent predictors of utility scores. RESULTS: Health utilities (VAS, SG, TTO) were reported as follows (mean ± SD): monocular blindness (0.71 ± 0.21, 0.84 ± 0.20, 0.85 ± 0.19), binocular blindness (0.48 ± 0.25, 0.68 ± 0.28, 0.63 ± 0.28), post-rhinectomy nasal defect (0.59 ± 0.24, 0.74 ± 0.24, 0.74 ± 0.24), postsurgical reconstruction (0.88 ± 0.16, 0.90 ± 0.18, 0.89 ± 0.13), and post-prosthetic rehabilitation (0.67 ± 0.22, 0.80 ± 0.23, 0.82 ± 0.20). Both surgical reconstruction (P < .001) and prosthetic rehabilitation (P < .001) significantly improved health utility. SG and TTO utility scores were inversely associated with observer age (P < .001) and participants who identified themselves as non-Caucasians (P < .05) in post-rhinectomy nasal defect, post-nasal surgical reconstruction, and post-nasal prosthetic rehabilitation health states, while higher levels of education were directly associated with SG scores (P < .05), respectively. CONCLUSION: This is the first study to demonstrate the significant negative impact of the rhinectomy nasal defect on health utility. Rehabilitation by surgical or prosthetic techniques significantly increases health utility as rated by naïve observers. Laryngoscope, 130:1674-1679, 2020.


Assuntos
Neoplasias Nasais/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Procedimentos de Cirurgia Plástica/psicologia , Complicações Pós-Operatórias/psicologia , Rinoplastia/psicologia , Adulto , Análise de Variância , Cegueira/etiologia , Cegueira/psicologia , Efeitos Psicossociais da Doença , Feminino , Humanos , Modelos Lineares , Masculino , Nariz/cirurgia , Neoplasias Nasais/cirurgia , Complicações Pós-Operatórias/etiologia , Estudos Prospectivos , Qualidade de Vida , Anos de Vida Ajustados por Qualidade de Vida , Procedimentos de Cirurgia Plástica/efeitos adversos , Procedimentos de Cirurgia Plástica/métodos , Rinoplastia/efeitos adversos , Rinoplastia/métodos , Inquéritos e Questionários , Resultado do Tratamento , Escala Visual Analógica
4.
Can J Ophthalmol ; 54(6): 674-677, 2019 12.
Artigo em Inglês | MEDLINE | ID: mdl-31836098

RESUMO

OBJECTIVE: Young people are a relatively underrepresented group in literature on poor vision and blindness. This study assessed the quality of life and function of young people who have poor vision or blindness by asking directly about their personal experiences. METHODS: A modified version of the VFQ-25 was administered to 47 students at a school for blind youth. All students who received the test had visual acuity scores of 20/100 or worse. The VFQ-25 scoring system was used, and results from additional qualitative questions were themed and ranked. Further analysis was performed, using Spearman's rank correlation coefficient to check for correlation between duration of blindness and VFQ score. RESULTS: Participants recorded a composite VFQ score of 65, showing that poor vision had a self-perceived moderate effect on their daily function. Proportion of participant's life spent with visual impairment correlated with higher composite scores. In general, lower scores were reported by participants with worse visual acuity. However, variations were observed in the mental health category. CONCLUSIONS: Young people have a more optimistic and nuanced view of their function than expected based on VFQ scores of other groups. Larger studies, particularly ones including youth in non-specialized schools would be useful to expand these findings.


Assuntos
Cegueira/fisiopatologia , Baixa Visão/fisiopatologia , Acuidade Visual/fisiologia , Atividades Cotidianas , Adolescente , Cegueira/epidemiologia , Cegueira/psicologia , Canadá/epidemiologia , Criança , Feminino , Nível de Saúde , Humanos , Masculino , Qualidade de Vida/psicologia , Perfil de Impacto da Doença , Inquéritos e Questionários , Baixa Visão/epidemiologia , Baixa Visão/psicologia , Pessoas com Deficiência Visual/estatística & dados numéricos , Adulto Jovem
5.
PLoS One ; 13(11): e0206742, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-30388172

RESUMO

OBJECTIVE: Diabetic retinopathy remains the leading cause of blindness among working-age U.S. adults largely due to low screening rates. Rural populations face particularly greater challenges to screening because they are older, poorer, less insured, and less likely to receive guideline-concordant care than those in urban areas. Current patient education efforts may not fully address multiple barriers to screening faced by rural patients. We sought to characterize contextual factors affecting rural patient adherence with diabetic eye screening guidelines. RESEARCH DESIGN AND METHODS: We conducted semi-structured interviews with 29 participants (20 adult patients with type 2 diabetes and 9 primary care providers) in a rural, multi-payer health system. Both inductive and directed content analysis were performed. RESULTS: Factors influencing rural patient adherence with diabetic eye screening were categorized as environmental, social, and individual using the Ecological Model of Health. Major themes included limited access to and infrequent use of healthcare, long travel distances to obtain care, poverty and financial tradeoffs, trusting relationships with healthcare providers, family members' struggles with diabetes, anxiety about diabetes complications, and the burden of diabetes management. CONCLUSIONS: Significant barriers exist for rural patients that affect their ability to adhere with yearly diabetic eye screening. Many studies emphasize patient education to increase adherence, but current patient education strategies fail to address major environmental, social, and individual barriers. Addressing these factors, leveraging patient trust in their healthcare providers, and strategies targeted specifically to environmental barriers such as long travel distances (e.g. teleophthalmology) may fill crucial gaps in diabetic eye screening in rural communities.


Assuntos
Diabetes Mellitus Tipo 2/diagnóstico , Diabetes Mellitus Tipo 2/psicologia , Retinopatia Diabética/diagnóstico , Retinopatia Diabética/psicologia , Cooperação do Paciente/psicologia , Saúde da População Rural , Idoso , Idoso de 80 Anos ou mais , Cegueira/etiologia , Cegueira/prevenção & controle , Cegueira/psicologia , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Pessoal de Saúde/psicologia , Humanos , Entrevistas como Assunto , Masculino , Programas de Rastreamento , Pessoa de Meia-Idade , Atenção Primária à Saúde , Pesquisa Qualitativa , População Rural , Fatores Socioeconômicos , Wisconsin
7.
Chronobiol Int ; 34(7): 895-902, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28594297

RESUMO

The objective of the present study was to verify the agreement between objective and subjective measures of sleep in people with and without visual impairment. Thirty-seven subjects with visual impairment participated in the study (19 blind without light perception and 18 low-vision), as well as 34 subjects with normal vision, with paired age and gender characteristics. For the subjective sleep evaluation, we used the Sleep Quality Index-PSQI and for the objective evaluation we used the ActiGraph GT3X+. Among the three analyzed groups, the blind was the only ones who presented differences between subjective and objective sleep duration (p = 0.021). Furthermore, the concordance between subjective and objective sleep duration (ICC = 0.388; p = 0.108) was not observed in blind subjects, and a greater variability of differences in sleep duration between the two methods was observed by the Bland Altman scatter plot. We concluded that the sleep duration obtained by PSQI did not show agreement for the objective sleep duration in blind subjects without light perception.


Assuntos
Transtornos do Sono-Vigília/fisiopatologia , Sono , Transtornos da Visão/fisiopatologia , Visão Ocular , Adolescente , Adulto , Cegueira/diagnóstico por imagem , Cegueira/fisiopatologia , Cegueira/psicologia , Estudos de Casos e Controles , Feminino , Humanos , Luz , Masculino , Pessoa de Meia-Idade , Estimulação Luminosa , Transtornos do Sono-Vigília/diagnóstico , Fatores de Tempo , Transtornos da Visão/diagnóstico , Transtornos da Visão/psicologia , Percepção Visual , Pessoas com Deficiência Visual/psicologia , Adulto Jovem
8.
J Neurosurg Pediatr ; 20(2): 113-118, 2017 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-28524791

RESUMO

OBJECTIVE Sagittal craniosynostosis results in a characteristic scaphocephalic head shape that is typically corrected surgically during a child's 1st year of life. The authors' objective was to determine the potential impact of being born with sagittal craniosynostosis by using validated health state utility assessment measures. METHODS An online utility assessment was designed to generate health utility scores for scaphocephaly, monocular blindness, and binocular blindness using standardized utility assessment tools, namely the visual analog scale (VAS) and the standard gamble (SG) and time trade-off (TTO) tests. Utility scores were compared between health states using the Wilcoxon and Kruskal-Wallis tests. Univariate regression was performed using age, sex, income, and education as independent predictors of utility scores. RESULTS Over a 2-month enrollment period, 122 participants completed the online survey. One hundred eighteen participants were eligible for analysis. Participants rated scaphocephaly due to sagittal craniosynostosis with significantly higher (p < 0.001) median utility scores (VAS 0.85, IQR 0.76-0.95; SG 0.92, IQR 0.84-0.98; TTO 0.91, IQR 0.84-0.95) than both monocular blindness (VAS 0.60, IQR 0.50-0.70; SG 0.84, IQR 0.68-0.94; TTO 0.84, IQR 0.67-0.91) and binocular blindness (VAS 0.25, IQR 0.20-0.40; SG 0.51, IQR 0.18-0.79; TTO 0.55, IQR 0.36-0.76). No differences were noted in utility scores based on participant age, sex, income, or education. CONCLUSIONS Using objective health state utility scores, authors of the current study demonstrated that the preoperatively perceived burden of scaphocephaly in a child's 1st year of life is less than that of monocular blindness. These relatively high utility scores for scaphocephaly suggest that the burden of disease as perceived by the general population is low and should inform surgeons' discussions when offering morbid corrective surgery, particularly when driven by aesthetic concerns.


Assuntos
Efeitos Psicossociais da Doença , Craniossinostoses , Nível de Saúde , Adulto , Fatores Etários , Cegueira/economia , Cegueira/psicologia , Craniossinostoses/economia , Craniossinostoses/patologia , Craniossinostoses/psicologia , Escolaridade , Feminino , Humanos , Renda , Lactente , Internet , Masculino , Percepção , Estudos Prospectivos , Qualidade de Vida , Fatores Sexuais , Inquéritos e Questionários
9.
Psychosomatics ; 58(1): 38-45, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-27616023

RESUMO

BACKGROUND: Leber׳s hereditary optic neuropathy usually causes rapid bilateral blindness in young adults, and thus represents a unique and severe psychologic stressor. OBJECTIVE: We aimed to describe adjustment to this major life event, using a new tool to enhance recall of past affective states by using life event-related context. This is the largest (n = 116 with Leber׳s hereditary optic neuropathy), and first study reporting on the emotional aspects of this nontrauma cause of blindness. METHODS: We developed a new online survey tool that allowed study subjects to report their mood over a long period of time, corresponding with dates of relevant life events. RESULTS: The new method provided data of great richness for qualitative and quantitative analysis. Three groups were identified: a group in which majority of them had severe sadness at the point of vision loss followed by a period of recovery, a group whose sadness had not recovered, and a group for whom vision loss was not a major cause of sadness compared with other life events. We identified numerous factors that were important in psychologic recovery, and premorbid psychologic symptoms were more frequent in those who had not yet recovered. CONCLUSIONS: These data may assist behavioral health providers in identifying patients with vision loss to be at risk of mental health problems and in developing support and treatment interventions. We believe this new method has great potential for studying psychologic adjustment retrospectively.


Assuntos
Cegueira/psicologia , Emoções , Acontecimentos que Mudam a Vida , Atrofia Óptica Hereditária de Leber/psicologia , Estresse Psicológico/psicologia , Inquéritos e Questionários/normas , Adaptação Psicológica , Adolescente , Adulto , Idoso , Cegueira/etiologia , Europa (Continente) , Feminino , Humanos , Internet , Masculino , Pessoa de Meia-Idade , Atrofia Óptica Hereditária de Leber/complicações , Estresse Psicológico/etiologia , Adulto Jovem
10.
Psychol Assess ; 29(3): 343-348, 2017 03.
Artigo em Inglês | MEDLINE | ID: mdl-27183043

RESUMO

The most common and advocated assessment approach when a child cannot access visual materials is to use the verbal subscales of a test the psychologist already has and is familiar with. However, previous research indicates that children with visual impairments experience atypical verbal development. This raises the question of whether verbal subscale scores retain their reliability and interpretation validity when given to children with visual impairments. To answer this question, we administered a vocabulary subscale from a common intelligence test along with several nonverbal subscales to 15 early-blind adolescents (onset of ≤2 years). Reliability of only the vocabulary test scores was insufficient for high-stakes testing. This finding points to the broader issue of difficulties in assessing populations of exceptional children who experience atypical development trajectories, possibly making their assessment with common tests inappropriate. (PsycINFO Database Record


Assuntos
Cegueira/psicologia , Testes de Inteligência , Adolescente , Estudos de Casos e Controles , Feminino , Humanos , Inteligência , Testes de Linguagem , Masculino , Tempo de Reação , Reprodutibilidade dos Testes , Transtornos da Visão/psicologia
11.
Indian J Ophthalmol ; 64(8): 572-7, 2016 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-27688278

RESUMO

CONTEXT: Caregivers who assist persons with visual impairment often neglect their needs, resulting in burden and depression. Rehabilitation efforts, directed to the disabled, seldom target the caregiver. AIM: To assess burden and depression in persons caring for blind individuals. SETTINGS AND DESIGN: This was a cross-sectional study carried out in the outpatient department of a tertiary-level teaching hospital in New Delhi. MATERIALS AND METHODS: Institutional Ethical Board approval was obtained and written informed consent too was obtained from the participants involved in this study. Persons with best-corrected vision <20/200 in the better eye, and their primary caregivers, were recruited. We recorded demography, other illness/disability, household income, relationship with disabled person, and caregiver burden (Caregiver Burden Scale) and depression (Centre for Epidemiologic Studies Depression Scale). STATISTICAL ANALYSIS: Statistical analysis was carried out using SPSS version 20 (Released 2011. Armonk, NY: IBM Corp.); range, average, and standard deviation were determined for age, burden, and depression. The association between burden and depression was determined using Pearson's correlation; the relationship between degree of disability and caregiver burden and depression was determined using unpaired t-test; using multiple linear regression, factors were found to be statistically significant; significance was taken at P < 0.05. RESULTS: Twenty-seven (53.0%) men and 24 (47.0%) women had visual impairment. Most caregivers (n = 40; 81.6%) were first-degree relatives or a spouse; 32 (65%) had schooling <5 years; and 29 (59%) were unemployed. Depression ranged from 21 to 52 (average 43.2 ± 5.71); it correlated with degree of disability (P = 0.012), household income (r = -0.320; P = 0.025), and burden (r = 0.616; P < 0.001). Burden ranged from 30 to 73 (average 54.5 ± 6.73) and correlated with degree of disability (P = 0.006). On multiple linear regression, burden predicted depression (r = 0.557; P < 0.001). CONCLUSIONS: Caregivers merit community support, financial benefit, interventions to diagnose and treat depression, and training in coping. Centers that provide disability certification could offer counseling.


Assuntos
Cegueira/psicologia , Cuidadores/psicologia , Dependência Psicológica , Transtorno Depressivo/psicologia , Pessoas com Deficiência/psicologia , Pessoas com Deficiência Visual/psicologia , Adaptação Psicológica , Adulto , Idoso , Efeitos Psicossociais da Doença , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
12.
Br J Ophthalmol ; 100(5): 588-93, 2016 May.
Artigo em Inglês | MEDLINE | ID: mdl-26917676

RESUMO

OBJECTIVE: To assess the impact of corneal disease on vision-related quality of life (VR-QoL) in a rural North Indian population. DESIGN: Cross-sectional, population-based study. METHODS: The Corneal Opacity Rural Epidemiological (CORE) study included 12 899 participants from 25 randomly selected clusters of rural Gurgaon, Haryana, India, with the primary objective of determining the prevalence of corneal disease in the general population during July 2011 to January 2013. VR-QoL was assessed through Indian Vision Function questionnaire (IND-VFQ-33) in adult participants (aged ≥18 years) detected with corneal opacity and equal number of healthy controls (no ocular pathology with visual acuity of 6/6 binocularly) selected from the same clusters. Scores of the three subscales of IND-VFQ-33 (vision-specific mobility, psychosocial impact and visual symptoms) were computed, analysed and compared separately across various groups. RESULTS: Overall, 12 113 participants of all ages underwent detailed ophthalmic examination and VR-QoL was assessed in 435 cases with corneal disease and 435 controls without any ophthalmic disease. The diseased population had significantly higher scores and hence poorer VR-QoL across all three domains of vision function (scores of 28 vs 22; 6 vs 5 and 14 vs 9, respectively; p<0.0001) and the scores were inversely related with the level of visual impairment in patients with corneal disease. Patients with unilateral corneal disease also had poorer VR-QoL scores as compared with healthy controls (p<0.0001). CONCLUSIONS: VR-QoL is impaired in patients with corneal disease, more so in patients with corneal blindness. This is the first population-based study to document VR-QoL through IND-VFQ-33 in the Indian population with corneal disease.


Assuntos
Cegueira/psicologia , Doenças da Córnea/psicologia , Qualidade de Vida/psicologia , População Rural/estatística & dados numéricos , Baixa Visão/psicologia , Visão Ocular , Pessoas com Deficiência Visual/psicologia , Adolescente , Adulto , Cegueira/epidemiologia , Doenças da Córnea/epidemiologia , Estudos Transversais , Estudos Epidemiológicos , Feminino , Humanos , Índia/epidemiologia , Masculino , Pessoa de Meia-Idade , Ocupações , Prevalência , Perfil de Impacto da Doença , Inquéritos e Questionários , Baixa Visão/epidemiologia , Adulto Jovem
13.
IEEE Trans Haptics ; 8(3): 279-86, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25935047

RESUMO

Tactile maps are efficient tools to improve spatial understanding and mobility skills of visually impaired people. Their limited adaptability can be compensated with haptic devices which display graphical information, but their assessment is frequently limited to performance-based metrics only which can hide potential spatial abilities in O&M protocols. We assess a low-tech tactile mouse able to deliver three-dimensional content considering how performance, mental workload, behavior, and anxiety status vary with task difficulty and gender in congenitally blind, late blind, and sighted subjects. Results show that task difficulty coherently modulates the efficiency and difficulty to build mental maps, regardless of visual experience. Although exhibiting attitudes that were similar and gender-independent, the females had lower performance and higher cognitive load, especially when congenitally blind. All groups showed a significant decrease in anxiety after using the device. Tactile graphics with our device seems therefore to be applicable with different visual experiences, with no negative emotional consequences of mentally demanding spatial tasks. Going beyond performance-based assessment, our methodology can help with better targeting technological solutions in orientation and mobility protocols.


Assuntos
Cegueira/reabilitação , Periféricos de Computador , Emoções , Identidade de Gênero , Tecnologia Assistiva , Tato , Pessoas com Deficiência Visual/reabilitação , Adulto , Comportamento/fisiologia , Cegueira/psicologia , Cognição/fisiologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Visão Ocular/fisiologia , Pessoas com Deficiência Visual/psicologia , Adulto Jovem
16.
Ophthalmic Epidemiol ; 21(6): 397-405, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25357102

RESUMO

PURPOSE: To report functional outcomes following cataract surgery in Timor-Leste. METHODS: Pre- and post-intervention study measuring visual function improvement following cataract surgery. Presenting visual acuity (VA) was measured and visual function documented using the Indian vision function questionnaire (IND-VFQ). RESULTS: All 174 persons undergoing cataract surgery from November 2009 to January 2011 in Timor-Leste were included. Mean age was 65.4 years; 113 (64.9%) were male, 143 (82.1%) were from a rural background and 151 (86.8%) were illiterate. Pre-operatively, 77 of 174 patients (44.3%, 95% confidence interval, CI, 37.0-51.7%) were blind (VA ≤3/60), 77 (44.3%, 95% CI 37.0-51.7%) were visually impaired (VA <6/18->3/60), while 20 (11.5%, 95% CI 7.4-16.9%) had presenting acuity ≥6/18 in the better eye. Following surgery, significant improvement in visual function was demonstrated by an effect size of 2.8, 3.7 and 3.9 in the domains of general functioning, psychosocial impact and visual symptoms, respectively. Four weeks following surgery, 85 patients (48.9%, 95% CI 41.5-66.3%) had a presenting VA ≥6/18, 74 (42.5%, 95% CI 35.3-45.9%) were visually impaired and 15 (8.6%, 95% CI 5.0-13.6%) were blind. IND-VFQ improvement occurred even in patients remaining visually impaired or blind following surgery. CONCLUSION: In this setting, cataract surgery led to a significant improvement in visual function but the VA results did not meet World Health Organization quality criteria. IND-VFQ results, although complementary to clinical VA outcomes did not, in isolation, reflect the need to improve program quality.


Assuntos
Extração de Catarata , Acuidade Visual , Idoso , Idoso de 80 Anos ou mais , Cegueira/epidemiologia , Cegueira/psicologia , Catarata/diagnóstico , Catarata/terapia , Oftalmopatias/complicações , Oftalmopatias/patologia , Humanos , Indonésia/epidemiologia , Lentes Intraoculares , Masculino , Pessoa de Meia-Idade , Qualidade de Vida/psicologia , População Rural/estatística & dados numéricos , Fatores Socioeconômicos , Resultado do Tratamento , Pessoas com Deficiência Visual/estatística & dados numéricos
17.
Ann Plast Surg ; 73 Suppl 2: S149-52, 2014 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-25046669

RESUMO

BACKGROUND: The number of patients requesting surgical procedures performed for brachioplasty and massive weight loss is increasing. The authors set out to quantify the health state utility outcome assessment of living with arm deformity requiring brachioplasty. METHODS: Utility assessments using the visual analog scale (VAS), time trade-off (TTO), and standard gamble (SG) were used to obtain utilities scores for arm deformity, monocular blindness, and binocular blindness from a sample of the general population and medical students. Linear regression and Student t test were used for statistical analysis. A P value less than 0.05 was deemed statistically significant. RESULTS: All the measures for arm deformity of the 107 volunteers (VAS, 0.80 ± 0.14; TTO, 0.91 ± 0.12; SG, 0.94 ± 0.10) were significantly different (P < 0.001) from the corresponding measures for monocular blindness and binocular blindness. When compared to the sample of the general population, having a medical education demonstrated a statistical significance of being less likely to trade years of life and less likely to gamble risk of death for a procedure such as a brachioplasty. Race and sex were not statistically significant independent predictors of risk acceptance. CONCLUSIONS: We have objectified the health state of living with upper arm deformity requiring brachioplasty. Utility outcome scores (VAS, 0.80 ± 0.14; TTO, 0.91 ± 0.12; SG, 0.94 ± 0.10) were comparable to living with health states such as aging neck needing rejuvenation, excess skin in the thighs necessitating thigh lift, and massive weight loss requiring panniculectomy based on previously reported studies.


Assuntos
Braço/cirurgia , Atitude Frente a Saúde , Técnicas Cosméticas/psicologia , Nível de Saúde , Anos de Vida Ajustados por Qualidade de Vida , Adulto , Cegueira/psicologia , Efeitos Psicossociais da Doença , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Modelos Lineares , Masculino , Estudos Prospectivos , Qualidade de Vida , Inquéritos e Questionários , Escala Visual Analógica
18.
Ann Plast Surg ; 73(2): 210-4, 2014 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-23528634

RESUMO

BACKGROUND: Debilitating lower extremity lymphedema can be either congenital or acquired. Utility scores are an objective measure used in medicine to quantify degrees of impact on an individual's life. Using standardized utility outcome measures, we aimed to quantify the health state of living with severe unilateral lower extremity lymphedema. METHODS: A utility outcomes assessment using visual analog scale, time trade-off, and standard gamble was used for lower extremity lymphedema, monocular blindness, and binocular blindness from a sample of the general population and medical students. Average utility scores were compared using a paired t test. Linear regression was performed using age, race, and education as independent predictors. RESULTS: A total of 144 prospective participants were included. All measures [visual analog scale, time trade-off, and standard gamble; expressed as mean (SD)] for unilateral lower extremity lymphedema (0.50 ± 0.18, 0.76 ± 0.22, and 0.76 ± 0.21, respectively) were significantly different (P < 0.001) from the corresponding scores for monocular blindness (0.64 ± 0.18, 0.84 ± 0.16, and 0.83 ± 0.17, respectively) and binocular blindness (0.35 ± 0.17, 0.61 ± 0.28, and 0.62 ± 0.26, respectively). CONCLUSIONS: We found that a sample of the general population and medical students, if faced with severe lymphedema, is willing to theoretically trade 8.64 life-years and undergo a procedure with a 24% risk of mortality to restore limb appearance and function to normal. These findings provide a frame of reference regarding the meaning of a diagnosis of severe lower extremity lymphedema to a patient and will allow objective comparison with other health states.


Assuntos
Atitude Frente a Saúde , Efeitos Psicossociais da Doença , Linfedema/psicologia , Qualidade de Vida , Índice de Gravidade de Doença , Adulto , Cegueira/psicologia , Feminino , Pesquisas sobre Atenção à Saúde , Humanos , Modelos Lineares , Linfedema/terapia , Masculino , Anos de Vida Ajustados por Qualidade de Vida , Escala Visual Analógica
19.
Int Health ; 5(4): 259-65, 2013 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-24105974

RESUMO

BACKGROUND: To identify challenges faced by key informants (KIs) in a childhood blindness and severe visual impairment survey in Cross River State (CRS), Nigeria. METHODS: Based on eligibility 742 KIs were selected by their village/clan heads in the 18 local government areas (LGAs) of Cross River State. After training in each LGA, KIs were to identify children with visual problems. KIs used a number of methods to identify children with vision loss. After the case detection period, KIs were requested to bring children suspected of vision problems to a central site for examination. Following this, an interviewer-administered semi-structured interview was used to obtain information from the KIs. Thematic content analysis was used to identify these challenges. RESULTS: Among the 742 KIs, 642 did not provide any comment on challenges during interview; 100 KIs reported challenges. Major challenge themes identified were issues related to the family of the child and issues related to operational conditions, principally transportation, communication, and incentives. CONCLUSIONS: It is likely that challenges were under-reported. Research is needed to understand why some parents feel stigmatized by having children with vision problems. Community based programmes need to strengthen community awareness, address trust issues, and ensure transportation and communication are improved in order to enhance programme success.


Assuntos
Cegueira/epidemiologia , Necessidades e Demandas de Serviços de Saúde/estatística & dados numéricos , Adulto , Cegueira/psicologia , Cegueira/terapia , Família , Feminino , Humanos , Entrevistas como Assunto/métodos , Masculino , Nigéria/epidemiologia , Vigilância da População , Estereotipagem
20.
Ann Plast Surg ; 71(3): 304-7, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23788144

RESUMO

BACKGROUND: The presence of excess skin after massive weight loss, particularly in the thighs, not only contributes to a negative body image but can also lead to functional deficits in mobility. In the present study, we quantified the health state utility of living with excess skin in the thighs in an attempt to objectively establish the burden on the quality of life in patients living with excess thigh skin laxity. METHOD: Using visual analog scale (VAS), time trade-off (TTO), and standard gamble (SG), we compared the utility outcome scores for thigh skin excess with monocular and binocular blindness from a prospective sample of medical students and the general population. Utility scores were compared using paired t test. Linear regression was performed using age, race, and education as independent predictors of each of the utility scores. RESULTS: One hundred thirty-four prospective participants were enrolled during a 6-month period, and 112 participants met our inclusion criteria. The utility outcome scores for thigh lift (VAS, TTO, and SG, 0.77 ± 0.15, 0.90 ± 0.11, and 0.89 ± 0.14, respectively) were statistically different from binocular blindness (VAS, TTO, and SG, 0.37 ± 0.18, 0.70 ± 0.23, and 0.70 ± 0.26; P < 0.001), but other than VAS (0.67 ± 0.15, P < 0.001), similar to monocular blindness (TTO and SG, 0.89 ± 0.13 and 0.81 ± 0.14, respectively; P > 0.05). SG (0.89 ± 0.14 vs 0.97 ± 0.02, P = 0.003) and TTO (0.89 ± 0.11 vs 0.95 ± 0.03, P = 0.038) were different between general population and medical students, respectively, corresponding to 3.96 versus 1.80 potential years willing to be traded (P < 0.05). Additionally, SG was higher in whites versus nonwhites who were willing to take a potential 8% chance of mortality compared to 15%, respectively (P = 0.001), to achieve "perfect" health. CONCLUSIONS: We have objectified the utility of living with thigh deformity after massive weight loss. Our sample population if faced with the condition was willing to sacrifice a potential 3.6 years of life and potentially undergo a procedure with 11% chance of mortality to address excess thigh laxity.


Assuntos
Atitude Frente a Saúde , Técnicas Cosméticas/psicologia , Procedimentos Cirúrgicos Dermatológicos/psicologia , Qualidade de Vida , Anos de Vida Ajustados por Qualidade de Vida , Coxa da Perna/cirurgia , Redução de Peso , Adulto , Cegueira/psicologia , Efeitos Psicossociais da Doença , Feminino , Pesquisas sobre Atenção à Saúde , Necessidades e Demandas de Serviços de Saúde , Humanos , Modelos Lineares , Masculino , Estudos Prospectivos , Pele/patologia , Coxa da Perna/patologia , Escala Visual Analógica
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