RESUMO
The purpose of this article is to illuminate the dynamics of sibling group support when one sibling has complex needs accompanied by difficult behaviors. A case study of sibling support for a twenty-year-old woman with a disability, a mental health issue, and addictions, drawn from the perspectives of her full brother, her half-brother, and their mother, is presented. The brothers express ambivalence between devotion to supporting their sister and limits to the support they feel able to provide. The limits the brothers place on their support allow them to adhere to their values, preserve their energy and, ultimately, sustain their ability to provide support.
Assuntos
Transtorno Bipolar/enfermagem , Transtorno Bipolar/psicologia , Cuidadores/psicologia , Pessoas com Deficiência/psicologia , Transtornos do Espectro Alcoólico Fetal/enfermagem , Transtornos do Espectro Alcoólico Fetal/psicologia , Transtornos Mentais/enfermagem , Esquizofrenia/enfermagem , Relações entre Irmãos , Apoio Social , Transtornos Relacionados ao Uso de Substâncias/enfermagem , Adulto , Comorbidade , Efeitos Psicossociais da Doença , Feminino , Grupos Focais , Frustração , Assistência Domiciliar/psicologia , Humanos , Entrevista Psicológica , Maquiavelismo , Masculino , Transtornos Mentais/psicologia , Gravidez , Transtornos Relacionados ao Uso de Substâncias/psicologia , Adulto JovemRESUMO
Fetal Alcohol Spectrum Disorders (FASD) represent a leading cause of mental retardation and learning disabilities in children seen in pediatric offices today. This article provides an overview of FASD and describes a model program, the Family Empowerment Network (FEN). FEN is an information, referral, and support network for children and families affected by Fetal Alcohol Spectrum Disorders (FASD) and the professionals who serve them. FEN's mission includes: (a) increasing awareness about FASD by providing education, training and resources to families, providers, and the general public; (b) providing support and referrals to families affected; and (c) increasing opportunities for diagnosis and intervention. We hope to increase awareness of the resources available to nurses and their patients and provide a template that can be replicated in other service delivery systems. Pediatric nurses are in a unique position not only to assist in the recognition of children at risk of FASD, to link families to appropriate diagnostic and intervention services, but also to work to develop additional local and regional resources with other providers.
Assuntos
Redes Comunitárias , Saúde da Família , Transtornos do Espectro Alcoólico Fetal , Apoio Social , Instituições Filantrópicas de Saúde , Adolescente , Criança , Pré-Escolar , Deficiências do Desenvolvimento/etiologia , Deficiências do Desenvolvimento/enfermagem , Feminino , Transtornos do Espectro Alcoólico Fetal/diagnóstico , Transtornos do Espectro Alcoólico Fetal/enfermagem , Humanos , Lactente , Recém-Nascido , Modelos Organizacionais , Gravidez , Encaminhamento e Consulta , Estados Unidos , Instituições Filantrópicas de Saúde/organização & administraçãoAssuntos
Transtornos do Espectro Alcoólico Fetal/prevenção & controle , Prevenção Primária/legislação & jurisprudência , Prevenção Primária/métodos , Adulto , Feminino , Transtornos do Espectro Alcoólico Fetal/epidemiologia , Transtornos do Espectro Alcoólico Fetal/enfermagem , Política de Saúde/legislação & jurisprudência , Humanos , Lactente , Programas de Rastreamento , Profissionais de Enfermagem/educação , Enfermagem Pediátrica/educação , Gravidez , Estados Unidos/epidemiologiaRESUMO
Because fetal alcohol syndrome (FAS), or fetal alcohol effects (FAE), is being diagnosed in growing numbers of children, there is more interest in their common characteristics and how they change throughout childhood. Few longitudinal studies that describe the common childhood course of FAS address appropriate interventions. Some literature exists that describes follow-up and support services needed by these children and their families. This article examines the common childhood course of FAS/FAE and the interventions and services needed to promote positive child and family health.
