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1.
Hastings Cent Rep ; 51(2): 16-21, 2021 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-33840101

RESUMO

Harrowing stories reported in the media describe Covid-19 ravaging through families. This essay reports professional experiences of this phenomenon, family clustering, as encountered during the pandemic's spread across Southern California. We identify three ethical challenges following from it: Family clustering impedes shared decision-making by reducing available surrogate decision-makers for incapacitated patients, increases the emotional burdens of surrogate decision-makers, and exacerbates health disparities for and the suffering of people of color at increased likelihood of experiencing family clustering. We propose that, in response to these challenges, efforts in advance care planning be expanded, emotional support offered to surrogates and family members be increased, more robust state guidance be issued on ethical decision-making for unrepresented patients, ethics consultation be increased in the setting of conflict following from family clustering dynamics, and health care professionals pay more attention to systemic and personal racial biases and inequities that affect patient care and the surrogate experience.


Assuntos
Planejamento Antecipado de Cuidados , COVID-19/epidemiologia , Saúde da Família , Família/psicologia , Saúde das Minorias , Assistência ao Paciente , Planejamento Antecipado de Cuidados/ética , Planejamento Antecipado de Cuidados/legislação & jurisprudência , California/epidemiologia , Análise por Conglomerados , Tomada de Decisão Compartilhada , Saúde da Família/ética , Saúde da Família/etnologia , Disparidades nos Níveis de Saúde , Humanos , Saúde das Minorias/ética , Saúde das Minorias/etnologia , Assistência ao Paciente/ética , Assistência ao Paciente/psicologia , SARS-CoV-2 , Apoio Social , Consentimento do Representante Legal/ética
3.
PLoS One ; 14(4): e0215873, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31009508

RESUMO

BACKGROUND: In Ontario, Canada, healthcare for transgender individuals is accessed through primary care; however, there are a limited number of practitioners providing transgender care, and patients are often on waiting lists and/or traveling great distances to receive care. Understanding how primary care is implemented and delivered to transgender individuals is key to improving access and eliminating healthcare barriers. The purpose of this study is to understand how the implementation of primary care services for transgender individuals compares across various models of primary care delivery in Ontario. METHODS: A qualitative, exploratory, multiple-case study guided by Normalization Process Theory (NPT) was used to compare transgender care delivery and implementation across three primary care models. Three cases known to provide transgender primary care and represent different primary care models in Ontario, Canada (i.e., family health team, community health centre, fee-for service physician) were explored. The NoMAD survey, a tool to measure implementation processes, and qualitative interviews with primary care practitioners and allied healthcare staff were administered. RESULTS: Using the NPT framework to guide analysis, key themes emerged about successful implementation of primary care services for transgender individuals. These themes include creating a safe space for patients, identifying gaps in services, understanding practitioners' roles, and the need for more training and education in transgender care for practitioners. CONCLUSIONS: Primary care services for transgender individuals can and should be delivered in all models of primary care. Training and awareness for healthcare practitioners are needed to develop capacity in providing primary care to transgender individuals. A greater number of practitioners and organizations are needed to take on this work, embedding and normalizing transgender care into routine practice to address barriers to access and improve quality of care for transgender individuals.


Assuntos
Planos de Pagamento por Serviço Prestado/organização & administração , Médicos de Atenção Primária/organização & administração , Atenção Primária à Saúde/organização & administração , Saúde Pública/métodos , Pessoas Transgênero/psicologia , Transexualidade/terapia , Adulto , Saúde da Família/ética , Planos de Pagamento por Serviço Prestado/ética , Feminino , Humanos , Masculino , Ontário , Médicos de Atenção Primária/ética , Saúde Pública/ética , Pesquisa Qualitativa , Pessoas Transgênero/estatística & dados numéricos , Transexualidade/psicologia , Listas de Espera
4.
J Med Ethics ; 41(2): 183-5, 2015 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25210197

RESUMO

Recent developments in professional healthcare pose moral problems that standard bioethics cannot even identify as problems, but that are fully visible when redefined as problems in the ethics of families. Here, we add to the growing body of work that began in the 1990 s by demonstrating the need for a distinctive ethics of families. First, we discuss what 'family' means and why families can matter so deeply to the lives of those within them. Then, we briefly sketch how, according to an ethics of families, responsibilities must be negotiated against the backdrop of family relationships, treatment decisions must be made in the light of these negotiated responsibilities and justice must be served, both between families and society more generally and within families themselves.


Assuntos
Atenção à Saúde/ética , Família/psicologia , Adulto , Tomada de Decisões/ética , Teoria Ética , Saúde da Família/ética , Feminino , Humanos , Masculino , Obrigações Morais , Papel (figurativo) , Obtenção de Tecidos e Órgãos/organização & administração
5.
Glob J Health Sci ; 7(3): 267-73, 2014 Nov 30.
Artigo em Inglês | MEDLINE | ID: mdl-25948455

RESUMO

INTRODUCTION: The present study aimed at exploring and describing the perception of moral health from middle-aged women standpoints. Women's decisive role in family is undeniable. In the family which is built upon tradition, faith and ethics, this is women's principle which is represented in the moral health of the individual and the society, deals with the nature of the vice and virtue. This study attempted to identify the perception of Iranian middle-aged women about the concept of moral health. METHOD: The present study completed through a content analysis method. Twenty two middle-aged women were recruited through purposive sampling. Data were granted by face to face, semi-structured interview. RESULT: Our major categories are devotion, preserving moral values and moral challenges. Devotion category includes subcategories such as prioritizing the health of family members and trying to save marriage. Preserving moral values category includes subcategories such as respecting values and consolidating beliefs over time. Moral challenges category consists of individual and familial challenges subcategories. CONCLUSION: Moral health is of high importance which affects various dimensions of individual, social and familial life. The findings of the present study presented new dimensions of middle-aged women's health regarding moral health which can finally have different consequences on familial and social moral health.


Assuntos
Saúde da Família/etnologia , Saúde da Família/ética , Identidade de Gênero , Princípios Morais , Adulto , Feminino , Humanos , Entrevistas como Assunto , Irã (Geográfico) , Pessoa de Meia-Idade , Fatores Socioeconômicos
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