Recontact in clinical practice: a survey of clinical genetics services in the United Kingdom.
Genet Med
; 18(9): 876-81, 2016 09.
Article
em En
| MEDLINE
| ID: mdl-26890453
ABSTRACT
PURPOSE:
To ascertain whether and how recontacting occurs in the United Kingdom.METHOD:
A Web-based survey was administered online between October 2014 and July 2015. A link to the survey was circulated via an e-mail invitation to the clinical leads of the United Kingdom's 23 clinical genetics services, with follow-up with senior clinical genetics staff.RESULTS:
The majority of UK services reported that they recontact patients and their family members. However, recontacting generally occurs in an ad hoc fashion when an unplanned event causes clinicians to review a file (a "trigger"). There are no standardized recontacting practices in the United Kingdom. More than half of the services were unsure whether formalized recontacting systems should be implemented. Some suggested greater patient involvement in the process of recontacting.CONCLUSION:
This research suggests that a thorough evaluation of the efficacy and sustainability of potential recontacting systems within the National Health Service would be necessary before deciding whether and how to implement such a service or to create guidelines on best-practice models.Genet Med 18 9, 876-881.
Texto completo:
1
Temas:
ECOS
/
Estado_mercado_regulacao
Bases de dados:
MEDLINE
Assunto principal:
Dever de Recontatar
/
Genética Médica
/
Serviços de Saúde
Tipo de estudo:
Guideline
/
Qualitative_research
Aspecto:
Determinantes_sociais_saude
Limite:
Humans
País/Região como assunto:
Europa
Idioma:
En
Revista:
Genet Med
Assunto da revista:
GENETICA MEDICA
Ano de publicação:
2016
Tipo de documento:
Article
País de afiliação:
Reino Unido