Improving Advanced Care Planning through Physician Orders for Life-Sustaining Treatment (POLST) Expansion across the United States: Lessons Learned from State-Based Developments.

BACKGROUND: The Physician Orders for Life-Sustaining Treatment (POLST) Paradigm is an effective advance care planning tool. However, barriers to implementation persist. In the United States, POLST program development occurs at the state-level. Substantial differences between states has left POLST implementation largely unstandardized. No peer-reviewed studies to date have evaluated state-based POLST program development over time. OBJECTIVE: To assess and learn from the successes and barriers in state-based POLST program development over time to improve the reach of POLST or similar programs across the United States. DESIGN: An exploratory, prospective cohort study that utilized semistructured telephone interviews was conducted over a 3-year period (2012-2015). Stakeholder representatives from state POLST coalitions (n = 14) were repeatedly queried on time-relevant successes, barriers, and innovations during POLST program development with levels of legislative and medical barriers rated 1 to 10. Interviews were transcribed and analyzed using techniques grounded in qualitative theory. RESULTS: All coalition representatives reported continuous POLST expansion with improved outreach and community partnerships. Significant barriers to expansion included difficulty in securing funding for training and infrastructure, lack of statewide metric systems to adequately assess expansion, lack of provider support, and legislative concerns. Medical barriers (mean [standard deviation]: 5.0 [0.2]) were rated higher than legislative (3.0 [0.6]; P < .001). CONCLUSION: POLST programs continue to grow, but not without barriers. Based on the experiences of developing coalitions, we were able to identify strategies to expand POLST programs and overcome barriers. Ultimately the "lessons learned" in this study can serve as a guide to improve the reach of POLST or similar programs.

Mothers' Voices Related to Caregiving: The Transition of a Technology-Dependent Infant from the NICU to Home.

PURPOSE: The transition from the NICU to home is a complicated, challenging process for mothers of infants dependent on lifesaving medical technology, such as feeding tubes, supplemental oxygen, tracheostomies, and mechanical ventilation. The study purpose was to explore how these mothers perceive their transition experiences just prior to and during the first three months after initial NICU discharge. DESIGN: A qualitative, descriptive, longitudinal design was employed. SAMPLE: Nineteen mothers of infants dependent on lifesaving technology were recruited from a large Midwest NICU. MAIN OUTCOME VARIABLE: Description of mothers' transition experience. RESULTS: Three themes were identified pretransition: negative emotions, positive cognitive-behavioral efforts, and preparation for life at home. Two posttransition themes were negative and positive transition experiences. Throughout the transition, the mothers expressed heightened anxiety, fear, and stress about life-threatening situations that did not abate over time despite the discharge education received.

Unité de Coordination Clinique des Services Préhospitaliers d'Urgence: A clinical telemedicine platform that improves prehospital and community health care for rural citizens.

Access to health care in Canada's rural areas is a challenge. The Unité de Coordination Clinique des Services Préhospitaliers d'Urgence (UCCSPU) is a telemedicine program designed to improve health care in the Chaudiere-Appalaches and Quebec City regions of Canada. Remote medical services are provided by nurses and by an emergency physician based in a clinical unit at the Alphonse-Desjardins Community Health and Social Services Center. The interventions were developed to meet two objectives. The first is to enhance access to quality health care. To this end, Basic Life Support paramedics and nurses were taught interventions outside of their field of expertise. Prehospital electrocardiograms were used to remotely diagnose ST segment elevation myocardial infarction and to monitor patients who were en route by ambulance to the nearest catheterization facility or emergency department. Basic Life Support paramedics received extended medical authorization that allowed them to provide opioid analgesia via telemedicine physician orders. Nurses from community health centres without physician coverage were able to request medical assistance via a video telemedicine system. The second objective is to optimize medical resources. To this end, remote death certifications were implemented to avoid unnecessary transport of deceased persons to hospitals. This paper presents the telemedicine program and some results.

Definitions and Assessment Approaches for Emergency Medical Services for Children.

Pediatric Life Support (PLS) courses and instructional programs are educational tools developed to teach resuscitation and stabilization of children who are critically ill or injured. A number of PLS courses have been developed by national professional organizations for different health care providers (eg, pediatricians, emergency physicians, other physicians, prehospital professionals, pediatric and emergency advanced practice nurses, physician assistants). PLS courses and programs have attempted to clarify and standardize assessment and treatment approaches for clinical practice in emergency, trauma, and critical care. Although the effectiveness of PLS education has not yet been scientifically validated, the courses and programs have significantly expanded pediatric resuscitation training throughout the United States and internationally. Variability in terminology and in assessment components used in education and training among PLS courses has the potential to create confusion among target groups and in how experts train educators and learners to teach and practice pediatric emergency, trauma, and critical care. It is critical that all educators use standard terminology and patient assessment to address potential or actual conflicts regarding patient evaluation and treatment. This article provides a consensus of several organizations as to the proper order and terminology for pediatric patient assessment. The Supplemental Information provides definitions for terms and nomenclature used in pediatric resuscitation and life support courses.

Employing behavioral economics and decision science in crucial choices at end of life.

A program created by physician Scott Halpern employs multidisciplinary teams to help patients and family members make end-of-life decisions that track with their goals.

[Assessment of withholding life support and withdrawing life support in a vital emergency department]. / Évaluation des démarches de limitation et d'arrêt de traitement en salle d'accueil des urgences vitales.

OBJECTIVES: To evaluate the practices of withholding and withdrawing of life sustaining therapies in a vital emergencies department and to confront them with Leonetti law procedures. STUDY DESIGN: Prospective, observational study. PATIENT AND METHODS: Collection of data performed by a physician (senior or junior) for all patients for whom a decision of withholding or withdrawing life sustaining treatments was taken. RESULTS: Fifty-two patients were included. A withholding life sustaining treatments as non aggressive resuscitation procedures were instituted for 65% of the patients, of whom 85% were "waiting resuscitation". In 50% of the cases, the decision was taken by a single physician. The approval of the nursing staff was researched in 65% of the cases. The decision was written in the medical file in 94% of the cases. The patient's will was researched in 15% of the cases. The family was consulted about patient's will in 10% of the cases. The family was informed of the decision in 90% of the cases. CONCLUSION: The application of Leonetti law in vital emergencies department is flawed. It appears to be necessary to realize new studies and to release official guidelines or recommendations specifically made for emergencies department to improve the practices of withholding or withdrawing life sustaining treatments.

When the fetus is alive but the mother is not: critical care somatic support as an accepted model of care in the twenty-first century?

There has been an increase in cases involving the maintenance of brain dead pregnant women on life support to allow for fetal growth toward viability and birth. This article provides an ethical analysis and discusses the critical care nursing needs of the maternal patient.

Do all pediatric patients who have a febrile seizure require transport by advanced life support?

OBJECTIVE: In the state of New Jersey, all pediatric patients who are transported to the hospital by emergency medical services for seizures are evaluated by both advanced life support (ALS) and basic life support (BLS) units. The state triage protocol mandates that a paramedic unit be dispatched. The purpose of this study is establish that the subset of those patients who experience simple febrile seizures could be safely transported by BLS, subsequently freeing much needed ALS resources. METHODS: This study was performed using a retrospective chart review. Seventy-one consecutive patients who experienced febrile seizures and were transported to the Bristol-Meyers-Squib Children's Hospital/Robert Wood Johnson University Hospital via ALS were included. These patients were risk stratified into groups which were analyzed for interventions, including inpatient admission, medication delivery, intubation, or respiratory support. RESULTS: From this analysis, we are identified factors in the history and physical examination of patients in the field that would help to classify the patient as having a "simple febrile seizure" and thus significantly lowering the risk of any potential negative outcome. CONCLUSIONS: Simple febrile seizure patients are suitable for transport via BLS. Further studies should be done to confirm this conclusion.

Is there a role for palliative care in progressive pediatric neuromuscular diseases? The answer is "Yes!

The consequences of prolongation of survival can be oversimplified, for example, by equating technologically prolonged survival with indefinitely prolonged high quality of life. When this oversimplified view is embraced, the prognosis of ultimately fatal diseases like DMD may be viewed with unrealistic optimism and palliative care may seem irrelevant or misguided. However, we have shown that the sequelae of prolonged survival are complex. For example, NPPV does not protect prolonged survivors of progressive NMDs from potentially debilitating medical complications that can cause elevated burden of disease, high burden of care, and the potential for impaired quality of life. Also, the sequelae of prolonged survival can negatively affect a wide variety of stakeholders, including patients and their families, medical professionals, and society. It is our view that, when the implications of prolonged survival are examined carefully, their complexity is revealed, and the potential for palliative care to provide support and to relieve suffering in prolonged survivors of progressive NMDs becomes apparent. Thus, we advocate development of an integrative care model for patients with progressive NMDs, blending technological therapies with adoption of palliative strategies as patients approach end of life.

End-of-life decisions: influence of advance directives on patient care.

The patient records of 160 older adults who died in a community hospital were reviewed to determine the use of advance directives and evaluate their effect on the care decisions made by health care providers. Findings confirmed that the use of advance directives has not changed during the past 15 years. The documents did not seem to influence health care providers' decisions about the hospital unit in which patients were treated, the use of life-sustaining treatments, or the initiation of comfort care plans. The presence of a living will seemed to influence health care providers' decisions to write do-not-resuscitate orders more often and to use cardiopulmonary resuscitation less often for patients possessing the document. Recommendations for future research include implementation and evaluation of educational initiatives for both health care consumers and health care providers.

Delivery life support: a preliminary report on the chain of survival for complicated deliveries in rural Cambodia.

Most programs to reduce maternity deaths focus on hospital performance and general obstetric protocols. In communities where most mothers deliver at home, such strategies will not reduce avoidable deaths. The key concept in the actual intervention is to regard deliveries in poor rural communities as a trauma and to merge midwives and traditional birth attendants (TBAs) with an already existing and successful rural trauma rescue system. A total of 256 Cambodian careproviders, 41 health center midwives and paramedics, plus surgical teams at local hospitals were trained over a 2 year period. After completing the training program, the participants themselves rated their skills, confidence, and quality of team work by Visual Analog Scale measurement. The results demonstrate significant improvement, both for the TBAs and the certified midwives. The intervention results so far indicate that delivery life support training to rural careproviders increases their capacity to cope with emergency obstetric cases.

Life support decisions for extremely premature infants: report of a pilot study.

The purpose of this pilot study was to describe decision making and the decision support needs of parents, physicians, and nurses regarding life support decisions made over time prenatally and postnatally for extremely premature infants. Using the collective case study method, one prenatal, one postnatal, and one postdeath, if the infant had died, tape-recorded interviews were conducted with each parent. With parents' permission, prenatal interviews were done with the physicians and nurses who talked to them about life support decisions for their infants. Twenty-five tape-recorded interviews were conducted with six cases (six mothers, two fathers, six physicians, and two nurses). Hospital records were reviewed for documentation of life support decisions. Results of this pilot study demonstrated that most parents wanted a model of shared decision making and perceived that they were informed and involved in making decisions. Parents felt that to be involved in decision making they needed information and recommendations from physicians. Parents also stressed the importance of encouragement and hope. In contrast, physicians informed parents but most physicians felt that parents were the decision makers. Physicians used parameters to offer options or involve parents in decisions and became very directive at certain gestational ages. Nurses reported that they believed that parents needed information from the physician first, then they would reinforce information. The results of this study offer an initial understanding of the decision support needs of parents.

Cuidado domiciliar intensivo: uma possível realidade do Sistema Único de Saúde? / Intensive home-based care: is it a possible reality for the public health system? / ¿Cuidado domiciliar intensivo: una posible realidad del Sistema Único de Salud?

Investigação de abordagem qualitativa que se enquadra como um estudo exploratório de caso individual. Cuja questão norteadora configurou-se em indagar como o Sistema Único de Saúde (SUS) disponibiliza o cuidado domiciliar intensivo. Os objetivos do estudo foram: analisar como é disponibilizado este suporte de saúde: qual o tipo de assistência prestada e como é a manutenção e garantia dos equipamentos; visibilizar como o sujeito deste estudo obteve este serviço: como o mesmo chegou até ele e quanto tempo demora. Os resultados revelam que os caminhos para se obter um suporte à vida são cercados de obstáculos e que este trajeto percorrido em busca de uma assistência domiciliar pela dinâmica do SUS envolve burocracia, profissionais e equipamentos que em muitas situações dificultam o acesso da população.

A qualitative investigation characterized as an exploratory study of individual case. The guiding point was inquiring into how the Public Health System (SUS) provides intensive home-based care. The study was aimed at analyzing how this health support is made available - that is, what kind of assistance is given and what is the equipment maintenance and warranty like - and at examining how the subject of this study obtained this service, that is, how the service reached him/her and how long it usually takes to do so. The results show that the paths to get life support are full of obstacles and that this path in search of home-based care through the SUS dynamics involves bureaucracy, professionals, and equipment that often make it difficult for the population to have access to public health services.

Investigación de abordaje cualitativa que se encuadra como un estudio exploratorio de caso individual. Cuya cuestión norteadora se configuró en indagar cómo el Sistema Único de Salud (SUS) pone a disposición el cuidado domiciliar intensivo. Los objetivos del estudio fueron: analizar como se pone a disposición este soporte de salud: cuál es el tipo de asistencia prestada y cómo es el mantenimiento y la garantía de los equipos; ver cómo el sujeto de este estudio obtuvo este servicio: cómo el mismo llegó hasta él y cuánto tiempo tarda. Los resultados revelan que los caminos para obtenerse un soporte a la vida están cercados de obstáculos y que este trayecto recorrido en búsqueda de una asistencia domiciliar por la dinámica del SUS involucra burocracia, profesionales y equipos que en muchas situaciones dificultan el acceso de la población.

The effect of emergency department crowding on paramedic ambulance availability.

STUDY OBJECTIVE: We determine the effect of emergency department (ED) crowding on paramedic ambulance availability. METHODS: This was a prospective longitudinal study from April 2001 through March 2002 in Los Angeles, CA. All incidents in which a Los Angeles Fire Department ambulance was out of service for more than 15 minutes while waiting to transfer a patient because of the lack of open ED beds were captured and analyzed. Data included the total time each ambulance was out of service and the hospital where paramedics were waiting for an open gurney. Analysis was performed to determine weekly and seasonal variations and preponderance at various hospitals. RESULTS: There were a total of 21,240 incidents in which ambulances were out of service while waiting to transfer their patients to an open ED gurney, which accounted for 1 of every 8 transports. Of these, 8.4% were in excess of 1 hour. The median waiting time per incident was 27 minutes, with an interquartile range of 20 to 40. There was a statistically significant difference in the monthly number of out-of-service incidents during the study (P<.0001), with the highest levels during the winter (January through March). CONCLUSION: ED crowding has resulted in delays for paramedics waiting to transfer patients. This decrease in ambulance availability may have a significant effect on emergency medical services systems' abilities to provide timely response.

[Intensive home-based care: is it a possible reality for the public health system?]. / Cuidado domiciliar intensivo: uma possível realidade do sistema unico de saúde?

A qualitative investigation characterized as an exploratory study of individual case. The guiding point was inquiring into how the Public Health System (SUS) provides intensive home-based care. The study was aimed at analyzing how this health support is made available--that is, what kind of assistance is given and what is the equipment maintenance and warranty like--and at examining how the subject of this study obtained this service, that is, how the service reached him/her and how long it usually takes to do so. The results show that the paths to get life support are full of obstacles and that this path in search of home-based care through the SUS dynamics involves bureaucracy, professionals, and equipment that often make it difficult for the population to have access to public health services.