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1.
BMC Health Serv Res ; 24(1): 732, 2024 Jun 14.
Artigo em Inglês | MEDLINE | ID: mdl-38877510

RESUMO

BACKGROUND: To reduce the impact of chronic diseases (cardiovascular disease, diabetes mellitus type 2, and chronic lung disease (asthma or chronic obstructive pulmonary disease (COPD)), it is imperative that care is of high quality and suitable to patients' needs. Patients with intellectual disabilities (ID) differ from the average patient population in general practice because of their limitations in adaptive behaviour and intellectual functioning, and concomitant difficulties recognising and reacting to disease symptoms, proactively searching health information, and independently managing diseases effectively. Because of these differences, information on their care needs is essential for suitable chronic disease management (CDM). Inadequate recognition of the care needs of this vulnerable population may hamper the harmonisation of evidence-based and person-centred care, compounded by issues such as stigma, misconceptions, and diagnostic overshadowing. This study therefore aimed to explore the needs of patients with ID from perspectives of both patients and of healthcare providers (HCPs) in the context of CDM in general practice. METHODS: This qualitative study recruited patients with ID for face-to-face individual interviews and HCPs for focus groups. With the Chronic Care Model as the underlying framework, semi-structured interviews and focus-group guides were defined to explore patients' care needs and HCPs' perspectives. All interviews and focus groups were audio-recorded and transcribed verbatim. Using Atlas.ti software, data were analysed using reflexive thematic analysis. RESULTS: Between June and September 2022, 14 patients with ID and cardiovascular disease, diabetes mellitus type 2, and/or asthma/COPD were interviewed; and 32 general practitioners and practice nurses participated in seven focus groups. We identified six care needs underpinning suitable CDM: trusting relationship between patient and HCP; clear expectations about the CDM process; support in disease management; directive decision-making; support in healthy lifestyle; accessible medical information. CONCLUSIONS: This vulnerable patient population has complex care needs that must be acknowledged for suitable CDM. Although HCPs largely recognise these needs, organisational factors and lack of training or experience with patients with ID hamper HCPs' ability to fully adjust care provision to these needs. Access to, and knowledge of, easy-language information on chronic diseases and communication guidelines could aid HCPs to facilitate patients in managing their diseases more adequately.


Assuntos
Grupos Focais , Medicina Geral , Deficiência Intelectual , Pesquisa Qualitativa , Humanos , Doença Crônica/terapia , Masculino , Países Baixos , Feminino , Deficiência Intelectual/terapia , Deficiência Intelectual/psicologia , Pessoa de Meia-Idade , Adulto , Idoso , Necessidades e Demandas de Serviços de Saúde , Avaliação das Necessidades , Entrevistas como Assunto , Doença Pulmonar Obstrutiva Crônica/terapia , Diabetes Mellitus Tipo 2/terapia , Asma/terapia
2.
J Nutr Educ Behav ; 56(6): 399-405, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38849192

RESUMO

OBJECTIVE: To describe the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC) staff experiences, perceptions, and training needs surrounding the provision of infant feeding support for parents with intellectual and developmental disabilities (IDD). METHODS: We conducted in-depth semistructured interviews between October and November 2021 with Maryland WIC staff (N = 10) who provide infant feeding counseling and support. We analyzed interviews using conventional content analysis. RESULTS: Three themes were identified: identifying and documenting IDD, facilitating effective communication and infant feeding education, and assessing WIC staff competence and readiness. CONCLUSIONS AND IMPLICATIONS: The interviews suggested the need to explore the risks and benefits of routine and compassionate processes for identifying and documenting disability, create accessible teaching materials that facilitate understanding and engagement, and educate and train staff to provide tailored support in WIC. Engaging parents with IDD to better understand their perspectives and experiences should guide future efforts to improve inclusivity and accessibility.


Assuntos
Deficiências do Desenvolvimento , Assistência Alimentar , Deficiência Intelectual , Humanos , Feminino , Gravidez , Lactente , Adulto , Maryland , Pais/psicologia , Recém-Nascido , Masculino
3.
Am J Occup Ther ; 78(3)2024 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-38767469

RESUMO

IMPORTANCE: Environmental modifications are targets for occupational therapy intervention because they support activities of daily living, self-efficacy, personal control, independence, and community living for people with intellectual and developmental disabilities (IDDs). OBJECTIVE: To examine how environmental modifications were provided to people with IDDs through Medicaid home- and community-based services (HCBS) waivers across the United States in fiscal year (FY) 2021. DESIGN: Using a mixed-methods policy analysis, we examined FY 2021 Medicaid HCBS 1915(c) waivers from across the United States to examine whether, and how, states provided environmental modifications to people with IDDs. RESULTS: In FY 2021, 35 states projected spending $68.8 million on environmental modifications for 12,671 people with IDDs. The purpose of environmental modifications was most often to promote the health, welfare, and safety of people with IDDs (82.68%), and to promote their independence (69.29%). The most common examples of environmental modifications included ramps and/or lifts (70.08%), widening doorways and/or hallways (61.42%), bathroom modifications (58.27%), specialized electrical and/or plumbing for medical equipment (54.33%), and grab bars and/or handrails (53.54%). CONCLUSIONS AND RELEVANCE: HCBS waiver data on environmental modifications for people with IDDs enhances an understanding of this funding source and provides a foundation of advocacy for occupational therapy practitioners to support people with IDDs with living, as well as aging, in the community rather than in institutions. An expansion of environmental modifications in HCBS for people with IDDs aligns with the aim of Medicaid HCBS waivers to promote community integration, self-determination, and independence, which are all benefits of environmental modifications. Plain-Language Summary: This study can help occupational therapy practitioners determine what funding sources are available in their state to help their clients with intellectual and developmental disabilities access environmental modifications. The findings can also help guide advocacy and lobbying efforts to expand access to environmental modifications.


Assuntos
Deficiências do Desenvolvimento , Serviços de Assistência Domiciliar , Deficiência Intelectual , Medicaid , Terapia Ocupacional , Humanos , Estados Unidos , Deficiências do Desenvolvimento/reabilitação , Deficiência Intelectual/reabilitação , Serviços de Assistência Domiciliar/economia , Serviços de Saúde Comunitária , Atividades Cotidianas , Planejamento Ambiental , Formulação de Políticas
4.
Intellect Dev Disabil ; 62(3): 186-199, 2024 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-38802094

RESUMO

Having a sense of social inclusion and belonging, typically characterized by our personal relationships and community participation, is the central essence of life for most people, yet it remains elusive for many people with intellectual and developmental disabilities (IDD). This article summarizes the work of a diverse group of researchers and advocates to propose 6 big-picture, equity-based goals to drive future research in the field: (1) understanding the role of intersectionality, (2) understanding intimate relationships, (3) promoting formation of communities of care to support social inclusion, (4) understanding life course trajectories of social inclusion, (5) understanding social inclusion in virtual spaces, and (6) understanding how to promote social inclusion in the entire research process.


Assuntos
Deficiências do Desenvolvimento , Deficiência Intelectual , Inclusão Social , Humanos , Relações Interpessoais
5.
Intellect Dev Disabil ; 62(3): 225-240, 2024 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-38802097

RESUMO

Meaningful progress in improving employment outcomes for people with intellectual and developmental disabilities continues to be elusive, despite 40 years of investment in research, policy, and supports. This article reviews the current state of employment for individuals with intellectual and developmental disabilities (IDD) and describes policy, practice, and individual factors that influence employment outcomes. Research suggests the need for a holistic approach to change that addresses systems-level strategy, policy, and fiscal investment while strengthening individual experiences with employment and related day services. Recommendations address strengthening the implementation of employment policy, developing pathways to employment, and engaging individuals with IDD and, in particular, individuals with diverse social characteristics in reflecting on the quality of their experiences and supports.


Assuntos
Deficiências do Desenvolvimento , Emprego , Deficiência Intelectual , Humanos , Deficiência Intelectual/reabilitação , Deficiências do Desenvolvimento/reabilitação , Readaptação ao Emprego , Política Pública
6.
Eur J Gen Pract ; 30(1): 2354414, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38757401

RESUMO

BACKGROUND: People with mild intellectual disabilities (MID) experience more mental health (MH) problems than the general population but often do not receive appropriate primary MH care. Primary MH care is essential in integrative MH care and, therefore, demands high quality. To improve primary MH care for this patient group, account must be taken of the experiences of people with MID. So far, their perspectives have been largely absent from primary MH care research. OBJECTIVES: To explore patients' experiences, needs, and suggestions for improvement regarding primary MH care for people with MID. METHODS: Qualitative study among adults with MID who visited their GP with MH problems in the previous 12 months. Semi-structured interviews were conducted using a guide based on Person-Centred Primary Care Measures. Transcripts were analysed thematically. RESULTS: The 11 interviews that we conducted revealed four themes. The first theme, cumulative vulnerability, describes the vulnerability - instigated by the MID and reinforced by MH problems - experienced on a GP visit. The other themes (needs regarding the GP, needs regarding the network, self-determination) arise from this vulnerability. CONCLUSION: People with both MID and MH problems are extra vulnerable in primary care but desire self-determination regarding their MH care trajectory. This requires investment in a good GP-patient relationship and the organisation of additional support to meet these patients' needs, for which collaborative care with the patient, the patient's network, and other (care) professionals is of utmost importance.


People with mild intellectual disabilities (MID) feel more vulnerable visiting their GP with mental health (MH) problems than with somatic problemsPatients with MH problems report additional needs and expectations regarding their care and support networkGPs face challenges in coordinating care for patients with both MID and MH problems.


Assuntos
Deficiência Intelectual , Entrevistas como Assunto , Serviços de Saúde Mental , Relações Médico-Paciente , Atenção Primária à Saúde , Pesquisa Qualitativa , Humanos , Masculino , Feminino , Deficiência Intelectual/terapia , Deficiência Intelectual/psicologia , Adulto , Pessoa de Meia-Idade , Serviços de Saúde Mental/organização & administração , Transtornos Mentais/terapia , Autonomia Pessoal , Idoso
7.
J Appl Res Intellect Disabil ; 37(4): e13240, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38654612

RESUMO

BACKGROUND: The introduction of the National Disability Insurance Scheme (NDIS) in Australia in 2013 promised significant improvements in the lives of adults with intellectual disabilities. Although the scheme enables support, there are challenges associated with establishing eligibility and administering funds. This scoping review explored perceived barriers and enablers to effectively utilising the NDIS for adults with intellectual disabilities and their families. METHOD: A scoping review of the empirical literature on the NDIS and intellectual disabilities included nine studies in this review. These papers were subjected to thematic analysis and the findings were presented as a narrative synthesis. RESULTS: The key themes identified were: (1) Limited understanding of the NDIS process; (2) Language use and capacity assumptions; (3) Unrealistic goals and progress, and difficulty utilising plans; (4) Expectations of families and associated workloads; (5) Opening up opportunities not previously available; (6) Knowledgeable planners who actively seek to involve adults and their families. CONCLUSION: Although qualitative studies demonstrate that adults with an intellectual disability and their families are largely satisfied with the increased opportunities the NDIS has afforded them, there are various areas in which accessibility to services can be improved. In order for the NDIS to continue to improve, the results from this scoping review underline the need for adults with an intellectual disability and their support systems to have their voices heard and be utilised.


Assuntos
Seguro por Deficiência , Deficiência Intelectual , Humanos , Austrália , Acessibilidade aos Serviços de Saúde , Adulto , Família
8.
JMIR Public Health Surveill ; 10: e44827, 2024 May 30.
Artigo em Inglês | MEDLINE | ID: mdl-38607229

RESUMO

BACKGROUND: The COVID-19 pandemic and related control measures affected the mental health of all populations. Particular subgroups are underrepresented in mainstream surveys because they are hard to reach, and study measurements are not adapted to their skills. These subgroups include people with lower cognitive and literacy skills, such as people with mild intellectual disability (MID), who were considered vulnerable during the COVID-19 pandemic given their low socioeconomic status, small social networks, increased risks of health problems, and difficulties understanding health-related information. OBJECTIVE: This study examines the impact of the COVID-19 pandemic on mental health among people with MID or low literacy skills compared with those predominantly represented in national surveys. METHODS: A repeated cross-sectional study of people with MID or low literacy skills and a general population sample was conducted in the Netherlands. An easy-read web-based survey was co-designed with, and tested among, people with MID or low literacy skills and conducted in 3 rounds within 1 year of the COVID-19 pandemic (T1: November to December 2020, T2: March to April 2021, and T3: September to October 2021). The survey contained questions about demographics and 6 aspects of mental health: feeling happy, feeling energized, feeling stressed, worry, feeling lonely, and sleeping problems. RESULTS: Our adapted survey and recruitment procedure enabled 1059 persons with MID or low literacy skills to participate (T1: n=412, 38.9%; T2: n=351, 33.1%; and T3: n=296, 28%). They were significantly younger, had a lower level of education, and more often than not were born outside the Netherlands compared to the general population sample (P<.001). Approximately half of them (604/1059, 57.03%) received professional care. They displayed poorer mental health scores than the general population sample. The percentages of people with MID or low literacy skills who reported more negative feelings in T1 ranged from 20.6% (85/412) reporting feeling lonely often or almost always to 57.8% (238/412) reporting feeling happy almost never or sometimes. The general population sample's percentages were 5.4% (160/2930) and 32.2% (941/2918), respectively. Although scores improved over time in both populations, the disproportional effects remained. CONCLUSIONS: General COVID-19-related restrictions for the entire Dutch population affected people with MID or low literacy skills more negatively than the general population. Our study underscores the relevance of including these subpopulations in public health research because they are often overlooked in regular health data. An accessible web-based survey particularly targeted at this population enabled us to do so, and we reached a group of respondents significantly different from regular survey participants. This survey's results provided insights into the health of people with MID or low literacy skills and gained knowledge to be used by care organizations and policy makers to reduce health disparities during a pandemic and in general.


Assuntos
COVID-19 , Deficiência Intelectual , Saúde Mental , Humanos , COVID-19/epidemiologia , COVID-19/psicologia , Masculino , Adulto , Feminino , Pessoa de Meia-Idade , Estudos Transversais , Países Baixos/epidemiologia , Saúde Mental/estatística & dados numéricos , Deficiência Intelectual/psicologia , Deficiência Intelectual/epidemiologia , Inquéritos e Questionários , Pandemias , Idoso , Letramento em Saúde/estatística & dados numéricos , Internet , Adulto Jovem , Adolescente , Alfabetização/estatística & dados numéricos
9.
Prax Kinderpsychol Kinderpsychiatr ; 73(3): 253-274, 2024 Mar.
Artigo em Alemão | MEDLINE | ID: mdl-38634389

RESUMO

How Does the Kaufman Assessment Battery for Children-II Stand the Test of Clinical Practice? Findings in 7- To 12-Year-Old Children Reliability and validity of the KABC-II were investigated in 646 children aged 7 to 12 years who had been assessed in four social pediatric centers and one pediatric clinic in Germany due to developmental, behavioral, or emotional disorders.The reliability of the global scales Fluid-Crystallized-Index (FCI) and Mental Processing Index (MPI) proved to be very high in all age groups, with values ≥ .96. Reliability values for the scales were above .85 for Sequential/ Gsm and Delayed Recall, and above .90 for the other scales. Relatively higher test scores were found for Learning/Glr in children with intellectual disability than in other scales. Findings for discriminative validity for clinical diagnostic groups and educational backgrounds were as expected, with the lowest intelligence scores for children with intellectual disabilities.The correlation between FCI and the full scale IQ of the SON-R 2.-7 was .73 in a longitudinal subsample. Divergent validity for behavioral variables was confirmed in a subsample by low and nonsignificant correlations with the CBCL/6-18R. With some limitations, psychometric data indicate the suitability of the KABC-II for individual clinical assessment.


Assuntos
Cognição , Deficiência Intelectual , Criança , Humanos , Reprodutibilidade dos Testes , Testes de Inteligência , Psicometria , Deficiência Intelectual/diagnóstico
11.
Disabil Health J ; 17(3): 101607, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38548522

RESUMO

BACKGROUND: People with intellectual and developmental disabilities (IDD) were disproportionately affected by the COVID-19 pandemic. Predicting COVID-19 infection has been difficult. OBJECTIVE: We sought to address two research questions in this study: 1) to assess the overall utility of a machine learning model to predict COVID-19 diagnosis for people with IDD, and 2) to determine the primary predictors of COVID-19 diagnosis in a random sample of Home and Community Based Services users in one state. METHODS: We merged three major IDD-specific datasets (National Core Indicators, Supports Intensity Scale, Medicaid HCBS expenditures) from one state to create one combined dataset for analyses that included more than 700 variables. We then built a random forest machine learning algorithm to predict COVID-19 diagnosis and to explore the top predictors of such a diagnosis, when present. RESULTS: Our algorithm predicted COVID-19 diagnosis in a random sample of HCBS users with IDD with 62.5% accuracy. The top predictors of having a documented case of COVID-19 among our sample were higher age, having high overall, medical, or behavioral support needs, living in a lower-income neighborhood, total Medicaid expenditure, and higher body mass index. CONCLUSIONS: Results largely followed trends in the general population, and were largely suggestive that increased contact with other people may have exposed a person with IDD to greater COVID-19 risk.


Assuntos
COVID-19 , Deficiências do Desenvolvimento , Deficiência Intelectual , Aprendizado de Máquina , Humanos , COVID-19/epidemiologia , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/complicações , Deficiências do Desenvolvimento/epidemiologia , Feminino , Masculino , Adulto , Pessoa de Meia-Idade , Estados Unidos/epidemiologia , Medicaid/estatística & dados numéricos , SARS-CoV-2 , Pessoas com Deficiência/estatística & dados numéricos , Algoritmos , Adulto Jovem , Idoso
12.
Epilepsia ; 65(5): 1224-1239, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38456647

RESUMO

Fully elucidating the burden that Lennox-Gastaut syndrome (LGS) places on individuals with the disease and their caregivers is critical to improving outcomes and quality of life (QoL). This systematic literature review evaluated the global burden of illness of LGS, including clinical symptom burden, care requirements, QoL, comorbidities, caregiver burden, economic burden, and treatment burden (PROSPERO ID: CRD42022317413). MEDLINE, Embase, and the Cochrane Library were searched for articles that met predetermined criteria. After screening 1442 deduplicated articles and supplementary manual searches, 113 articles were included for review. A high clinical symptom burden of LGS was identified, with high seizure frequency and nonseizure symptoms (including developmental delay and intellectual disability) leading to low QoL and substantial care requirements for individuals with LGS, with the latter including daily function assistance for mobility, eating, and toileting. Multiple comorbidities were identified, with intellectual disorders having the highest prevalence. Although based on few studies, a high caregiver burden was also identified, which was associated with physical problems (including fatigue and sleep disturbances), social isolation, poor mental health, and financial difficulties. Most economic analyses focused on the high direct costs of LGS, which arose predominantly from medically treated seizure events, inpatient costs, and medication requirements. Pharmacoresistance was common, and many individuals required polytherapy and treatment changes over time. Few studies focused on the humanistic burden. Quality concerns were noted for sample representativeness, disease and outcome measures, and reporting clarity. In summary, a high burden of LGS on individuals, caregivers, and health care systems was identified, which may be alleviated by reducing the clinical symptom burden. These findings highlight the need for a greater understanding of and better definitions for the broad spectrum of LGS symptoms and development of treatments to alleviate nonseizure symptoms.


Assuntos
Cuidadores , Efeitos Psicossociais da Doença , Síndrome de Lennox-Gastaut , Qualidade de Vida , Humanos , Cuidadores/psicologia , Cuidadores/economia , Deficiência Intelectual/economia , Deficiência Intelectual/terapia , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/psicologia , Sobrecarga do Cuidador/psicologia
13.
J Sch Health ; 94(6): 551-561, 2024 06.
Artigo em Inglês | MEDLINE | ID: mdl-38551064

RESUMO

BACKGROUND: Students with intellectual and developmental disabilities (IDD) were disproportionately impacted by the COVID-19 pandemic. This study's goal was to assess the effectiveness of 2 messaging strategies on participation in SARS-CoV-2 weekly testing. METHODS: Cluster randomized trials were conducted at 2 school systems, the special school district (SSD) and Kennedy Krieger Institute (Kennedy) to assess messaging strategies, general versus enhanced, to increase weekly screening for SARS-CoV-2. Testing was offered to staff and students from November 23, 2020 to May 26, 2022. The primary outcomes were percentage of students and staff consented weekly and percentage of study participants who had a test performed weekly. Generalized estimating equation models were utilized to evaluate the primary outcomes. RESULTS: Increases in enrollment and testing occurred during study start up, the beginning of school years, and following surges in both systems. No statistical difference was observed in the primary outcomes between schools receiving standard versus enhanced messaging. IMPLICATIONS FOR SCHOOL HEALTH POLICY, PRACTICE, AND EQUITY: Frequent and consistent communication is vital for families and staff. Weekly screening testing within schools is possible and highlighted the importance of utilizing equitable protocols to provide important testing to students with IDD. CONCLUSION: Enhanced messaging strategies did not increase the number of participants enrolled or the percentage of enrolled participants being tested on a weekly basis.


Assuntos
Teste para COVID-19 , COVID-19 , Deficiências do Desenvolvimento , Deficiência Intelectual , Humanos , COVID-19/epidemiologia , Deficiências do Desenvolvimento/diagnóstico , Criança , Masculino , Feminino , Adolescente , Teste para COVID-19/métodos , Estudantes/psicologia , SARS-CoV-2 , Serviços de Saúde Escolar , Programas de Rastreamento/métodos , Instituições Acadêmicas
14.
Artigo em Inglês | MEDLINE | ID: mdl-38541298

RESUMO

Most of the studies on the cost of intellectual disability are limited to a healthcare perspective or cohorts composed of individuals where the etiology of the condition is a mixture of genetic and non-genetic factors. When used in policy development, these can impact the decisions made on the optimal allocation of resources. In our study, we have developed a static microsimulation model to estimate the healthcare, societal, and lifetime cost of individuals with familial intellectual disability, an inheritable form of the condition, to families and government. The results from our modeling show that the societal costs outweighed the health costs (approximately 89.2% and 10.8%, respectively). The lifetime cost of familial intellectual disability is approximately AUD 7 million per person and AUD 10.8 million per household. The lifetime costs to families are second to those of the Australian Commonwealth government (AUD 4.2 million and AUD 9.3 million per household, respectively). These findings suggest that familial intellectual disability is a very expensive condition, representing a significant cost to families and government. Understanding the drivers of familial intellectual disability, especially societal, can assist us in the development of policies aimed at improving health outcomes and greater access to social care for affected individuals and their families.


Assuntos
Deficiência Intelectual , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/genética , Efeitos Psicossociais da Doença , Austrália/epidemiologia , Atenção à Saúde , Custos de Cuidados de Saúde
15.
J Intellect Disabil Res ; 68(5): 537-551, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38445773

RESUMO

BACKGROUND: Expenditure on residential placements for people with intellectual disability (ID) in Ireland is considerable and expected to increase. Despite this, there is limited evidence on the factors driving variation in privately provided 'out-of-area' residential placement costs, including across Community Health Organisations (CHOs)/regions. This is important to help inform the delivery of services at best value. METHODS: We analyse unit cost data from 2019 for a sample of 278 high-cost publicly funded privately provided out-of-area residential placements for people with ID in Ireland. We undertake univariate analysis of the relationship between costs and a wide range of variables using t-tests and one-way analysis of variance. We employ multivariable regression analysis to examine how raw differentials in unit costs across regions can be accounted for by individual-level characteristics. RESULTS: We estimate average unit costs of €264 170 per annum in our sample. The univariate analysis shows considerable variation in costs across a range of personal, disability, psychiatry/psychological, forensic issues, behaviour and supports and plans related variables. We also find wide variation in average unit costs across CHOs/regions (F = 4.58, P < 0.001), ranging from €213 380 to €331 880. The multivariable analysis shows that regional differences remain even after accounting for a wide range of individual characteristics that influence costs. CONCLUSIONS: Our analysis shows that while the majority of differences in costs across regions can be explained, there is potential for cost savings in the provision of high-cost publicly funded out-of-area residential placements in Ireland. Overall this can help to develop and implement a more sustainable disability residential funding model in a context of rising demand for services. It also has potential implications for the approach to procurement of services.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Humanos , Irlanda
16.
J Appl Res Intellect Disabil ; 37(3): e13219, 2024 May.
Artigo em Inglês | MEDLINE | ID: mdl-38485891

RESUMO

BACKGROUND: People with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an intellectual disability; factors associated with frailty; and the potential impact of COVID-19 on frailty identification and management. METHOD: Databases were searched from January 2016 to July 2023 for studies that investigated frailty in individuals with intellectual disabilities. RESULTS: Twenty studies met the inclusion criteria. Frailty prevalence varied between 9% and 84%. Greater severity of intellectual disability, presence of Down syndrome, older age, polypharmacy, and group home living were associated with frailty. Multiagency working, trusted relationships and provision of evidence-based information may all be beneficial in frailty management. CONCLUSION: Frailty is common for people with intellectual disabilities and is best identified with measures specifically designed for this population. Future research should evaluate interventions to manage frailty and improve lives.


Assuntos
Síndrome de Down , Fragilidade , Deficiência Intelectual , Adulto , Idoso , Humanos , Deficiência Intelectual/epidemiologia , Deficiência Intelectual/terapia , Deficiência Intelectual/complicações , Fragilidade/epidemiologia , Idoso Fragilizado , Síndrome de Down/complicações , Síndrome de Down/epidemiologia , Síndrome de Down/terapia , Prevalência
17.
Lancet ; 403(10433): 1254-1266, 2024 Mar 30.
Artigo em Inglês | MEDLINE | ID: mdl-38461840

RESUMO

BACKGROUND: Mental health difficulties are common in children and young people with chronic health conditions, but many of those in need do not access evidence-based psychological treatments. The study aim was to evaluate the clinical effectiveness of integrated mental health treatment for children and young people with epilepsy, a common chronic health condition known to be associated with a particularly high rate of co-occurring mental health difficulties. METHODS: We conducted a parallel group, multicentre, open-label, randomised controlled trial of participants aged 3-18 years, attending epilepsy clinics across England and Northern Ireland who met diagnostic criteria for a common mental health disorder. Participants were randomised (1:1; using an independent web-based system) to receive the Mental Health Intervention for Children with Epilepsy (MICE) in addition to usual care, or assessment-enhanced usual care alone (control). Children and young people in both groups received a full diagnostic mental health assessment. MICE was a modular psychological intervention designed to treat common mental health conditions in children and young people using evidence-based approaches such as cognitive behaviour therapy and behavioural parenting strategies. Usual care for mental health disorders varied by site but typically included referral to appropriate services. Participants, along with their caregivers, and clinicians were not masked to treatment allocation but statisticians were masked until the point of analysis. The primary outcome, analysed by modified intention-to-treat, was the parent-report Strengths and Difficulties Questionnaire (SDQ) at 6 months post-randomisation. The study is complete and registered with ISRCTN (57823197). FINDINGS: 1401 young people were potentially deemed eligible for study inclusion. Following the exclusion of 531 young people, 870 participants were assessed for eligibility and completed the SDQ, and 480 caregivers provided consent for study inclusion between May 20, 2019, and Jan 31, 2022. Between Aug 28, 2019, and Feb 21, 2022, 334 participants (mean ages 10·5 years [SD 3·6] in the MICE group vs 10·3 [4·0] in control group at baseline) were randomly assigned to an intervention using minimisation balanced by age, primary mental health disorder, diagnosis of intellectual disability, and autistic spectrum disorder at baseline. 168 (50%) of the participants were female and 166 (50%) were male. 166 participants were randomly assigned to the MICE group and 168 were randomly assigned to the control group. At 6 months, the mean SDQ difficulties for the 148 participants in the MICE group was 17·6 (SD 6·3) and 19·6 (6·1) for the 148 participants in the control group. The adjusted effect of MICE was -1·7 (95% CI -2·8 to -0·5; p=0·0040; Cohen's d, 0·3). 14 (8%) patients in the MICE group experienced at least one serious adverse event compared with 24 (14%) in the control group. 68% percent of serious adverse events (50 events) were admission due to seizures. INTERPRETATION: MICE was superior to assessment-enhanced usual care in improving symptoms of emotional and behavioural difficulties in young people with epilepsy and common mental health disorders. The trial therefore shows that mental health comorbidities can be effectively and safely treated by a variety of clinicians, utilising an integrated intervention across ages and in the context of intellectual disability and autism. The evidence from this trial suggests that such a model should be fully embedded in epilepsy services and serves as a model for other chronic health conditions in young people. FUNDING: UK National Institute for Health Research Programme Grants for Applied Research programme and Epilepsy Research UK Endeavour Project Grant.


Assuntos
Epilepsia , Deficiência Intelectual , Adolescente , Criança , Feminino , Humanos , Masculino , Análise Custo-Benefício , Inglaterra , Epilepsia/terapia , Saúde Mental , Intervenção Psicossocial , Resultado do Tratamento , Pré-Escolar
20.
Environ Sci Pollut Res Int ; 31(11): 17097-17114, 2024 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-38332418

RESUMO

To achieve high-quality economic development in the process of promoting the development of China's environment quality, and green economy, green total factor productivity is an important indicator to measure high-quality economic development. Therefore, it is of great significance to study the impact of changes in energy and industrial structure on green total factors. Each specific province in China is taken as the research object, and the green total factor productivity index into green technology efficiency and green technology progress are decomposed in this paper. On the basis of constructing the industrial structure upgrading index and energy structure upgrading index, a fixed-effect model and threshold regression model are used to analyze the influence of industrial structure and energy structure on green total factor productivity and its internal mechanism. Results shows that green total factor productivity, industrial structure and energy structure all show a trend of "continuous rise in small fluctuations," but there is a spatial disequilibrium; the upgrading and optimization of industrial structure and energy structure can effectively promote the improvement of green total factor productivity, and the growth mainly comes from the improvement of green technology progress, not the improvement of green technology efficiency; the impact of the improvement of industrial structure and energy structure on green technology efficiency has a significant nonlinear trend of increasing marginal effect; the upgrading of the industrial structure has a stronger role in promoting green total factor productivity in the central and western regions than in the eastern region; while the optimization of the energy structure has a significant promoting effect on green total factor productivity in the eastern region, but has a certain inhibitory effect on the central and western regions.


Assuntos
Conservação dos Recursos Naturais , Deficiência Intelectual , Humanos , China , Desenvolvimento Econômico , Indústrias , Eficiência
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