RESUMO
OBJECTIVE: We aim to clarify the national scope of unmet pediatric hearing care needs and identify specific barriers to hearing care. STUDY DESIGN: Cross-sectional study of a nationally representative data set. SETTING: This study is based on the combined 2016 and 2017 National Survey of Children's Health. This survey covers the physical and emotional health, access to care, and social context of US children and adolescents aged 0 to 17 years. METHODS: Analysis of parent-reported responses of children's hearing status, access to care, and perceived barriers. RESULTS: Overall, 0.3% (n = 206,200) of US children surveyed reported needing hearing care, which was not received. A further 1.3% (n = 934,000) reported deafness or problems with hearing, and of these, 6.4% (n = 60,000) reported not receiving necessary hearing care. Rates of insurance coverage between children with deafness/hearing problems and the general population were similar (91.7% vs 93.9%); however, deaf or hard-of-hearing children with unmet hearing care needs were more likely to be from non-White backgrounds (P = .009) and to lack health insurance coverage (P = .001). Rates of unfulfilled hearing care by reason were as follows: 57.5% without eligibility for the service, 45.4% reporting the service was not available in their area, 53.7% with difficulty obtaining an appointment, and 53.5% reporting issues with cost. CONCLUSION: Over 200,000 children annually do not receive necessary hearing-related care despite high rates of insurance coverage, and nearly 60,000 of these children are deaf or hard of hearing. Cost, eligibility for and distribution of services, and timely appointments are the primary barriers to hearing health care.
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Surdez , Seguro Saúde , Adolescente , Criança , Estudos Transversais , Surdez/terapia , Acessibilidade aos Serviços de Saúde , Audição , HumanosRESUMO
Purpose This case study describes the language evaluation and treatment of a 5-year-old boy, Lucas, who is Deaf, uses American Sign Language (ASL), and presented with a language disorder despite native access to ASL and no additional diagnosis that would explain the language difficulties. Method Lucas participated in an evaluation where his nonverbal IQ, fine motor, and receptive/expressive language skills were assessed. Language assessment included both formal and informal evaluation procedures. Language intervention was delivered across 7 weeks through focused stimulation. Results Evaluation findings supported diagnosis of a language disorder unexplained by other factors. Visual analysis revealed an improvement in some behaviors targeted during intervention (i.e., number of different verbs and pronouns), but not others. In addition, descriptive analysis indicated qualitative improvement in Lucas' language production. Parent satisfaction survey results showed a high level of satisfaction with therapy progress, in addition to a belief that Lucas improved in language areas targeted. Conclusions This study adds to the growing body of literature that unexplained language disorders in signed languages exist and provides preliminary evidence for positive outcomes from language intervention for a Deaf signing child. The case described can inform professionals who work with Deaf signing children (e.g., speech-language pathologists, teachers of the Deaf, and parents of Deaf children) and serve as a potential starting point in evaluation and treatment of signed language disorders. Supplemental Material https://doi.org/10.23641/asha.16725601.
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Surdez , Transtorno Específico de Linguagem , Criança , Pré-Escolar , Surdez/terapia , Humanos , Idioma , Masculino , Pais , Língua de SinaisRESUMO
OBJECTIVE: To explore socioeconomic disparities in pediatric single-sided deafness (SSD) treatment. STUDY DESIGN: Retrospective chart review. SETTING: Tertiary referral academic center. METHODS: The charts of 190 pediatric patients with SSD were reviewed for demographic and clinical characteristics. Socioeconomic variables included race and insurance status. ZIP codes were used to obtain additional socioeconomic data from the American Community Survey, including mean and median income, percentage of families below the poverty level, and employment status. Socioeconomic status (SES) was classified by insurance status and income. Treatment outcomes were analyzed by socioeconomic variables. RESULTS: There were 105 males and 85 females with a mean follow-up of 55.2 months and a mean age at diagnosis of 4.4 years. Sixty-three percent of children received treatment at last follow-up. Thirty-five percent of children had public insurance and 65% had private insurance. Treatment rates were similar in the private and public insurance groups (60.6% vs 66.7%, P = .42), but device type was different between groups (P = .02). Consistent device use was associated with private insurance (47.5% vs 38.9%, P = .003) and high SES (94.4% vs 80%, P = .04) on univariate but not on multivariate analysis. Aided audiometry results were similar between SES groups. No association was found between sex, race, income level, poverty level, or employment status and treatment outcomes. CONCLUSION: Insurance type and SES were not associated with SSD treatment outcomes in children, although device use may be higher in children with private insurance and higher SES. Further research should focus on strategies to reduce barriers to treatment and improve adherence.
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Surdez , Disparidades em Assistência à Saúde/economia , Auxiliares de Audição , Classe Social , Adolescente , Audiometria , Criança , Pré-Escolar , Surdez/economia , Surdez/terapia , Feminino , Seguimentos , Humanos , Lactente , Cobertura do Seguro , Seguro Saúde , Masculino , Análise Multivariada , Pobreza , Estudos Retrospectivos , Fatores Socioeconômicos , Estados UnidosRESUMO
There are over 87 000 Deaf people in the UK with British Sign Language (BSL) as their first language.1 Few healthcare professionals receive training in Deaf awareness or in BSL, and missed diagnoses and inadequate treatment of Deaf patients are estimated to cost the National Health Service £30 million per year.2 Neurologists are likely to encounter Deaf BSL users in their practice, but without prior experience may find consultations challenging, especially within the time constraints and pressure of a standard clinic. In this article, we provide guidance on consulting with Deaf people in a neurology clinic, drawing on experience from our cognitive clinic for Deaf BSL users where effective communication is essential.
Assuntos
Instituições de Assistência Ambulatorial/normas , Surdez/terapia , Neurologia/normas , Língua de Sinais , Medicina Estatal/normas , Instituições de Assistência Ambulatorial/economia , Surdez/economia , Surdez/epidemiologia , Humanos , Neurologia/economia , Neurologia/métodos , Guias de Prática Clínica como Assunto/normas , Medicina Estatal/economia , Reino Unido/epidemiologiaRESUMO
Introduction Lack of access to mental health services for persons who are deaf and communicate in LSQ and who present mental health issues has been noted by service providers. However, very few studies have examined the needs of this population in Quebec. Objective The purpose of this study was to explore the needs with regards to services of persons who are deaf and communicate in LSQ and who have mental health issues. Methods A qualitative single case study design was used. The case was the territory affiliated to a specialized rehabilitation center in deafness and communication in Montreal. The sample was composed of clinicians and administrators of this center and community organizations (n = 12), persons who are deaf and communicate in LSQ and had mental health issues (n = 4), as well as family members (n = 1). Each participant took part in a semi-structured individual interview. A verification of the information provided was done in person or by phone one month later. A thematic content analysis was done for all the transcriptions, following the recommendations of Miles and Huberman (2003). Results Certain services that were seen as needed did not exist, such as support groups and networks for the deaf who have mental health issues or leisure activities in community services. Certain services were available but several obstacles limited their use. For example, a lack of knowledge about deafness and the deaf culture in the health care system that lead to consequences such as incorrect diagnoses or difficulty in establishing a therapeutic alliance. Conclusion What seemed to be consensual among these participants was the importance to have access to clinicians in the various health care establishments with a very good knowledge of mental illness, deafness as well as linguistic and cultural aspects that characterize the deaf population.
Assuntos
Surdez/complicações , Surdez/terapia , Necessidades e Demandas de Serviços de Saúde/estatística & dados numéricos , Serviços de Saúde para Pessoas com Deficiência/estatística & dados numéricos , Transtornos Mentais/complicações , Transtornos Mentais/terapia , Serviços de Saúde Mental/estatística & dados numéricos , Língua de Sinais , Adulto , Feminino , Humanos , Masculino , QuebequeRESUMO
OBJECTIVES: To assess the use of cortical auditory evoked potentials (CAEPs) to verify, and if necessary, optimize the cochlear implant (CI) fitting of adult CI users with postlingual single-sided deafness (SSD). METHODS: Sound field cortical responses to the speech tokens /m/, /g/, /t/, and /s/ were recorded from input to the CI while the normal hearing ear was masked. Responses were evaluated by visual inspection and classified as presence or absence of the CAEPs components P1, N1, P2. In case of an absence fitting was adjusted accordingly. After fitting, subjects were asked to use their new setting for 2-3 weeks for acclimatization purposes and then return for retesting. At retesting, new CAEP recordings were performed to objectively ensure that the new fitting maps effectively activated the auditory cortex. RESULTS: In 14/19 subjects, as per visual inspection, clear CAEPs were recorded by each speech token and were, therefore, not refit. In the other 5 subjects, CAEPs could not be evoked for at least one speech token. The fitting maps in these subjects were adjusted until clear CAEPs were evoked for all 4 speech tokens. CONCLUSIONS: CAEP can be used to quickly and objectively verify the suitability of CI fitting in experienced adult CI users with SSD. If used in the early post-implantation stage, this method could help CI users derive greater benefit for CI use and, therefore, be more committed to auditory training.
Assuntos
Córtex Cerebral/fisiopatologia , Implantes Cocleares , Surdez/fisiopatologia , Potenciais Evocados Auditivos , Percepção da Fala , Adulto , Idoso , Surdez/terapia , Feminino , Humanos , Masculino , Pessoa de Meia-IdadeRESUMO
There is keen interest to define gene therapies aimed at restoration of auditory and vestibular function in the diseased or damaged mammalian inner ear. A persistent limitation of regenerative medical strategies that seek to correct or modify gene expression in the sensory epithelia of the inner ear involves efficacious delivery of a therapeutic genetic construct. Our approach is to define methodologies that enable fetal gene transfer to the developing mammalian inner ear in an effort to correct defective gene expression during formation of the sensory epithelia or during early postnatal life. Conceptually, the goal is to atraumatically introduce the genetic construct into the otocyst-staged mouse inner ear and transfect otic progenitors that give rise to sensory hair cells and supporting cells. Our long-term goal is to define therapeutic interventions for congenital deafness and balance disorders with the expectation that the approach may also be exploited for therapeutic intervention postnatally.In the inaugural volume of this series, we introduced electroporation-mediated gene transfer to the developing mouse inner ear that encompassed our mouse survival surgery and transuterine microinjection protocols (Brigande et al., Methods Mol Biol 493:125-139, 2009). In this chapter, we first briefly update our use of sodium pentobarbital anesthesia, our preferred anesthetic for mouse ventral laparotomy, in light of its rapidly escalating cost. Next, we define a rapid, cost-effective method to produce recombinant adeno-associated virus (rAAV) for efficient gene transfer to the developing mouse inner ear. Our immediate goal is to provide a genetic toolkit that will permit the definition and validation of gene therapies in mouse models of human deafness and balance disorders.
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Surdez/terapia , Dependovirus/genética , Orelha Interna/embriologia , Engenharia Genética/economia , Adjuvantes Anestésicos/administração & dosagem , Animais , Surdez/genética , Modelos Animais de Doenças , Técnicas de Transferência de Genes , Terapia Genética , Células HEK293 , Humanos , Camundongos , Pentobarbital/administração & dosagemRESUMO
OBJECTIVE: To study the cost-utility of simultaneous bilateral cochlear implantation (CI) versus unilateral CI. STUDY DESIGN: Randomized controlled trial (RCT). SETTING: Five tertiary referral centers. PATIENTS: Thirty-eight postlingually deafened adults eligible for cochlear implantation. INTERVENTIONS: A cost-utility analysis was performed from a health insurance perspective. MAIN OUTCOME MEASURES: Utility was assessed using the HUI3, TTO, VAS on hearing, VAS on general health and EQ-5D. We modeled the incremental cost per quality-adjusted life year (QALY) of unilateral versus bilateral CI over periods of 2, 5, 10, 25 years, and actual life-expectancy. RESULTS: Direct costs for unilateral and bilateral CI were 43,883â±â11,513(SD) and 87,765â±â23,027(SD) respectively. Annual costs from the second year onward were 3,435â±â1,085(SD) and 6,871â±â2,169(SD), respectively. A cost-utility analysis revealed that a second implant became cost-effective after a 5- to 10-year period, based on the HUI3, TTO, and VAS on hearing. CONCLUSION: This is the first study that describes a cost-utility analysis to compare unilateral with simultaneous bilateral CI in postlingually deafened adults, using a multicenter RCT. Compared with accepted societal willingness-to-pay thresholds, simultaneous bilateral CI is a cost-effective treatment for patients with a life expectancy of 5-10 years or longer.
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Implante Coclear/economia , Implantes Cocleares/economia , Lateralidade Funcional , Adolescente , Adulto , Fatores Etários , Idoso , Análise Custo-Benefício , Surdez/economia , Surdez/terapia , Feminino , Custos de Cuidados de Saúde , Nível de Saúde , Humanos , Expectativa de Vida , Masculino , Pessoa de Meia-Idade , Anos de Vida Ajustados por Qualidade de Vida , Resultado do Tratamento , Adulto JovemRESUMO
INTRODUCTION: Cochlear implantation (CI) is a common intervention for severe-to-profound hearing loss in high-income countries, but is not commonly available to children in low resource environments. Owing in part to the device costs, CI has been assumed to be less economical than deaf education for low resource countries. The purpose of this study is to compare the cost effectiveness of the two interventions for children with severe-to-profound sensorineural hearing loss (SNHL) in a model using disability adjusted life years (DALYs). METHODS: Cost estimates were derived from published data, expert opinion, and known costs of services in Nicaragua. Individual costs and lifetime DALY estimates with a 3% discounting rate were applied to both two interventions. Sensitivity analysis was implemented to evaluate the effect on the discounted cost of five key components: implant cost, audiology salary, speech therapy salary, number of children implanted per year, and device failure probability. RESULTS: The costs per DALY averted are $5,898 and $5,529 for CI and deaf education, respectively. Using standards set by the WHO, both interventions are cost effective. Sensitivity analysis shows that when all costs set to maximum estimates, CI is still cost effective. CONCLUSION: Using a conservative DALY analysis, both CI and deaf education are cost-effective treatment alternatives for severe-to-profound SNHL. CI intervention costs are not only influenced by the initial surgery and device costs but also by rehabilitation costs and the lifetime maintenance, device replacement, and battery costs. The major CI cost differences in this low resource setting were increased initial training and infrastructure costs, but lower medical personnel and surgery costs.
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Implante Coclear/economia , Implantes Cocleares/economia , Surdez/economia , Surdez/terapia , Educação/economia , Audiologia/economia , Pré-Escolar , Análise Custo-Benefício , Surdez/reabilitação , Falha de Equipamento/economia , Custos de Cuidados de Saúde , Perda Auditiva Neurossensorial/economia , Perda Auditiva Neurossensorial/terapia , Humanos , Lactente , Nicarágua/epidemiologia , Anos de Vida Ajustados por Qualidade de Vida , Fonoterapia/economia , Resultado do TratamentoRESUMO
INTRODUCTION: This study concerns a case series of 23 infants with a diagnosis of severe-to-profound hearing loss at 3 months old, who significantly improved (even reaching a normal auditory threshold) within their first year of life. METHODS: All infants were routinely followed up with audiological tests every 2 months after being fitted with hearing aids as necessary. A reliable consistency between the various test findings (DPOAE, ABR, behavioral responses, CAEP and ECoG) clearly emerged in most cases during the follow-up, albeit at different times after birth. RESULTS: The series of infants included 7 cases of severe prematurity, 6 of cerebral or complex syndromic malformations, 5 healthy infants, 2 with asymptomatic congenital CMV infection, and 1 case each of hyperbilirubinemia, hypoxia, and sepsis. All term-born infants showed a significant improvement over their initial hearing threshold by 6 months of age, while in most of those born prematurely the first signs of threshold amelioration occurred beyond 70 weeks of gestational age, and even beyond 85 weeks in one case. CONCLUSIONS: Cochlear implantation (CI) should only be considered after a period of auditory stimulation and follow-up with electrophysiological and behavioral tests, and an accurate analysis of their correlation. In our opinion, CI can be performed after a period of 8 months in all term-born infants with persistent severe-to-profound hearing loss without risk of diagnostic error, whereas the follow-up for severely preterm infants should extend to at least 80 weeks of gestational age.
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Implante Coclear , Surdez/diagnóstico , Surdez/terapia , Doenças do Prematuro/diagnóstico , Doenças do Prematuro/terapia , Seleção de Pacientes , Fatores Etários , Limiar Auditivo/fisiologia , Implantes Cocleares , Surdez/congênito , Feminino , Auxiliares de Audição , Testes Auditivos , Humanos , Lactente , Recém-Nascido , Recém-Nascido Prematuro , Masculino , Reprodutibilidade dos TestesRESUMO
Maternally inherited diabetes with deafness is rare diabetes caused by a mitochondrial DNA defect. 85% of cases are associated with m.3243A>G mutation. It is important to diagnose this form of diabetes because of the unique management issues and associated comorbidities. A very strong family history of diabetes, deafness and presence of retinal dystrophy should prompt an investigation for MIDD. Microvascular complications out of keeping with duration of diabetes are another clue to the diagnosis. Retinal and renal manifestations of mitochondrial disease may be confused for diabetic complications. Glutamic acid decarboxylase (GAD) autoantibody negativity in a nonobese diabetic is another clue. Cardiac conduction defects and GDM may also raise suspicion as to the diagnosis. Recognizing this etiology of DM should promote family screening, genetic counseling, screening of associated comorbidities, avoidance of metformin, and cautious use of statins. We report a 77 years old lady with MIDD who was being followed up as insulin requiring type 2 diabetes. We then identified 5 more patients with MIDD in the same clinic. They all had A3243 mutation with characteristic clinical presentation. The pharmacological approaches discussed in the paper are unlikely to work in these patients as they were diagnosed late.
Assuntos
Surdez/diagnóstico , Diabetes Mellitus Tipo 2/diagnóstico , Idoso , Substituição de Aminoácidos , DNA Mitocondrial , Surdez/complicações , Surdez/genética , Surdez/terapia , Diabetes Mellitus Tipo 2/complicações , Diabetes Mellitus Tipo 2/genética , Diabetes Mellitus Tipo 2/terapia , Retinopatia Diabética/fisiopatologia , Diagnóstico Diferencial , Erros de Diagnóstico , Inglaterra , Saúde da Família , Feminino , Humanos , Degeneração Macular/complicações , Degeneração Macular/fisiopatologia , Doenças Mitocondriais , Linhagem , Mutação Puntual , Índice de Gravidade de DoençaRESUMO
OBJECTIVE: (1) Compare the non-device-related costs of bilateral simultaneous cochlear implantation (BSiCI) vs. unilateral, and (2) establish a dollar amount for potential cost savings in direct costs for BSiCI vs. sequential cochlear implantation (CI). METHODS: Data from all CI cases performed during the fiscal year 2010-2011 were retrospectively reviewed without exception. Fifty-four patients received unilateral CI and 36 received BSiCI. Demographics and data regarding direct costs associated with the operation and immediate in hospital post-operative period were collected. RESULTS: The total operating room (OR) time for unilateral and BSiCI was 3 hours 00 minutes and 4 hours 37 minutes, respectively, with a mean difference of 1 hour and 36 minutes (SD = 0 hours:06 minutes). The cost of OR and post-anesthetic care unit supporting staff was $3102 and $4240 for unilateral and BSiCI, respectively, with a mean difference of $1138 (SD = 216). Unilateral CI supplies totaled $1348 compared to $1822 for BSiCI supplies with an average difference of $438 (SD = 123). CONCLUSION: The total direct costs for a unilateral CI (excluding implantable device and surgeon fees) were $4362 compared to $5823 dollars for BSiCI. Simultaneous implantation can lead to a potential saving of $2901 compared to sequential implantation.
Assuntos
Implante Coclear/economia , Redução de Custos , Surdez/economia , Surdez/terapia , Custos Diretos de Serviços , Adolescente , Criança , Pré-Escolar , Implante Coclear/métodos , Implantes Cocleares/economia , Desenho de Equipamento , Feminino , Humanos , Masculino , Duração da Cirurgia , Estudos Retrospectivos , Resultado do Tratamento , Adulto JovemRESUMO
OBJECTIVE: Perform longitudinal evaluations of young children during the first 12 months after initial hearing-aid fitting. Document evidence of early prelingual auditory development (EPLAD), identify factors that affect EPLAD, and define performance milestones that can guide best practices. DESIGN: Unblinded, prospective, within-subject, repeated-measures design. Audiological measures and measures of EPLAD were taken at baseline, 3, 6, and 12 months after hearing-aid fitting. STUDY SAMPLE: Subjects were 45 pediatric patients initially fitted with hearing aids between 1 and 5.5 years of age. Four groups were formed for analysis purposes based on severity of hearing loss (moderate-to-severe and profound) and initial fitting age (≤ 30 months and > 30 months). RESULTS: All groups exhibited statistically significant increases in EPLAD within six months of hearing-aid fitting, and those with profound losses exhibited further statistically significant improvement between six and 12 months. Similar EPLAD levels were reached at 12 months regardless of severity of hearing loss. The EPLAD trajectory is similar to that following early cochlear implantation. CONCLUSIONS: Measures of EPLAD provide a means of evaluating outcomes following early pediatric hearing-aid intervention, supplementing behavioral audiological measures.
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Surdez/terapia , Auxiliares de Audição , Perda Auditiva Neurossensorial/terapia , Avaliação de Resultados em Cuidados de Saúde , Percepção Auditiva , Pré-Escolar , Feminino , Seguimentos , Humanos , Masculino , Estudos Prospectivos , Índice de Gravidade de Doença , Inteligibilidade da Fala , Percepção da FalaAssuntos
Implantes Cocleares , Multilinguismo , Participação Social , Adolescente , Implantes Cocleares/psicologia , Comunicação , Surdez/psicologia , Surdez/terapia , Feminino , Humanos , Relações Interpessoais , Desenvolvimento da Linguagem , Masculino , Língua de Sinais , Inquéritos e Questionários , Adulto JovemRESUMO
UNLABELLED: Cochlear Implant (CI) is the most advanced technical solution in the treatment of profound hearing loss and deafness in patients of all age groups. The aim of the study was to analyse the speech and linguistic disorders in adults with pre- and postlingual deafness rehabilitated with Cochlear implant (CI). MATERIAL AND METHODS: 21 adults with pre- (I group) and postlingual (II group) deafness deriving no benefit from hearing aids participated in this study. Phonatory organ was examined by endoscopy (VLS) and stroboscopy (VLSS). Test of Auditory Perception (TSS) was conducted directly after the activation of speech processor and after rehabilitation. The logopedic assessment before and after CI was based on the examination of motoric activity of articulatory organs, type of respiration, loudness of speech and the assessment of articulation. The linguistic assessment of grammatical and lexical aspect was carried out. The prosodic elements of speech were also analysed. RESULTS: Stroboscopic examination pointed to hypofunction of larynx in patients with prelingual deafness and hyperfunction--in postlingual deafness. The values of TSS were improved after CI, especially in patients with postlingual deafness. The most severe disorders of the efficiency of articulatory organs were observed in patients with prelingual deafness before CI. In the group of prelingually deaf patients disorders of the articulation of vowels and consonants as well as the lexical and grammatical aspect of speech were improved after CI. The correctness of syntax and inflection, development of active vocabulary, improvement of prosodic elements of speech were noticed in patients with postlingual deafness after CI. CONCLUSIONS. Patients with postlingual deafness achieved better results of rehabilitation in auditory perception than prelingually deaf patients. The linguistic improvement of grammatical and lexical aspect was noticed especially in prelingually deaf patients after implantation. This group of patients achieved also the significant progress in prosodic elements of speech in comparison with the results before implantation.
Assuntos
Implantes Cocleares , Surdez/reabilitação , Surdez/terapia , Distúrbios da Fala/diagnóstico , Distúrbios da Fala/reabilitação , Distúrbios da Voz/diagnóstico , Distúrbios da Voz/reabilitação , Adulto , Percepção Auditiva , Surdez/classificação , Surdez/complicações , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Testes de Discriminação da Fala , Distúrbios da Fala/etiologia , Inteligibilidade da Fala , Distúrbios da Voz/etiologia , Adulto JovemRESUMO
OBJECTIVES: Objectives were, first, to estimate the additional number of quality-adjusted life years (QALYs) gained by deaf children from bilateral compared with unilateral implantation (DeltaQ); second, to estimate the additional cost to the healthcare system in the United Kingdom for providing bilateral compared with unilateral implantation (DeltaC); and, third, to compare the values of incremental net benefit (INB), rDeltaQ - DeltaC, with criteria used by policy makers in deciding whether to adopt health technologies. In England and Wales, the healthcare policy-making body must be satisfied that the INB is positive for a maximum value of r of pound30,000 (the "net-benefit" criterion). Policy makers may also require the likelihood that the technology is cost-effective to exceed 0.8 (the "likelihood" criterion). DESIGN: An opportunity sample of 180 informants, composed of clinicians/researchers, students, and parents, valued the quality of life of a hypothetical child born profoundly deaf. The child was described in written vignettes as achieving typical outcomes with no implant, a unilateral implant, a unilateral implant with benefit from a contralateral acoustic hearing aid, or bilateral implants. Valuations were made using the time trade-off (TTO) and a visual analog scale (VAS). A decision model was constructed to describe events related to implantation that could occur over a child's lifetime after the decision to implant. A cost and a probability were associated with each event. Monte Carlo simulations modeled the management of cohorts of 3000 children and estimated a value of DeltaC for each child. An increment in quality of life was sampled with replacement from the appropriate distribution of informants' valuations to estimate a value of DeltaQ for each child. The minimum value of r for which the average INB was positive was calculated to test the net-benefit criterion. The proportion of simulations for which the INB was positive when r was pound30,000 was calculated to test the likelihood criterion. RESULTS: Estimates of the cost-effectiveness of unilateral implantation aligned closely with published estimates, giving credibility to analyses of bilateral implantation. Based on TTO data (VAS data in parentheses), bilateral implantation was associated with an increment in quality of life of +0.063 (+0.076), yielding 1.57 (1.87) additional QALYs at a cost of pound34,000. Net benefit was positive, provided that pound21,768 ( pound18,173) could be spent to gain a QALY. If pound30,000 could be spent, the probability that bilateral implantation is cost-effective was 0.480 (0.539). Thus, the net-benefit criterion, but not the likelihood criterion, was met in both analyses. The net-benefit criterion was also met in analyses based on data from the three groups of informants individually. CONCLUSIONS: Groups of adults varying widely in age and life experience perceived sufficient additional quality of life from giving children two implants rather than one to mean that bilateral cochlear implantation is possibly a cost-effective use of healthcare resources in the UK. Wide variation in valuations within the groups of informants means that considerable uncertainty surrounds that conclusion. Further data on the costs and benefits of bilateral implantation are needed to resolve the uncertainty.
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Implante Coclear/economia , Surdez/economia , Surdez/terapia , Custos de Cuidados de Saúde/estatística & dados numéricos , Política de Saúde/economia , Adulto , Criança , Análise Custo-Benefício , Tomada de Decisões , Inglaterra , Auxiliares de Audição/economia , Humanos , Lactente , Qualidade de Vida , Anos de Vida Ajustados por Qualidade de Vida , Inquéritos e Questionários , País de GalesRESUMO
PURPOSE: The aim of the study is to analyse the socioeconomic status of implanted children families, candidates for implantation families and families of deaf children whose parents elicit not to proceed with cochlear implantation and to find out if the socioeconomic status has an influence on parental decision-making process. The following variables describe the socioeconomic status: place of living (urban/rural area), parental educational level and household monthly income (in Euro). WORK METHOD: Forty children divided in two groups were included in the study: Group 1 (23 implanted children and 7 candidates for implantation) and Group 2 (10 deaf children whose parents elicit not to proceed). Data were obtained from parents of children by phone. It was not possible to establish the contact with parents of three children. WORK RESULTS: As for the place of living, 20 families were from urban area, 17 families were from rural area and the place of living of 3 families was unknown. Average number of completed school grades by parents was respectively: Group 1- 5.92 and Group 2 - 5.33. CONCLUSION: Concerning the place of living, parental educational level and household monthly income no differences can be seen between groups. Therefore, the authors concluded that socioeconomic status has no influence on making decision process.
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Implante Coclear/psicologia , Surdez/terapia , Pais/psicologia , Classe Social , Criança , Tomada de Decisões , Escolaridade , Humanos , RendaRESUMO
OBJECTIVE: The Cochlear Implant Function Index (CIFI) is created to assess adult cochlear implant (CI) auditory effectiveness in real world situations. Our objective is to evaluate the CIFI as a reliable psychometric tool to assess 1) reliance on visual assistance, 2) telephone use, 3) communication at work, 4) 'hearing' in noise, 5) in groups, and 6) in large room settings. STUDY DESIGN: Based upon Guttman scaling properties, the CIFI elicits implanted respondent's functional level with auditory independence from Level 1 (still requiring signing) to level 4 (without any help beyond CI). A blinded, retrospective questionnaire is anonymously answered by cochlear implant recipients. SETTING: CI centers of tertiary care medical centers, CI support group, and an interactive web page of a hearing and speech center in a large metropolitan region. SUBJECTS: 245 respondents from a varied adult CI population implanted for one month to 19 years prior to answering the questionnaire. INTERVENTION: An assessment tool of CI function. MAIN OUTCOME MEASURE: A coefficient of reproducibility (CR) for the Guttman scale format equal or greater than 0.90, indicating good scalability. RESULTS: CR in the CIFI was above 0.90. Effective scalability and mean scores from 2.5 to 3.5 for the six areas examined (1.00-4.00) were achieved. CONCLUSION: The psychometric properties of this user friendly survey demonstrate consistently good scalability. Based on these findings, the CIFI provides a validated tool that can be used for systematic comparisons between groups of patients or for follow-up outcomes in patients who use cochlear implants. Further study is indicated to correlate CIFI scores with sound and speech perception scores.
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Implantes Cocleares/psicologia , Surdez/terapia , Adulto , Idoso , Idoso de 80 Anos ou mais , Surdez/cirurgia , Humanos , Pessoa de Meia-Idade , Psicometria , Percepção da Fala , Inquéritos e Questionários , Resultado do Tratamento , Adulto JovemRESUMO
OBJECTIVE: The aim of this paper was to identify the accessibility barriers that deaf people from an Indigenous Australian or culturally and linguistically diverse background encounter when attempting to access public mental health services in Queensland. METHOD: Consultation with key stakeholders was undertaken. RESULTS: Many of the barriers that deter deaf Indigenous Australians from accessing public mental health services in Queensland, in addition to preventing them from having access to the same continuum of care available to hearing English-speaking people were identified. CONCLUSIONS: Deaf Indigenous Australians encounter significant barriers when they seek to access public mental health services in Queensland. If these barriers are to be dissolved to ensure access to the same continuum of mental health care available to hearing English-speaking then a series of education and training, research and resource strategies need to be further addressed.
Assuntos
Surdez/etnologia , Surdez/terapia , Acessibilidade aos Serviços de Saúde , Serviços de Saúde Mental , Havaiano Nativo ou Outro Ilhéu do Pacífico , Barreiras de Comunicação , Características Culturais , Inquéritos Epidemiológicos , Humanos , Idioma , QueenslandRESUMO
The purpose of the study was to ascertain methods of identification used by teachers of the deaf and hard of hearing who were working with students with learning disabilities, the training these teachers had received, and the accommodations and modifications they had implemented for their students. A 10-item survey was designed to solicit opinions and implementation procedures. Surveys went to teachers in a four-state region of the Midwest; 91 responded. Teachers indicated the use of various criteria to identify deaf and hard of hearing students with learning disabilities, and indicted that they incorporated a variety of accommodations to meet these students' needs. The survey showed that 50% of respondents did not feel adequately prepared to teach deaf and hard of hearing students with learning disabilities. Teachers expressed a desire for more training in identification, assessment, and intervention.