Assessment of patient-reported outcomes in retinal diseases: a systematic review.
Surv Ophthalmol
; 62(4): 546-582, 2017.
Article
em En
| MEDLINE
| ID: mdl-28062197
ABSTRACT
Advances in the understanding of the genetic, molecular, and cellular biology of retinal diseases have led to the development of new treatments. These expanding treatment options demand appropriate outcome measures for studies of treatment benefit including patient-reported outcomes (PROs). A plethora of PRO instruments assess impacts of retinal diseases from the patients' perspectives. We review all the studies that implemented PRO assessment in retinal diseases and also discuss quality assessment of the PRO instruments. We also include qualitative studies that explored quality of life impact on people with retinal diseases. Most studies used PRO instruments not specifically developed for retinal diseases (non-disease specific), nor have they undergone comprehensive validation in this disease group. A few retina-specific PRO instruments are available, but they suffer from limited content coverage of quality of life. Finally, we discuss the need for a new comprehensive and technologically advanced PRO instrument to assess quality of life impacts in retinal diseases.
Palavras-chave
Texto completo:
1
Temas:
ECOS
/
Aspectos_gerais
Bases de dados:
MEDLINE
Assunto principal:
Qualidade de Vida
/
Doenças Retinianas
/
Autoavaliação (Psicologia)
/
Satisfação do Paciente
/
Pesquisa Qualitativa
/
Medidas de Resultados Relatados pelo Paciente
Tipo de estudo:
Qualitative_research
/
Systematic_reviews
Aspecto:
Patient_preference
Limite:
Humans
Idioma:
En
Revista:
Surv Ophthalmol
Ano de publicação:
2017
Tipo de documento:
Article
País de afiliação:
Austrália