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1.
Artigo em Inglês | MEDLINE | ID: mdl-31991817

RESUMO

The aim of this study was to validate City of Hope Quality of Life-Ostomy Questionnaire (CoH-QoL-OQ) for assessing the quality of life (QoL) of ostomy patients in the Republic of Croatia. The CoH-QoL-OQ is widely used, but has not been translated or validated so it can be used in the Republic of Croatia. This cross-sectional study encompassed 302 surgery patients with colostomy, ileostomy, or urostomy (182 (60.3%) male and 120 (39.7%) female), whose average age is 59 (M = 59.3, SD = 15.8). The CoH-QoL-OQ was translated into Croatian language using accepted guidelines for translation. Patients were recruited in a telephone conversation, followed by mail containing the CoH-QoL-OQ delivered to the home addresses of the patients who agreed to participate. The collected data were analyzed to verify psychometric properties of the questionnaire on the Croatian sample. All subscales showed high level of internal consistency (Cronbach α = 0.73-0.89). The test-retest reliability indicated a very satisfactory temporal stability (r = 0.99). The Confirmatory Factor Analysis (CFA), showed that the originally established model was not adequate for the data (χ2 = 4237.88, p < 0.01, CFI = 0.540, NNFI = 0.481, RMSEA = 0.113). However, after modification that excluded problematic items, the data showed a better fit with the theoretical model (except for the LR chi-square test that remained statistically significant: χ2 = 1144.28, p < 0.01, CFI = 0.869, NNFI = 0.855 RMSEA = 0.077). We conclude that the CoH-QoL-OQ is a valid, reliable, and reducible instrument for measuring the health-related quality of life (HRQoL) among Croatian patients with ostomy in clinical research and clinical practice.


Assuntos
Colostomia/psicologia , Ileostomia/psicologia , Qualidade de Vida/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Croácia , Estudos Transversais , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários , Adulto Jovem
2.
J Wound Ostomy Continence Nurs ; 44(1): 69-73, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28060005

RESUMO

PURPOSE: In a previous paper focusing on the common sense model (CSM) for ostomies in people with inflammatory bowel disease, cancer, and diverticular disease, we reported that (1) illness perceptions were directly related to illness status, and both illness perceptions and coping strategies (maladaptive coping) directly influenced anxiety and depression; (2) self-efficacy and emotion-focused coping style ameliorated depression but not anxiety; and (3) time since surgery was associated with improved health status, a reduction in negative illness perceptions, and increased emotional-focused coping. The purpose of this article was to perform a secondary analysis with the addition of a stoma quality-of-life measure. SUBJECTS AND SETTING: One hundred fifty adults with ostomies (54 males, and 96 females; mean age = 44 years) completed an online survey. DESIGN: Descriptive, cross-sectional, questionnaire-based study. METHODS: Participants completed the Health Perceptions Questionnaire, Brief Illness Perceptions Questionnaire, Carver Brief Coping Questionnaire, Stoma Self-efficacy Scale, Hospital Anxiety and Depression Scale, and the Stoma Quality-of-Life Scale. RESULTS: Using structural equation modeling, the final model provided an excellent fit to the data (χ27 = 19.20, P = .37, χ/N = 1.08, Standardized Root Mean Square Residual (SRMR) <0.03, Steiger-Lind Root Mean Square Error of Approximation (RMSEA) <0.03, Goodness of Fit Index (GFI) >0.98). Extending upon our previous paper, self-efficacy, anxiety, and depression were found to have a significant direct influence on stoma-specific quality of life (ß= .47, P < .001, ß=-.25, P < .001, and ß=-.35, P < .001, respectively). CONCLUSIONS: The findings of this secondary analysis extends our previous report by identifying that, consistent with the CSM, illness status, illness perceptions, and coping influence health-related quality of life via self-efficacy, anxiety, and depression. The results suggest that to improve an individual's quality of life, psychological interventions should target the psychological processes underpinning mental illness and also help develop and maintain an individual's self-efficacy in relation to ostomy care.


Assuntos
Efeitos Psicossociais da Doença , Pacientes/psicologia , Percepção , Adaptação Psicológica , Adulto , Colostomia/psicologia , Estudos Transversais , Feminino , Nível de Saúde , Humanos , Ileostomia/psicologia , Masculino , Pessoa de Meia-Idade , Qualidade de Vida/psicologia , Inquéritos e Questionários
3.
Br J Nurs ; 25(17): S4-S12, 2016 Sep 22.
Artigo em Inglês | MEDLINE | ID: mdl-27666111

RESUMO

Having a stoma can reduce a person's quality of life and cause distress. A survey of people in Ireland who have had a stoma for an average of 15 years found that, while they now have a similar quality of life to the general population, they have poorer mental health and a higher level of sexual dysfunction. Respondents want to talk about their experiences and may benefit from more opportunities to talk to others with a stoma or to stoma care nurses. While most patient information suggests that patients can return to their usual diet and their clothes, a majority of ostomates have to make changes in these areas; some dietary changes have implications for their health. Ostomates in Ireland experience continuing problems with leakages and peristomal skin. These issues show there is a need for routine, regular follow up of ostomates by stoma care nurses. Although most patients found follow up by a community stoma care nurse helpful, the provision of this type of service varies.


Assuntos
Colostomia/enfermagem , Colostomia/psicologia , Necessidades e Demandas de Serviços de Saúde , Ileostomia/enfermagem , Saúde Mental , Qualidade de Vida , Atividades Cotidianas , Adolescente , Adulto , Idoso , Idoso de 80 Anos ou mais , Vestuário , Enfermagem em Saúde Comunitária , Dieta , Feminino , Humanos , Ileostomia/psicologia , Irlanda , Masculino , Pessoa de Meia-Idade , Avaliação das Necessidades , Estomia/enfermagem , Estomia/psicologia , Comportamento Sexual , Inquéritos e Questionários , Adulto Jovem
4.
Gastroenterol Nurs ; 39(5): 366-75, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27684635

RESUMO

This study, which is a part of action research, aims to explore how supportive communication can impact individuals' adaptation to a permanent colostomy in a Chinese cultural context. Two Chinese rectal cancer patients with complexity and difficulty in living with a permanent colostomy were selected using a qualitative case study approach. The researcher (H.T.) interacted with the participants along their journey from the preoperative period until the third postoperative month after discharge via face-to-face or telephone interviews. Content analysis was applied. Supportive communication was characterized by "communication as a supportive tool," which consisted of 4 elements: respect, description, empathy, and empowerment. The nursing strategies included (1) developing a collaborative relationship with patients and families; (2) understanding patients' concerns and problems; (3) discussing potential solutions; (4) encouraging patients to take action; (5) bringing out emotional expression; (6) normalizing negative emotions; and (7) protecting hope. The findings of this study informed that supportive communication is a valuable tool for nurses to provide informational and emotional support to Chinese patients in order to enhance their adaptation to living with a permanent colostomy. Developing an operational manual to enhance supportive communication for patients with colostomy is suggested.


Assuntos
Colostomia/enfermagem , Colostomia/psicologia , Comunicação , Adaptação Psicológica , Adulto , Idoso , Povo Asiático , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Relações Enfermeiro-Paciente , Educação de Pacientes como Assunto/métodos , Prognóstico , Pesquisa Qualitativa , Qualidade de Vida , Apoio Social
5.
Psychooncology ; 25(12): 1470-1476, 2016 12.
Artigo em Inglês | MEDLINE | ID: mdl-26387559

RESUMO

BACKGROUND: Prior survivorship research has largely focused on issues faced by survivors of childhood tumors, breast cancers, or hematologic malignancies. Relatively little is known about the needs of other prevalent survivor groups. Our aim was to identify the specific concerns of colorectal cancer (CRC) survivors in the key domains of physical functioning, psychological wellbeing, and social relationships. METHODS: We conducted focus groups with stage II and III CRC survivors who had completed their primary active anti-cancer treatments. Patients were asked to describe how their diagnosis and treatment impacted their lives, to outline deficiencies in the care that they received, and to suggest ways of addressing any unmet needs. A content analysis was subsequently conducted to identify major themes. RESULTS: Thirty CRC survivors participated in six focus groups. Individuals reported some degree of dissatisfaction with the amount and type of diagnostic and treatment information they received at their initial clinic visit. Distress from toxicities, such as peripheral neuropathy, was also common among the survivors. Similarly, the majority faced challenges adjusting to their lives and daily activities, especially in caring for their colostomy. Having survived CRC, many survivors expressed an interest in advocacy and health promotion of CRC. CONCLUSIONS: CRC survivors face many barriers after their cancer treatment. Issues with colostomy are unique to this survivor group. Interventions to improve CRC survivorship care should also incorporate opportunities for patient advocacy. Copyright © 2015 John Wiley & Sons, Ltd.


Assuntos
Sobreviventes de Câncer/psicologia , Neoplasias Colorretais/patologia , Neoplasias Colorretais/psicologia , Grupos Focais , Necessidades e Demandas de Serviços de Saúde , Qualidade de Vida/psicologia , Adaptação Psicológica , Adulto , Idoso , Neoplasias Colorretais/diagnóstico , Neoplasias Colorretais/terapia , Colostomia/psicologia , Terapia Combinada/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Equipe de Assistência ao Paciente , Satisfação do Paciente , Pesquisa Qualitativa , Apoio Social
6.
Z Evid Fortbild Qual Gesundhwes ; 108(2-3): 126-9, 2014.
Artigo em Alemão | MEDLINE | ID: mdl-24780710

RESUMO

The multidimensional, complex construct of 'quality of life' as a patient-reported outcome is used in medicine as a measurable indicator of health and illness. But do we know what we do when we measure 'quality of life'? Can we grasp how the patient with his individual concept of disease really feels when we use instruments that were designed, administered and analysed by professionals? Do we know the meaning of what we have measured? Is it not shortsighted to focus on health-related quality of life? And is it really quality of life that patients actually want? From a general practitioner's perspective, these questions will be asked of three patients.


Assuntos
Doença Crônica/terapia , Medicina Geral , Avaliação de Resultados em Cuidados de Saúde/métodos , Satisfação do Paciente , Qualidade de Vida/psicologia , Atividades Cotidianas/psicologia , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Doença de Alzheimer/psicologia , Doença de Alzheimer/terapia , Artrite/psicologia , Artrite/terapia , Doença Crônica/psicologia , Colostomia/psicologia , Feminino , Humanos , Masculino , Neoplasias Primárias Múltiplas/psicologia , Neoplasias Primárias Múltiplas/terapia , Manejo da Dor/psicologia , Relações Médico-Paciente , Neoplasias da Próstata/psicologia , Neoplasias da Próstata/terapia , Neoplasias Retais/psicologia , Neoplasias Retais/terapia , Autocuidado/psicologia
7.
Oncol Nurs Forum ; 41(1): E3-11, 2014 01 01.
Artigo em Inglês | MEDLINE | ID: mdl-24368251

RESUMO

PURPOSE/OBJECTIVES: To explore the association between supportive care needs and type D personality, and to identify personality traits, including negative affectivity (NA) and social inhibition (SI), and their influence on the supportive care needs of patients with colorectal cancer (CRC). DESIGN: Cross-sectional, correlational survey. SETTING: Oncology and surgical outpatient clinics at a medical center in northern Taiwan. SAMPLE: 277 patients diagnosed with CRC. METHODS: Data were collected using a set of structured questionnaires to measure supportive care needs, symptom distress, anxiety, depression, and personality traits. The associations between type D personality and supportive care needs were verified by the Mann-Whitney U test. The significant roles of personality traits were identified by generalized estimating equations, controlling for biophysical and psychological factors overall, and for the five supportive care domains. MAIN RESEARCH VARIABLES: Supportive care needs, type D personality. FINDINGS: Patients with CRC reported the most unmet needs in the health system and the information domain. Type D patients had higher needs overall and in most domains, except for sexuality needs. A higher level of NA indicated higher overall and psychological needs. A higher level of SI indicated lower needs in health system and information. CONCLUSIONS: The level of unmet supportive care needs of patients with CRC is highly associated with type D personality. The trait of NA alters levels of overall supportive care and psychological needs, and the trait of SI influences needs in health system and information. IMPLICATIONS FOR NURSING: Assessing personality traits before providing an education program is highly recommended for patients with cancer. The assessment could improve the quality of personalized education programs and better meet patient needs.


Assuntos
Adenocarcinoma/psicologia , Neoplasias Colorretais/psicologia , Pacientes Internados/psicologia , Avaliação das Necessidades , Educação de Pacientes como Assunto , Autocuidado/psicologia , Personalidade Tipo D , Adenocarcinoma/cirurgia , Adulto , Idoso , Idoso de 80 Anos ou mais , Ansiedade/etiologia , Neoplasias Colorretais/cirurgia , Colostomia/psicologia , Estudos Transversais , Depressão/etiologia , Medo , Feminino , Necessidades e Demandas de Serviços de Saúde , Hospitais Universitários , Humanos , Comportamento de Busca de Informação , Masculino , Pessoa de Meia-Idade , Negativismo , Serviço Hospitalar de Oncologia , Sexualidade/psicologia , Estresse Psicológico/etiologia , Centro Cirúrgico Hospitalar , Inquéritos e Questionários , Taiwan , Adulto Jovem
8.
Afr Health Sci ; 14(1): 28-36, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-26060455

RESUMO

OBJECTIVES: To observe the quality of life (QOL) in rectal cancer patients with permanent colostomy in different periods after operation. METHODS: A 1-,3-,6-month prospective study of QOL in 51 rectal cancer patients with permanent colostomy and 50 without permanent colostomy was assessed using European Organization for Research and Treatment of Cancer (EORTC) QOL-30 and CR38 questionnaires. RESULTS: The variation of QOL in different periods was "v" type. In the 1st postoperative month, these patients had the lowest quality of life scores, accompanied significantly varied functions and severe symptoms. Almost of all indexes of these patients had improved consistently in the postoperative period. The scores of global QOL even better than pre-operative level at 6th months post-operation, but the social function, body image, chemotherapy side effects and financial difficulties had not restored to the baseline level. Patients without permanent colostomy had a better score in most of categories of QOL-30 and CR38. CONCLUSIONS: The 1st postoperative month was crucial for patients' recovery, in which we should pay great attention to these problems which relate to the recovery of rectal cancer patients with permanent colostomy.


Assuntos
Colostomia/psicologia , Qualidade de Vida/psicologia , Neoplasias Retais/cirurgia , Adulto , Idoso , Idoso de 80 Anos ou mais , Imagem Corporal , Humanos , Período Pós-Operatório , Estudos Prospectivos , Escalas de Graduação Psiquiátrica , Neoplasias Retais/psicologia , Participação Social/psicologia , Inquéritos e Questionários , Fatores de Tempo
9.
Colorectal Dis ; 15(6): e276-83, 2013 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-23470040

RESUMO

AIM: A systematic review was performed to assess whether education of patients having stoma formation improves quality of life and whether it is cost effective. METHOD: A literature search was performed to identify studies on the structured education of ostomates and outcome using the following databases: MEDLINE, Cinahl, Embase, Cochrane and PsycInfo. Inclusion criteria were: clinical studies reporting effects of educational interventions in relation to patients with a stoma. Commentaries or studies not testing an intervention were excluded. RESULTS: Seven articles met the inclusion criteria of having rigorously evaluated an educational programme related to living with a stoma. The programmes were organized in different ways and had explored various interventions. The results showed an increase in health-related quality of life, as measured using a stoma quality of life instrument (P = 0.00001) and with the Short Form 36 (SF-36) (P = 0.000-0.006), an increase in proficiency in management of the stoma (P = 0.0005), two studies pointed to a reduction in postoperative hospital stay (8 days vs 10 days, P = 0.029; and 8 days vs 14 days, P = 0.17), a significant reduction in cost in the intervention group ($US 8570.54) compared with the control group ($US 7396.90) as well as higher effectiveness scores in the intervention group (166.89) compared with the control group (110.98), a significant rise in stoma-related knowledge (P = 0.0000) and an increase in psychosocial adjustment (P = 0.000). CONCLUSION: Structured patient education aimed at patients' psychosocial needs seems to have a positive effect on quality of life as well as on cost. The interventions may be performed before, during or after hospital stay. However, the available data come from few studies with differences in interventions and in study design, and further studies are therefore needed before a final conclusion can be drawn.


Assuntos
Colostomia/reabilitação , Ileostomia/reabilitação , Educação de Pacientes como Assunto/métodos , Autocuidado/métodos , Estomas Cirúrgicos , Colostomia/psicologia , Análise Custo-Benefício , Humanos , Ileostomia/psicologia , Educação de Pacientes como Assunto/economia , Qualidade de Vida , Autocuidado/economia
10.
Cancer Nurs ; 35(1): E27-33, 2012.
Artigo em Inglês | MEDLINE | ID: mdl-21558846

RESUMO

BACKGROUND: A colostomy can negatively impact patients' quality of life. Recent research findings suggest that self-efficacy and psychosocial adjustment are positively associated with quality of life, but there are few research reports about the self-efficacy and psychosocial adjustment of patients with a permanent colostomy. OBJECTIVES: The objective of the study was to evaluate the effect of a 3-week Expert Patient Program (EPP) on colostomy knowledge, stoma care self-efficacy, self-management, and psychosocial adjustment in Chinese patients who had a permanent colostomy. METHODS: Eleven patients with permanent colostomy volunteered to be trained to be expert patients. Eighty-one patients with permanent colostomy were recruited and participated in the 3-week EPP courses. Questionnaires with items about knowledge on colostomy, stoma care self efficacy, self-management, and psychosocial adjustment were administered before and at 4 weeks following the EPP courses. Each EPP participant also completed a verbal interview at the end of the program. RESULTS: The EPP participants demonstrated statistically significant improvement (P < .01) in knowledge, self-efficacy, self-management, and psychosocial adjustment to colostomy (mean [SD]: 51.89 [11.45] vs 89.22 [19.90], 71.56 [5.93] vs 85.61 [14.32], 125.44 [19.27] vs 140.78 [15.34], 47.59 [9.64] vs 53.37 [10.68], respectively). Most participants gave positive ratings to the EPP. CONCLUSIONS: This study showed that the EPP was applied effectively in patients with permanent colostomy. IMPLICATIONS FOR PRACTICE: This study highlights the importance of psychosocial support for patients with permanent colostomy. It offers a model of self-help practice in colostomy patients, supported by community that can benefit more patients with permanent colostomy.


Assuntos
Adaptação Psicológica , Colostomia/psicologia , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Educação de Pacientes como Assunto , Avaliação de Programas e Projetos de Saúde , Autoeficácia , Adolescente , Adulto , Idoso , Povo Asiático/educação , Povo Asiático/psicologia , China , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Qualidade de Vida/psicologia , Autocuidado/psicologia , Adulto Jovem
11.
Colorectal Dis ; 13(12): e403-10, 2011 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-21812896

RESUMO

AIM: Low and ultralow anterior resection for rectal cancer with colorectal or coloanal anastomosis does not compromise oncological results compared with abdominoperineal excision. Although avoidance of a permanent colostomy is regarded as beneficial for a patient's quality of life (QoL), patients undergoing sphincter-sparing surgery may develop a number of functional problems. A colonic pouch significantly improves functional outcome after rectal resection and low anastomosis and may positively influence QoL. The aim of this study was to compare QoL in long-term survivors who underwent ultralow anterior resection with total mesorectal excision and colonic J-pouch anastomosis (CPA) with patients treated with abdominoperineal excision (APE) and end colostomy for rectal cancer. METHOD: The medical records from our institution's prospectively maintained rectal cancer database of 151 patients who underwent surgery for ultralow rectal cancer from 2001 to 2007 were analysed. QoL in 59 eligible patients was assessed using the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire C30 core and Colorectal Cancer 29. Results were compared for patients with CPA and APE. RESULTS: The median follow-up in the 59 patients was 74 (37-119) months. QoL was good in all patients, but it was better in CPA than in APE patients. Global health status (P = 0.009), physical functioning (P = 0.0002), role functioning (P = 0.03), cognitive functioning (P = 0.046), social functioning (P = 0.002), body image (P = 0.053), embarrassment (P = 0.002) and urinary frequency (P = 0.003) were significantly improved for patients with CPA. CONCLUSION: QoL after rectal resection and CPA was better than after APE in several respects. However, QoL should not be regarded as an isolated concept but rather as one of several possible clinical outcomes of interest.


Assuntos
Bolsas Cólicas , Colostomia/psicologia , Proctocolectomia Restauradora/psicologia , Qualidade de Vida/psicologia , Neoplasias Retais/cirurgia , Adulto , Idoso , Idoso de 80 Anos ou mais , Imagem Corporal , Cognição , Bolsas Cólicas/fisiologia , Feminino , Seguimentos , Nível de Saúde , Humanos , Masculino , Pessoa de Meia-Idade , Vergonha , Participação Social/psicologia , Inquéritos e Questionários , Fatores de Tempo
12.
Cir Cir ; 79(2): 149-55, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-21631976

RESUMO

BACKGROUND: Ostomized patients usually have some concerns such as absence of sphincter control, noisy bowel movements, changes in passage of gas, social discomfort due to odors, concerns about bag filling, peristomal and skin irritation as well as psychological changes such as body image distortion, among others, that will determine quality of life. We undertook this study to measure quality of life in ostomized patients attending the Coloproctology Unit in Hospital General de México. METHODS: We carried out a cross-sectional descriptive study from January 1, 2009 to May 29, 2009 in ostomized patients. Two scales were used to determine quality of life. The first was quality of life SF-36 (version 2) with 36 items that measured eight aspects. The other scale used was the Montreux scale. RESULTS: For the Montreux scale, quality of life section, a range between 60.8 and 81.2 points was obtained. The results obtained with the quality of life scale SF36 were as follows: physical function, 67.04; physical role, 56.06; physical pain, 68.28; general health, 57.16; with an overall average of 62.14 points. For mental aspects, results were as follows: vitality, 68.37; social function, 71.53; emotional role, 71.48; and mental health, 68.67; with an overall average of 70.01 points. CONCLUSIONS: Quality of life of subjects included was classified as good. Fear of stoma leaks and sexual function were the aspects that most affected the patients, and those are responsible for a decrease in quality of life in this study.


Assuntos
Colostomia/psicologia , Ileostomia/psicologia , Qualidade de Vida , Adulto , Idoso , Estudos Transversais , Diverticulose Cólica/psicologia , Diverticulose Cólica/cirurgia , Feminino , Neoplasias Gastrointestinais/psicologia , Neoplasias Gastrointestinais/cirurgia , Humanos , Doenças Inflamatórias Intestinais/psicologia , Doenças Inflamatórias Intestinais/cirurgia , Masculino , Pessoa de Meia-Idade , Complicações Pós-Operatórias/psicologia , Autocuidado , Fatores Socioeconômicos , Estomas Cirúrgicos/efeitos adversos , Inquéritos e Questionários , Adulto Jovem
13.
Colorectal Dis ; 13(5): 600-2, 2011 May.
Artigo em Inglês | MEDLINE | ID: mdl-20070324

RESUMO

AIM: Stoma formation is believed to have a more significant effect on quality of life in Asian patients than in non-Asian patients, but this has never been formally demonstrated. This study examined factors which may influence quality of life following stoma formation with particular reference to ethnicity. METHOD: Quality of life was measured (using an established questionnaire) in consecutive patients undergoing stoma formation under the care of two colorectal surgeons. RESULTS: Quality of life is poorer in Asian than in non-Asian patients 46 ± 13 vs 60 ± 12 (P = 0.007). This difference is restricted to those born outside the UK and to those who cannot speak English (P = 0.0008 and P = 0.0001, respectively). CONCLUSION: The association between stoma formation and poor quality of life in Asian patients is more complicated than previously assumed. Selected patient groups can be targeted with information and support.


Assuntos
Povo Asiático/psicologia , Colostomia/psicologia , Cultura , Ileostomia/psicologia , Qualidade de Vida/psicologia , Emigrantes e Imigrantes/psicologia , Feminino , Humanos , Idioma , Masculino , Cuidados Pré-Operatórios , Inquéritos e Questionários
14.
Gastroenterol Nurs ; 33(6): 408-12, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-21150491

RESUMO

The purpose of this preliminary study (N 13) was to investigate the impact of response shift in quality of life for cancer patients undergoing surgical resection with resultant permanent colostomy. Response shift was measured using a "then-test" approach. Quality of life was measured using the 36-Item Short Form Health Survey version 2 (Japanese version). Baseline data (pretest scores) were collected before surgery when subjects completed the 36-Item Short Form Health Survey. Two months after the surgery, subjects were asked to respond again to the 36-Item Short Form Health Survey to assess their postsurgery quality-of-life (posttest score) level and their presurgery quality-of-life level (then-test score). Norm-based scoring for pretest, posttest, and then-test scores for each of the 36-Item Short Form Health Survey domains was calculated. Response shift was assessed by the difference between pretest and then-test scores and effect size. Findings revealed that a moderate but significant response shift was observed in the bodily pain domain. A small response shift was observed in the role physical and vitality domains. The then-test score was higher than the pretest score. The same trend was observed in all other domains except general health. The results indicate that the unit of comparison in the subjects was changed by surgery. Knowledge of these phenomena would allow a better understanding of quality of life of these subjects.


Assuntos
Atitude Frente a Saúde , Colostomia/psicologia , Avaliação em Enfermagem , Qualidade de Vida/psicologia , Autoavaliação (Psicologia) , Idoso , Colostomia/efeitos adversos , Modificador do Efeito Epidemiológico , Feminino , Seguimentos , Nível de Saúde , Humanos , Japão , Masculino , Avaliação em Enfermagem/métodos , Pesquisa Metodológica em Enfermagem , Dor Pós-Operatória/diagnóstico , Dor Pós-Operatória/etiologia , Dor Pós-Operatória/psicologia , Psicometria , Papel (figurativo) , Inquéritos e Questionários , Fatores de Tempo , Resultado do Tratamento
15.
J Wound Ostomy Continence Nurs ; 33(5): 525-35, 2006.
Artigo em Inglês | MEDLINE | ID: mdl-17133141

RESUMO

PURPOSE: We sought to identify perioperative factors associated with long-term adjustment to an incontinent ostomy. METHODOLOGY: The Ostomy Adjustment Scale (OAS), a demographic form, and a $5 gift certificate were mailed to 200 ostomates. Associations between items from the Survey of Perioperative Factors of Ostomy Adjustment, demographic forms, and total OAS scores were assessed using bivariate and multiple linear regression analysis. RESULTS: The survey response rate was 74%. About half (70/146, 49%) of the respondents were women, 99% (144/145) were Caucasian, and 74% (109/146) were married. Their mean age was 65+/-14 years. Fifty-six percent (79/141) of the respondents had an ileostomy, 28% (39/141) had a colostomy, and 15% (21/141) had a urostomy. The mean OAS score for all the respondents was 159.5+/-26.2, indicating a good overall adjustment to an incontinent ostomy. In bivariate analyses, the factor associated with a lower OAS score indicating poorer adjustment was distress related to affording and obtaining ostomy supplies. The more helpful the ostomates found the preoperative education provided by a wound, ostomy, and continence specialist nurse, the better was their adjustment as indicated by a higher OAS score. Having ongoing/recurrent illness and having an ostomy created by a specialty surgeon were also associated with better adjustment. When multiple factors were considered in a stepwise regression analysis, adjustment was lowered by distress about obtaining ostomy supplies. Adjustment was improved when preoperative education provided by a wound, ostomy, and continence specialist nurse was considered helpful for the ongoing/ recurrent illness. CONCLUSION: Many ostomates have a good long-term adjustment to ostomy surgery and value education provided by a wound, ostomy, and continence nurse. Perioperative patient education and addressing patient distress over obtaining supplies are areas that can benefit from wound, ostomy, and continence nurse intervention.


Assuntos
Adaptação Psicológica , Atitude Frente a Saúde , Colostomia/psicologia , Ileostomia/psicologia , Assistência Perioperatória/psicologia , Derivação Urinária/psicologia , Atividades Cotidianas/psicologia , Idoso , Colostomia/efeitos adversos , Colostomia/enfermagem , Análise Fatorial , Feminino , Necessidades e Demandas de Serviços de Saúde , Humanos , Ileostomia/efeitos adversos , Ileostomia/enfermagem , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Minnesota , Análise Multivariada , Enfermeiros Clínicos , Pesquisa Metodológica em Enfermagem , Educação de Pacientes como Assunto , Assistência Perioperatória/métodos , Assistência Perioperatória/enfermagem , Autoimagem , Ajustamento Social , Inquéritos e Questionários , Derivação Urinária/efeitos adversos , Derivação Urinária/enfermagem
16.
Br J Nurs ; 15(14): 760-3, 2006.
Artigo em Inglês | MEDLINE | ID: mdl-16936614

RESUMO

Studies have identified that following stoma-forming surgery, 69% of patients have sexual health concerns (Van-de-Weil et al, 1991). However, studies suggest that this is an area of care that is frequently omitted by stoma care nurses (Borwell, 1997). By focusing this case study on the experiences of a patient cared for by the author, this article aims to identify patients' needs with regards to sexual health care following stoma-forming surgery. The author suggests that greater training on sexual health care should be provided for nurses. Nurses should discuss sexual health needs more openly with their colleagues to improve their skills, and with patients, so that patients are aware that sexual health is an area of value and that their concerns can be discussed and appropriately addressed.


Assuntos
Atitude Frente a Saúde , Colostomia/psicologia , Homossexualidade Masculina/psicologia , Educação de Pacientes como Assunto/métodos , Educação Sexual/métodos , Adaptação Psicológica , Imagem Corporal , Competência Clínica/normas , Colostomia/enfermagem , Comunicação , Necessidades e Demandas de Serviços de Saúde , Visita Domiciliar , Humanos , Masculino , Enfermeiros Clínicos/organização & administração , Enfermeiros Clínicos/psicologia , Papel do Profissional de Enfermagem/psicologia , Relações Enfermeiro-Paciente , Avaliação em Enfermagem , Assistência Perioperatória/enfermagem , Assistência Perioperatória/psicologia
17.
Ostomy Wound Manage ; 52(12): 68-74, 2006 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-17204828

RESUMO

Quality of life is affected by the creation of a stoma. To assess the validity of the Ostomy Function Index in patients with a stoma, a prospective survey was conducted from July 2000 to September 2001 among patients participating in local United Ostomy Association chapters (N = 99; 55 with a colostomy and 44 with an ileostomy). The Short Form 36 general health survey, Fecal Incontinence Quality of Life Scale, and the proposed Cleveland Clinic Florida Ostomy Function Index were used to assess general health and stoma function in patients with an ostomy. The average proposed function index score (7 = excellent function, 35 = poor function) was 11.97 (range 7 to 22). The proposed function Index correlated with the Fecal Incontinence Quality of Life Scale and the physical and mental component scales of the SF-36 (P < 0.05). The correlation between the proposed function index and the Fecal Incontinence Quality of Life Scale was stronger in colostomy than in ileostomy patients. With the exception of the SF-36 role-emotional domain in ileostomy patients, the function index correlated with all SF-36 scales (P <0.05) in both patient groups. The results of this study suggest that ostomy function is variable and correlates with quality of life and that the Fecal Incontinence Quality of Life Scale offers a limited assessment of quality of life in colostomy patients. The Cleveland Clinic Florida Ostomy Function Index offers an objective assessment of ostomy function that reflects on quality of life. Additional studies to refine measurement of quality of life in stoma patients are warranted.


Assuntos
Colostomia/psicologia , Incontinência Fecal/psicologia , Ileostomia/psicologia , Qualidade de Vida/psicologia , Inquéritos e Questionários/normas , Atividades Cotidianas , Adaptação Psicológica , Adulto , Idoso , Idoso de 80 Anos ou mais , Atitude Frente a Saúde , Distribuição de Qui-Quadrado , Colostomia/efeitos adversos , Efeitos Psicossociais da Doença , Estudos Transversais , Feminino , Inquéritos Epidemiológicos , Humanos , Ileostomia/efeitos adversos , Estilo de Vida , Masculino , Saúde Mental , Pessoa de Meia-Idade , Dor/etiologia , Dor/psicologia , Psicometria , Autoimagem , Comportamento Social
18.
J Wound Ostomy Continence Nurs ; 32(3): 178-83; quiz 184-5, 2005.
Artigo em Inglês | MEDLINE | ID: mdl-15931148

RESUMO

OBJECTIVE: To compare the health-related quality of life (HRQOL) of persons with a permanent colostomy to that of the general Japanese population and explore the factors influencing HRQOL. DESIGN: A cross-sectional survey. SETTING AND SUBJECTS: A total of 255 persons with an ostomy who attended a meeting of the Japan Ostomy Association in the Kanto region of Japan. INSTRUMENTS: The HRQOL was assessed using Medical Outcomes Study 36-Item Short-Form Health Survey (SF-36), Japanese version 1.2. Factors potentially influencing the HRQOL were age, sex, marital status, employment status, number of people in the household, time since colostomy, and diagnosis. METHODS: Questionnaires were distributed to the subjects and SF-36 scores were determined and compared with the corresponding national-norm data by Wilcoxon signed rank sum test. A logistic regression analysis was used to explore the influencing factors. RESULTS: The questionnaire response rate was 66.7%. Subjects with a urostomy or an ileostomy and those with missing data were excluded. Data from 102 subjects with a permanent colostomy were analyzed. The subjects' scores were significantly lower than the national-norm scores in the role-physical and social functioning scales. Being employed was associated with significantly lower scores or associated with a tendency toward lower scores. CONCLUSIONS: Scores in two scales in these subjects were lower than those of national-norm scores. Being employed had a negative impact on the HRQOL of subjects with a permanent colostomy. The results of this study provide reference data for future research and underscore the importance of support for persons with a colostomy.


Assuntos
Atitude Frente a Saúde , Colostomia/psicologia , Qualidade de Vida/psicologia , Atividades Cotidianas , Idoso , Estudos de Casos e Controles , Colostomia/efeitos adversos , Efeitos Psicossociais da Doença , Estudos Transversais , Emprego , Feminino , Nível de Saúde , Humanos , Japão , Modelos Logísticos , Masculino , Estado Civil , Saúde Mental , Pessoa de Meia-Idade , Avaliação em Enfermagem , Pesquisa Metodológica em Enfermagem , Papel (figurativo) , Comportamento Social , Estatísticas não Paramétricas , Inquéritos e Questionários
19.
J Wound Ostomy Continence Nurs ; 27(5): 272-8, 2000 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-10999966

RESUMO

PURPOSE: The effectiveness of a disposable liner designed for a 2-piece colostomy appliance pouch was evaluated. DESIGN: Randomized, crossover trial with follow-up surveys. SETTING AND SUBJECTS: Nineteen participants were recruited from the Mayo Clinic in Scottsdale, Arizona, and the surrounding community. INSTRUMENTS: A Daily Colostomy Care Evaluation Record and tally sheet of times for ostomy care were designed by the authors. METHODS: Participants, acting as their own controls, were randomly assigned to use either an unlined or a lined appliance for 9 days. On day 10, participants switched to the opposite regimen, which was maintained through day 18. They recorded the time required for daily colostomy care and perceptions of the lined and unlined appliances. The volume of ostomy supplies and cost were recorded at baseline, 1, 3, and 5 to 9 months after the initial trial. RESULTS: Odor, bother, perceived severity of leakage, and partner acceptance were better with unlined than lined appliances. Half of the participants were using a liner > or =75% of the time 3 months after the trial. There was no difference in cost when lined versus unlined ostomy systems were compared. Participants who chose to use the liners indicated high satisfaction. Problems noted included an inadequate seal with the liner (58%), inadequate liner size (16%), retention of flatus by the liner (11%), and difficulty removing the full liner (11%). CONCLUSIONS: The study supports recommending liners to patients who have a modest amount of fecal output or flatus. However, patients who are unable to manipulate the seal or have a large output volume are unlikely to find the liners a convenience. Satisfaction with the liners was sufficient to warrant investigation and design of a lined device with an improved design, greater capacity, and tighter seal.


Assuntos
Colostomia/instrumentação , Equipamentos Descartáveis/normas , Drenagem/instrumentação , Tampões Absorventes para a Incontinência Urinária/normas , Satisfação do Paciente , Idoso , Idoso de 80 Anos ou mais , Colostomia/enfermagem , Colostomia/psicologia , Estudos Cross-Over , Equipamentos Descartáveis/economia , Drenagem/efeitos adversos , Drenagem/economia , Drenagem/psicologia , Feminino , Seguimentos , Humanos , Tampões Absorventes para a Incontinência Urinária/efeitos adversos , Tampões Absorventes para a Incontinência Urinária/economia , Masculino , Pessoa de Meia-Idade , Plásticos , Inquéritos e Questionários
20.
Rev. méd. Chile ; 127(6): 675-83, jun. 1999. tab
Artigo em Espanhol | LILACS | ID: lil-245309

RESUMO

Background: The acceptance of a colostomy by a patient requires a great amount of psychological resources and social support. Aim: To identify factors that influence the postoperative adaptation to a colostomy. Patients and methods: Sixty patients subjected to a colostomy in 5 hospitals in Santiago were interviewed. The adaptation to the procedure was assessed using the Olsbrisch Ostomy Adjustment Scale. Three regression equations were elaborated to determine the main predictors associated to adaptation. Control variables such as sex, age and the lapse between the interview and the surgical procedure, were included in the model. Results: The model used identified the simultaneous and combined effects of socioeconomic variables such as education and income on the adaptation to colostomy. A generalized detriment of the self image was detected. Patients valued the social support given by the family and friends. Multiple regression analysis determined that the main predictor of the patientÕs adaptation to colostomy was the level of self care developed. Conclusions: The better adaptation to a colostomy could be achieved by training the patient for an adequate self care and providing him with psychological and social support


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Colostomia/psicologia , Adaptação Psicológica , Autoimagem , Ajustamento Social , Apoio Social , Colostomia/estatística & dados numéricos , Sexualidade , Estomas Cirúrgicos/fisiologia , Fatores Socioeconômicos
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