Cultural Adaptation and Validation of the Ostomy Adjustment Inventory-23 for Brazil.

The Ostomy Adjustment Inventory-23 (OAI-23) was developed in English to measure the social and psychological adaptation of individuals who underwent ostomy surgeries. PURPOSE: The aim of the current study was to culturally adapt and test the measurement properties of a Brazilian Portuguese adapted version of the OAI-23. METHODS: The original version of the OAI-23 was composed of 23 questions distributed into the following 4 factors: acceptance, anxiety/preoccupation, social engagement, and anger. The OAI-23 was translated into Portuguese, reviewed by a committee of expert reviewers, pretested on a focus group, and back-translated. Using convenience sampling methods, patients who were treated at specialized health centers located in different parts of Brazil were invited to complete a demographic and health history questionnaire, the Janis and Field Self-Esteem Scale, and the adapted version of OAI-23 to assess its reliability, convergent construct validity, and discriminant construct validity. RESULTS: A total of 191 patients with a mean age of 58.9 years (SD = 14.7) (74.1% with colostomies, 19.6% with ileostomies, and 6.3% with urostomies) participated in the study. The Brazilian Portuguese adapted version of the OAI-23 had a Cronbach's alpha coefficient of 0.846 and an intra-class correlation coefficient of 0.903 (P < .001). Significant correlations between OAI-23 scores and self-esteem scale scores confirmed the convergent construct validity, and the instrument was able to discriminate patients' adjustment according to age. CONCLUSION: The adapted version of the OAI-23 proved to be reliable and valid for use in Brazil; this represents the first instrument capable of assessing psychosocial adaptation of patients with stomas in that country.

The Financial Impact of Living in Canada With an Ostomy: A Cross-sectional Survey.

PURPOSE: The aim of this study was to explore how living with an ostomy financially impacts Canadians. METHODS: A descriptive, pan-Canadian, cross-sectional online and paper-based survey was conducted using a convenience sample. RESULTS: Surveys were completed by 467 individuals. Seventy-six percent (n = 355) reported spending more than $1000 annually on ostomy supplies, with 58% (n = 271) paying partially out of pocket. Atlantic regions relied primarily on insurance (n = 81), and the central, prairies, and western regions used a combination of funding (provincial government funding and/or insurance) (n = 385) with no significant out-of-pocket funding differences between regions (χ = 18.267, P = .079). Fifteen percent (n = 70) reported frequent peristomal skin problems, and 19% (n = 89) indicated that having an ostomy negatively affected their ability to work. When experiencing ostomy-related problems, 60% (n = 280) sought assistance from a nurse specialized in wound, ostomy, and continence (NSWOC) and spent significantly less on ostomy supplies (χ = 231.267, P < .001). CONCLUSION: This study demonstrated that living with an ostomy may result in financial burden and that Canadian regional variations in funding and access to an NSWOC should be explored.

Pasta para cuidado de ostomías / Ostomy care paste

INTRODUCCIÓN: a. Cuadro clínico: En las cirugías de colostomía e ileostomía, la función intestinal normal se interrumpe y el contenido intestinal pasa a través de la pared abdominal al exterior por medio de una apertura llamada ostoma u ostomía hacia un dispositivo (bolsa), que debe vaciarse periódicamente. Este enfoque terapéutico puede ser temporal o permanente y compromete severamente la calidad de vida y funcionamiento del individuo. Existen muchas complicaciones asociadas al uso de una ostomía, siendo las más importantes la irritación de la zona del ostoma y la fuga de secreciones fuera de la bolsa al exterior. b. Descripción de la tecnología: La pasta de ostomía es un dispositivo médico que se usa como una masilla para rellenar contornos desiguales de la piel ayudando a crear una superficie más plana y de esta forma mejorar la adhesión de la bolsa de ostomía. Este sellado evitaría la fuga de contenidos intestinales fuera de la bolsa. OBJETIVO: Evaluar la eficacia y seguridad, así como documentos relacionados a la cobertura de pasta para cuidado de ostomía. METODOLOGÍA: Se realizó una búsqueda en las principales bases de datos bibliográficas: MEDLINE, LILACS, COCHRANE, así como en buscadores genéricos de Internet incluyendo Google Académico y TRIPDATABASE. Adicionalmente, se hizo una búsqueda dentro de la información generada por las principales instituciones internacionales de gastroenterología, urología y cirugía; y agencias de tecnologías sanitarias que realizan revisiones sistemáticas (RS), evaluación de tecnologías sanitarias (ETS) y guías de práctica clínica (GPC). RESULTADOS: Se seleccionaron una RS y tres GPC con respecto a pasta para cuidado de ostomía. No se encontraron ETS, ni evaluaciones económicas de la región. CONCLUSIONES: La evidencia con respecto a la pasta para cuidado de ostomías es escasa y de baja calidad metodológica. No se encontraron estudios comparativos que evaluaran la pasta para cuidado de ostomía frente a otra tecnología para la prevención de fuga de secreciones fuera de la bolsa de ostomía. Sin embargo, las tres GPC coinciden en considerarla una opción válida para el manejo de pacientes con ostomías, sin establecer una preferencia por sobre otra tecnología.

To explore preferences and willingness to pay for attributes regarding stoma appliances amongst patients in the UK, France and Germany.

OBJECTIVES: To explore patient preferences regarding stoma appliances in the UK, France and Germany and to estimate willingness to pay (WTP) for attributes of stoma appliances. RESEARCH DESIGN AND METHODS: A discrete choice (DCE) survey was developed based on published literature, attributes of current available appliances and qualitative interviews with patients from the UK (N = 3), France (N = 2) and Germany (N = 2). Members from a patient panel in the UK, France and Germany were asked to participate in the DCE survey and to fill out two quality of life (QoL) questionnaires. Data were analyzed using the conditional logit model whereby the coefficients obtained from the model provided an estimate of the (log) odds ratios (ORs) of preference for attributes. WTP was estimated for each level of a given identified attribute. RESULTS: Seven key attributes were identified for the DCE survey: comfort and elastic flexibility, skin problems, early detection of leakage, leakage, filter performance, service/help after hospital discharge and out-of-pocket cost. A total of 415 participants (166 patients in UK, 99 in France, and 150 in Germany) completed the questionnaires. All attributes were significant predictors of choice. The two most important drivers of preference were the attributes comfort and elastic flexibility and skin problems which resulted in high WTP values. Appliances which were able to detect episodes of leakage were also of high importance to participants' appliances. CONCLUSIONS: The results show the importance of different attributes of stoma appliances for patients. Improving comfort and elastic flexibility, and risk of skin problems were the most important aspects of appliances. The WTP values indicate the value people place on improvement in each attribute of appliances.