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1.
J Foot Ankle Res ; 17(3): e12038, 2024 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-38951736

RESUMO

BACKGROUND: Foot complications in diabetes are common and destructive, resulting in substantial healthcare costs and high rates of morbidity. Coastal areas have a significantly higher burden of disease. People with diabetes experience disproportionately high rates of psychological health issues, including anxiety, depression and diabetes distress. These can affect self-management and concordance with preventive measures and treatments of foot complications, negatively impacting on outcomes. Access to psychological health services is variable across the United Kingdom and there is a paucity of high-quality evidence for the effectiveness of treatments for diabetes distress. This study aimed to explore experiences of psychosocial burden and perceptions and experiences of psychosocial support, among patients with diabetes and foot complications living in a coastal area. METHODS: Patients were eligible to participate if they had experienced diabetes-related foot complications (amputation, ulceration and/or Charcot neuroarthropathy) within the last 5 years and scored positive for diabetes distress on a validated screening tool (DDS2). Eligible patients completed cross-sectional questionnaires describing symptoms of diabetes distress (DDS17), anxiety (GAD-7) and depression (PHQ-9) and to take part in a face-to-face, semi-structured interview. Questionnaires were analysed using frequencies and interviews were analysed using reflexive thematic analysis. RESULTS: A total of 183 patients completed the DDS2 screening questionnaire. Of these, 56 (30.6%) screened positive for diabetes distress. Twenty-seven patients completed DDS17, GAD-7 and PHQ-9 questionnaires. Eleven (40.7%) participants indicated high levels of diabetes distress and four (14.8%) indicated moderate distress. Seventeen participants (age range 52-81 years; 12 men) took part in an interview. Four key themes were identified: impact of living with foot problems; emotional consequences of foot problems; experiences and perceptions of psychological support; and strategies to cope with the emotional impact of foot problems. CONCLUSION: Diabetes distress was prevalent among patients with diabetes-related foot complications. Foot problems impacted on participants' daily activities, social lives and ability to work. Despite expressing feelings of ongoing fear, worry and depression relating to their foot problems, only one participant had accessed formal psychological support. Many participants relied on talking to podiatrists at routine appointments and described developing various strategies to cope. The psychosocial burden of living with foot complications in diabetes must not be overlooked by health professionals. Findings from this study can inform the design of future services and interventions.


Assuntos
Ansiedade , Efeitos Psicossociais da Doença , Depressão , Pé Diabético , Pesquisa Qualitativa , Humanos , Estudos Transversais , Masculino , Feminino , Pessoa de Meia-Idade , Pé Diabético/psicologia , Idoso , Reino Unido/epidemiologia , Ansiedade/etiologia , Ansiedade/epidemiologia , Ansiedade/psicologia , Depressão/etiologia , Depressão/psicologia , Depressão/epidemiologia , Inquéritos e Questionários , Idoso de 80 Anos ou mais
2.
BMC Cancer ; 24(1): 783, 2024 Jul 01.
Artigo em Inglês | MEDLINE | ID: mdl-38951760

RESUMO

BACKGROUND: The number of cancer survivors has increased in recent decades, and the majority of them suffer from sequelae of their disease and treatment. This study, which is part of the larger research project OPTILATER, aims to explore different aspects of care services for long-term survivors (≥ 5 years after initial cancer diagnosis) in Germany. The study places an emphasis on the situation of people from different age groups, with different socio-demographic and cultural backgrounds, and sexually and gender diverse individuals. METHODS: To investigate experiences related to follow-up care, focus groups (n = 2) will be conducted with members of patient advisory councils and advocacy groups, representatives of communities, healthcare workers and networks, as well as members of Associations of Statutory Health Insurance Physicians. Guided interviews will be carried out with patients and relatives (n = 40) to investigate needs, barriers and obstacles in terms of follow-up care. On this basis, additional focus groups (n = 2) will be carried out to derive possible scenarios for improving the consideration of needs. Focus groups and interviews will follow a semi-structured format and will be analysed content-analytically. Focus groups and interviews will be conducted online, recorded, transcribed, and analysed independently by two persons. DISCUSSION: The qualitative approach is considered suitable because of the exploratory research aims. The identification of experiences and barriers can reveal disparities and optimization potential in the care of long-term cancer survivors.


Assuntos
Sobreviventes de Câncer , Grupos Focais , Neoplasias , Pesquisa Qualitativa , Humanos , Sobreviventes de Câncer/psicologia , Feminino , Masculino , Neoplasias/terapia , Neoplasias/psicologia , Alemanha , Necessidades e Demandas de Serviços de Saúde , Pessoa de Meia-Idade , Adulto , Idoso
3.
BMC Med Educ ; 24(1): 715, 2024 Jul 02.
Artigo em Inglês | MEDLINE | ID: mdl-38956512

RESUMO

BACKGROUND: Sickle cell disease (SCD) exemplifies many of the social, racial, and healthcare equity issues in the United States. Despite its high morbidity, mortality, and cost of care, SCD has not been prioritized in research and clinical teaching, resulting in under-trained clinicians and a poor evidence base for managing complications of the disease. This study aimed to perform a needs assessment, examining the perspectives of medical trainees pursuing hematology/oncology subspecialty training regarding SCD-focused education and clinical care. METHOD: Inductive, iterative thematic analysis was used to explore qualitative interviews of subspecialty hematology-oncology trainees' attitudes and preferences for education on the management of patients with SCD. Fifteen trainees from six programs in the United States participated in 4 focus groups between April and May 2023. RESULTS: Thematic analysis resulted in 3 themes: 1. Discomfort caring for patients with SCD. 2. Challenges managing complications of SCD, and 3. Desire for SCD specific education. Patient care challenges included the complexity of managing SCD complications, limited evidence to guide practice, and healthcare bias. Skill-building challenges included lack of longitudinal exposure, access to expert clinicians, and didactics. CONCLUSIONS: Variations in exposure, limited formal didactics, and a lack of national standardization for SCD education during training contributes to trainees' discomfort and challenges in managing SCD, which in turn, contribute to decreased interest in entering the SCD workforce. The findings underscore the need for ACGME competency amendments, dedicated SCD rotations, and standardized didactics to address the gaps in SCD education.


Assuntos
Anemia Falciforme , Grupos Focais , Avaliação das Necessidades , Pesquisa Qualitativa , Humanos , Anemia Falciforme/terapia , Masculino , Feminino , Estados Unidos , Atitude do Pessoal de Saúde , Hematologia/educação , Oncologia/educação , Adulto , Competência Clínica , Educação de Pós-Graduação em Medicina
4.
BMC Public Health ; 24(1): 1757, 2024 Jul 02.
Artigo em Inglês | MEDLINE | ID: mdl-38956532

RESUMO

BACKGROUND: A growing literature has documented the social, economic, and health impacts of exclusionary immigration and immigrant policies in the early 21st century for Latiné communities in the US, pointing to immigration and immigrant policies as forms of structural racism that affect individual, family, and community health and well-being. Furthermore, the past decade has seen an increase in bi-partisan exclusionary immigration and immigrant policies. Immigration enforcement has been a major topic during the 2024 Presidential election cycle, portending an augmentation of exclusionary policies towards immigrants. Within this context, scholars have called for research that highlights the ways in which Latiné communities navigate exclusionary immigration and immigrant policies, and implications for health. This study examines ways in which Mexican-origin women in a midwestern northern border community navigate restrictive immigration and immigrant policies to access health-promoting resources and care for their well-being. METHODS: We conducted a grounded theory analysis drawing on interviews with 48 Mexican-origin women in Detroit, Michigan, who identified as being in the first, 1.5, or second immigrant generation. Interviews were conducted in English or Spanish, depending on participants' preferences, and were conducted at community-based organizations or other locations convenient to participants in 2013-2014. RESULTS: Women reported encountering an interconnected web of institutional processes that used racializing markers to infer legal status and eligibility to access health-promoting resources. Our findings highlight women's use of both individual and collective action to navigate exclusionary policies and processes, working to: (1) maintain access to health-promoting resources; (2) limit labeling and stigmatization; and (3) mitigate adverse impacts of immigrant policing on health and well-being. The strategies women engaged were shaped by both the immigration processes and structures they confronted, and the resources to which they had access to within their social network. CONCLUSIONS: Our findings suggest a complex interplay of immigration-related policies and processes, social networks, and health-relevant resources. They highlight the importance of inclusive policies to promote health for immigrant communities. These findings illuminate women's agency in the context of structural violence facing immigrant women and are particularly salient in the face of anti-immigrant rhetoric and exclusionary immigration and immigrant policies.


Assuntos
Emigrantes e Imigrantes , Emigração e Imigração , Humanos , Feminino , Adulto , Emigrantes e Imigrantes/psicologia , Emigrantes e Imigrantes/estatística & dados numéricos , Pessoa de Meia-Idade , Emigração e Imigração/legislação & jurisprudência , Americanos Mexicanos/psicologia , Americanos Mexicanos/estatística & dados numéricos , Michigan , Acessibilidade aos Serviços de Saúde , Política Pública , Racismo , Teoria Fundamentada , Pesquisa Qualitativa , Promoção da Saúde/métodos , Adulto Jovem
5.
Cancer Med ; 13(13): e7441, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38956976

RESUMO

PURPOSE: Healthy cancer survivorship involves patients' active engagement with preventative health behaviors and follow-up care. While clinicians and patients have typically held dual responsibility for activating these behaviors, transitioning some clinician effort to technology and health coaches may enhance guideline implementation. This paper reports on the acceptability of the Shared Healthcare Actions & Reflections Electronic systems in survivorship (SHARE-S) program, an entirely virtual multicomponent intervention incorporating e-referrals, remotely-delivered health coaching, and automated text messages to enhance patient self-management and promote healthy survivorship. METHODS: SHARE-S was evaluated in single group hybrid implementation-effectiveness pilot study. Patients were e-referred from the clinical team to health coaches for three health self-management coaching calls and received text messages to enhance coaching. Semi-structured qualitative interviews were conducted with 21 patient participants, 2 referring clinicians, and 2 health coaches to determine intervention acceptability (attitudes, appropriateness, suitability, convenience, and perceived effectiveness) and to identify important elements of the program and potential mechanisms of action to guide future implementation. RESULTS: SHARE-S was described as impactful and convenient. The nondirective, patient-centered health coaching and mindfulness exercises were deemed most acceptable; text messages were less acceptable. Stakeholders suggested increased flexibility in format, frequency, timing, and length of participation, and additional tailored educational materials. Patients reported tangible health behavior changes, improved mood, and increased accountability and self-efficacy. CONCLUSIONS: SHARE-S is overall an acceptable and potentially effective intervention that may enhance survivors' self-management and well-being. Alterations to tailored content, timing, and dose should be tested to determine impact on acceptability and outcomes.


Assuntos
Sobreviventes de Câncer , Tutoria , Pesquisa Qualitativa , Humanos , Feminino , Masculino , Pessoa de Meia-Idade , Sobreviventes de Câncer/psicologia , Tutoria/métodos , Idoso , Projetos Piloto , Sobrevivência , Adulto , Neoplasias/terapia , Neoplasias/psicologia , Autogestão/métodos , Envio de Mensagens de Texto , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Comportamentos Relacionados com a Saúde , Telemedicina
6.
Nurs Open ; 11(7): e2237, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38957916

RESUMO

AIM: To explore the assumptions and values that influence nursing health assessment practices among registered general nurses in general medical and surgical wards. DESIGN: The study was designed as a focused ethnography. METHODS: A semi-structured interview guide was used to explore prevailing nursing health assessment practices of 13 registered general nurses in an attempt to explore the assumptions and values influencing health assessment practices in the study setting. Data were analysed inductively using an interpretive qualitative content analysis method. RESULTS: Nursing health assessment practices, and underlying assumptions and values were underpinned by a central theme of a culture of low expectation relating to nursing health assessment. The culture of low expectation was highlighted in five themes: (1) Unsystematic Assessment of Health Status, (2) Purpose of Nursing Health Assessment, (3) The Role of Nursing Educational and Regulatory Institutions, (4) Ward Ethos and (5) The Role of Organizational and Ward Leadership. IMPLICATION: The adoption of a holistic nursing health assessment framework with a clearly defined purpose of aiding nursing diagnoses can guide patient-centred care delivery and facilitate early recognition of physiological deterioration. PATIENT OR PUBLIC CONTRIBUTION: Thirteen registered general nurses were interviewed, and the initial findings returned to them for validation. CONCLUSION: The potential contribution of nursing health assessment to nursing practice and patient outcomes may not be fully realized if nursing health assessment is not situated within a holistic health assessment model with a clearly defined purpose for nursing practice.


Assuntos
Antropologia Cultural , Pesquisa Qualitativa , Centros de Atenção Terciária , Humanos , Avaliação em Enfermagem/métodos , Feminino , Adulto , Recursos Humanos de Enfermagem Hospitalar/psicologia , Masculino , Entrevistas como Assunto/métodos , Enfermeiras e Enfermeiros/psicologia , Atitude do Pessoal de Saúde , Pessoa de Meia-Idade
7.
Cien Saude Colet ; 29(7): e02992024, 2024 Jul.
Artigo em Português, Inglês | MEDLINE | ID: mdl-38958316

RESUMO

This article aims to understand the view of racial equity and the motivations for approaching the health of the black population in Collective Health, Nursing, and Medicine courses at a Brazilian public university, guided by the black perspective of decoloniality. Considering Institutional Racism, it is necessary to invest in the interfaces between the education and health sectors in the training of professionals for the Unified Health System. This is a qualitative study with an intervention-research approach, affirming a social and political commitment to transforming reality. Workshops were held with representatives of the Structuring Teaching Centers of the selected courses. The theme of the health of the black population has been elaborated in a prompt and decontextualized manner, with no reflection based on structural racism, power relations, and Brazilian socio-historical formation. This creates a distance from the guidelines proposed by the National Policy for Comprehensive Health of the Black Population. At the end of this article, perspectives are identified for the reorientation of health training, aimed at increasing democratic density and racial equity.


Este artigo objetiva compreender a visão de equidade racial e as motivações para a abordagem da saúde da população negra na formação dos cursos de Saúde Coletiva, Enfermagem e Medicina de uma universidade pública brasileira, orientado na perspectiva negra da decolonialidade. Considerando o Racismo Institucional, é preciso investir nas interfaces entre os setores educação e saúde na formação de profissionais para o Sistema Único de Saúde. Trata-se de estudo de natureza qualitativa com abordagem do tipo pesquisa-intervenção, afirmando um compromisso social e político de transformação da realidade. Para tanto, foram realizadas oficinas com representantes dos Núcleos Docentes Estruturantes dos cursos selecionados. A temática da saúde da população negra tem sido trabalhada de forma pontual e descontextualizada, sem uma reflexão do racismo estrutural, das relações de poder e da formação socio-histórica brasileira, o que se distancia das diretrizes propostas pela Política Nacional de Saúde Integral da População Negra. Ao final, são sinalizadas perspectivas para a reorientação da formação em saúde, visando ao aumento da densidade democrática e da equidade racial.


Assuntos
População Negra , Racismo , Humanos , Brasil , Política de Saúde , Equidade em Saúde , Atenção à Saúde/organização & administração , Universidades , Pesquisa Qualitativa
8.
Afr J Prim Health Care Fam Med ; 16(1): e1-e6, 2024 Jun 29.
Artigo em Inglês | MEDLINE | ID: mdl-38949443

RESUMO

BACKGROUND:  Transgender women - individuals assigned male at birth but who identify as female - are disproportionately affected by, among others, human immunodeficiency virus (HIV), other sexually transmitted diseases (STIs) and mental health issues. Studies show that transgender women often encounter discrimination and stigma when seeking healthcare from health facilities. AIM:  This study assessed the healthcare needs of transgender women, their experiences of the mainstream healthcare system and alternative strategies for navigating the healthcare system. SETTING:  The study was carried out in the City of Ekurhuleni Metropolitan Council in South Africa's Gauteng province. METHODS:  A case study design was followed. Participants were purposively selected and included 10 transgender women aged 26-50. Individual semi-structured interviews were conducted over 2 months. RESULTS:  Participants expressed a need for hormone replacement therapy, HIV treatment and prevention and treatment for STIs. Experiences of participants within the healthcare system were predominantly negative, with instances of discrimination, stigma and privacy violations being commonplace. Alternative strategies to meet their healthcare needs included the use of self-medication, consulting traditional healers and utilising non-governmental organisations. CONCLUSION:  There is an urgent need for equitable and inclusive health management of transgender women in South Africa.Contribution: This study provided a first look in a South African context into how and to what extent transwomen employ alternative healthcare strategies such as self-medication and utilising non-governmental organisations when faced with mainstream healthcare access barriers. The use of traditional doctors was identified as a novel, alternative strategy used by transwomen to access healthcare and treatment.


Assuntos
Infecções por HIV , Acessibilidade aos Serviços de Saúde , Infecções Sexualmente Transmissíveis , Estigma Social , Pessoas Transgênero , Humanos , Feminino , Pessoas Transgênero/psicologia , Adulto , África do Sul , Pessoa de Meia-Idade , Masculino , Infecções Sexualmente Transmissíveis/prevenção & controle , Pesquisa Qualitativa , Necessidades e Demandas de Serviços de Saúde , Entrevistas como Assunto , Terapia de Reposição Hormonal , Aceitação pelo Paciente de Cuidados de Saúde/psicologia
9.
Indian J Public Health ; 68(2): 167-174, 2024 Apr 01.
Artigo em Inglês | MEDLINE | ID: mdl-38953801

RESUMO

BACKGROUND: In tuberculosis (TB) care and management, there are practical challenges existing at the patient-provider level leading to implementation barriers at the primary care level. OBJECTIVES: The objective of the study is to explore the challenges and barriers faced by people with TB and health-care workers in TB care and management. MATERIALS AND METHODS: This study was done as a part of a community intervention study between November 2021 and December 2022. Twenty interviews were taken with treatment for TB (n = 7) and health-care personnel (n = 13). Health-care personnel include nursing staff, medical officers, laboratory technicians, community health workers, and medical personnel from tertiary care hospital. Participants were recruited across all levels of health-care systems. Interviews were carried out in the Hindi language, audio recorded, and translated to English. Participants were asked about their experiences of challenges and barriers faced during TB care and management. Qualitative data were coded, and thematic analysis was done manually. RESULTS: The challenges and barriers at the level of people with TB were issues with communication between providers and people with TB, out-of-pocket expenditure, poor adherence to medicines, lack of proper diet, gender issues, and stigma. The challenges and barriers at the level of health-care providers were a lack of infrastructure and logistics, lack of awareness, COVID-19-related issues, lack of workforce, and technical issues. CONCLUSION: Communication between providers and people with TB must be improved to improve the drug adherence and satisfaction of the end user. Proper funding must be provided for the TB programs. People with TB must be counseled properly regarding the free health care services available near their homes to prevent out-of-pocket expenditure. These will help in fast-tracking the elimination of TB.


Assuntos
Pessoal de Saúde , Pesquisa Qualitativa , Tuberculose , Humanos , Masculino , Feminino , Tuberculose/terapia , Tuberculose/tratamento farmacológico , Pessoal de Saúde/psicologia , Índia , Adulto , Acessibilidade aos Serviços de Saúde , Estigma Social , Entrevistas como Assunto , COVID-19 , Gastos em Saúde/estatística & dados numéricos , Adesão à Medicação
10.
BMC Health Serv Res ; 24(1): 775, 2024 Jul 02.
Artigo em Inglês | MEDLINE | ID: mdl-38956535

RESUMO

BACKGROUND: The first crucial step towards military hospitals performance improvement is to develop a local and scientific tool to assess quality and safety based on the context and aims of military hospitals. This study introduces a Quality and Safety Assessment Framework (Q&SAF) for Iran's military hospitals. METHODS: This is a literature review which continued with a qualitative study. The Q&SAF for Iran's military hospitals was developed initially, through a review of the WHO's framework for hospital performance, literature review (other related framework), review of military hospital-related local documents, consultations with a national and sub-national expert. Finally, the Delphi technique used to finalize the framework. RESULTS: Based on the literature review results; 13 hospital Q&SAF were identified. After reviewing literature review results and expert opinions; Iran's military hospitals Q&SAF was developed with 58 indictors in five dimensions including clinical effectiveness, safety, efficiency, patient-centeredness, and Responsive Management (Command and Control). The efficiency dimension had the highest number of indictors (19 indictors), whereas the patient-centered dimension had the lowest number of indices (4 indictors). CONCLUSION: Regarding the comprehensiveness of the developed assessment framework due to its focus on the majority of quality dimensions and important components of the hospital's performance, it can be used as a useful tool for assessing and continuously improving the quality of hospitals, particularly military hospitals.


Assuntos
Hospitais Militares , Segurança do Paciente , Irã (Geográfico) , Hospitais Militares/normas , Humanos , Segurança do Paciente/normas , Técnica Delphi , Garantia da Qualidade dos Cuidados de Saúde/métodos , Gestão da Segurança/normas , Pesquisa Qualitativa
11.
Int J Technol Assess Health Care ; 40(1): e26, 2024 Jul 02.
Artigo em Inglês | MEDLINE | ID: mdl-38953740

RESUMO

BACKGROUND: This study investigated how patient representatives have experienced their involvement in medicines appraisal and reimbursement processes with the Council for Choices in Health Care in Finland (COHERE) and the Pharmaceuticals Pricing Board (PPB) and how authorities perceive the role of patient organizations' input. METHODS: Semi-structured thematic individual and pair interviews were conducted in 2021 with representatives (n = 14) of patient organizations and government officials (n = 7) of the Ministry of Social Affairs and Health. The interview data were analyzed using qualitative content analysis. RESULTS: Patient representatives expressed their appreciation for the PPB and the COHERE in creating consultation processes and systematic models that support involvement. However, there were many challenges: patient representatives were uncertain about how their submissions were utilized in official processes and whether their opinions had any significance in decision-making. Patients or patient organizations lack representation in appraisal and decision-making bodies, and patient representatives felt that decision-making lacked transparency. The importance of patient involvement was highlighted by the authorities, but they also emphasized that the patient organizations' contributions were complementary to the other materials. Submissions regarding the medications used to treat rare diseases and those with limited research evidence were considered particularly valuable. However, the submissions may not necessarily have a direct impact on decisions. CONCLUSIONS: The interviews provided relevant input for the development of involvement processes at the PPB and COHERE. The interviews confirmed the need for increased transparency in the medicines assessment, appraisal, and decision-making procedures in Finland.


Assuntos
Pesquisa Qualitativa , Finlândia , Humanos , Avaliação da Tecnologia Biomédica/organização & administração , Participação do Paciente , Entrevistas como Assunto , Tomada de Decisões , Mecanismo de Reembolso/organização & administração
12.
J Patient Rep Outcomes ; 8(1): 66, 2024 Jul 02.
Artigo em Inglês | MEDLINE | ID: mdl-38954112

RESUMO

BACKGROUND: As cancer centers have increased focus on patient-centered, evidenced-based care, implementing efficient programs that facilitate effective patient-clinician communication remains critical. We implemented an electronic health record-integrated patient-reported symptom and needs monitoring program ('cPRO' for cancer patient-reported outcomes). To aid evaluation of cPRO implementation, we asked patients receiving care in one of three geographical regions of an academic healthcare system about their experiences. METHODS: Using a sequential mixed-methods approach, we collected feedback in two waves. Wave 1 included virtual focus groups and interviews with patients who had completed cPRO. In Wave 2, we administered a structured survey to systematically examine Wave 1 themes. All participants had a diagnosed malignancy and received at least 2 invitations to complete cPRO. We used rapid and traditional qualitative methods to analyze Wave 1 data and focused on identifying facilitators and barriers to cPRO implementation. Wave 2 data were analyzed descriptively. RESULTS: Participants (n = 180) were on average 62.9 years old; were majority female, White, non-Hispanic, and married; and represented various cancer types and phases of treatment. Wave 1 participants (n = 37) identified facilitators, including cPRO's perceived value and favorable usability, and barriers, including confusion about cPRO's purpose and various considerations for responding. High levels of clinician engagement with, and patient education on, cPRO were described as facilitators while low levels were described as barriers. Wave 2 (n = 143) data demonstrated high endorsement rates of cPRO's usability on domains such as navigability (91.6%), comprehensibility (98.7%), and relevance (82.4%). Wave 2 data also indicated low rates of understanding cPRO's purpose (56.7%), education from care teams about cPRO (22.5%), and discussing results of cPRO with care teams (16.3%). CONCLUSIONS: While patients reported high value and ease of use when completing cPRO, they also reported areas of confusion, emphasizing the importance of patient education on the purpose and use of cPRO and clinician engagement to sustain participation. These results guided successful implementation changes and will inform future improvements.


Assuntos
Registros Eletrônicos de Saúde , Neoplasias , Medidas de Resultados Relatados pelo Paciente , Humanos , Feminino , Masculino , Pessoa de Meia-Idade , Neoplasias/terapia , Neoplasias/psicologia , Idoso , Grupos Focais , Pesquisa Qualitativa , Assistência Centrada no Paciente , Adulto
13.
Distúrbios Comun. (Online) ; 36(1): 1-9, 17/06/2024.
Artigo em Inglês, Português | LILACS | ID: biblio-1560876

RESUMO

Introdução: A longevidade é uma conquista na sociedade e dessa forma, é indispensável o apoio dos profissionais da saúde, a fim de ressignificar o envelhecimento. A promoção da saúde do idoso pode ser realizada por meio de ações em grupos. Objetivo: Compreender as ações promotoras da saúde, que são praticadas pelas pessoas idosas, participantes de atividades remotas em grupo. Metodologia: Estudo descritivo, exploratório de caráter qualitativo. Foram convidados idosos participantes de um projeto de extensão universitária. Os critérios de inclusão foram idade igual ou superior a 60 anos, independente do gênero, e grau de escolaridade. O grupo remoto ocorreu semanalmente, durante 13 encontros, com uma hora de duração. Os dados foram coletados através de uma entrevista semiestruturada contendo questões sobre a compreensão referente às ações promotoras da saúde que realizavam em seu cotidiano. As respostas foram categorizadas através da Análise de Conteúdo, modalidade temática. Resultados: Participaram 11 pessoas idosas, com idade entre 60 e 81 anos, predominantemente mulheres e viúvas. Três categorias emergiram das análises sendo elas: 1. Autocuidado: ações promotoras da saúde, 2. Dificuldades vivenciadas para promover a saúde; 3. Percepção sobre a qualidade de vida e satisfação quanto à saúde. Conclusão: A compreensão do grupo abarcou a promoção da saúde em seus aspectos físico, mental e o social, distanciando-se do pensamento focado na ausência de doença. Cada pessoa idosa maneja, a seu modo, as formas de se manter saudável. (AU)


Introduction: Longevity is an achievement in society and, therefore, the support of health professionals is essential to give new meaning to aging. Promoting the health of the elderly can be carried out through group actions. Objective: To understand health-promoting actions, which are practiced by elderly people, participants in a group of remote activities. Methodology: Descriptive, exploratory study of qualitative nature. Elderly people participating in a university extension project were invited. The inclusion criteria were age equal to or over 60 years old, regardless of gender, and level of education. The remote group took place weekly, for 13 meetings, lasting one hour. Data were collected through a semi-structured interview containing questions about understanding regarding the health-promoting actions they carried out in their daily lives. The responses were categorized using Content Analysis, thematic modality. Results: 11 elderly people participated, aged between 60 and 81 years, predominantly women and widows. Three categories emerged from the analyses: 1. Self-care: health-promoting actions, 2. Difficulties experienced to promote health; 3. Perception of quality of life and health satisfaction. Conclusion: The group's understanding encompassed the promotion of health in its physical, mental and social aspects, moving away from thinking focused on the absence of disease. Elderly people manage, in their own way, ways to stay healthy. (AU)


Introducción: La longevidad es un logro en la sociedad y, por ello, el apoyo de los profesionales de la salud es fundamental para darle un nuevo significado al envejecimiento. La promoción de la salud de las personas mayores se puede realizar a través de acciones grupales. Objetivo: Comprender acciones de promoción de la salud, practicadas por las personas mayores, participantes de un grupo de actividades a distancia. Metodología: Estudio descriptivo, exploratorio, de carácter cualitativo. Se invitó a personas mayores que participan en un proyecto de extensión universitaria. Los criterios de inclusión fueron edad igual o mayor a 60 años, independientemente del sexo y nivel de estudios. El grupo remoto se desarrolló semanalmente, durante 13 reuniones, con una duración de una hora. Los datos fueron recolectados a través de una entrevista semiestructurada que contenía preguntas sobre la comprensión de las acciones de promoción de la salud que realizaban en su vida diaria. Las respuestas fueron categorizadas mediante Análisis de Contenido, modalidad temática. Resultados: Participaron 11 personas mayores, con edades entre 60 y 81 años, predominantemente mujeres y viudas. De los análisis surgieron tres categorías: 1. Autocuidado: acciones promotoras de la salud, 2. Dificultades vividas en la promoción de la salud; 3. Percepción de calidad de vida y satisfacción con la salud. Conclusión: La comprensión del grupo abarcó la promoción de la salud en sus aspectos físicos, mentales y sociales, alejándose del pensamiento centrado en la ausencia de enfermedad. Cada persona mayor logra, a su manera, maneras de mantenerse saludable. (AU)


Assuntos
Humanos , Masculino , Feminino , Pessoa de Meia-Idade , Idoso , Idoso de 80 Anos ou mais , Envelhecimento , Compreensão , Promoção da Saúde/métodos , Satisfação Pessoal , Qualidade de Vida , Autocuidado , Saúde do Idoso , Inquéritos e Questionários , Pesquisa Qualitativa , Fonoaudiologia
14.
BMC Med Educ ; 24(1): 664, 2024 Jun 16.
Artigo em Inglês | MEDLINE | ID: mdl-38880886

RESUMO

BACKGROUND: There is increasing demand for professional practice placement opportunities, supported by health professional educators, to enable future health workforce development. Early career health professionals performing the educator role is one strategy that can help meet this demand. However, there is a need to consider how best to prepare and support early career health professionals to become educators. This study aimed to explore the experiences and perspectives of early career occupational therapy clinical educators including their preparation and support needs. METHODS: Semi-structured interviews were completed with ten early career occupational therapists who had supervised their first or second student on a professional practice placement. The participants worked within an Australian tertiary hospital and health service in various clinical settings. Interviews were completed within six weeks of placement completion and lasted approximately one hour. They were recorded and transcribed verbatim and reflexive inductive thematic analysis was undertaken to identify key themes. RESULTS: Ten occupational therapists, who had been working for an average of two years and two months, consented to participate. Initially, participants expressed mixed emotions about taking on the clinical educator role. They then described their adjustment to the role responsibilities, challenges encountered, and the development of the educator-student relationship. Participants found that the experience of supervising a student enhanced their educator, clinical, and professional skills and confidence. The important support elements of tailored educator preparation, placement design, and timely access to relevant resources and experienced staff were identified. CONCLUSIONS: This study demonstrated how early career health professionals can possess desirable educator attributes, such as enthusiasm for taking on the role and cultivating collaborative learning relationships with their students. The experience of being an educator also presents a professional development opportunity for early career health professionals. Insights gained about the specific preparation and support needs of early career clinical educators warrant consideration by organisations and staff involved in the provision of student professional practice placements. Overall, this study's findings signify the importance of engaging and investing in early career health professionals to support student clinical education and to develop our current and future healthcare workforce.


Assuntos
Pesquisa Qualitativa , Humanos , Austrália , Feminino , Masculino , Adulto , Terapeutas Ocupacionais/psicologia , Centros de Atenção Terciária , Terapia Ocupacional/educação , Entrevistas como Assunto
15.
Can Fam Physician ; 70(6): 396-403, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38886083

RESUMO

OBJECTIVE: To understand how lack of attachment to a regular primary care provider influences patients' outlooks on primary care, ability to address their health care needs, and confidence in the health care system. DESIGN: Qualitative descriptive study using semistructured interviews. SETTING: Canadian provinces of Nova Scotia, Ontario, and Quebec. PARTICIPANTS: Patients aged 18 years or older who were unattached or had become attached within 1 year of being interviewed and who resided in the province in which they were interviewed. METHODS: Forty-one semistructured interviews were conducted, during which participants were asked to describe how they had become unattached, their searches to find new primary care providers, their perceptions of and experiences with the centralized waiting list in their province, their experiences seeking care while unattached, and the impact of being unattached on their health and on their perceptions of the health care system. Interviews were transcribed and analyzed using a thematic approach. MAIN FINDINGS: Two main themes were identified in interviews with unattached or recently attached patients: unmet needs of unattached patients and the impact of being unattached. Patients' perceived benefits of attachment included access to care, longitudinal relationships with health care providers, health history familiarity, and follow-up monitoring and care coordination. Being unattached was associated with negative effects on mental health, poor health outcomes, decreased confidence in the health care system, and greater pre-existing health inequities. CONCLUSION: Having a regular primary care provider is essential to having access to high-quality care and other health care services. Attachment also promotes health equity and confidence in the public health care system and has broader system-level, social, and policy implications.


Assuntos
Acessibilidade aos Serviços de Saúde , Aceitação pelo Paciente de Cuidados de Saúde , Atenção Primária à Saúde , Pesquisa Qualitativa , Humanos , Feminino , Masculino , Pessoa de Meia-Idade , Adulto , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Canadá , Idoso , Entrevistas como Assunto , Relações Médico-Paciente
16.
Int J Public Health ; 69: 1606810, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38887723

RESUMO

Objectives: Community involvement depends on the level of linked and targeted activities for health by community members. This study examines the collaborations employed within communities to ensure sustainable access and improved use of healthcare in the community. Methods: This study was conducted in rural and urban local government areas in Anambra, Kano, and Akwa-Ibom, Nigeria. About 90 in-depth interviews and 12 focus group discussions were conducted with community stakeholders and service users. The findings were transcribed and coded via thematic analysis, guided by the Expanded Health Systems framework. Results: Various horizontal collaborations in communities foster increased use of PHC services; promoting community health. Major horizontal collaborations in these communities were community-led, primary health facility-led, and Individual-led collaborations. Their actions revolved around advocacy, building and renovating PHC centers, equipping facilities, and sensitization to educate community members on the need to utilize services at PHC centers. Conclusion: Strategic involvements and collaborations of local actors within communities give rise to improvements in the utilization of primary healthcare centres, reportedly resulting in improved access to PHC healthcare services for community members.


Assuntos
Grupos Focais , Acessibilidade aos Serviços de Saúde , Atenção Primária à Saúde , Cobertura Universal do Seguro de Saúde , Humanos , Atenção Primária à Saúde/organização & administração , Nigéria , Acessibilidade aos Serviços de Saúde/organização & administração , Comportamento Cooperativo , Entrevistas como Assunto , Feminino , Masculino , Participação da Comunidade , Pesquisa Qualitativa , População Rural
17.
BMC Prim Care ; 25(1): 212, 2024 Jun 12.
Artigo em Inglês | MEDLINE | ID: mdl-38867162

RESUMO

BACKGROUND: More and more people suffer from concomitant chronic physical diseases and common mental disorders, calling for integrated self-management support in primary care. However, self-management support of chronic physical diseases and common mental disorders is not clearly operationalized by guidelines and is still conducted in silos by primary care nurses, especially in favour of chronic diseases. This study aims to better understand primary care nurses' experience of integrated self-management support for people with physical chronic diseases and common mental disorders. METHODS: An interpretive descriptive qualitative approach was conducted with 23 primary care nurses from family medicine groups in Quebec (Canada). They were selected through purposive and snowball sampling methods to participate in an individual interview. Data were analysed using an iterative inductive and deductive analysis (Rainbow Model of Integrated Care and the Practical Reviews in Self-Management Support (PRISMS) taxonomy). RESULTS: Nurses' experience of integrated self-management support for people with CD and CMD was structured around: (1) elements of the approach; (2) clinical integration through prevention and health promotion; and (3) operationalization of integrated self-management support. Several elements deemed essential to integrated self-management support were identified. Nurses offered integrated self-management support through prevention of risk factors and promotion of a healthy lifestyle for physical chronic diseases and common mental disorders. Nurses' self-management support activities included education, action plans, monitoring, and many practical, psychological, and social support strategies. A model of integrated self-management support for primary care nursing is proposed to better understand its clinical integration. CONCLUSION: This study presents clinical integration of self-management support and activities for people with physical chronic diseases and common mental disorders in primary care settings. Understanding integrated self-management support will help implement future interventions.


Assuntos
Transtornos Mentais , Pesquisa Qualitativa , Autogestão , Humanos , Doença Crônica/psicologia , Transtornos Mentais/terapia , Transtornos Mentais/enfermagem , Feminino , Masculino , Adulto , Enfermagem de Atenção Primária , Pessoa de Meia-Idade , Quebeque , Atenção Primária à Saúde , Prestação Integrada de Cuidados de Saúde , Promoção da Saúde/métodos
18.
J Public Health Manag Pract ; 30(4): E165-E173, 2024.
Artigo em Inglês | MEDLINE | ID: mdl-38870385

RESUMO

CONTEXT: Recent national guidelines aimed at addressing equity in health care settings have contributed to an increase in equity officer positions, yet little is known about their roles, responsibilities, or strategies for engaging in health equity work. OBJECTIVE: To understand the roles and responsibilities of equity officers, as well as facilitators and barriers to their success. DESIGN: In-depth semi-structured interviews with selected respondents from the Equity Officer National Study. SETTING: Hospitals and health care systems across the United States. PARTICIPANTS: Twenty-six equity officers who had responded to the Equity Officer National Study survey. MAIN OUTCOME MEASURES: The interview guide explored strategies, facilitators, and barriers for engaging in health equity work in hospitals/health systems and communities. RESULTS: The job roles described by participants fell into 4 categories: community benefits/relations, population/community health, workforce, and health equity. Equity officers described key areas to support success at the individual equity officer level: knowledge and expertise, professional skills, and interpersonal skills; at the hospital level: leadership, workforce, infrastructure and resources, and policies and processes; at the community level: leadership and partnerships; and at the system level: requirements and regulations, investment and resources, and sociocultural and political characteristics of the community. These key areas have been organized to create a Framework for Equity Officer Success. CONCLUSIONS: The Framework for Equity Officer Success should be incorporated into hospital board, community stakeholder, and policymaker discussions about how to support health equity work in hospitals and health care systems.


Assuntos
Equidade em Saúde , Papel Profissional , Pesquisa Qualitativa , Humanos , Equidade em Saúde/normas , Equidade em Saúde/tendências , Estados Unidos , Entrevistas como Assunto/métodos , Masculino , Feminino , Liderança
19.
BMC Prim Care ; 25(1): 214, 2024 Jun 13.
Artigo em Inglês | MEDLINE | ID: mdl-38872119

RESUMO

BACKGROUND: The integration of mental health into primary care-i.e., the process by which a range of essential mental health care and services are made available in existing multipurpose health care settings that did not previously provide them-can be facilitated or hindered by several health system factors that are still poorly understood. This study aimed to identify health system facilitators and barriers to the integration of mental health services into primary care in the Democratic Republic of the Congo (DRC) to improve the success rate of integration programs. METHODS: We conducted a multimethod, cross-sectional exploratory study. Stakeholders (managers, health service providers, service users, etc.) from sixteen of the twenty-six provinces of the DRC participated. We collected qualitative data through 31 individual, semistructured, face-to-face key informant interviews. We then collected quantitative data through a population-based survey of 413 respondents. We analyzed the interviews via thematic analysis, assigning verbatims to predefined themes and subthemes. For the survey responses, we performed descriptive analysis followed by binomial logistic regression to explore the associations between the variables of interest. RESULTS: Strong leadership commitment, positive attitudes toward mental health care, the availability of care protocols, mental health task sharing (p < 0.001), and sufficient numbers of primary care providers (PCPs) (p < 0.001) were identified as key health system facilitators of successful integration. However, barriers to integration are mainly related to a poor understanding of what integration is and what it is not, as well as to the poor functionality and performance of health facilities. In addition, stigma, low prioritization of mental health, lack of mental health referents, low retention rate of trained health professionals, lack of reporting tools, lack of standardized national guidelines for integration (p < 0.001), lack of funding (p < 0.001), shortage of mental health specialists to coach PCPs (p < 0.001), and lack of psychotropic medications (p < 0.001) were identified as health system barriers to integration. CONCLUSION: Improving the functionality of primary care settings before integrating mental health care would be beneficial for greater success. In addition, addressing identified barriers, such as lack of funding and mental health-related stigma, requires multistakeholder action across all building blocks of the health system.


Assuntos
Prestação Integrada de Cuidados de Saúde , Serviços de Saúde Mental , Atenção Primária à Saúde , Humanos , República Democrática do Congo , Atenção Primária à Saúde/organização & administração , Serviços de Saúde Mental/organização & administração , Estudos Transversais , Prestação Integrada de Cuidados de Saúde/organização & administração , Feminino , Masculino , Adulto , Atitude do Pessoal de Saúde , Pessoa de Meia-Idade , Liderança , Acessibilidade aos Serviços de Saúde/organização & administração , Pesquisa Qualitativa
20.
BMC Health Serv Res ; 24(1): 725, 2024 Jun 13.
Artigo em Inglês | MEDLINE | ID: mdl-38872136

RESUMO

BACKGROUND/OBJECTIVES: As part of a larger study, and in collaboration with rural primary health care teams, RaDAR (Rural Dementia Action Research) primary care memory clinics have evolved and continue to spread in communities across southeast Saskatchewan, Canada. This study focuses on the geographical areas of the four communities where RaDAR memory clinics were first developed and implemented and describes the services and supports available to older adults including memory clinic patients and families living in these areas. Our goal was to identify and describe existing programs and gaps, create inventories and maps, and explore the service experiences of family caregivers of people living with dementia in these rural areas. METHODS: Using a qualitative descriptive design, an environmental scan of services was conducted from December 2020 to April 2021 using focus groups (n = 4) with health care providers/managers (n = 12), a secondary source (e.g., program brochures) review, and a systematic internet search targeting four RaDAR memory clinic communities and surrounding areas via community websites, online resources, and the 211 Saskatchewan service database. Data were analyzed using content analysis; findings informed semi-structured interviews with caregivers (n = 5) conducted from March to July 2022, which were analyzed thematically. Geographic areas explored in this study covered an area of approximately 5666 km2. RESULTS: From the scan, 43 services were identified, categorized into 7 service types, and mapped by location. Seventeen services were dementia-related. Services included social/leisure activities (n = 14), general support/referrals (n = 13), transportation (n = 7), information/education (n = 4), respite (n = 2), in-home care (n = 2), and safety (n = 1). Service levels included local (n = 24), provincial (n = 17), and national (n = 2), and were offered in-person, remotely (or both) with 20 services across 4 service types offered remotely. In general, most services had no fees, involved self-referral, and providers had a range of education/training. Key interview themes reflected the need for locally available, accessible services that offer (i) individualized, flexible, needs-based approaches, (ii) in-home care and continuity of care, and (iii) both formal and informal supports. Key gaps were identified, including (i) locally accessible, available services and resources in general, (ii) dementia-related training and education for service providers, and (iii) awareness of available services. Benefits of services, consequences of gaps, and recommendations to address gaps were reported. In general, service providers and program participants were an even mix of females and males, and program content was gender neutral. CONCLUSIONS: Findings highlight a range of available services, and a number of varied service-user experiences and perspectives, in these rural areas. Key service gaps were identified, and caregivers made some specific recommendations to address these gaps. Findings underscore multiple opportunities to inform service delivery and program participation for rural and remote people living with dementia and their families.


Assuntos
Demência , Atenção Primária à Saúde , Pesquisa Qualitativa , Serviços de Saúde Rural , Humanos , Saskatchewan , Idoso , Atenção Primária à Saúde/organização & administração , Demência/terapia , Serviços de Saúde Rural/organização & administração , Masculino , Feminino , Cuidadores/psicologia , Acessibilidade aos Serviços de Saúde , População Rural/estatística & dados numéricos , Grupos Focais , Idoso de 80 Anos ou mais
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